Appendices
Matthew Bennett
(Independent Researcher, Australia)
Emma Goodall
(University of Southern Queensland, Australia)
ISBN: 978-1-80455-034-2, eISBN: 978-1-80455-033-5
Publication date: 27 September 2022
Citation
Bennett, M. and Goodall, E. (2022), "Appendices", Autism and COVID-19, Emerald Publishing Limited, Leeds, pp. 85-170. https://doi.org/10.1108/978-1-80455-033-520221009
Publisher
:Emerald Publishing Limited
Copyright © 2022 Matthew Bennett and Emma Goodall. Published under exclusive licence by Emerald Publishing Limited
Appendix 1 – Results from the PubMed Search Conducted on 4 July 2021 and 27 May 2022, Using the ‘(autis*[Title/Abstract]) AND (Covid*[Title/Abstract])’ Search Formula
| PubMed ID | Article Title | Author(s) | Citation | Inclusion/Exclusion and Why |
|---|---|---|---|---|
| 33367907 a | Psychological and Behavioral Impact of Lockdown and Quarantine Measures for COVID-19 Pandemic on Children, Adolescents and Caregivers: A Systematic Review and Meta-Analysis | Panda PK, Gupta J, Chowdhury SR, Kumar R, Meena AK, Madaan P, Sharawat IK, Gulati S. | J Trop Pediatr. 2021 Jan 29;67(1):fmaa122. doi: 10.1093/tropej/fmaa122. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33328021 a | Psychiatric Disorders in Children and Adolescents during the COVID-19 Pandemic | Palacio-Ortiz JD, Londoño-Herrera JP, Nanclares-Márquez A, Robledo-Rengifo P, Quintero-Cadavid CP. | Rev Colomb Psiquiatr (Engl Ed). 2020 Oct-Dec;49(4):279–288. doi: 10.1016/j.rcp.2020.05.006. Epub 2020 Jul 17. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33034366 a | The Impact of COVID-19 on Children with Autism Spectrum Disorder | Amorim R, Catarino S, Miragaia P, Ferreras C, Viana V, Guardiano M. | Rev Neurol. 2020 Oct 16;71(8):285–291. doi: 10.33588/rn.7108.2020381. | Excluded – Article published in Spanish |
| 34112355 a | Zinc | Skalny AV, Aschner M, Tinkov AA. | Adv Food Nutr Res. 2021;96:251–310. doi: 10.1016/bs.afnr.2021.01.003. Epub 2021 May 24. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 32416411 a | COVID-19 and Autism | Steinman G. | Med Hypotheses. 2020 Sep;142:109797. doi: 10.1016/j.mehy.2020.109797. Epub 2020 May 1. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 32404232 a | COVID-19 and People with Intellectual Disability: Impacts of a Pandemic | Courtenay K, Perera B. | Ir J Psychol Med. 2020 Sep;37(3):231–236. doi: 10.1017/ipm.2020.45. Epub 2020 May 14. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33466265 * a | Autism, Therapy and COVID-19 | Sergi L, Mingione E, Ricci MC, Cavallaro A, Russo F, Corrivetti G, Operto FF, Frolli A. | Pediatr Rep. 2021 Jan 5;13(1):35–44. doi: 10.3390/pediatric13010005. | Removed after the fourth step in PRISMA process |
| 33921113 a | COVID-19 and Pregnancy: Vertical Transmission and Inflammation Impact on Newborns | Joma M, Fovet CM, Seddiki N, Gressens P, Laforge M. | Vaccines (Basel). 2021 Apr 15;9(4):391. doi: 10.3390/vaccines9040391. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33164601 a | COVID-19 during Pregnancy and Postpartum | Naidu SAG, Clemens RA, Pressman P, Zaigham M, Kadkhoda K, Davies KJA, Naidu AS. | J Diet Suppl. 2022;19(1):115–142. doi: 10.1080/19390211.2020.1834049. Epub 2020 Nov 8. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 32986631 a | The Impact of the COVID-19 Pandemic on Children with Autism Spectrum Disorders | Bellomo TR, Prasad S, Munzer T, Laventhal N. | J Pediatr Rehabil Med. 2020;13(3):349–354. doi: 10.3233/PRM-200740. | Excluded – Opinion piece, commentary or letter to the editor |
| 32998512 a | Neurological, Neuropsychiatric and Neurodevelopmental Complications of COVID-19 | Pantelis C, Jayaram M, Hannan AJ, Wesselingh R, Nithianantharajah J, Wannan CM, Syeda WT, Choy KC, Zantomio D, Christopoulos A, Velakoulis D, O'Brien TJ. | Aust N Z J Psychiatry. 2021 Aug;55(8):750–762. doi: 10.1177/0004867420961472. Epub 2020 Oct 1. | Excluded – Opinion piece, commentary or letter to the editor |
| 32998024 a | Supporting Children with Neurodevelopmental Disorders during the COVID-19 Pandemic | Summers J, Baribeau D, Mockford M, Goldhopf L, Ambrozewicz P, Szatmari P, Vorstman J. | J Am Acad Child Adolesc Psychiatry. 2021 Jan;60(1):2–6. doi: 10.1016/j.jaac.2020.09.011. Epub 2020 Sep 27. | Excluded – Opinion piece, commentary or letter to the editor |
| 33504101 * a | A Qualitative Study of Child and Adolescent Mental Health during the COVID-19 Pandemic in Ireland | O'Sullivan K, Clark S, McGrane A, Rock N, Burke L, Boyle N, Joksimovic N, Marshall K. | Int J Environ Res Public Health. 2021 Jan 25;18(3):1062. doi: 10.3390/ijerph18031062. | Removed after the fourth step in PRISMA process |
| 32503172 a | Psychosocial and Behavioral Impact of COVID-19 in Autism Spectrum Disorder: An Online Parent Survey | Colizzi M, Sironi E, Antonini F, Ciceri ML, Bovo C, Zoccante L. | Brain Sci. 2020 Jun 3;10(6):341. doi: 10.3390/brainsci10060341. | Included in final analysis |
| 33715904 a | Vaccine Hesitancy and Anti-vaccination in the Time of COVID-19: A Google Trends Analysis | Pullan S, Dey M. | Vaccine. 2021 Apr 1;39(14):1877–1881. doi: 10.1016/j.vaccine.2021.03.019. Epub 2021 Mar 6. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34024500 a | Maternal Nutrients and Effects of Gestational COVID-19 Infection on Fetal Brain Development | Hoffman MC, Freedman R, Law AJ, Clark AM, Hunter SK. | Clin Nutr ESPEN. 2021 Jun;43:1–8. doi: 10.1016/j.clnesp.2021.04.019. Epub 2021 Apr 29. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33304279 a | Behavioral Implications of the Covid-19 Process for Autism Spectrum Disorder, and Individuals' Comprehension of and Reactions to the Pandemic Conditions | Mutluer T, Doenyas C, Aslan Genc H. | Front Psychiatry. 2020 Nov 16;11:561882. doi: 10.3389/fpsyt.2020.561882. eCollection 2020. | Included in final analysis |
| 34002837 a | Impact of COVID-19 Pandemic Lockdown on Occupational Therapy Practice and Use of Telerehabilitation – A Cross Sectional Study | Ganesan B, Fong KNK, Meena SK, Prasad P, Tong RKY. | Eur Rev Med Pharmacol Sci. 2021 May;25(9):3614–3622. doi: 10.26355/eurrev_202105_25845. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33229969 a | Autism and Access to Care during the COVID-19 Crisis | Nadler C, Godwin DL, Dempsey J, Nyp SS. | J Dev Behav Pediatr. 2021 Jan 1;42(1):73–75. doi: 10.1097/DBP.0000000000000894. | Excluded – Case study |
| 32445682 a | COVID-19: Overcoming the Challenges Faced by Individuals with Autism and Their Families | Eshraghi AA, Li C, Alessandri M, Messinger DS, Eshraghi RS, Mittal R, Armstrong FD. | Lancet Psychiatry. 2020 Jun;7(6):481–483. doi: 10.1016/S2215-0366(20)30197-8. Epub 2020 May 20. | Excluded – Opinion piece, commentary or letter to the editor |
| 33649707 a | COVID-19 Pandemic Effects in People with Autism Spectrum Disorder and Their Caregivers: Evaluation of Social Distancing and Lockdown Impact on Mental Health and General Status | Lugo-Marín J, Gisbert-Gustemps L, Setien-Ramos I, Español-Martín G, Ibañez-Jimenez P, Forner-Puntonet M, Arteaga-Henríquez G, Soriano-Día A, Duque-Yemail JD, Ramos-Quiroga JA. | Res Autism Spectr Disord. 2021 May;83:101757. doi: 10.1016/j.rasd.2021.101757. Epub 2021 Feb 25. | Included in final analysis |
| 33435701 a | Core Experiences of Parents of Children with Autism during the COVID-19 Pandemic Lockdown | Tokatly Latzer I, Leitner Y, Karnieli-Miller O. | Autism. 2021 May;25(4):1047–1059. doi: 10.1177/1362361320984317. Epub 2021 Jan 12. | Included in final analysis |
| 33915884 a | Quality of Life Changes during the COVID-19 Pandemic for Caregivers of Children with ADHD and/or ASD | Pecor KW, Barbayannis G, Yang M, Johnson J, Materasso S, Borda M, Garcia D, Garla V, Ming X. | Int J Environ Res Public Health. 2021 Apr 1;18(7):3667. doi: 10.3390/ijerph18073667. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 32808424 a | Examining the Impact of COVID-19 in Ethnically Diverse Families with Young Children with Intellectual and Developmental Disabilities | Neece C, McIntyre LL, Fenning R. | J Intellect Disabil Res. 2020 Oct;64(10):739–749. doi: 10.1111/jir.12769. Epub 2020 Aug 18. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33271447 a | Stress and Emotional Wellbeing of Parents Due to Change in Routine for Children with Autism Spectrum Disorder (ASD) at Home during COVID-19 Pandemic in Saudi Arabia | Alhuzimi T. | Res Dev Disabil. 2021 Jan;108:103822. doi: 10.1016/j.ridd.2020.103822. Epub 2020 Nov 30. | Included in final analysis |
| 34459536 b | Editorial: Are Our Kids Getting a Fair Deal? | Merry S. | Child Adolesc Ment Health. 2021 Sep;26(3):193–194. doi: 10.1111/camh.12498. | Excluded – Opinion piece, commentary or letter to the editor |
| 32932951 a | Autism and COVID-19: A Case Series in a Neurodevelopmental Unit | Nollace L, Cravero C, Abbou A, Mazda-Walter B, Bleibtreu A, Pereirra N, Sainte-Marie M, Cohen D, Giannitelli M. | J Clin Med. 2020 Sep 11;9(9):2937. doi: 10.3390/jcm9092937. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34619812 b | Autism and COVID-19: Clinical Considerations | Naguy A, Pridmore S, Alamiri B. | Prim Care Companion CNS Disord. 2021 Oct 7;23(5):21com03035. doi: 10.4088/PCC.21com03035. | Excluded – Opinion piece, commentary or letter to the editor |
| 34393463 b | Autistic Traits and Gender Modulate Emotion Changes before and during the COVID-19 Pandemic | Zhao X, Zhao B, Li W, Cai Y, Shi W, Li C. | Curr Psychol. 2021 Aug 7:1–11. doi: 10.1007/s12144-021-02170-z. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35363281 b | Autism and COVID-19 | Fernandes P, Kwak H. | Pediatrics. 2022 Apr 1;149(Suppl 4):e2020049437O. doi: 10.1542/peds.2020-049437O. | Excluded – Opinion piece, commentary or letter to the editor |
| 34792882 b | Neurological Complications of COVID-19: Review of Literature and Own Experience | Prikazchikov SV, Generalov VO, Sadykov TR, Mamedov LA. | Probl Sotsialnoi Gig Zdravookhranenniiai Istor Med. 2021 Aug;29(Special Issue):1304–1310. doi: 10.32687/0869-866X-2021-29-s2-1304-1310. | Excluded – Article published in Russian |
| 32474941 a | Editorial Perspective: Perils and Promise for Child and Adolescent Sleep and Associated Psychopathology during the COVID-19 Pandemic | Becker SP, Gregory AM. | J Child Psychol Psychiatry. 2020 Jul;61(7):757–759. doi: 10.1111/jcpp.13278. Epub 2020 May 31. | Excluded – Opinion piece, commentary or letter to the editor |
| 32779748 a | Editorial Perspective: COVID-19 Pandemic-Related Psychopathology in Children and Adolescents with Mental Illness | Jefsen OH, Rohde C, Nørremark B, Østergaard SD. | J Child Psychol Psychiatry. 2021 Jun;62(6):798–800. doi: 10.1111/jcpp.13292. Epub 2020 Jul 7. | Excluded – Opinion piece, commentary or letter to the editor |
| 34001500 a | COVID-19 Health and Social Care Access for Autistic People: European Policy Review | Oakley B, Tillmann J, Ruigrok A, Baranger A, Takow C, Charman T, Jones E, Cusack J, Doherty M, Violland P, Wroczyńska A, Simonoff E, Buitelaar JK, Gallagher L, Murphy DGM; AIMS-2-TRIALS ECRAN & the AIMS-2-TRIALS Consortium. | BMJ Open. 2021 May 17;11(6):e045341. doi: 10.1136/bmjopen-2020-045341. | Excluded – Opinion piece, commentary or letter to the editor |
| 34203463 a | A Pilot Study on Covid and Autism: Prevalence, Clinical Presentation and Vaccine Side Effects | Brondino N, Bertoglio F, Forneris F, Faravelli S, Borghesi A, Damiani S, Provenzani U, Nola M, Olivola M, Caviglia M, Politi P, Fusar-Poli L, Fusar-Poli P. | Brain Sci. 2021 Jun 28;11(7):860. doi: 10.3390/brainsci11070860. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33736746 a | COVID-19-Related Prescribing Challenge in Intellectual Disability | Rauf B, Sheikh H, Majid H, Roy A, Pathania R. | BJPsych Open. 2021 Mar 19;7(2):e66. doi: 10.1192/bjo.2021.26. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34611574 b | COVID-19 and Food-Related Outcomes in Children with Autism Spectrum Disorder: Disparities by Income and Food Security Status | Panjwani AA, Bailey RL, Kelleher BL. | Curr Dev Nutr. 2021 Sep 3;5(9):nzab112. doi: 10.1093/cdn/nzab112. eCollection 2021 Sep. | Included in the post-survey analysis |
| 34173571 a | COVID-19 and Autism: Uncertainty, Distress and Feeling Forgotten | Patel JA, Badiani AA, Nielsen FBH, Assi S, Unadkat V, Patel B, Courtney C, Hallas L. | Public Health Pract (Oxf). 2020 Nov;1:100034. doi: 10.1016/j.puhip.2020.100034. Epub 2020 Dec 22. | Excluded – Opinion piece, commentary or letter to the editor |
| 33913261 a | The Impact of COVID-19 on Stress, Anxiety, and Coping in Youth with and Without Autism and Their Parents | Corbett BA, Muscatello RA, Klemencic ME, Schwartzman JM. | Autism Res. 2021 Jul;14(7):1496–1511. doi: 10.1002/aur.2521. Epub 2021 Apr 29. | Included in final analysis |
| 33679571 a | Neurologic Care of COVID-19 in Children | Boronat S. | Front Neurol. 2021 Feb 18;11:613832. doi: 10.3389/fneur.2020.613832. eCollection 2020. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 32405083 a | Appreciating COVID-19 as a Child and Adolescent Psychiatrist on the Move | Cohen D. | Encephale. 2020 Jun;46(3S):S99-S106. doi: 10.1016/j.encep.2020.05.005. Epub 2020 May 13. | Excluded – Article published in French |
| 33434768 a | Social Communication of Affective States | Sterley TL, Bains JS. | Curr Opin Neurobiol. 2021 Jun;68:44–51. doi: 10.1016/j.conb.2020.12.007. Epub 2021 Jan 9. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35321368 b | Psycho-Social Consequences Associated with COVID-19 in People with ASD and Their Families: A Literature Review | Aarabi MA, Abdi K, Khanjani MS. | Med J Islam Repub Iran. 2021 Oct 7;35:131. doi: 10.47176/mjiri.35.131. eCollection 2021. | Included in the post-survey analysis |
| 33984425 a | Editorial: Mental Health and Schools: Has the Time Arrived? | Pumariega AJ. | J Am Acad Child Adolesc Psychiatry. 2021 Dec;60(12):1454–1456. doi: 10.1016/j.jaac.2021.05.001. Epub 2021 May 11. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34508208 b | The New Normal – Dentistry and the Autistic Patient | Bellis W. | Br Dent J. 2021 Sep;231(5):303–304. doi: 10.1038/s41415-021-3376-2. Epub 2021 Sep 10. | Excluded – Opinion piece, commentary or letter to the editor |
| 34147945 * a | COVID-19 and Behaviors in Children with Autism Spectrum Disorder: Disparities by Income and Food Security Status | Panjwani AA, Bailey RL, Kelleher BL. | Res Dev Disabil. 2021 Aug;115:104002. doi: 10.1016/j.ridd.2021.104002. Epub 2021 Jun 1. | Removed after the fourth step in PRISMA process |
| 33735741 a | COVID-19 and Social Responsiveness: A Comparison between Children with Sotos Syndrome and Autism | Siracusano M, Riccioni A, Fagiolo I, Segatori E, Gialloreti LE, Galasso C, Curatolo P, Mazzone L. | Psychiatry Res. 2021 May;299:113851. doi: 10.1016/j.psychres.2021.113851. Epub 2021 Mar 2. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34114135 a | Telehealth and Autism Prior to and in the Age of COVID-19: A Systematic and Critical Review of the Last Decade | Ellison KS, Guidry J, Picou P, Adenuga P, Davis TE 3rd. | Clin Child Fam Psychol Rev. 2021 Sep;24(3):599–630. doi: 10.1007/s10567-021-00358-0. Epub 2021 Jun 10. | Excluded – Opinion piece, commentary or letter to the editor |
