Primary care practitioners in the UK today undertake more responsibility for the management of chronic diseases than ever before, including the monitoring of medications initiated…
Abstract
Primary care practitioners in the UK today undertake more responsibility for the management of chronic diseases than ever before, including the monitoring of medications initiated in the secondary care setting. This has not necessarily been accompanied by the introduction of guidelines or additional funding. Examining the aminosalicylate group of drugs (sulfasalazine, mesalazine, olsalazine and balsalazide), it was found that despite their potential to cause life‐threatening adverse reactions, there is no agreed protocol on the most appropriate type and frequency of monitoring. A search of the literature confirmed that there is a paucity of evidence from which to construct a guideline. An audit of one family practice suggests current levels fall short of a minimal standard. Based on the current best available evidence, a protocol is suggested for aminosalicylate monitoring. Other groups of drugs warrant similar attention in primary care, and issues regarding funding for the responsibility and cost of monitoring need addressing.
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Matthew Bennett and Emma Goodall
In the field of autism spectrum research, there has been a tendency to examine autistics without intellectual disabilities. This focus has come at the expense of examining their…
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In the field of autism spectrum research, there has been a tendency to examine autistics without intellectual disabilities. This focus has come at the expense of examining their peers with intellectual disabilities, who are generally regarded as needing more assistance due to more complex support needs. This chapter begins by defining intellectual disability, followed by an examination of the literature about the prevalence of intellectual disability in the autistic population. The results from the American Government's Centres for Disease Control and Prevention (CDC) Autism and Developmental Monitoring (ADDM) Network about the proportion of autistics with intellectual disabilities are then outlined. Following this, the results from studies about the proportion of autistics with intellectual disabilities are presented. The goal of this section is to show that despite there being evidence that about a quarter of the autistic population have an intellectual disability, this cohort is underrepresented within research about the autism spectrum. Two reasons for this discrepancy are then outlined. This chapter concludes with three suggestions for where more research can be conducted into autistics who have an intellectual disability.
The original contribution that this chapter makes to the field of autism research is to highlight the lack of literature about members of the autistic community who have an intellectual disability as well as presenting several reasons for this lack of research and directions for research in the future.
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Matthew Bennett and Emma Goodall
In this book it was proposed that autistic females and African American autistics are usually not participants in autistic research because they rarely receive an autism…
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In this book it was proposed that autistic females and African American autistics are usually not participants in autistic research because they rarely receive an autism diagnosis. If diagnostic services were made more congenial for autistics from these groups, then the prospect of them being diagnosed as autistic and being available to be research participants would increase. To help achieve this outcome, this chapter begins by presenting some typical barriers that autistics encounter when trying to access autism diagnostic services. This is followed by an explanation of some consequences of this exclusion for autistics, their families and the research community. In an attempt to mitigate these consequences, and to increase the pool of potential autistic candidates for research, this chapter concludes with a series of suggestions to improve the public's accessibility to autism diagnostic services as well as suggestions for improving the autism diagnostic process for both children and adults.
The contribution that this chapter makes to the field of autism spectrum research is to provide clinicians with some important concepts that will help autistics feel valued and accepted during the diagnostic process. A potential flow-on effect of this knowledge is that more autistics who have experienced feeling valued and accepted by clinicians will be more inclined to be involved in research.
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Matthew Bennett and Emma Goodall
This chapter focusses on the lack of research about fathers raising autistic children. It begins by presenting the results in the Braunstein, Peniston, Perelman, and Cassano (2013)…
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This chapter focusses on the lack of research about fathers raising autistic children. It begins by presenting the results in the Braunstein, Peniston, Perelman, and Cassano (2013) study, which showed that there is not much research about fathers raising autistic children compared to mothers raising autistic children. Some of the key issues in research about these fathers, such as paternal experiences of raising an autistic child, are then presented. Several areas where more research can be conducted in the future are then outlined. These suggestions are based on the limitations in the examined studies and consequently what types of research could be conducted to address these limitations. Addressing such gaps can only occur if there are strategies that can be used to recruit fathers into autism research. To this end, some of the main recommendations in Davison et al.'s study about how to recruit fathers into studies are presented.
The original contribution that this chapter makes to the field of autism spectrum research is to explain areas where there is a lack of research about fathers raising autistic children as well as potential strategies that can be used to stimulate their interest in participating in such research.
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Coparenting is a complex construct showing the quality of parental beliefs, motives, and actions related to cooperation in the child-rearing process. Its important role has been…
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Coparenting is a complex construct showing the quality of parental beliefs, motives, and actions related to cooperation in the child-rearing process. Its important role has been proven in child development and in shaping parents’ quality of life outcomes or marital satisfaction. This chapter presents the results of a study aimed at exploring the significance of selected parenting and child-related variables for the various components of coparenting in families with a child with disabilities. Material was collected in a group of 118 parenting couples using The Coparenting Relationship Scale. It was found that fathers scored higher in Coparenting Undermining and Endorse Partner Parenting. The variable of education was significant: parents with higher education showed the highest parental compatibility, and mothers also showed relatively highest satisfaction with the division of responsibilities. Parental age, age, and gender of the child with a disability were not significant. Difficult behaviors in the child correlated negatively with favorable coparenting components in parents and positively with unfavorable ones. Functional status was negatively associated with Coparenting Agreement and Endorse Partner in fathers. The complementarity of parental roles must be taken into account in the process of specialized support from psychologists, school counselors, social workers, etc.