| 34351096 b | Autism Screening Tests: A Narrative Review | Fekar Gharamaleki F, Bahrami B, Masumi J. | J Public Health Res. 2021 Aug 5;11(1):2308. doi: 10.4081/jphr.2021.2308. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33206719 a | Clinical and Molecular Characterization of COVID-19 Hospitalized Patients | Benetti E, Giliberti A, Emiliozzi A, Valentino F, Bergantini L, Fallerini C, Anedda F, Amitrano S, Conticini E, Tita R, d'Alessandro M, Fava F, Marcantonio S, Baldassarri M, Bruttini M, Mazzei MA, Montagnani F, Mandalà M, Bargagli E, Furini S; GEN-COVID Multicenter Study, Renieri A, Mari F. | PLoS One. 2020 Nov 18;15(11):e0242534. doi: 10.1371/journal.pone.0242534. eCollection 2020. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33559334 a | Early Pandemic Experiences of Autistic Adults: Predictors of Psychological Distress | Bal VH, Wilkinson E, White LC, Law JK; SPARK Consortium, Feliciano P, Chung WK. | Autism Res. 2021 Jun;14(6):1209–1219. doi: 10.1002/aur.2480. Epub 2021 Feb 8. | Included in the final analysis |
| 34580666 b | Mental Health and Social Support of Caregivers of Children and Adolescents with ASD and Other Developmental Disorders during COVID-19 Pandemic | Wang C. | J Affect Disord Rep. 2021 Dec;6:100242. doi: 10.1016/j.jadr.2021.100242. Epub 2021 Sep 22. | Included in the post-survey analysis |
| 34591588 b | School-Based Autism Evaluations in the COVID-19 Era | Brunson McClain M, Roanhorse TT, Harris B, Heyborne M, Zemantic PK, Azad G. | Sch Psychol. 2021 Sep;36(5):377–387. doi: 10.1037/spq0000447. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33802042 * a | Association between Viral Infections and Risk of Autistic Disorder: An Overview | Shuid AN, Jayusman PA, Shuid N, Ismail J, Kamal Nor N, Mohamed IN. | Int J Environ Res Public Health. 2021 Mar 10;18(6):2817. doi: 10.3390/ijerph18062817. | Removed after the fourth step in PRISMA process |
| 34545706 b | The Association between COVID-19, Personal Wellbeing, Depression, and Suicide risk Factors in Australian Autistic Adults | Hedley D, Hayward SM, Denney K, Uljarević M, Bury S, Sahin E, Brown CM, Clapperton A, Dissanayake C, Robinson J, Trollor J, Stokes MA. | Autism Res. 2021 Dec;14(12):2663–2676. doi: 10.1002/aur.2614. Epub 2021 Sep 21. | Included in the post-survey analysis |
| 33758930 a | Families with Children with Neurodevelopmental Disorders during COVID-19: A Scoping Review | Shorey S, Lau LST, Tan JX, Ng ED, Aishworiya R. | J Pediatr Psychol. 2021 Jun 3;46(5):514–525. doi: 10.1093/jpepsy/jsab029. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34293632 b | Differences in Emotional State and Autistic Symptoms before and during Confinement Due to the COVID-19 Pandemic | Martínez-González AE, Moreno-Amador B, Piqueras JA. | Res Dev Disabil. 2021 Sep;116:104038. doi: 10.1016/j.ridd.2021.104038. Epub 2021 Jul 16. | Included in the post-survey analysis |
| 33998265 a | Preventing the Next Pandemic and Tackling Antiscience: An Interview with Peter Hotez | Hotez P. | Future Microbiol. 2021 May;16:539–541. doi: 10.2217/fmb-2021-0088. Epub 2021 May 17. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34591373 b | The Impact of COVID-19 on the Mental Health and Wellbeing of Caregivers of Autistic Children and Youth: A Scoping Review | Lee V, Albaum C, Tablon Modica P, Ahmad F, Gorter JW, Khanlou N, McMorris C, Lai J, Harrison C, Hedley T, Johnston P, Putterman C, Spoelstra M, Weiss JA. | Autism Res. 2021 Dec;14(12):2477–2494. doi: 10.1002/aur.2616. Epub 2021 Sep 30. | Included in the post-survey analysis |
| 34077795 b | The Progress of Chemokines and Chemokine Receptors in Autism Spectrum Disorders | Ye J, Wang H, Cui L, Chu S, Chen N. | Brain Res Bull. 2021 Sep;174:268–280. doi: 10.1016/j.brainresbull.2021.05.024. Epub 2021 May 30. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 32698850 a | Coping, Fostering Resilience, and Driving Care Innovation for Autistic People and Their Families during the COVID-19 Pandemic and Beyond | Ameis SH, Lai MC, Mulsant BH, Szatmari P. | Mol Autism. 2020 Jul 22;11(1):61. doi: 10.1186/s13229-020-00365-y. | Excluded – Opinion piece, commentary or letter to the editor |
| 34439660 b | Parental Stress and Disability in Offspring: A Snapshot during the COVID-19 Pandemic | Siracusano M, Riccioni A, Gialloreti LE, Segatori E, Arturi L, Vasta M, Porfirio MC, Terribili M, Galasso C, Mazzone L. | Brain Sci. 2021 Aug 5;11(8):1040. doi: 10.3390/brainsci11081040. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33831811 a | Autistic Traits and Negative Emotions in the General Population during COVID-19: Mediating Roles of the Behavioural Immune System and COVID-19 Risk Perception | Zhao X, Shi W, Li X, Li W, Li C. | Psychiatry Res. 2021 Jun;300:113918. doi: 10.1016/j.psychres.2021.113918. Epub 2021 Apr 1. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33901700 a | Psychological Impact during COVID-19 Lockdown in Children and Adolescents with Previous Mental Health Disorders | Lopez-Serrano J, Díaz-Bóveda R, González-Vallespí L, Santamarina-Pérez P, Bretones-Rodríguez A, Calvo R, Lera-Miguel S. | Rev Psiquiatr Salud Ment (Engl Ed). 2021 Apr 24:S1888-9891(21)00035-5. doi: 10.1016/j.rpsm.2021.04.002. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34553489 b | Rethinking Autism Spectrum Disorder Assessment for Children during COVID-19 and Beyond | Zwaigenbaum L, Bishop S, Stone WL, Ibanez L, Halladay A, Goldman S, Kelly A, Klaiman C, Lai MC, Miller M, Saulnier C, Siper P, Sohl K, Warren Z, Wetherby A. | Autism Res. 2021 Nov;14(11):2251–2259. doi: 10.1002/aur.2615. Epub 2021 Sep 22. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33662654 a | Impact of Containment and Mitigation Measures on Children and Youth with ASD during the COVID-19 pandemic: Report from the ELENA Cohort | Berard M, Rattaz C, Peries M, Loubersac J, Munir K, Baghdadli A. | J Psychiatr Res. 2021 May;137:73–80. doi: 10.1016/j.jpsychires.2021.02.041. Epub 2021 Feb 22. | Included in final analysis |
| 34423522 b | The Relationship between Irritability and autism Symptoms in Children with ASD in COVID-19 Home Confinement Period | Türkoğlu S, Uçar HN, Çetin FH, Güler HA, Tezcan ME. | Int J Clin Pract. 2021 Nov;75(11):e14742. doi: 10.1111/ijcp.14742. Epub 2021 Aug 30. | Included in the post-survey analysis |
| 34369382 b | Digital Mental Health and Neurodevelopmental Services: Case-Based Realist Evaluation | Burbach FR, Stiles KM. | JMIR Form Res. 2021 Sep 17;5(9):e29845. doi: 10.2196/29845. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 32592337 a | COVID-19 and Autism Research: Perspectives from Around the Globe | Amaral DG, de Vries PJ. | Autism Res. 2020 Jun;13(6):844–869. doi: 10.1002/aur.2329. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33856853 a | Comparing the Initial Impact of COVID-19 on Burden and Psychological Distress among Family Caregivers of Children with and Without Developmental Disabilities | Chafouleas SM, Iovino EA. | Sch Psychol. 2021 Sep;36(5):358–366. doi: 10.1037/spq0000426. Epub 2021 Apr 15. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33841149 a | Head-to-Head Comparison of Sedation and Somnolence among 37 Antipsychotics in Schizophrenia, Bipolar Disorder, Major Depression, Autism Spectrum Disorders, Delirium, and Repurposed in COVID-19, Infectious Diseases, and Oncology from the FAERS, 2004–2020 | Eugene AR, Eugene B, Masiak M, Masiak JS. | Front Pharmacol. 2021 Mar 25;12:621691. doi: 10.3389/fphar.2021.621691. eCollection 2021. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34573161 b | Changes in Sleep Patterns and Disorders in Children and Adolescents with Attention Deficit Hyperactivity Disorders and Autism Spectrum Disorders during the COVID-19 Lockdown | Bruni O, Breda M, Ferri R, Melegari MG. | Brain Sci. 2021 Aug 27;11(9):1139. doi: 10.3390/brainsci11091139. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34720549 b | Investigating the Effects of COVID-19 Lockdown on Italian Children and Adolescents with and Without Neurodevelopmental Disorders: A Cross-Sectional Study | Termine C, Dui LG, Borzaga L, Galli V, Lipari R, Vergani M, Berlusconi V, Agosti M, Lunardini F, Ferrante S. | Curr Psychol. 2021 Oct 25:1–17. doi: 10.1007/s12144-021-02321-2. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34262075 b | Social Cognition in Individuals Born Preterm | Pavlova MA, Galli J, Zanetti F, Pagani F, Micheletti S, Rossi A, Sokolov AN, Fallgatter AJ, Fazzi EM. | Sci Rep. 2021 Jul 14;11(1):14448. doi: 10.1038/s41598-021-93709-4. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 32928535 a | Immunopsychiatry and SARS-CoV-2 Pandemic: Links and Possible Consequences | Daaboul J, Tamouza R, Leboyer M. | Encephale. 2021 Apr;47(2):151–156. doi: 10.1016/j.encep.2020.07.002. Epub 2020 Jul 21. | Excluded – Article published in French |
| 33772777 * a | Tolerance of Face Coverings for Children with Autism Spectrum Disorder | Halbur M, Kodak T, McKee M, Carroll R, Preas E, Reidy J, Cordeiro MC. | J Appl Behav Anal. 2021 Apr;54(2):600–617. doi: 10.1002/jaba.833. Epub 2021 Mar 26. | Removed after the fourth step in PRISMA process |
| 34448995 b | Predictors of Satisfaction with Autism Treatment Services during COVID-19 | Ferguson EF, Jimenez-Muñoz M, Feerst H, Vernon TW. | J Autism Dev Disord. 2021 Aug 27:1–12. doi: 10.1007/s10803-021-05232-0. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34231323 b | Psychiatric Problems during the COVID-19 Pandemic in Children with Autism Spectrum Disorder | Vasa RA, Singh V, Holingue C, Kalb LG, Jang Y, Keefer A. | Autism Res. 2021 Oct;14(10):2113–2119. doi: 10.1002/aur.2574. Epub 2021 Jul 7. | Included in the post-survey analysis |
| 34240291 b | Mental Health and Resilient Coping in Caregivers of Autistic Individuals during the COVID-19 Pandemic: Findings from the Families Facing COVID Study | Friesen KA, Weiss JA, Howe SJ, Kerns CM, McMorris CA. | J Autism Dev Disord. 2021 Jul 8:1–11. doi: 10.1007/s10803-021-05177-4. Online ahead of print. | Included in the post-survey analysis |
| 33101602 a | ABA Finding Its Heart during a Pandemic: An Exploration in Social Validity | Nicolson AC, Lazo-Pearson JF, Shandy J. | Behav Anal Pract. 2020 Oct 16;13(4):757–766. doi: 10.1007/s40617-020-00517-9. eCollection 2020 Dec. | Excluded – Opinion piece, commentary or letter to the editor |
| 33418151 a | Isolating Residents Including Wandering Residents in Care and Group Homes: Medical Ethics and English Law in the Context of Covid-19 | Liddell K, Ruck Keene A, Holland A, Huppert J, Underwood BR, Clark O, Barclay SIG. | Int J Law Psychiatry. 2021 Jan-Feb;74:101649. doi: 10.1016/j.ijlp.2020.101649. Epub 2020 Dec 1. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33753983 a | COVID-19: Practice and Ethics of Videoconsultation Assessment of Children with Autism Spectrum Disorder | Doyen C, Kaye K. | Ethique Sante. 2021 Jun;18(2):74–80. doi: 10.1016/j.etiqe.2021.03.001. Epub 2021 Mar 18. | Excluded – Article published in French |
| 34725409 b | An mCARE Study on Patterns of risk and Resilience for Children with ASD in Bangladesh | Rabbani M, Haque MM, Das Dipal D, Zarif MII, Iqbal A, Schwichtenberg A, Bansal N, Soron TR, Ahmed SI, Ahamed SI. | Sci Rep. 2021 Nov 1;11(1):21342. doi: 10.1038/s41598-021-00793-7. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 32328220 a | A Proposed Process for Risk Mitigation during the COVID-19 Pandemic | Cox DJ, Plavnick JB, Brodhead MT. | Behav Anal Pract. 2020 Apr 23;13(2):299–305. doi: 10.1007/s40617-020-00430-1. eCollection 2020 Jun. | Excluded – Opinion piece, commentary or letter to the editor |
| 33692639 a | Impact of the COVID-19 Pandemic on Children with ASD and Their Families: An Online Survey in China | Huang S, Sun T, Zhu Y, Song S, Zhang J, Huang L, Chen Q, Peng G, Zhao D, Yu H, Jing J. | Psychol Res Behav Manag. 2021 Mar 4;14:289–297. doi: 10.2147/PRBM.S293426. eCollection 2021. | Included in final analysis |
| 33845620 a | Ten Weeks in: COVID-19-Related Distress in Adults with Autism Spectrum Disorder | Adams RE, Zheng S, Taylor JL, Bishop SL. | Autism. 2021 Oct;25(7):2140–2145. doi: 10.1177/13623613211005919. Epub 2021 Apr 12. | Included in final analysis |
| 33913138 a | Impact of COVID-19 on Patients from FACT or Autism Teams | Castelein S, Bruins J, van Balkom IDC. | Tijdschr Psychiatr. 2021;63(4):250–256. | Excluded – Article published in Dutch |
| 32505067 a | Could Autism Spectrum Disorders be a Risk Factor for COVID-19? | Lima MES, Barros LCM, Aragão GF. | Med Hypotheses. 2020 Nov;144:109899. doi: 10.1016/j.mehy.2020.109899. Epub 2020 May 30. | Excluded – Opinion piece, commentary or letter to the editor |
| 33829918 a | Availability of Services and Caregiver Burden: Supporting Individuals with Neurogenetic Conditions during the COVID-19 Pandemic | Kowanda M, Cartner L, Kentros C, Geltzeiler AR, Singer KE, Weaver WC, Lehman CD, Smith S, Smith RS, Walsh LK, Diehl K, Nagpal N, Brooks E, Mebane CM, Wilson AL, Marvin AR, White LC, Law JK, Jensen W, Daniels AM, Tjernagel J, Snyder LG, Taylor CM, Chung WK. | J Child Neurol. 2021 Aug;36(9):760–767. doi: 10.1177/08830738211001209. Epub 2021 Apr 8. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 32637293 a | An Essential Service Decision Model for ABA Providers during Crisis | Colombo RA, Wallace M, Taylor R. | Behav Anal Pract. 2020 May 22;13(2):306–311. doi: 10.1007/s40617-020-00432-z. eCollection 2020 Jun. | Excluded – Opinion piece, commentary or letter to the editor |
| 34473008 b | Telehealth Diagnosis of Autism Spectrum Disorder Through Clinical Cases | Ludwig NN, Child AE, Jashar DT, Mostow AJ, Wodka EL. | Clin Neuropsychol. 2021 Sep 2:1–21. doi: 10.1080/13854046.2021.1970228. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33632259 a | The relationship between 2019-nCoV and Psychological Distress among Parents of children with Autism Spectrum Disorder | Wang L, Li D, Pan S, Zhai J, Xia W, Sun C, Zou M. | Global Health. 2021 Feb 25;17(1):23. doi: 10.1186/s12992-021-00674-8. | Included in final analysis |
| 32899799 a | Prevalence and Associated Factors of Emotional and Behavioural Difficulties during COVID-19 Pandemic in Children with Neurodevelopmental Disorders | Nonweiler J, Rattray F, Baulcomb J, Happé F, Absoud M. | Children (Basel). 2020 Sep 4;7(9):128. doi: 10.3390/children7090128. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34539246 b | Educators' Experiences in Special Education Institutions during the COVID-19 Outbreak | Yakut AD. | J Res Spec Educ Needs. 2021 Jul 15:10.1111/1471-3802.12533. doi: 10.1111/1471-3802.12533. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34621194 b | The Impact of COVID-19 on Sleep in Autistic Adults: Longitudinal Comparisons pre and during Lockdown | Halstead EJ, Sullivan EC, Dimitriou D. | Front Psychiatry. 2021 Sep 21;12:708339. doi: 10.3389/fpsyt.2021.708339. eCollection 2021. | Included in the post-survey analysis |
| 34169750 a | ‘Anything but the Phone!’: Communication Mode Preferences in the Autism Community | Howard PL, Sedgewick F. | Autism. 2021 Nov;25(8):2265–2278. doi: 10.1177/13623613211014995. Epub 2021 Jun 25. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35136254 b | Coping with Autism during Lockdown Period of the COVID-19 Pandemic: A Cross-Sectional Survey | Kaku SM, Chandran S, Roopa N, Choudhary A, Ramesh J, Somashekariah S, Kuduvalli S, Rao VS, Mysore A. | Indian J Psychiatry. 2021 Nov-Dec;63(6):568–574. doi: 10.4103/indianjpsychiatry.indianjpsychiatry_344_21. Epub 2021 Dec 3. | Included in the post-survey analysis |
| 33836625 a | Short Report on Research Trends during the COVID-19 Pandemic and use of Telehealth Interventions and Remote Brain Research in Children with Autism Spectrum Disorder | Su WC, Srinivasan S, Cleffi C, Bhat A. | Autism. 2021 Aug;25(6):1816–1822. doi: 10.1177/13623613211004795. Epub 2021 Apr 9. | Excluded – Opinion piece, commentary or letter to the editor |
| 34581522 b | Why Fast COVID-19 Vaccination Needed for People with Disabilities and Autistics in Korea? | Yoon WH. | J Korean Med Sci. 2021 Sep 27;36(37):e267. doi: 10.3346/jkms.2021.36.e267. | Excluded – Opinion piece, commentary or letter to the editor |
| 33118913 a | Priority Concerns for People with Intellectual and Developmental Disabilities during the COVID-19 Pandemic | Tromans S, Kinney M, Chester V, Alexander R, Roy A, Sander JW, Dudson H, Shankar R. | BJPsych Open. 2020 Oct 29;6(6):e128. doi: 10.1192/bjo.2020.122. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33977886 a | Effects of the COVID-19 Pandemic on Mental Healthcare and Services: Results of a UK Survey of Front-Line Staff Working with People with Intellectual disability and/or Autism | Sheehan R, Dalton-Locke C, Ali A, Vera San Juan N, Totsika V, Hassiotis A. | BJPsych Bull. 2021 May 12:1–7. doi: 10.1192/bjb.2021.52. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33521688 a | COVID-19 Impacts the Expression of Molecular Markers Associated with Neuropsychiatric Disorders | Quincozes-Santos A, Rosa RL, Tureta EF, Bobermin LD, Berger M, Guimarães JA, Santi L, Beys-da-Silva WO. | Brain Behav Immun Health. 2021 Feb;11:100196. doi: 10.1016/j.bbih.2020.100196. Epub 2020 Dec 28. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34196450 a | A Quantitative Evaluation of a Regional Positive Behavioural Support Workforce Development Approach | McKenzie K, Murray G, Martin R, Murray A, Metcalfe D. | J Appl Res Intellect Disabil. 2021 Nov;34(6):1641–1654. doi: 10.1111/jar.12915. Epub 2021 Jul 1. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34261711 b | Caregiver Burnout, Gaps in Care, and COVID-19: Effects on Families of Youth with Autism and Intellectual Disability | Young E, Milligan K, Henze M, Johnson S, Weyman K. | Can Fam Physician. 2021 Jul;67(7):506–508. doi: 10.46747/cfp.6707506. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34178884 a | Risks and Protective Factors Associated with Mental Health Symptoms during COVID-19 Home Confinement in Italian Children and Adolescents: The #Understandingkids Study | Oliva S, Russo G, Gili R, Russo L, Di Mauro A, Spagnoli A, Alunni Fegatelli D, Romani M, Costa A, Veraldi S, Manti F. | Front Pediatr. 2021 Jun 11;9:664702. doi: 10.3389/fped.2021.664702. eCollection 2021. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 32837705 a | Creating and Sharing Digital ABA Instructional Activities: A Practical Tutorial | Mattson SL, Higbee TS, Aguilar J, Nichols B, Campbell VE, Nix LD, Reinert KS, Peck S, Lewis K. | Behav Anal Pract. 2020 Jul 23;13(4):1–27. doi: 10.1007/s40617-020-00440-z. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 32712636 a | Autism Spectrum Disorder and COVID-19: Helping Caregivers Navigate the Pandemic | Lim T, Tan MY, Aishworiya R, Kang YQ. | Ann Acad Med Singap. 2020 Jun;49(6):384–386. | Excluded – Opinion piece, commentary or letter to the editor |
| 33486423 a | The Pediatric Neurology 2020 Research Workforce Survey: Optimism in a Time of Challenge | Bonkowsky JL, Felling RJ, Grinspan ZM, Guerriero RM, Kosofsky BE, Lyons-Warren AM, deVeber GA. | Pediatr Neurol. 2021 Mar;116:62–67. doi: 10.1016/j.pediatrneurol.2020.11.020. Epub 2020 Dec 3. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34456303 b | The Value of Telehealth and a Team-Based Approach in Improving Developmental and Behavioral Care during the COVID-19 Pandemic | Barnhardt EW, Steingass K, Levine A, Jurbank M, Piercefield J, Nyp SS. | J Dev Behav Pediatr. 2021 Sep 1;42(7):602–604. doi: 10.1097/DBP.0000000000000997. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33964709 a | Psychological Distress and Burden among Family Caregivers of Children with and Without Developmental Disabilities Six Months into the COVID-19 Pandemic | Iovino EA, Caemmerer J, Chafouleas SM. | Res Dev Disabil. 2021 Jul;114:103983. doi: 10.1016/j.ridd.2021.103983. Epub 2021 May 5. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34811386 b | The (a)typical burden of COVID-19 pandemic scenario in Autism Spectrum Disorder | Fumagalli L, Nicoli M, Villa L, Riva V, Vicovaro M, Casartelli L. | Sci Rep. 2021 Nov 22;11(1):22655. doi: 10.1038/s41598-021-01907-x. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33658046 a | The Psychological Impact of the COVID-19 Pandemic on Adults with Autism: A Survey Study Across Three Countries | Oomen D, Nijhof AD, Wiersema JR. | Mol Autism. 2021 Mar 3;12(1):21. doi: 10.1186/s13229-021-00424-y. | Included in final analysis |
| 33326409 a | Implementation of Telehealth Services to Assess, Monitor, and Treat Neurodevelopmental Disorders: Systematic Review | Valentine AZ, Hall SS, Young E, Brown BJ, Groom MJ, Hollis C, Hall CL. | J Med Internet Res. 2021 Jan 20;23(1):e22619. doi: 10.2196/22619. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34092836 a | Experiences of Families of Autistic Children during a Period of Lockdown: Exploratory Study | Chamak B. | Neuropsychiatr Enfance Adolesc. 2021 Sep;69(5):235–240. doi: 10.1016/j.neurenf.2021.05.003. Epub 2021 Jun 2. | Excluded – Article published in French |
| 34659652 b | Adapting Direct Services for Telehealth: A Practical Tutorial | Bergmann S, Toussaint KA, Niland H, Sansing EM, Armshaw G, Baltazar M. | Behav Anal Pract. 2021 Oct 12;14(4):1–37. doi: 10.1007/s40617-020-00529-5. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34988366 b | Study Protocol for Autism Specific Transition Resources (T-Res Study): Developing a Flexible Resource Package for Dealing with the Loosening and/or Lifting of COVID-19 Related Restrictions | Smyth S, Mc Laughlin N, Egan C, Gurrin C, Quinn K, McGarrell M, Devlin S. | HRB Open Res. 2021 Jan 28;4:12. doi: 10.12688/hrbopenres.13155.1. eCollection 2021. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33562872 a | Medical Students and SARS-CoV-2 Vaccination: Attitude and Behaviors | Szmyd B, Bartoszek A, Karuga FF, Staniecka K, Błaszczyk M, Radek M. | Vaccines (Basel). 2021 Feb 5;9(2):128. doi: 10.3390/vaccines9020128. | Excluded – Did not focus on the experiences of autistics and CODI-19 or their parents |
| 34306962 b | Using Telehealth to Provide Interventions for Children with ASD: A Systematic Review | de Nocker YL, Toolan CK. | Rev J Autism Dev Disord. 2021 Jul 16:1–31. doi: 10.1007/s40489-021-00278-3. Online ahead of print. | Excluded – Did not focus on the experiences of autistics and CODI-19 or their parents |
| 34350304 b | How Providers in Child Neurology Transitioned to Telehealth during COVID-19 Pandemic | Bain JM, Dyer CA, Galvin M, Goldman S, Selman J, Silver WG, Tom SE. | Child Neurol Open. 2021 Jul 19;8:2329048X211022976. doi: 10.1177/2329048X211022976. eCollection 2021 Jan-Dec. | Excluded – Did not focus on the experiences of autistics and CODI-19 or their parents |
| 34448994 b | Experience of Autistic Children and Their Families during the Pandemic: From Distress to Coping Strategies | Jacques C, Saulnier G, Éthier A, Soulières I. | J Autism Dev Disord. 2021 Aug 27:1–13. doi: 10.1007/s10803-021-05233-z. Online ahead of print. | Included in the post-survey analysis |
| 34624722 b | The Impact of COVID-19 Pandemic Social Restrictions on Individuals with Autism Spectrum Disorder and Their Caregivers in the Stateof Qatar: A Cross-Sectional Study | Khan YS, Khan AW, Tahir ME, Hammoudeh S, Shamlawi MA, Alabdulla M. | Res Dev Disabil. 2021 Dec;119:104090. doi: 10.1016/j.ridd.2021.104090. Epub 2021 Sep 30. | Included in the post-survey analysis |
| 33759380 a | A lost Generation? The Impact of the COVID-19 Pandemic on Early Career ASD Researchers | Harrop C, Bal V, Carpenter K, Halladay A. | Autism Res. 2021 Jun;14(6):1078–1087. doi: 10.1002/aur.2503. Epub 2021 Mar 24. | Excluded – Opinion piece, commentary or letter to the editor |
| 34897755 b | Fear, Changes in Routine and Dental Care for Children and Adolescents with Autism Spectrum Disorder in the COVID-19 Pandemic: A Survey with Brazilian Parents | Azevedo Machado B, Silva Moro J, Massignam C, Cardoso M, Bolan M. | Spec Care Dentist. 2021 Dec 13. doi: 10.1111/scd.12683. Online ahead of print. | Included in the post-survey analysis |
| 33090358 a | Perceptions of Families of Individuals with Autism Spectrum Disorder during the COVID-19 Crisis | Manning J, Billian J, Matson J, Allen C, Soares N. | J Autism Dev Disord. 2021 Aug;51(8):2920–2928. doi: 10.1007/s10803-020-04760-5. Epub 2020 Oct 22. | Included in final analysis |
| 34240292 b | COVID-19 Morbidity among Individuals with Autistic Spectrum Disorder: A Matched Controlled Population-Based Study | Krieger I, Erez G, Weinstein O, Cohen AD, Tzur Bitan D. | J Autism Dev Disord. 2021 Jul 8:1–6. doi: 10.1007/s10803-021-05187-2. Online ahead of print. | Included in the post-survey analysis |
| 34954761 b | Telehealth Evaluation of Pediatric Neurodevelopmental Disabilities during the COVID-19 Pandemic: Clinician and Caregiver Perspectives | McNally Keehn R, Enneking B, James C, Tang Q, Rouse M, Hines E, Raches C, Etling A. | J Dev Behav Pediatr. 2021 Dec 23. doi: 10.1097/DBP.0000000000001043. Online ahead of print. | Excluded – Did not focus on the experiences of autistics and CODI-19 or their parents |
| 34548878 b | COVID-19 Vaccination among Individuals with Autism Spectrum Disorder: A Population-Based Study | Weinstein O, Krieger I, Cohen AD, Tzur Bitan D. | Res Autism Spectr Disord. 2021 Nov;89:101865. doi: 10.1016/j.rasd.2021.101865. Epub 2021 Sep 17. | Included in the post-survey analysis |
| 34378858 b | Feasibility and Acceptability of a Telehealth Model for Autism Diagnostic Evaluations in Children, Adolescents, and Adults | Matthews NL, Skepnek E, Mammen MA, James JS, Malligo A, Lyon A, Mitchell M, Kiefer SL, Smith CJ. | Autism Res. 2021 Dec;14(12):2564–2579. doi: 10.1002/aur.2591. Epub 2021 Aug 11. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34657487 b | Comparing the Impact of the First and Second Wave of COVID-19 Lockdown on Slovak Families with Typically Developing Children and Children with Autism Spectrum Disorder | Polónyiová K, Belica I, Celušáková H, Janšáková K, Kopčíková M, Szapuová Ž, Ostatníková D. | Autism. 2021 Oct 16:13623613211051480. doi: 10.1177/13623613211051480. Online ahead of print. | Included in the post-survey analysis |
| 33000394 a | A Call to Action to Implement Effective COVID-19 Prevention and Screening of Individuals with Severe Intellectual Developmental and Autism Spectrum Disorders | Baghdadli A, Picot MC, Miot S, Munir K. | J Autism Dev Disord. 2021 Jul;51(7):2566–2568. doi: 10.1007/s10803-020-04719-6. | Excluded – Opinion piece, commentary or letter to the editor |
| 34740217 b | Hypokalemia-Induced Rhabdomyolysis in a Child with Autism Affected by the COVID-19 Pandemic | Cao LL, Gaffney LK, Marcus C. | J Dev Behav Pediatr. 2021 Nov 3. doi: 10.1097/DBP.0000000000001035. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34485851 b | Severe OCD Exacerbation in a Patient with Autism Spectrum Disorder: A Case Report | Gray J, Bazargan-Hejazi S, Ebrahim G, Cho D. | Arch Clin Med Case Rep. 2021;5(3):388–392. doi: 10.26502/acmcr.96550370. Epub 2021 May 5. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33387233 * a | Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers: A Perspective from the SPARK Cohort | White LC, Law JK, Daniels AM, Toroney J, Vernoia B, Xiao S; SPARK Consortium, Feliciano P, Chung WK. | J Autism Dev Disord. 2021 Oct;51(10):3766–3773. doi: 10.1007/s10803-020-04816-6. Epub 2021 Jan 2. | Removed after the fourth step in PRISMA process |
| 32837701 a | Reopening the Doors to Center-Based ABA Services: Clinical and Safety Protocols during COVID-19 | Kornack J, Williams AL, Johnson KA, Mendes EM. | Behav Anal Pract. 2020 Jun 30;13(3):543–549. doi: 10.1007/s40617-020-00462-7. eCollection 2020 Sep. | Excluded – Opinion piece, commentary or letter to the editor |
| 34088351 a | Sleep Disorders Reveal Distress among Children and Adolescents during the Covid-19 First Wave: Results of A large Web-Based Italian Survey | Dondi A, Fetta A, Lenzi J, Morigi F, Candela E, Rocca A, Cordelli DM, Lanari M. | Ital J Pediatr. 2021 Jun 4;47(1):130. doi: 10.1186/s13052-021-01083-8. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 32791524 a | Introduction to the Special Issue: Addressing Health Disparities in Pediatric Psychology | Valrie C, Thurston I, Santos M. | J Pediatr Psychol. 2020 Sep 1;45(8):833–838. doi: 10.1093/jpepsy/jsaa066. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34591364 b | Analysis of the SPARK Study COVID-19 Parent Survey: Early Impact of the Pandemic on Access to Services, Child/Parent Mental Health, and Benefits of Online Services | Bhat A. | Autism Res. 2021 Nov;14(11):2454–2470. doi: 10.1002/aur.2618. Epub 2021 Sep 30. | Included in the post-survey analysis |
| 32939917 a | Changes in Access to Educational and Healthcare Services for Individuals with Intellectual and Developmental Disabilities during COVID-19 Restrictions | Jeste S, Hyde C, Distefano C, Halladay A, Ray S, Porath M, Wilson RB, Thurm A. | J Intellect Disabil Res. 2020 Sep 17. doi: 10.1111/jir.12776. Online ahead of print. | Excluded – Opinion piece, commentary or letter to the editor |
| 34512797 b | Autism Assessment via Telehealth during the Covid 19 Pandemic: Experiences and Perspectives of Autistic adults, Parents/Carers and Clinicians | Gibbs V, Cai RY, Aldridge F, Wong M. | Res Autism Spectr Disord. 2021 Oct;88:101859. doi: 10.1016/j.rasd.2021.101859. Epub 2021 Sep 6. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34827388 b | A Systematic Review on the Impact of the Social Confinement on People with Autism Spectrum Disorder and Their Caregivers during the COVID-19 Pandemic | Alonso-Esteban Y, López-Ramón MF, Moreno-Campos V, Navarro-Pardo E, Alcantud-Marín F. | Brain Sci. 2021 Oct 22;11(11):1389. doi: 10.3390/brainsci11111389. | Included in the post-survey analysis |
| 34548837 b | Transitioning to Adulthood from Residential Childcare during COVID-19: Experiences of young People with Intellectual Disabilities and/or Autism Spectrum Disorder in South Africa | Mupaku WM, van Breda AD, Kelly B. | Br J Learn Disabil. 2021 Sep;49(3):341–351. doi: 10.1111/bld.12409. Epub 2021 Jul 14. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 32835296 a | Antipsychotic-Induced Immune Dysfunction: A Consideration for COVID-19 Risk | May M, Slitzky M, Rostama B, Barlow D, Houseknecht KL. | Brain Behav Immun Health. 2020 Jul;6:100097. doi: 10.1016/j.bbih.2020.100097. Epub 2020 Jun 23. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35484038 b | Self-Reported COVID-19 Vaccination Acceptance and Hesitancy among Autistic Adults | Shea LL, Becker A, Lee BK, Miller KK, Cooper D, Anderson K, Salzer MS, Vanness DJ. | Vaccine. 2022 May 26;40(24):3288–3293. doi: 10.1016/j.vaccine.2022.04.060. Epub 2022 Apr 22. | Included in the post-survey analysis |
| 33065268 a | The Role of Epidemiology in Informing United States Childhood Immunization Policy and Practice | Carter-Pokras O, Hutchins S, Gaudino JA, Veeranki SP, Lurie P, Weiser T, DeMarco M, Khan NF, Cordero JF. | Ann Epidemiol. 2021 Oct;62:100–114. doi: 10.1016/j.annepidem.2020.09.017. Epub 2020 Oct 14. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34721108 b | Impact of the COVID-19 Lockdown in Malaysia: An Examination of the Psychological Well-Being of Parent-Child Dyads and Child Behavior in Families with Children on the Autism Spectrum | Fong HX, Cornish K, Kirk H, Ilias K, Shaikh MF, Golden KJ. | Front Psychiatry. 2021 Oct 14;12:733905. doi: 10.3389/fpsyt.2021.733905. eCollection 2021. | Included in the post-survey analysis |
| 34429669 b | Parental Self-Efficacy and Behavioral Problems in Children with Autism during COVID-19: A Moderated Mediation Model of Parenting Stress and Perceived Social Support | Chen SD, Yu Y, Li XK, Chen SQ, Ren J. | Psychol Res Behav Manag. 2021 Aug 14;14:1291–1301. doi: 10.2147/PRBM.S327377. eCollection 2021. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34276898 b | Effectiveness of Telehealth Direct Therapy for Individuals with Autism Spectrum Disorder | Nohelty K, Bradford CB, Hirschfeld L, Miyake CJ, Novack MN. | Behav Anal Pract. 2021 Jul 12:1–16. doi: 10.1007/s40617-021-00603-6. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 32628369 a | Supporting Patients with Autism during COVID-19 | Yahya AS, Khawaja S. | Prim Care Companion CNS Disord. 2020 Jul 2;22(4):20com02668. doi: 10.4088/PCC.20com02668. | Excluded – Opinion piece, commentary or letter to the editor |
| 32545809 a | Phase 2 and Later of COVID-19 Lockdown: Is it Possible to Perform Remote Diagnosis and Intervention for Autism Spectrum Disorder? An Online-Mediated Approach | Narzisi A. | J Clin Med. 2020 Jun 13;9(6):1850. doi: 10.3390/jcm9061850. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33648616 a | The COVID-19 Pandemic Should be Last Orders for Poor Care of People with Neurodevelopmental Disorders | Strydom A, Corcoran E, Rebillat AS. | Br J Psychiatry. 2021 Jun;218(6):302–304. doi: 10.1192/bjp.2021.22. | Excluded – Opinion piece, commentary or letter to the editor |
| 34925775 b | Parents' Perceptions on Physical Activity for their Children with Autism Spectrum Disorders during the Novel Coronavirus Outbreak | Esentürk OK. | Int J Dev Disabil. 2020 May 22;67(6):446–457. doi: 10.1080/20473869.2020.1769333. eCollection 2021. | Included in the post-survey analysis |
| 34666076 b | SARS-CoV-2-Associated Cytokine Storm during Pregnancy as a Possible Risk Factor for Neuropsychiatric Disorder Development in Post-pandemic Infants | Figueiredo CP, Fontes-Dantas FL, da Poian AT, Clarke JR. | Neuropharmacology. 2021 Dec 15;201:108841. doi: 10.1016/j.neuropharm.2021.108841. Epub 2021 Oct 16. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34371305 b | Autistic Adults' Personal Experiences of Navigating a Social World Prior to and during Covid-19 Lockdown in Spain | Lois Mosquera M, Mandy W, Pavlopoulou G, Dimitriou D. | Res Dev Disabil. 2021 Oct;117:104057. doi: 10.1016/j.ridd.2021.104057. Epub 2021 Aug 6. | Included in the post-survey analysis |
| 34629580 b | How Anxiety Predicts Interpersonal Curiosity during the COVID-19 Pandemic: The Mediation Effect of Interpersonal Distancing and Autistic Tendency | Huang Q, Cao S, Zhou S, Punia D, Zhu X, Luo Y, Wu H. | Pers Individ Dif. 2021 Oct;180:110973. doi: 10.1016/j.paid.2021.110973. Epub 2021 May 18. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33535513 * a | Information and Communication Technologies to Support Early Screening of Autism Spectrum Disorder: A Systematic Review | Desideri L, Pérez-Fuster P, Herrera G. | Children (Basel). 2021 Feb 1;8(2):93. doi: 10.3390/children8020093. | Removed after the fourth step in PRISMA process |
| 34915925 b | A Case of Catatonia in the Aftermath of the COVID-19 Pandemic: Does Autism Spectrum Matter? | Dell'Osso L, Amatori G, Gesi C, Carmassi C. | Ann Gen Psychiatry. 2021 Dec 16;20(1):54. doi: 10.1186/s12991-021-00377-9. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33540358 a | Attitude, Anxiety and Perceived Mental Health Care Needs among Parents of Children with Autism Spectrum Disorder (ASD) in Saudi Arabia during COVID-19 Pandemic | Althiabi Y. | Res Dev Disabil. 2021 Apr;111:103873. doi: 10.1016/j.ridd.2021.103873. Epub 2021 Feb 2. | Included in final analysis |
| 33465589 * a | While Quarantined: An Online Parent Education and Training Model for Families of Children with Autism in China | McDevitt SE. | Res Dev Disabil. 2021 Feb;109:103851. doi: 10.1016/j.ridd.2020.103851. Epub 2021 Jan 16. | Removed after the fourth step in PRISMA process |
| 33600614 * a | Telehealth Parent Coaching to Improve Daily Living Skills for Children with ASD | Gerow S, Radhakrishnan S, S Akers J, McGinnis K, Swensson R. | J Appl Behav Anal. 2021 Apr;54(2):566–581. doi: 10.1002/jaba.813. Epub 2021 Feb 18. | Removed after the fourth step in PRISMA process |
| 34483995 b | Characterizing Changes in Screen Time during the COVID-19 Pandemic School Closures in Canada and Its Perceived Impact on Children with Autism Spectrum Disorder | Cardy RE, Dupuis A, Anagnostou E, Ziolkowski J, Biddiss EA, Monga S, Brian J, Penner M, Kushki A. | Front Psychiatry. 2021 Aug 18;12:702774. doi: 10.3389/fpsyt.2021.702774. eCollection 2021. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34327131 b | Mental Health of Parents of Children with Autism Spectrum Disorder during COVID-19 Pandemic: A Systematic Review | Yılmaz B, Azak M, Şahin N. | World J Psychiatry. 2021 Jul 19;11(7):388–402. doi: 10.5498/wjp.v11.i7.388. eCollection 2021 Jul 19. | Included in the post-survey analysis |
| 34670768 b | Psychological Burden of Attention-Deficit/Hyperactivity Disorder Traits on Medical Workers Under the COVID-19 Outbreak: A Cross-Sectional Web-Based Questionnaire Survey | Matsui K, Yoshiike T, Tsuru A, Otsuki R, Nagao K, Ayabe N, Hazumi M, Utsumi T, Yamamoto K, Fukumizu M, Kuriyama K. | BMJ Open. 2021 Oct 20;11(10):e053737. doi: 10.1136/bmjopen-2021-053737. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33765076 a | Remote Assessment in Adults with Autism or ADHD: A Service User Satisfaction Survey | Adamou M, Jones SL, Fullen T, Galab N, Abbott K, Yasmeen S. | PLoS One. 2021 Mar 25;16(3):e0249237. doi: 10.1371/journal.pone.0249237. eCollection 2021. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34262486 b | Leveraging Technology for the Wellbeing of Individuals with Autism Spectrum Disorder and Their Families during Covid-19 | Doenyas C, Shohieb SM. | Front Psychiatry. 2021 Jun 28;12:566809. doi: 10.3389/fpsyt.2021.566809. eCollection 2021. | Excluded – Opinion piece, commentary or letter to the editor |
| 34087907 a | COVID-19 Phobia in a Boy with Undiagnosed Autism Spectrum Disorder: A Case Report | Sakamoto S, Miyawaki D, Goto A, Harima Y, Tokuhara D, Inoue K. | Medicine (Baltimore). 2021 Jun 4;100(22):e26233. doi: 10.1097/MD.0000000000026233. | Excluded – Case study |
| 34118499 a | Addressing Pediatric Mental Health Using Telehealth during Coronavirus Disease-2019 and Beyond: A Narrative Review | Cunningham NR, Ely SL, Barber Garcia BN, Bowden J. | Acad Pediatr. 2021 Sep-Oct;21(7):1108–1117. doi: 10.1016/j.acap.2021.06.002. Epub 2021 Jun 9. | Excluded – Opinion piece, commentary or letter to the editor |
| 33556700 * a | A Parent-Sibling Dyadic Interview to Explore How an Individual with Autism Spectrum Disorder can Impact Family Dynamics | Critchley E, Cuadros M, Harper I, Smith-Howell H, Rogish M. | Res Dev Disabil. 2021 Apr;111:103884. doi: 10.1016/j.ridd.2021.103884. Epub 2021 Feb 5. | Removed after the fourth step in PRISMA process |
| 34997196 b | Mechanisms of Action of Fluvoxamine for COVID-19: A Historical review | Hashimoto Y, Suzuki T, Hashimoto K. | Mol Psychiatry. 2022 Apr;27(4):1898–1907. doi: 10.1038/s41380-021-01432-3. Epub 2022 Jan 7. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33031918 a | Understanding the Genetic Contribution of the Human Leukocyte Antigen System to Common Major Psychiatric Disorders in a World Pandemic Context | Tamouza R, Krishnamoorthy R, Leboyer M. | Brain Behav Immun. 2021 Jan;91:731–739. doi: 10.1016/j.bbi.2020.09.033. Epub 2020 Oct 5. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33897973 * a | Developing Remote Delivery of Language and Cognitive Training for Use with Children with Autism: A Technological Report | Belisle J, Burke R, Clark L, Jepsen R, Welch K, Dennis L, McDonald N. | Behav Anal Pract. 2021 Apr 20;14(2):434–444. doi: 10.1007/s40617-020-00544-6. eCollection 2021 Jun. | Removed after the fourth step in PRISMA process |
| 33540683 * a | The Impact of COVID-19 on the Adaptive Functioning, Behavioral Problems, and Repetitive Behaviors of Italian Children with Autism Spectrum Disorder: An Observational Study | Siracusano M, Segatori E, Riccioni A, Emberti Gialloreti L, Curatolo P, Mazzone L. | Children (Basel). 2021 Feb 2;8(2):96. doi: 10.3390/children8020096. | Removed after the fourth step in PRISMA process |
| 33689088 a | COVID-19 Pandemic and Impact on Patients with Autism Spectrum Disorder | Baweja R, Brown SL, Edwards EM, Murray MJ. | J Autism Dev Disord. 2022 Jan;52(1):473–482. doi: 10.1007/s10803-021-04950-9. Epub 2021 Mar 10. | Excluded – Opinion piece, commentary or letter to the editor |
| 33241588 a | Telehealth Mask Wearing Training for Children with Autism during the COVID-19 Pandemic | Sivaraman M, Virues-Ortega J, Roeyers H. | J Appl Behav Anal. 2021 Jan;54(1):70–86. doi: 10.1002/jaba.802. Epub 2020 Nov 25. | Removed in the fourth step in PRISMA process |
| 33909902 a | A Hybrid Clinical Trial Delivery Model in the COVID-19 Era | Bhat A, Su WC, Cleffi C, Srinivasan S. | Phys Ther. 2021 Aug 1;101(8):pzab116. doi: 10.1093/ptj/pzab116. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34912192 b | Systemic Inflammation and Astrocyte Reactivity in the Neuropsychiatric Sequelae of COVID-19: Focus on Autism Spectrum Disorders | Valenza M, Steardo L Jr, Steardo L, Verkhratsky A, Scuderi C. | Front Cell Neurosci. 2021 Nov 29;15:748136. doi: 10.3389/fncel.2021.748136. eCollection 2021. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33551857 * a | The Resilience of Social Service Providers and Families of Children with Autism or Development Delays during the COVID-19 Pandemic-A Community Case Study in Hong Kong | Wong PW, Lam Y, Lau JS, Fok H. | Front Psychiatry. 2021 Jan 22;11:561657. doi: 10.3389/fpsyt.2020.561657. eCollection 2020. | Removed after the fourth step in PRISMA process |
| 33125622 * a | Use of the TELE-ASD-PEDS for Autism Evaluations in Response to COVID-19: Preliminary Outcomes and Clinician Acceptability | Wagner L, Corona LL, Weitlauf AS, Marsh KL, Berman AF, Broderick NA, Francis S, Hine J, Nicholson A, Stone C, Warren Z. | J Autism Dev Disord. 2021 Sep;51(9):3063–3072. doi: 10.1007/s10803-020-04767-y. Epub 2020 Oct 30. | Removed after the fourth step in PRISMA process |
| 34591895 b | Facial Masks Affect Emotion Recognition in the General Population and Individuals with Autistic Traits | Pazhoohi F, Forby L, Kingstone A. | PLoS One. 2021 Sep 30;16(9):e0257740. doi: 10.1371/journal.pone.0257740. eCollection 2021. | Included in the post-survey analysis |
| 32413984 a | Should Autism Spectrum Conditions Be Characterised in a More Positive Way in Our Modern World? | Wright B, Spikins P, Pearson H. | Medicina (Kaunas). 2020 May 13;56(5):233. doi: 10.3390/medicina56050233. | Excluded – Opinion piece, commentary or letter to the editor |
| 33657458 a | Autism Spectrum Disorder Patients may be Susceptible to COVID-19 Disease due to Deficiency in Melatonin | Brown GM, Karthikeyan R, Pandi-Perumal SR, Cardinali DP. | Med Hypotheses. 2021 Apr;149:110544. doi: 10.1016/j.mehy.2021.110544. Epub 2021 Feb 18. | Excluded – Opinion piece, commentary or letter to the editor |
| 34988286 b | ECHO Autism: Evaluation of Participants' Perceptions of Collaborative Telementoring Network | Becevic M, Nair P, Wallach E, Hoffman K, Sohl K. | J Patient Exp. 2021 Dec 20;8:23743735211065292. doi: 10.1177/23743735211065292. eCollection 2021. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34386166 b | Challenges in managing children with Autism Spectrum Disorder and COVID-19: A Case Report | Shaji G, Chong VH. | Malays Fam Physician. 2021 May 31;16(2):67–69. doi: 10.51866/cr1137. eCollection 2021 Jul 22. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34666575 b | Barriers Leading to Increased Disability in Neurologically Challenged Populations during COVID-19 Pandemic: A Scoping Review | D'souza J, Biswas A, Gada P, Mangroliya J, Natarajan M. | Disabil Rehabil. 2021 Oct 19:1–14. doi: 10.1080/09638288.2021.1986747. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33385281 a | Conducting CBT for Anxiety in Children with Autism Spectrum Disorder during COVID-19 Pandemic | Kalvin CB, Jordan RP, Rowley SN, Weis A, Wood KS, Wood JJ, Ibrahim K, Sukhodolsky DG. | J Autism Dev Disord. 2021 Nov;51(11):4239–4247. doi: 10.1007/s10803-020-04845-1. Epub 2021 Jan 1. | Excluded – Opinion piece, commentary or letter to the editor |
| 34449147 b | Effects of Lockdown during Corona Pandemic on Children with Neurodevelopmental Disorders-A Questionnaire-Based Survey | Goswami JN, Sondhi V, Simalti AK, Bamal M, Roy S. | Turk J Pediatr. 2021;63(4):648–659. doi: 10.24953/turkjped.2021.04.012. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33490369 a | Real-Time Telehealth Treatment Team Consultation for Self-Injury by Individuals with Autism Spectrum Disorder | Singh NN, Lancioni GE, Medvedev ON, Hwang YS, Myers RE. | Adv Neurodev Disord. 2021;5(2):170–182. doi: 10.1007/s41252-021-00192-z. Epub 2021 Jan 19. | Excluded – Did not focus on the experiences of autistics and COVID-19 or their parents |
| 34192189 a | Scoping Exercise to Develop a Storybook to Support Children's Education during the COVID-19 Pandemic | Syeda R, Hann M, Allison R, Demirjian A. | BMJ Paediatr Open. 2021 Mar 4;5(1):e000926. doi: 10.1136/bmjpo-2020-000926. eCollection 2021. | Excluded – Did not focus on the experiences of autistics and COVID-19 or their parents |
| 32851355 a | Prospects for Improving Future Mental Health of Children Through Prenatal Maternal Micronutrient Supplementation in China | Li Y, Freedman R. | Pediatr Investig. 2020 Jun 24;4(2):118–126. doi: 10.1002/ped4.12199. eCollection 2020 Jun. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33221246 a | Brief Report: The Impact of the COVID-19 Pandemic on Health Behaviors in Adolescents with Autism Spectrum Disorder | Garcia JM, Lawrence S, Brazendale K, Leahy N, Fukuda D. | Disabil Health J. 2021 Apr;14(2):101021. doi: 10.1016/j.dhjo.2020.101021. Epub 2020 Nov 5. | Included in final analysis |
| 34914016 b | The Brief Observation of Symptoms of Autism (BOSA): Development of a New Adapted Assessment Measure for Remote Telehealth Administration Through COVID-19 and Beyond | Dow D, Holbrook A, Toolan C, McDonald N, Sterrett K, Rosen N, Kim SH, Lord C. | J Autism Dev Disord. 2021 Dec 16:1–12. doi: 10.1007/s10803-021-05395-w. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34611836 b | Brief Report: Feasibility and Acceptability of a Remote-Based Nutrition Education Program for Adolescents with Autism Spectrum Disorder: A COVID-19 Pilot Study | Shurack RH, Garcia JM, Brazendale K, Lee E. | J Autism Dev Disord. 2021 Oct 5:1–7. doi: 10.1007/s10803-021-05301-4. Online ahead of print. | Included in the post-survey analysis |
| 34575637 b | Ways to Address Perinatal Mast Cell Activation and Focal Brain Inflammation, including Response to SARS-CoV-2, in Autism Spectrum Disorder | Theoharides TC. | J Pers Med. 2021 Aug 29;11(9):860. doi: 10.3390/jpm11090860. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34363330 b | Psychological Distress among Caregivers Raising a Child with Autism Spectrum Disorder during the COVID-19 Pandemic | Kalb LG, Badillo-Goicoechea E, Holingue C, Riehm KE, Thrul J, Stuart EA, Smail EJ, Law K, White-Lehman C, Fallin D. | Autism Res. 2021 Oct;14(10):2183–2188. doi: 10.1002/aur.2589. Epub 2021 Aug 7. | Included in the post-survey analysis |
| 34426842 b | Prioritization of Persons with Special Needs in Covid-19 Vaccinations in the Philippines | Maboloc CR. | J Public Health (Oxf). 2021 Aug 23:fdab324. doi: 10.1093/pubmed/fdab324. Online ahead of print. | Excluded – Opinion piece, commentary or letter to the editor |
| 34236591 b | Factors Contributing to Psychological Ill-Effects and Resilience of Caregivers of Children with Developmental Disabilities during a Nation-wide Lockdown during the COVID-19 Pandemic | Lim TSH, Tan MY, Aishworiya R, Kang YQ, Koh MY, Shen L, Chong SC. | J Autism Dev Disord. 2021 Jul 8:1–11. doi: 10.1007/s10803-021-05180-9. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34679621 b | Features of Mobile Apps for People with Autism in a Post COVID-19 Scenario: Current Status and Recommendations for Apps Using AI | Rehman IU, Sobnath D, Nasralla MM, Winnett M, Anwar A, Asif W, Sherazi HHR. | Diagnostics (Basel). 2021 Oct 17;11(10):1923. doi: 10.3390/diagnostics11101923. | Excluded – Opinion piece, commentary or letter to the editor |
| 34362263 b | COVID-19, Social Isolation and the Mental Health of Autistic People and their Families: A Qualitative Study | Pellicano E, Brett S, den Houting J, Heyworth M, Magiati I, Steward R, Urbanowicz A, Stears M. | Autism. 2022 May;26(4):914–927. doi: 10.1177/13623613211035936. Epub 2021 Aug 6. | Included in the post-survey analysis |
| 34831567 b | Practitioner and Service User Perspectives on the Rapid Shift to Teletherapy for Individuals on the Autism Spectrum as a Result of COVID-19 | Johnsson G, Bulkeley K. | Int J Environ Res Public Health. 2021 Nov 11;18(22):11812. doi: 10.3390/ijerph182211812. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34462727 b | Evaluation of a Pilot Healthy Eating and Exercise Program for Young Adults with Autism Spectrum Disorder and Intellectual Disabilities | Nabors L, Overstreet A, Carnahan C, Ayers K. | Adv Neurodev Disord. 2021;5(4):413–430. doi: 10.1007/s41252-021-00214-w. Epub 2021 Aug 25. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33484052 a | ‘It's Been adapted Rather than Impacted’: A Qualitative Evaluation of the Impact of Covid-19 Restrictions on the Positive Behavioural Support of People with an Intellectual Disability and/or Autism | McKenzie K, Murray GC, Martin R. | J Appl Res Intellect Disabil. 2021 Jul;34(4):1089–1097. doi: 10.1111/jar.12859. Epub 2021 Jan 22. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33350655 a | Use of Telehealth in Fellowship-Affiliated Developmental Behavioral Pediatric Practices during the COVID-19 Pandemic | Wallis KE, Mulé C, Mittal S, Cerda N, Shaffer R, Scott A, Langkamp D, Augustyn M, Perrin E, Soares N, Blum NJ. | J Dev Behav Pediatr. 2021 May 1;42(4):314–321. doi: 10.1097/DBP.0000000000000897. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33163146 * a | Developing and Enhancing Adherence to a Telehealth ABA Parent Training Curriculum for Caregivers of Children with Autism | Yi Z, Dixon MR. | Behav Anal Pract. 2020 Nov 3;14(1):58–74. doi: 10.1007/s40617-020-00464-5. eCollection 2021 Mar. | Removed after the fourth step in PRISMA process |
| 35132414 b | SARS-CoV-2 Invades Cognitive Centers of the Brain and Induces Alzheimer's-Like Neuropathology | Shen WB, Logue J, Yang P, Baracco L, Elahi M, Reece EA, Wang B, Li L, Blanchard TG, Han Z, Frieman MB, Rissman RA, Yang P. | bioRxiv. 2022 Feb 3:2022.01.31.478476. doi: 10.1101/2022.01.31.478476. Preprint. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34939747 b | Experiences of Student and Trainee Autism Researchers during the COVID-19 Pandemic | Kaku SM, McVey AJ, Gerber AH, Pretzsch CM, Jones DR, Kodakkadan FM, Lei J, Singer L, Chitehwe L, Poulsen RE, Coffman M. | Autism Res. 2022 Mar;15(3):413–420. doi: 10.1002/aur.2662. Epub 2021 Dec 23. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34207173 * a | Psychological Impact of COVID-19 Outbreak on Families of Children with Autism Spectrum Disorder and Typically Developing Peers: An Online Survey | Levante A, Petrocchi S, Bianco F, Castelli I, Colombi C, Keller R, Narzisi A, Masi G, Lecciso F. | Brain Sci. 2021 Jun 18;11(6):808. doi: 10.3390/brainsci11060808. | Removed after the fourth step in PRISMA process |
| 33882385 * a | Home Education for Children with Autism Spectrum Disorder during the COVID-19 Pandemic: Indonesian Mothers Experience | Daulay N. | Res Dev Disabil. 2021 Jul;114:103954. doi: 10.1016/j.ridd.2021.103954. Epub 2021 Apr 5. | Removed after the fourth step in PRISMA process |
| 35078834 b | Impact of the COVID-19 Pandemic on Children and Adolescents with Autism Spectrum Disorder and their Families: A mixed-Methods Study Protocol | Dekker L, Hooijman L, Louwerse A, Visser K, Bastiaansen D, Ten Hoopen L, De Nijs P, Dieleman G, Ester W, Van Rijen S, Truijens F, Van der Hallen R. | BMJ Open. 2022 Jan 25;12(1):e049336. doi: 10.1136/bmjopen-2021-049336. | Included in the post-survey analysis |
| 35077878 b | Severe Outcomes, Readmission, and Length of Stay among COVID-19 Patients with Intellectual and Developmental Disabilities | Koyama AK, Koumans EH, Sircar K, Lavery A, Hsu J, Ryerson AB, Siegel DA. | Int J Infect Dis. 2022 Mar;116:328–330. doi: 10.1016/j.ijid.2022.01.038. Epub 2022 Jan 22. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34865678 b | COVID-19 Pandemic Impact on Psychotropic Prescribing for Adults with Intellectual Disability: An Observational Study in English Specialist Community Services | Naqvi D, Perera B, Mitchell S, Sheehan R, Shankar R. | BJPsych Open. 2021 Dec 6;8(1):e7. doi: 10.1192/bjo.2021.1064. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34124631 a | A Media Intervention Applying Debunking Versus Non-debunking Content to Combat Vaccine Misinformation in Elderly in the Netherlands: A Digital Randomised Trial | Yousuf H, van der Linden S, Bredius L, Ted van Essen GA, Sweep G, Preminger Z, van Gorp E, Scherder E, Narula J, Hofstra L. | EClinicalMedicine. 2021 May 15;35:100881. doi: 10.1016/j.eclinm.2021.100881. eCollection 2021 May. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34002690 a | Revisiting Vitamin D Status and Supplementation for In-patients with Intellectual and Developmental Disability in the North of England, UK | Dudley B, Ostrowski M, Ciausu V, Ince C, McKinnon I. | BJPsych Bull. 2021 May 18:1–7. doi: 10.1192/bjb.2021.55. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34996019 b | The Myth of Vaccination and Autism Spectrum | Gabis LV, Attia OL, Goldman M, Barak N, Tefera P, Shefer S, Shaham M, Lerman-Sagie T. | Eur J Paediatr Neurol. 2022 Jan;36:151–158. doi: 10.1016/j.ejpn.2021.12.011. Epub 2021 Dec 22. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33935477 a | Naturalistic Communication Training for Early Intervention Providers and Latinx Parents of Children with Signs of Autism | Gevarter C, Najar AM, Flake J, Tapia-Alvidrez F, Lucero A. | J Dev Phys Disabil. 2021 Apr 28:1–23. doi: 10.1007/s10882-021-09794-w. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35455891 b | Psychosocial and Behavioral Effects of the COVID-19 Pandemic on Children and Adolescents with Autism and Their Families: Overview of the Literature and Initial Data from a Multinational Online Survey | Kreysa H, Schneider D, Kowallik AE, Dastgheib SS, Doğdu C, Kühn G, Ruttloff JM, Schweinberger SR. | Healthcare (Basel). 2022 Apr 12;10(4):714. doi: 10.3390/healthcare10040714. | Included in the post-survey analysis |
| 34421194 b | Examination of the Effectiveness and Acceptability of a Play-Based Sibling Intervention for Children with Autism: A Single-Case Research Design | Glugatch LB, Machalicek W. | Educ Treat Children. 2021;44(4):249–267. doi: 10.1007/s43494-021-00043-5. Epub 2021 Aug 16. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33560019 a | Future Perspectives of Robot Psychiatry: Can Communication Robots Assist Psychiatric Evaluation in the COVID-19 Pandemic Era? | Yoshikawa Y, Kumazaki H, Kato TA. | Curr Opin Psychiatry. 2021 May 1;34(3):277–286. doi: 10.1097/YCO.0000000000000692. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35620553 b | Mental Health Impacts of the COVID-19 Pandemic on Children with Underlying Health and Disability Issues, and their Families and Health Care Providers | Nicholas DB, Zulla RT, Conlon O, Dimitropoulos G, Urschel S, Rapoport A, Katz SL, Bruce A, West LJ, Belletrutti M, Cullen E, Zwaigenbaum L. | Paediatr Child Health. 2022 May 9;27(Suppl 1):S33–S39. doi: 10.1093/pch/pxab103. eCollection 2022 Jun. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35046876 b | Burnt Out and Dropping Out: A Comparison of the Experiences of Autistic and Non-autistic Students during the COVID-19 Pandemic | Cage E, McManemy E. | Front Psychol. 2022 Jan 3;12:792945. doi: 10.3389/fpsyg.2021.792945. eCollection 2021. | Included in the post-survey analysis |
| 34849195 b | A k-mer based Approach for Classifying Viruses Without Taxonomy Identifies Viral Associations in Human Autism and Plant Microbiomes | Garcia BJ, Simha R, Garvin M, Furches A, Jones P, Gazolla JGFM, Hyatt PD, Schadt CW, Pelletier D, Jacobson D. | Comput Struct Biotechnol J. 2021 Oct 25;19:5911–5919. doi: 10.1016/j.csbj.2021.10.029. eCollection 2021. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34183470 a | Autism Spectrum Disorder in the COVID 19 Era: New Challenges – New Solutions | Bharat R, Uzaina -, Niranjan S, Yadav T, Newman S, Marriott J, Smith G, Sawlani G. | Indian Pediatr. 2021 Sep 15;58(9):888–889. Epub 2021 Jun 28. | Excluded – Article could not be accessed |
| 33159508 a | Transforming Pediatric Neuropsychology Through Video-Based Teleneuropsychology: An Innovative Private Practice Model pre-COVID-19 | Salinas CM, Bordes Edgar V, Berrios Siervo G, Bender HA. | Arch Clin Neuropsychol. 2020 Nov 19;35(8):1189–1195. doi: 10.1093/arclin/acaa101. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34525940 b | Utilization of Telemedicine to Support Caregivers of Young Children with ASD and their Part C Service Providers: A Comparison of Intervention Outcomes Across Three Models of Service Delivery | Corona LL, Stainbrook JA, Simcoe K, Wagner L, Fowler B, Weitlauf AS, Juárez AP, Warren Z. | J Neurodev Disord. 2021 Sep 15;13(1):38. doi: 10.1186/s11689-021-09387-w. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34533658 b | Adults with Autism Should be Considered a Priority in COVID-19 Immunization Programs | Lucena R, de Melo-Carneiro P, Sampaio AS, de Almeida NR, Ponte AMV, de Brito Wanderley D, de Mattos AM, Robatto AP, Argollo N. | J Autism Dev Disord. 2021 Sep 17:1–2. doi: 10.1007/s10803-021-05281-5. Online ahead of print. | Excluded – Opinion piece, commentary or letter to the editor |
| 33059534 a | ‘How to’ Operate a Pediatric Neuropsychology Practice during the COVID-19 Pandemic: Real tips from One Practice's Experience | Loman M, Vogt E, Miller L, Landsman R, Duong P, Kasten J, DeFrancisco D, Koop J, Heffelfinger A. | Child Neuropsychol. 2021 Feb;27(2):251–279. doi: 10.1080/09297049.2020.1830962. Epub 2020 Oct 16. | Excluded – Opinion piece, commentary or letter to the editor |
| 32746638 a | The Relationship between Chronotype, Sleep, and Autism Symptom Severity in Children with ASD in COVID-19 Home Confinement Period | Türkoğlu S, Uçar HN, Çetin FH, Güler HA, Tezcan ME. | Chronobiol Int. 2020 Aug;37(8):1207–1213. doi: 10.1080/07420528.2020.1792485. Epub 2020 Aug 4. | Included in final analysis |
| 35416566 b | The COVID-19 Pandemic and its Impact on tic Symptoms in Children and Young People: A Prospective Cohort Study | Hall CL, Marston L, Khan K, Brown BJ, Sanderson C, Andrén P, Bennett S, Heyman I, Mataix-Cols D, Serlachius E, Hollis C, Murphy T. | Child Psychiatry Hum Dev. 2022 Apr 13:1–11. doi: 10.1007/s10578-022-01348-1. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33569014 * a | Enhancing Communication Skills of Individuals with Autism Spectrum Disorders While Maintaining Social Distancing Using Two Tele-Operated Robots | Kumazaki H, Muramatsu T, Yoshikawa Y, Haraguchi H, Sono T, Matsumoto Y, Ishiguro H, Kikuchi M, Sumiyoshi T, Mimura M. | Front Psychiatry. 2021 Jan 25;11:598688. doi: 10.3389/fpsyt.2020.598688. eCollection 2020. | Removed after the fourth step in PRISMA process |
| 33536883 a | Digging Signatures in 13-Month-Old 3xTg-AD Mice for Alzheimer's Disease and Its Disruption by Isolation Despite Social Life Since They Were Born | Gimenez-Llort L, Alveal-Mellado D. | Front Behav Neurosci. 2021 Jan 18;14:611384. doi: 10.3389/fnbeh.2020.611384. eCollection 2020. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34238041 b | Update on Neurodegenerative Diseases and Glutamate: A PMHNP Single Case Study Report of a Diagnostically Complex Adult Patient, Interventions, and Unexpected Outcomes | Kroll SC, Bennett CF, Klinefelter TW. | J Am Psychiatr Nurses Assoc. 2021 Jul 8:10783903211030343. doi: 10.1177/10783903211030343. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33481751 * a | The Efficacy of WeChat-Based Parenting Training on the Psychological Well-being of Mothers with Children with Autism during the COVID-19 Pandemic: Quasi-Experimental Study | Liu G, Wang S, Liao J, Ou P, Huang L, Xie N, He Y, Lin J, He HG, Hu R. | JMIR Ment Health. 2021 Feb 10;8(2):e23917. doi: 10.2196/23917. | Removed after the fourth step in PRISMA process |
| 34104925 a | The Impact of the COVID-19 Pandemic on the Assessment of Autism Spectrum Disorder | Posar A, Visconti P, Giuberti V. | Turk Arch Pediatr. 2021 May 1;56(3):280–282. doi: 10.5152/TurkArchPediatr.2021.20269. eCollection 2021. | Excluded – Opinion piece, commentary or letter to the editor |
| 32244776 a | Handle the Autism Spectrum Condition during Coronavirus (COVID-19) Stay At Home period: Ten Tips for Helping Parents and Caregivers of Young Children | Narzisi A. | Brain Sci. 2020 Apr 1;10(4):207. doi: 10.3390/brainsci10040207. | Excluded – Opinion piece, commentary or letter to the editor |
| 32826708 a | Far from an Elective Procedure: Electroconvulsive Therapy and Autism in the Era of COVID-19 | Wachtel LE. | J ECT. 2021 Mar 1;37(1):10–12. doi: 10.1097/YCT.0000000000000720. | Excluded – Opinion piece, commentary or letter to the editor |
| 35455091 b | Changes in the Mean of Medical Visits Due to Psychiatric Disease in Korean Children and Adolescents before and during the COVID-19 Pandemic | Kim SY, Lee NE, Yoo DM, Kim JH, Kwon MJ, Kim JH, Bang WJ, Choi HG. | Life (Basel). 2022 Apr 18;12(4):600. doi: 10.3390/life12040600. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 32715636 a | The Impact of COVID-19 on Autism Research: Reflections from China | Wang C. | Autism Res. 2020 Jul;13(7):1028. doi: 10.1002/aur.2344. | Excluded – Opinion piece, commentary or letter to the editor |
| 34173514 a | Considering Covid-19: Autoethnographic Reflections on Working Practices in a Time of Crisis by Two Disabled UK Academics | Hannam-Swain S, Bailey C. | Soc Sci Humanit Open. 2021;4(1):100145. doi: 10.1016/j.ssaho.2021.100145. Epub 2021 Mar 26. | Excluded – Opinion piece, commentary or letter to the editor |
| 34954508 b | SYNGAP1-Related Developmental and Epileptic Encephalopathy: The Impact on Daily Life | Lo Barco T, De Gaetano L, Santangelo E, Bravi T, Proietti J, Cantalupo G, Brambilla I, Darra F. | Epilepsy Behav. 2022 Feb;127:108500. doi: 10.1016/j.yebeh.2021.108500. Epub 2021 Dec 23. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34216816 b | Promoting Physical Activity Participation and Nutrition Education Through a Telehealth Intervention for Children on the Autism Spectrum and Their Caregivers | Ketcheson LR, Pitchford EA. | Contemp Clin Trials. 2021 Aug;107:106496. doi: 10.1016/j.cct.2021.106496. Epub 2021 Jul 1. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35143494 b | A Scoping Review of Telehealth Diagnosis of Autism Spectrum Disorder | Stavropoulos KK, Bolourian Y, Blacher J. | PLoS One. 2022 Feb 10;17(2):e0263062. doi: 10.1371/journal.pone.0263062. eCollection 2022. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33984092 a | Cardiogenic Shock due to COVID-19-Related Myocarditis in a 19-Year-Old Autistic Patient | Pascariello G, Cimino G, Calvi E, Bernardi N, Grigolato M, Garyfallidis P, Fabbricatore D, Pezzola E, Lombardi CM, Metra M, Vizzardi E. | J Med Cases. 2020 Jul;11(7):207–210. doi: 10.14740/jmc3517. Epub 2020 Jun 29. | Excluded – Case study |
| 35615409 b | Mental Health Profiles of Autistic Children and Youth during the COVID-19 Pandemic | Charalampopoulou M, Choi EJ, Korczak DJ, Cost KT, Crosbie J, Birken CS, Charach A, Monga S, Kelley E, Nicolson R, Georgiades S, Ayub M, Schachar RJ, Iaboni A, Anagnostou E. | Paediatr Child Health. 2022 May 5;27(Suppl 1):S59–S65. doi: 10.1093/pch/pxab111. eCollection 2022 Jun. | Included in the post-survey analysis |
| 33641028 a | Factors Affecting the Behavior of Children with ASD during the First Outbreak of the COVID-19 Pandemic | Nuñez A, Le Roy C, Coelho-Medeiros ME, López-Espejo M. | Neurol Sci. 2021 May;42(5):1675–1678. doi: 10.1007/s10072-021-05147-9. Epub 2021 Feb 28. | Included in final analysis |
| 34444263 b | Behavioural Improvements in Children with Autism Spectrum Disorder After Participation in an Adapted Judo Programme Followed by Deleterious Effects during the COVID-19 Lockdown | Morales J, Fukuda DH, Garcia V, Pierantozzi E, Curto C, Martínez-Ferrer JO, Gómez AM, Carballeira E, Guerra-Balic M. | Int J Environ Res Public Health. 2021 Aug 12;18(16):8515. doi: 10.3390/ijerph18168515. | Included in the post-survey analysis |
| 34191764 a | COVID-19 Pandemic Highlights Access Barriers for Children with Autism Spectrum Disorder | McNally Keehn R, Tomlin A, Ciccarelli MR. | J Dev Behav Pediatr. 2021 Sep 1;42(7):599–601. doi: 10.1097/DBP.0000000000000988. | Excluded – Opinion piece, commentary or letter to the editor |
| 33353165 a | Mental Health of Parents of Special Needs Children in China during the COVID-19 Pandemic | Chen SQ, Chen SD, Li XK, Ren J. | Int J Environ Res Public Health. 2020 Dec 18;17(24):9519. doi: 10.3390/ijerph17249519. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33730684 * a | It took a Pandemic: Perspectives on Impact, Stress, and Telehealth from Caregivers of people with autism | White SW, Stoppelbein L, Scott H, Spain D. | Res Dev Disabil. 2021 Jun;113:103938. doi: 10.1016/j.ridd.2021.103938. Epub 2021 Mar 14. | Removed after the fourth step in PRISMA process |
| 33892139 a | Double Stranded RNA Drives Anti-viral Innate Immune Responses, Sickness Behavior and Cognitive Dysfunction Dependent on dsRNA length, IFNAR1 Expression and Age | McGarry N, Murray CL, Garvey S, Wilkinson A, Tortorelli L, Ryan L, Hayden L, Healy D, Griffin EW, Hennessy E, Arumugam M, Skelly DT, Mitchell KJ, Cunningham C. | Brain Behav Immun. 2021 Jul;95:413–428. doi: 10.1016/j.bbi.2021.04.016. Epub 2021 Apr 21. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34007506 a | ‘This Is Not the Original Timeline’: A Case Report of an Extended Dissociative Episode in a Healthy Young Male Accompanied with Severe Decline in Mental State | Tong G, Groom K, Ward L, Naeem M. | Case Rep Psychiatry. 2021 May 3;2021:6619579. doi: 10.1155/2021/6619579. eCollection 2021. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33389304 a | Randomized Controlled Trial of a Video Gaming-Based Social Skills Program for Children on the Autism Spectrum | Beaumont R, Walker H, Weiss J, Sofronoff K. | J Autism Dev Disord. 2021 Oct;51(10):3637–3650. doi: 10.1007/s10803-020-04801-z. Epub 2021 Jan 3. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33486395 a | How have youth with Autism Spectrum Disorder Managed Quarantine derived from COVID-19 Pandemic? An Approach to Families Perspectives | Mumbardó-Adam C, Barnet-López S, Balboni G. | Res Dev Disabil. 2021 Mar;110:103860. doi: 10.1016/j.ridd.2021.103860. Epub 2021 Jan 12. | Included in final analysis |
| 34171493 a | Parent Training Intervention for Autism Symptoms, Functional Emotional Development, and Parental Stress in Children with Autism Disorder: A Randomized Clinical Trial | Akhani A, Dehghani M, Gharraee B, Hakim Shooshtari M. | Asian J Psychiatr. 2021 Aug;62:102735. doi: 10.1016/j.ajp.2021.102735. Epub 2021 Jun 14. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34394851 b | Transitioning ABA Services from in Clinic to Telehealth: Case Study of an Indian Organization's Response to COVID-19 Lockdown | Awasthi S, Aravamudhan S, Jagdish A, Joshi B, Mukherjee P, Kalkivaya R, Ali RS, Srivastava SN, Edasserykkudy S. | Behav Anal Pract. 2021 Aug 11;14(4):893–912. doi: 10.1007/s40617-021-00600-9. eCollection 2021 Dec. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 31895812 a | Effective/Cost Effective Interventions of Child Mental Health Problems in Low- and Middle-Income Countries (LAMIC): Systematic Review | Grande AJ, Ribeiro WS, Faustino C, de Miranda CT, Mcdaid D, Fry A, de Moraes SHM, de Oliveira SMDVL, de Farias JM, de Tarso Coelho Jardim P, King D, Silva V, Ziebold C, Evans-Lacko S. | Medicine (Baltimore). 2020 Jan;99(1):e18611. doi: 10.1097/MD.0000000000018611. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33845561 a | Social Distancing and Social Interaction in Children with Autism Spectrum Disorder during the Covid-19 Pandemic: A Clinical Oxymoron | Trabacca A, Craig F. | Minerva Pediatr (Torino). 2021 Apr 12. doi: 10.23736/S2724-5276.21.06057-2. Online ahead of print. | Excluded – Opinion piece, commentary or letter to the editor |
| 33465590 * a | A Systematic Review of Technological Approaches for Autism Spectrum Disorder Assessment in Children: Implications for the COVID-19 Pandemic | Dahiya AV, DeLucia E, McDonnell CG, Scarpa A. | Res Dev Disabil. 2021 Feb;109:103852. doi: 10.1016/j.ridd.2021.103852. Epub 2021 Jan 8. | Removed after the fourth step in PRISMA process |
| 34827403 b | A Multidisciplinary Telerehabilitation Approach for Supporting Social Interaction in Autism Spectrum Disorder Families: An Italian Digital Platform in Response to COVID-19 | Vallefuoco E, Purpura G, Gison G, Bonifacio A, Tagliabue L, Broggi F, Scuccimarra G, Pepino A, Nacinovich R. | Brain Sci. 2021 Oct 25;11(11):1404. doi: 10.3390/brainsci11111404. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34960514 b | A New Socially Assistive Robot with Integrated Serious Games for Therapies with Children with Autism Spectrum Disorder and Down Syndrome: A Pilot Study | Panceri JAC, Freitas É, de Souza JC, da Luz Schreider S, Caldeira E, Bastos TF. | Sensors (Basel). 2021 Dec 16;21(24):8414. doi: 10.3390/s21248414. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34986033 b | Masking for School-Age Children with Epilepsy: We Do Have Consensus! | Fine AL, Wong-Kisiel LC, Nickels KC, Wirrell EC. | J Child Neurol. 2022 Feb;37(2):127–132. doi: 10.1177/08830738211063684. Epub 2022 Jan 5. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33387743 a | Changing Trends in Psychiatric Emergency Service Admissions during the COVID-19 Outbreak: Report from a Worldwide Epicentre | Gómez-Ramiro M, Fico G, Anmella G, Vázquez M, Sagué-Vilavella M, Hidalgo-Mazzei D, Pacchiarotti I, Garriga M, Murru A, Parellada E, Vieta E. | J Affect Disord. 2021 Mar 1;282:26–32. doi: 10.1016/j.jad.2020.12.057. Epub 2020 Dec 27. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 32905181 a | Taking ACTion: 18 Simple Strategies for Supporting Children with Autism during the COVID-19 Pandemic | Tarbox CM, Silverman EA, Chastain AN, Little A, Bermudez TL, Tarbox J. | Behav Anal Pract. 2020 Sep 2;14(4):1–29. doi: 10.1007/s40617-020-00448-5. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33285156 a | Potential Health Benefits of Sustained Air Quality Improvements in New York City: A Simulation Based on Air Pollution Levels during the COVID-19 Shutdown | Perera F, Berberian A, Cooley D, Shenaut E, Olmstead H, Ross Z, Matte T. | Environ Res. 2021 Feb;193:110555. doi: 10.1016/j.envres.2020.110555. Epub 2020 Dec 4. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 32837696 a | A Model of Support for Families of Children with Autism Living in the COVID-19 Lockdown: Lessons from Italy | Degli Espinosa F, Metko A, Raimondi M, Impenna M, Scognamiglio E. | Behav Anal Pract. 2020 Jun 2;13(3):1–9. doi: 10.1007/s40617-020-00438-7. Online ahead of print. | Removed after the fourth step in PRISMA process |
| 33329142 a | Sexual Health in Child and Adolescent Psychiatry: Multi-Site Implementation Through Synchronized Videoconferencing of an Educational Resource Using Standardized Patients | Drozdowicz L, Gordon E, Shapiro D, Jacobson S, Zalpuri I, Stewart C, Lewis AL, Robinson L, Myint MT, Daniolos P, Williamson ED, Pleak R, Graeff Martins AS, Gleason MM, Galanter CA, Miller S, Stubbe D, Martin A. | Front Psychiatry. 2020 Nov 17;11:593101. doi: 10.3389/fpsyt.2020.593101. eCollection 2020. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33988774 a | Impact of COVID-19 on Community Participation and Mobility in Young Adults with Autism Spectrum Disorders | Pfeiffer B, Brusilovskiy E, Hallock T, Salzer M, Davidson AP, Slugg L, Feeley C. | J Autism Dev Disord. 2022 Apr;52(4):1553–1567. doi: 10.1007/s10803-021-05054-0. Epub 2021 May 14. | Included in final analysis |
| 33369729 a | The Effects of Transition to Technician-Delivered Telehealth ABA Treatment during the COVID-19 Crisis: A Preliminary Analysis | Pollard JS, LeBlanc LA, Griffin CA, Baker JM. | J Appl Behav Anal. 2021 Jan;54(1):87–102. doi: 10.1002/jaba.803. Epub 2020 Dec 28. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35367807 b | Effect of Covid-19 Lockdown on Indian Children with Autism | Kaur R, Boobna T, Kallingal P. | Res Dev Disabil. 2022 Jun;125:104230. doi: 10.1016/j.ridd.2022.104230. Epub 2022 Mar 30. | Included in the post-survey analysis |
| 34075809 a | Food Insecurity in the Households of Children with Autism Spectrum Disorders and Intellectual Disabilities in the United States: Analysis of the National Survey of Children's Health Data 2016–2018 | Karpur A, Vasudevan V, Lello A, Frazier TW, Shih A. | Autism. 2021 Nov;25(8):2400–2411. doi: 10.1177/13623613211019159. Epub 2021 Jun 2. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35215136 b | Pathogenic Infections during Pregnancy and the Consequences for Fetal Brain Development | Jash S, Sharma S. | Pathogens. 2022 Jan 31;11(2):193. doi: 10.3390/pathogens11020193. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35573336 b | Autism Diagnostic Assessments with Children, Adolescents, and Adults Prior to and during the COVID-19 Pandemic: A Cross-Sectional Survey of Professionals | Spain D, Stewart GR, Mason D, Robinson J, Capp SJ, Gillan N, Ensum I, Happé F. | Front Psychiatry. 2022 Apr 28;13:789449. doi: 10.3389/fpsyt.2022.789449. eCollection 2022. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34609696 b | Correction to: Predictors of Satisfaction with Autism Treatment Services during COVID-19 | Ferguson EF, Jimenez-Muñoz M, Feerst H, Vernon TW. | J Autism Dev Disord. 2021 Oct 5:1. doi: 10.1007/s10803-021-05283-3. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34529837 b | Loneliness and mental Health in Children and Adolescents with Pre-Existing Mental Health Problems: A rapid Systematic Review | Hards E, Loades ME, Higson-Sweeney N, Shafran R, Serafimova T, Brigden A, Reynolds S, Crawley E, Chatburn E, Linney C, McManus M, Borwick C. | Br J Clin Psychol. 2022 Jun;61(2):313–334. doi: 10.1111/bjc.12331. Epub 2021 Sep 16. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 32562437 a | Making a Brochure about Coronavirus Disease (COVID-19) for Children with Autism Spectrum Disorder and their Family Members | Kawabe K, Hosokawa R, Nakachi K, Yoshino A, Horiuchi F, Ueno SI. | Psychiatry Clin Neurosci. 2020 Sep;74(9):498–499. doi: 10.1111/pcn.13090. Epub 2020 Jul 10. | Excluded – Opinion piece, commentary or letter to the editor |
| 33879224 a | Protocol for a Randomized pilot study (FIRST STEPS): Implementation of the Incredible Years-ASLD® program in Spanish Children with Autism and preterm Children with Communication and/or Socialization Difficulties | Valencia F, Urbiola E, Romero-González M, Navas I, Elías M, Garriz A, Ramírez A, Villalta L. | Trials. 2021 Apr 20;22(1):291. doi: 10.1186/s13063-021-05229-1. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33424652 a | Moving Toward Telehealth Surveillance Services for Toddlers at Risk for Autism during the COVID-19 Pandemic | Conti E, Chericoni N, Costanzo V, Lasala R, Mancini A, Prosperi M, Tancredi R, Muratori F, Calderoni S, Apicella F. | Front Psychiatry. 2020 Nov 26;11:565999. doi: 10.3389/fpsyt.2020.565999. eCollection 2020. | Excluded – Opinion piece, commentary or letter to the editor |
| 33251819 a | Teaching Small Talk: Increasing On-Topic Conversational Exchanges in College Students with Intellectual and Developmental Disabilities Using Remote Audio Coaching | Joseph B, Kearney KB, Brady MP, Downey A, Torres A. | Behav Modif. 2021 Mar;45(2):251–271. doi: 10.1177/0145445520975174. Epub 2020 Nov 30. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33392143 a | Excessive and Problematic Internet Use during the Coronavirus Disease 2019 School Closure: Comparison between Japanese Youth with and Without Autism Spectrum Disorder | Kawabe K, Hosokawa R, Nakachi K, Yoshino A, Horiuchi F, Ueno SI. | Front Public Health. 2020 Dec 17;8:609347. doi: 10.3389/fpubh.2020.609347. eCollection 2020. | Included in final analysis |
| 34612710 b | Evaluation of a Graduated Exposure Procedure to Teach Extended Mask Wearing in Various Settings to Children with Autism | Ertel HM, Wilder DA, Hodges AC. | Behav Modif. 2021 Oct 6:1454455211049546. doi: 10.1177/01454455211049546. Online ahead of print. | Included in the post-survey analysis |
| 35103038 b | Career Adaptability of Parents of Children with Autism Spectrum Disorder | Ozdemir NK, Koç M. | Curr Psychol. 2022 Jan 27:1–14. doi: 10.1007/s12144-021-02649-9. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35447501 b | A Qualitative Examination of the Impact of the COVID-19 Pandemic on Children and Adolescents with Autism and their Parents | Stadheim J, Johns A, Mitchell M, Smith CJ, Braden BB, Matthews NL. | Res Dev Disabil. 2022 Jun;125:104232. doi: 10.1016/j.ridd.2022.104232. Epub 2022 Apr 14. | Included in the post-survey analysis |
| 33311431 a | Three Cases of COVID-19 Pneumonia That Responded to Icosapent Ethyl Supportive Treatment | Suh W, Urits I, Viswanath O, Kaye AD, Patel H, Hall W, Eskander JP. | Am J Case Rep. 2020 Dec 14;21:e928422. doi: 10.12659/AJCR.928422. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34157904 a | Behavioral Affect in Children with Autism Spectrum Disorder during School Closures Due to the COVID-19 Pandemic in Japan: A Case-Controlled Study | Hosokawa R, Kawabe K, Nakachi K, Yoshino A, Horiuchi F, Ueno SI. | Dev Neuropsychol. 2021 Jun 23:1–10. doi: 10.1080/87565641.2021.1939350. Online ahead of print. | Excluded – Case study |
| 32841645 a | Exceptionally High COVID-19 Viral Load and Very Long Duration of Shedding in a Young Pauci-Symptomatic Child with Autism Resident in an Italian Nursing Home | Grossi E, Terruzzi V. | J Infect. 2021 Feb;82(2):e29-e30. doi: 10.1016/j.jinf.2020.08.026. Epub 2020 Aug 22. | Excluded – Opinion piece, commentary or letter to the editor |
| 33475040 a | The Prospect of Autism in the Next Generation; the Need to Pay Attention to the COVID-19 Pandemic | Mohammadi MR, Zandifar A, Badrfam R. | World J Biol Psychiatry. 2021 Sep;22(7):557–558. doi: 10.1080/15622975.2021.1878390. Epub 2021 Apr 9. | Excluded – Opinion Piece, Commentary or letter to the editor |
| 35275394 b | Analysis of the Impact of COVID-19 on Youngsters with Autistic Spectrum Disorder | Salmerón-Medina M, Tàpia-Córcoles A, Palou-Artola E, Nicolau-Palou R, Calvo-Escalona R. | Rev Neurol. 2022 Mar 16;74(6):181–188. doi: 10.33588/rn.7406.2021291. | Excluded – Article published in Spanish |
| 34923834 b | Home Direct-to-Consumer Telehealth Solutions for Children with Mental Health Disorders and the Impact of Covid-19 | Norman S, Atabaki S, Atmore K, Biddle C, DiFazio M, Felten D, Fox E, Marschall D, Newman J, Robb A, Rowland C, Selekman R, Slovin A, Stein M, Strang J, Sable C. | Clin Child Psychol Psychiatry. 2022 Jan;27(1):244–258. doi: 10.1177/13591045211064134. Epub 2021 Dec 20. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34826776 b | Risk and Protective Factors of Quality of life for Children with Autism Spectrum Disorder and their Families during the COVID-19 Lockdown. An Italian Study | Logrieco MG, Casula L, Ciuffreda GN, Novello RL, Spinelli M, Lionetti F, Nicolì I, Fasolo M, Giovanni V, Stefano V. | Res Dev Disabil. 2022 Jan;120:104130. doi: 10.1016/j.ridd.2021.104130. Epub 2021 Nov 19. | Included in the post-survey analysis |
| 33266429 * a | Using Hybrid Telepractice for Supporting Parents of Children with ASD during the COVID-19 Lockdown: A Feasibility Study in Iran | Samadi SA, Bakhshalizadeh-Moradi S, Khandani F, Foladgar M, Poursaid-Mohammad M, McConkey R. | Brain Sci. 2020 Nov 22;10(11):892. doi: 10.3390/brainsci10110892. | Removed after the fourth step in PRISMA process |
| 33058519 a | Debate: Remote Learning during COVID-19 for Children with high Functioning Autism Spectrum Disorder | Reicher D. | Child Adolesc Ment Health. 2020 Nov;25(4):263–264. doi: 10.1111/camh.12425. Epub 2020 Oct 15. | Excluded – Opinion piece, commentary or letter to the editor |
| 33718591 * a | Transition of a Judo Program from In-Person to Remote Delivery during COVID-19 for Youth with Autism Spectrum Disorder | Garcia JM, Cathy BS, Garcia AV, Shurack R, Brazendale K, Leahy N, Fukuda D, Lawrence S. | Adv Neurodev Disord. 2021;5(2):227–232. doi: 10.1007/s41252-021-00198-7. Epub 2021 Mar 6. | Removed after the fourth step in PRISMA process |
| 35460894 b | Autism Spectrum Disorder Screening during the COVID-19 Pandemic in a Large Primary Care Network | Wallis KE, Nekrasova E, Bennett AE, Fiks AG, Gerdes M, Jenssen BP, Miller JS, Shu D, Guthrie W. | Acad Pediatr. 2022 Apr 20:S1876-2859(22)00232-7. doi: 10.1016/j.acap.2022.04.005. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35541570 b | Impact of COVID-19 Pandemic-Associated Social Changes on Boys with Moderate to Severe Autism | Hannawi AP, Knight C, Grelotti DJ, Trauner DA. | Adv Neurodev Disord. 2022 May 6:1–5. doi: 10.1007/s41252-022-00257-7. Online ahead of print. | Included in the post-survey analysis |
| 34420427 b | COVID-19 Risk: Adult Medicaid Beneficiaries with Autism, Intellectual Disability, and Mental Health Conditions | Schott W, Tao S, Shea L. | Autism. 2022 May;26(4):975–987. doi: 10.1177/13623613211039662. Epub 2021 Aug 21. | Included in the post-survey analysis |
| 35151216 b | Investigating the Relationships between Resilience, Autism-Related Quantitative Traits, and Mental Health Outcomes among Adults during the COVID-19 Pandemic | Taylor SC, Smernoff ZL, Rajan M, Steeman S, Gehringer BN, Dow HC, Barzilay R, Rader DJ, Bucan M, Almasy L, Brodkin ES. | J Psychiatr Res. 2022 Apr;148:250–257. doi: 10.1016/j.jpsychires.2022.01.046. Epub 2022 Jan 29. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34405062 b | Post Severe Acute Respiratory Syndrome Coronavirus 2 Infection Tremors in a Nonverbal Autistic Adolescent | Zariffeh A, Youssef AS, Rizvi F, Lew LQ. | Cureus. 2021 Jul 10;13(7):e16296. doi: 10.7759/cureus.16296. eCollection 2021 Jul. | Excluded – Case study |
| 35073995 b | IDEAS: Individual Level Differential Expression Analysis for Single-Cell RNA-seq Data | Zhang M, Liu S, Miao Z, Han F, Gottardo R, Sun W. | Genome Biol. 2022 Jan 24;23(1):33. doi: 10.1186/s13059-022-02605-1. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35133855 b | Understanding Caregiver Satisfaction with a Telediagnostic Assessment of Autism Spectrum Disorder | Jones MK, Zellner MA, Hobson AN, Levin A, Roberts MY. | Am J Speech Lang Pathol. 2022 Mar 10;31(2):982–990. doi: 10.1044/2021_AJSLP-21-00139. Epub 2022 Feb 8. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 32659945 a | Effective Strategies for Managing COVID-19 Emergency Restrictions for Adults with Severe ASD in a Daycare Center in Italy | Brondino N, Damiani S, Politi P. | Brain Sci. 2020 Jul 9;10(7):436. doi: 10.3390/brainsci10070436. | Removed after the fourth step in PRISMA process |
| 34221461 b | How the COVID-19 Pandemic Affects the Definition of a Condition?: A Commentary on the Diagnostic Process of Autism Spectrum Disorder | Rafiei M, Memari A. | Sultan Qaboos Univ Med J. 2021 May;21(2):e164-e165. doi: 10.18295/squmj.2021.21.02.002. Epub 2021 Jun 21. | Excluded – Opinion piece, commentary or letter to the editor |
| 35426749 b | Supporting Children on the Autism Spectrum as They Experience the Challenges of COVID-19 | Obst B, Roesler M, Fato P, Goff C. | NASN Sch Nurse. 2022 Apr 15:1942602X221089047. doi: 10.1177/1942602X221089047. Online ahead of print. | Included in the post-survey analysis |
| 34193630 a | WhatsApp-Based Physical Activity Intervention for Children with Autism Spectrum Disorder during the Novel Coronavirus (COVID-19) Pandemic: A Feasibility Trial | Esentürk OK, Yarımkaya E. | Adapt Phys Activ Q. 2021 Oct 1;38(4):569–584. doi: 10.1123/apaq.2020-0109. Epub 2021 Jun 30. | Removed after the fourth step in PRISMA process |
| 34241594 b | Impact of COVID-19 Lockdown on Sleep in Children with Autism Spectrum Disorders | Bruni O, Melegari MG, Breda M, Cedrone A, Finotti E, Malorgio E, Doria M, Ferri R. | J Clin Sleep Med. 2022 Jan 1;18(1):137–143. doi: 10.5664/jcsm.9518. | Included in the post-survey analysis |
| 34636703 b | The Impact of the COVID-19 Pandemic on Children with Special Needs: A Descriptive Study | Mete Yesil A, Sencan B, Omercioglu E, Ozmert EN. | Clin Pediatr (Phila). 2022 Feb;61(2):141–149. doi: 10.1177/00099228211050223. Epub 2021 Oct 12. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35422715 b | Relationships between Mental Health, Emotion Regulation, and Meaning in Life of Frontline Nurses during the COVID-19 Outbreak | Chen S, Zhou W, Luo T, Huang L. | Front Psychiatry. 2022 Mar 29;13:798406. doi: 10.3389/fpsyt.2022.798406. eCollection 2022. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35320253 b | The role of Augmentative and Alternative Communication in Speech and Language Therapy: A Mini Review | Butt AK, Zubair R, Rathore FA. | J Pak Med Assoc. 2022 Mar;72(3):581–584. doi: 10.47391/JPMA.22-023. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35572177 b | The impact of the COVID-19 School Closures on Families with Children with Disabilities: A Qualitative Analysis | Lipkin M, Crepeau-Hobson F. | Psychol Sch. 2022 Apr 12:10.1002/pits.22706. doi: 10.1002/pits.22706. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33271720 a | Supporting Individuals with Autism Spectrum Disorder in Medical Settings during COVID-19 | Goh TJ, Lim T, Foo M, Ong SKA, Aishworiya R, Nair T, Kang YQ, Agarwal PK, Sung M. | Asian J Psychiatr. 2020 Dec;54:102441. doi: 10.1016/j.ajp.2020.102441. Epub 2020 Oct 9. | Excluded – Opinion piece, commentary or letter to the editor |
| 34776249 b | Anxiety and Depression in Parents of Children with Autism Spectrum Disorder during the First COVID-19 Lockdown: Report from the ELENA Cohort | Miniarikova E, Vernhet C, Peries M, Loubersac J, Picot MC, Munir K, Baghdadli A. | J Psychiatr Res. 2022 May;149:344–351. doi: 10.1016/j.jpsychires.2021.11.022. Epub 2021 Nov 8. | Included in the post-survey analysis |
| 35253243 b | Life Under Lockdown for Children with Autism Spectrum Disorder: Insights from Families in South Africa | Adams SN, Seedat J, Neille J. | Child Care Health Dev. 2022 Mar 6. doi: 10.1111/cch.12996. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34836713 b | Parent Intentions to Vaccinate Children with Autism Spectrum Disorder Against COVID-19 | Choi K, Becerra-Culqui T, Bhakta B, Bruxvoort K, Coleman KJ. | J Pediatr Nurs. 2022 Mar-Apr;63:108–110. doi: 10.1016/j.pedn.2021.11.019. Epub 2021 Nov 24. | Included in the post-survey analysis |
| 34951864 b | Medical and Health-Related Misinformation on Social Media: Bibliometric Study of the Scientific Literature | Yeung AWK, Tosevska A, Klager E, Eibensteiner F, Tsagkaris C, Parvanov ED, Nawaz FA, Völkl-Kernstock S, Schaden E, Kletecka-Pulker M, Willschke H, Atanasov AG. | J Med Internet Res. 2022 Jan 25;24(1):e28152. doi: 10.2196/28152. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35234355 b | Differential Effects of COVID-Related Lockdown on Sleep-Wake Rhythms in Adults with Autism Spectrum Disorder Compared to the General Population | Reynaud E, Pottelette J, Rabot J, Rolling J, Royant-Parola S, Hartley S, Coutelle R, Schröder CM. | Autism Res. 2022 May;15(5):945–956. doi: 10.1002/aur.2692. Epub 2022 Mar 2. | Included in the post-survey analysis |
| 35076831 b | Impact of the COVID-19 Pandemic on Daily Life: Diverse Experiences for Autistic Adults | Maljaars J, Gijbels E, Evers K, Spain D, Rumball F, Happé F, Noens I. | J Autism Dev Disord. 2022 Jan 25:1–13. doi: 10.1007/s10803-022-05437-x. Online ahead of print. | Included in the post-survey analysis |
| 35281673 b | Teaching Adults with Neurodevelopmental Disabilities to Interact Successfully with Others in a Virtual Format | Callahan R, Kail B, Lerman DC, Johnson-Patagoc K, Whitcher D. | Behav Anal Pract. 2022 Mar 4:1–17. doi: 10.1007/s40617-022-00681-0. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 32575062 a | Supporting Children with Autism Spectrum Disorder in the Face of the COVID-19 Pandemic | Smile SC. | CMAJ. 2020 May 25;192(21):E587. doi: 10.1503/cmaj.75399. | Excluded – Opinion piece, commentary or letter to the editor |
| 35572181 b | Exploring Telehealth during COVID for Assessing Autism Spectrum Disorder in a Diverse Sample | Stavropoulos KKM, Heyman M, Salinas G, Baker E, Blacher J. | Psychol Sch. 2022 Mar 25:10.1002/pits.22672. doi: 10.1002/pits.22672. Online ahead of print. | Included in the post-survey analysis |
| 34085153 a | Transitioning to Telemedicine during COVID-19: Impact on Perceptions and Use of Telemedicine Procedures for the Diagnosis of Autism in Toddlers | Wagner L, Weitlauf AS, Hine J, Corona LL, Berman AF, Nicholson A, Allen W, Black M, Warren Z. | J Autism Dev Disord. 2022 May;52(5):2247–2257. doi: 10.1007/s10803-021-05112-7. Epub 2021 Jun 4. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35113328 b | Brief Report: Covid Restrictions had Positive and Negative Impacts on Schooling for Students on the Autism Spectrum | Simpson K, Adams D. | J Autism Dev Disord. 2022 Feb 3:1–7. doi: 10.1007/s10803-022-05451-z. Online ahead of print. | Included in the post-survey analysis |
| 34081298 a | Impact of School Closures due to COVID-19 on Children with Neurodevelopmental Disorders in Japan | Kawaoka N, Ohashi K, Fukuhara S, Miyachi T, Asai T, Imaeda M, Saitoh S. | J Autism Dev Disord. 2022 May;52(5):2149–2155. doi: 10.1007/s10803-021-05119-0. Epub 2021 Jun 3. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33991289 * a | Parental Views of Families of Children with Autism Spectrum Disorder and Developmental Disorders during the COVID-19 Pandemic | Meral BF. | J Autism Dev Disord. 2022 Apr;52(4):1712–1724. doi: 10.1007/s10803-021-05070-0. Epub 2021 May 15. | Removed after the fourth step in PRISMA process |
| 35268354 b | Parenting Children with Autism Spectrum Disorder during Crises: Differential Responses between the Financial and the COVID-19 Pandemic Crisis | Papanikolaou K, Ntre V, Gertsou IM, Tagkouli E, Tzavara C, Pehlivanidis A, Kolaitis G. | J Clin Med. 2022 Feb 25;11(5):1264. doi: 10.3390/jcm11051264. | Included in the post-survey analysis |
| 35207180 b | Multiple Aspects of Inappropriate Action of Renin-Angiotensin, Vasopressin, and Oxytocin Systems in Neuropsychiatric and Neurodegenerative Diseases | Szczepanska-Sadowska E, Wsol A, Cudnoch-Jedrzejewska A, Czarzasta K, Żera T. | J Clin Med. 2022 Feb 9;11(4):908. doi: 10.3390/jcm11040908. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35250672 b | Maternal Immune Activation and Interleukin 17A in the Pathogenesis of Autistic Spectrum Disorder and Why It Matters in the COVID-19 Era | Carter M, Casey S, O'Keeffe GW, Gibson L, Gallagher L, Murray DM. | Front Psychiatry. 2022 Feb 17;13:823096. doi: 10.3389/fpsyt.2022.823096. eCollection 2022. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35124401 b | Media use and Emotional Distress under COVID-19 Lockdown in a Clinical Sample Referred for Internalizing Disorders: A Swiss Adolescents' Perspective | Werling AM, Walitza S, Gerstenberg M, Grünblatt E, Drechsler R. | J Psychiatr Res. 2022 Mar;147:313–323. doi: 10.1016/j.jpsychires.2022.01.004. Epub 2022 Jan 5. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33635422 a | Implications of Employment Changes Caused by COVID-19 on Mental Health and Work-Related Psychological Need Satisfaction of Autistic Employees: A Mixed-Methods Longitudinal Study | Goldfarb Y, Gal E, Golan O. | J Autism Dev Disord. 2022 Jan;52(1):89–102. doi: 10.1007/s10803-021-04902-3. Epub 2021 Feb 26. | Included in final analysis |
| 34551900 b | Feasibility and Parental Perception of home sleep Studies during COVID-19: A Tertiary Sleep centre Experience | Jones S, Hanwell R, Chowdhury T, Orgill J, van den Eshof K, Farquhar M, Joseph D, Gringras P, Trucco F. | Arch Dis Child. 2022 Feb;107(2):189–191. doi: 10.1136/archdischild-2021-322184. Epub 2021 Sep 22. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35053859 b | The Psychological Impact of the COVID-19 Lockdown: A Comparison between Caregivers of Autistic and Non-Autistic Individuals in Italy | Fusar-Poli L, Martinez M, Surace T, Meo V, Patania F, Avanzato C, Signorelli MS, Aguglia E. | Brain Sci. 2022 Jan 15;12(1):116. doi: 10.3390/brainsci12010116. | Included in the post-survey analysis |
| 35598429 b | Fetal Neurodevelopmental Spatio-Temporal Dynamic Transcriptional Landscape of Maternal Insult-Induce Autism Spectrum Disorder Risk | Duan L, Yin H, Liu J, Wang W, Li J, Shen J, Liu L, Wang Z. | Biochem Biophys Res Commun. 2022 May 14;614:183–190. doi: 10.1016/j.bbrc.2022.05.040. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35061560 b | Cross-Platform Spread: Vaccine-Related Content, Sources, and Conspiracy Theories in YouTube videos Shared in early Twitter COVID-19 Conversations | Ginossar T, Cruickshank IJ, Zheleva E, Sulskis J, Berger-Wolf T. | Hum Vaccin Immunother. 2022 Dec 31;18(1):1–13. doi: 10.1080/21645515.2021.2003647. Epub 2022 Jan 21. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35579789 b | Provider and Caregiver Satisfaction with Telehealth Evaluation of Autism Spectrum Disorder in Young Children during the COVID-19 Pandemic | Reisinger DL, Hines E, Raches C, Tang Q, James C, Keehn RM. | J Autism Dev Disord. 2022 May 17:1–15. doi: 10.1007/s10803-022-05576-1. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35575840 b | Incorporation of Telepsychiatry for Patients with Developmental Disorders into Routine Clinical Practice-A Survey of Specialty Clinics Adapting to Telepsychiatry during the COVID-19 Pandemic | Verma S, Vandana P, Soda T, Koth KA, Aguayo P, Shaffer RC, Hellings J, Muhle RA. | J Autism Dev Disord. 2022 May 16:1–5. doi: 10.1007/s10803-022-05593-0. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33318802 a | Sustained Compression Leading to Liner Pressure Ulcers Following Improper Surgical Mask Use in Autism Spectrum Disorder | Baba Y, Otani K, Sakai K, Kawaguchi R. | Acute Med Surg. 2020 Dec 10;7(1):e604. doi: 10.1002/ams2.604. eCollection 2020 Jan-Dec. | Excluded – Opinion piece, commentary or letter to the editor |
| 32893073 a | Convulsive Status Epilepticus as a Possible Symptom of COVID-19 in a Patient with Intellectual Disability and Autistic Spectrum Disorder | Peña-Salazar C, López Cuiña M, Chavarría V, Robles Olmo B. | Neurologia (Engl Ed). 2020 Nov-Dec;35(9):703–705. doi: 10.1016/j.nrl.2020.07.010. Epub 2020 Jul 31. | Excluded – Case study |
| 35401276 b | Effectiveness of Online-Delivered Project Impact for Children with ASD and Their Parents: A Pilot Study during the COVID-19 Pandemic | Li F, Wu D, Ren F, Shen L, Xue M, Yu J, Zhang L, Tang Y, Liu X, Tao M, Zhou L, Jiang L, Xu M, Li F. | Front Psychiatry. 2022 Mar 24;13:806149. doi: 10.3389/fpsyt.2022.806149. eCollection 2022. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34483637 b | Brief Report: Impact of the COVID-19 Pandemic on Asian American Families with Children with Developmental Disabilities | Dababnah S, Kim I, Wang Y, Reyes C. | J Dev Phys Disabil. 2022;34(3):491–504. doi: 10.1007/s10882-021-09810-z. Epub 2021 Sep 1. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34121159 a | The Digital Divide in Technologies for Autism: Feasibility Considerations for Low- and Middle-Income Countries | Kumm AJ, Viljoen M, de Vries PJ. | J Autism Dev Disord. 2022 May;52(5):2300–2313. doi: 10.1007/s10803-021-05084-8. Epub 2021 Jun 13. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35140635 b | Group-Based Online Job Interview Training Program Using Virtual Robot for Individuals with Autism Spectrum Disorders | Kumazaki H, Yoshikawa Y, Muramatsu T, Haraguchi H, Fujisato H, Sakai K, Matsumoto Y, Ishiguro H, Sumiyoshi T, Mimura M. | Front Psychiatry. 2022 Jan 24;12:704564. doi: 10.3389/fpsyt.2021.704564. eCollection 2021. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 32426099 a | Maintaining Treatment Integrity in the Face of Crisis: A Treatment Selection Model for Transitioning Direct ABA Services to Telehealth | Rodriguez KA. | Behav Anal Pract. 2020 May 18;13(2):291–298. doi: 10.1007/s40617-020-00429-8. eCollection 2020 Jun. | Excluded – Opinion piece, commentary or letter to the editor |
| 35410515 b | Patient Satisfaction in Neurodevelopmental Pediatrics: In-Person vs Telemedicine | Kennelly AM, McIntyre B, Wood AC, Monteiro S, Voigt RG. | J Child Neurol. 2022 Mar;37(3):181–185. doi: 10.1177/08830738221075451. Epub 2022 Apr 12. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35180544 b | How Parents of Children with Autism Spectrum Disorder Experience the COVID-19 Pandemic: Perspectives and Insights on the New Normal | Bozkus-Genc G, Sani-Bozkurt S. | Res Dev Disabil. 2022 May;124:104200. doi: 10.1016/j.ridd.2022.104200. Epub 2022 Feb 14. | Included in the post-survey analysis |
| 34344221 b | Special Education for Students with Autism during the COVID-19 Pandemic: ‘Each day Brings new Challenges’ | Hurwitz S, Garman-McClaine B, Carlock K. | Autism. 2022 May;26(4):889–899. doi: 10.1177/13623613211035935. Epub 2021 Aug 3. | Included in the post-survey analysis |
| 33730320 a | Diagnostic Evaluations of Autism Spectrum Disorder during the COVID-19 Pandemic | Jang J, White SP, Esler AN, Kim SH, Klaiman C, Megerian JT, Morse A, Nadler C, Kanne SM. | J Autism Dev Disord. 2022 Feb;52(2):962–973. doi: 10.1007/s10803-021-04960-7. Epub 2021 Mar 17. | Excluded – Opinion piece, commentary or letter to the editor |
| 35071743 b | Human Services during the COVID Pandemic: Using Behavioral Safety Programs to Protect Human Services Workers and Students | Wine B, Doan T. | Adv Neurodev Disord. 2022 Jan 15:1–6. doi: 10.1007/s41252-021-00232-8. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34041682 a | Brief Report: Impact of COVID-19 in Individuals with Autism Spectrum Disorders: Analysis of a National Private Claims Insurance Database | Karpur A, Vasudevan V, Shih A, Frazier T. | J Autism Dev Disord. 2022 May;52(5):2350–2356. doi: 10.1007/s10803-021-05100-x. Epub 2021 May 26. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34098745 a | Pragmatic Adaptations of Telehealth-Delivered Caregiver Coaching for Children with Autism in the Context of COVID-19: Perspectives from the United States and South Africa | Franz L, Howard J, Viljoen M, Sikich L, Chandrasekhar T, Kollins SH, Lee L, Ndlovu M, Sabatos-DeVito M, Seris N, Shabalala N, Spanos M, de Vries PJ, Dawson G. | Autism. 2022 Jan;26(1):270–275. doi: 10.1177/13623613211022585. Epub 2021 Jun 8. | Excluded – Opinion piece, commentary or letter to the editor |
| 33606157 * a | Characterizing Available Tools for Synchronous Virtual Assessment of Toddlers with Suspected Autism Spectrum Disorder: A Brief Report | Berger NI, Wainer AL, Kuhn J, Bearss K, Attar S, Carter AS, Ibanez LV, Ingersoll BR, Neiderman H, Scott S, Stone WL. | J Autism Dev Disord. 2022 Jan;52(1):423–434. doi: 10.1007/s10803-021-04911-2. Epub 2021 Feb 19. | Removed after the fourth step in PRISMA process |
| 35103899 b | Clinician Perspectives on Telehealth Assessment of Autism Spectrum Disorder during the COVID-19 Pandemic | Kryszak EM, Albright CM, Fell LA, Butter EM, Kuhlthau KA. | J Autism Dev Disord. 2022 Feb 1:1–16. doi: 10.1007/s10803-022-05435-z. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 33613859 * a | Evaluating the Cool Versus Not Cool Procedure via Telehealth | Cihon JH, Ferguson JL, Lee M, Leaf JB, Leaf R, McEachin J. | Behav Anal Pract. 2021 Feb 12;15(1):260–268. doi: 10.1007/s40617-021-00553-z. eCollection 2022 Mar. | Removed after the fourth step in PRISMA process |
| 35186135 b | Children with Severe Disabilities: Adaptation, Virtual education, and Prospects. Experiences of three Peruvian Mothers, COVID-19 Context | Gamarra Choque PM, Rivera Arellano EG, Reynosa Navarro E, Méndez Vergaray J, Huayta-Franco YJ, Muñante Toledo MF. | J Med Life. 2022 Jan;15(1):43–51. doi: 10.25122/jml-2021-0330. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35147653 b | Sleep Behavior of Children with Autism Spectrum Disorder during the Covid-19 Pandemic: A Parent Survey | Scarselli V, Martucci M, Prono F, Giovannone F, Sogos C. | Clin Ter. 2022 Feb 7;173(1):88–90. doi: 10.7417/CT.2022.2398. | Included in the post-survey analysis |
| 34232419 b | Development, Feasibility, and Acceptability of a Nationally Relevant Parent Training to Improve Service Access during the Transition to Adulthood for Youth with ASD | Taylor JL, Pezzimenti F, Burke MM, DaWalt LS, Lee CE, Rabideau C. | J Autism Dev Disord. 2022 Jun;52(6):2388–2399. doi: 10.1007/s10803-021-05128-z. Epub 2021 Jul 7. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35250452 b | The Synaptic Gene Study: Design and Methodology to Identify Neurocognitive Markers in Phelan-McDermid Syndrome and NRXN1 Deletions | Cooke J, Molloy CJ, Cáceres ASJ, Dinneen T, Bourgeron T, Murphy D, Gallagher L, Loth E. | Front Neurosci. 2022 Feb 18;16:806990. doi: 10.3389/fnins.2022.806990. eCollection 2022. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35388450 b | Parental Stress of Children with Autism Spectrum Disorder during the Coronavirus Pandemic (COVID-19): Experience from Serbia | Djuric-Zdravkovic A, Japundza-Milisavljevic M, Perovic D. | Fortschr Neurol Psychiatr. 2022 Apr 6. doi: 10.1055/a-1743-2770. Online ahead of print. | Included in the post-survey analysis |
| 35490214 b | TV, Computer, Tablet and Smartphone Use and Autism Spectrum Disorder Risk in Early Childhood: A Nationally-Representative Study | Melchior M, Barry K, Cohen D, Plancoulaine S, Bernard JY, Milcent K, Gassama M, Gomajee R, Charles MA. | BMC Public Health. 2022 Apr 30;22(1):865. doi: 10.1186/s12889-022-13296-5. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35255304 b | Serum Glial Fibrillary Acidic Protein Is a Body Fluid Biomarker: A Valuable Prognostic for Neurological Disease – A Systematic Review | Heimfarth L, Passos FRS, Monteiro BS, Araújo AAS, Quintans Júnior LJ, Quintans JSS. | Int Immunopharmacol. 2022 Jun;107:108624. doi: 10.1016/j.intimp.2022.108624. Epub 2022 Mar 4. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35162290 b | Effects of the Early Phase of COVID-19 on the Autistic Community in Sweden: A Qualitative Multi-Informant Study Linking to ICF | Fridell A, Norrman HN, Girke L, Bölte S. | Int J Environ Res Public Health. 2022 Jan 24;19(3):1268. doi: 10.3390/ijerph19031268. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 35231721 b | A Trial of Online Abracadabra Literacy Instruction with Supplementary Parent-Led Shared Book Reading for Children with Autism | Bailey B, Sellwood D, Rillotta F, Raghavendra P, Arciuli J. | Res Dev Disabil. 2022 May;124:104198. doi: 10.1016/j.ridd.2022.104198. Epub 2022 Feb 26. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parents |
| 34837543 b | The Serbian Experience of Challenges of Parenting Children with Autism Spectrum Disorders during the COVID-19 Pandemic and the State of Emergency with Lockdown | Stankovic M, Stojanovic A, Jelena S, Stankovic M, Shih A, Stankovic S. | Eur Child Adolesc Psychiatry. 2022 Apr;31(4):693–698. doi: 10.1007/s00787-021-01917-0. | Included in the post-survey analysis |
| 35319728 b | Challenges of the COVID-19 Pandemic among Individuals with Autism Spectrum Disorder | Bitan DT, Krieger I, Weinstein O. | JAMA Psychiatry. 2022 May 1;79(5):389–390. doi: 10.1001/jamapsychiatry.2022.0237. | Excluded – Opinion piece, commentary or letter to the editor |
| 35162512 b | Social Skills Group Training for Students with Neurodevelopmental Disabilities in Senior High School-A Qualitative Multi-Perspective Study of Social Validity | Leifler E, Coco C, Fridell A, Borg A, Bölte S. | Int J Environ Res Public Health. 2022 Jan 28;19(3):1487. doi: 10.3390/ijerph19031487. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parent |
| 34929647 b | A Paradoxical Psychological Impact of COVID-19 among a Sample of Italian Adults with High Functioning Autism Spectrum Disorder | Nisticò V, Gambini O, Pizzi L, Faggioli R, Priori A, Demartini B. | J Clin Neurosci. 2022 Jan;95:27–30. doi: 10.1016/j.jocn.2021.11.026. Epub 2021 Nov 29. | Included in the post-survey analysis |
| 35369648 b | Examining Clinicians' Concerns Delivering Telemental Health Interventions Directly to Autistic Individuals during COVID-19 | Adams L, Adamo N, Hollocks MJ, Valmaggia L, Brewster A, Watson J, Krisson M, Simonoff E. | Res Autism Spectr Disord. 2022 Jun;94:101956. doi: 10.1016/j.rasd.2022.101956. Epub 2022 Mar 29. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parent |
| 35564352 b | The Effect of Sleep-Wake Routines on the Negative Emotional States and Aggressive Behaviors in Adults with Autism Spectrum Disorders (ASD) during the COVID-19 Outbreak | Levante A, Petrocchi S, Colombi C, Keller R, Narzisi A, Masi G, Lecciso F. | Int J Environ Res Public Health. 2022 Apr 19;19(9):4957. doi: 10.3390/ijerph19094957. | Included in the post-survey analysis |
| 35184077 b | Using Telehealth to Conduct Family-Centered, Movement Intervention Research in Children with Autism Spectrum Disorder during the COVID-19 Pandemic | Cleffi C, Su WC, Srinivasan S, Bhat A. | Pediatr Phys Ther. 2022 Apr 1;34(2):246–251. doi: 10.1097/PEP.0000000000000872. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parent |
| 35268284 b | Psychological Interventions for Children with Autism during the COVID-19 Pandemic through a Remote Behavioral Skills Training Program | Marino F, Chilà P, Failla C, Minutoli R, Vetrano N, Luraschi C, Carrozza C, Leonardi E, Busà M, Genovese S, Musotto R, Puglisi A, Arnao AA, Cardella G, Famà FI, Cusimano G, Vagni D, Martines P, Mendolia G, Tartarisco G, Cerasa A, Ruta L, Pioggia G. | J Clin Med. 2022 Feb 23;11(5):1194. doi: 10.3390/jcm11051194. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parent |
| 35409492 b | Do Autistic Traits Correlate with Post-Traumatic Stress and Mood Spectrum Symptoms among Workers Complaining of Occupational Stress? | Dell'Osso L, Buselli R, Corsi M, Baldanzi S, Bertelloni CA, Marino R, Gravina D, Chiumiento M, Veltri A, Massimetti G, Caldi F, Perretta S, Foddis R, Guglielmi G, Cristaudo A, Carmassi C. | Int J Environ Res Public Health. 2022 Mar 23;19(7):3809. doi: 10.3390/ijerph19073809. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parent |
| 35083922 b | The Impact of Early Stages of COVID-19 on the Mental Health of Autistic Adults in the United Kingdom: A Longitudinal Mixed-Methods Study | Bundy R, Mandy W, Crane L, Belcher H, Bourne L, Brede J, Hull L, Brinkert J, Cook J. | Autism. 2022 Jan 27:13623613211065543. doi: 10.1177/13623613211065543. Online ahead of print. | Included in the post-survey analysis |
| 35153690 b | The Lonely Brain – Associations between Social Isolation and (Cerebro-) Vascular Disease from the Perspective of Social Neuroscience | Gronewold J, Engels M. | Front Integr Neurosci. 2022 Jan 28;16:729621. doi: 10.3389/fnint.2022.729621. eCollection 2022. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parent |
| 35464786 b | Preliminary Practice Recommendations for Telehealth Direct Applied Behavior Analysis Services with Children with Autism | Araiba S, Čolić M. | J Behav Educ. 2022 Apr 16:1–35. doi: 10.1007/s10864-022-09473-6. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parent |
| 34626164 b | Job loss Predicts Worsening Depressive Symptoms for Young Adults with Autism: A COVID-19 Natural Experiment | Taylor JL, Adams RE, Pezzimenti F, Zheng S, Bishop SL. | Autism Res. 2022 Jan;15(1):93–102. doi: 10.1002/aur.2621. Epub 2021 Oct 9. | Included in the post-survey analysis |
| 35191848 b | Digital Health Paradox: International Policy Perspectives to Address Increased Health Inequalities for People Living with Disabilities | van Kessel R, Hrzic R, O'Nuallain E, Weir E, Wong BLH, Anderson M, Baron-Cohen S, Mossialos E. | J Med Internet Res. 2022 Feb 22;24(2):e33819. doi: 10.2196/33819. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parent |
| 35572159 b | Convulsive Status Epilepticus as a Possible Symptom of COVID-19 in a Patient with Intellectual Disability and Autistic Spectrum Disorder | Peña-Salazar C, López Cuiña M, Chavarría V, Robles Olmo B. | Neurologia. 2020 Nov-Dec;35(9):703–705. doi: 10.1016/j.nrl.2020.07.010. Epub 2020 Jul 31. | Excluded – Article published in Spanish |
| 35119331 b | Acceptance of Telehealth Therapy to Replace In-Person Therapy for Autism Treatment during COVID-19 Pandemic: An Assessment of Patient Variables | Aranki J, Wright P, Pompa-Craven P, Lotfizadeh AD. | Telemed J E Health. 2022 Feb 3. doi: 10.1089/tmj.2021.0397. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parent |
| 35596024 b | Brief Report: Feasibility of Delivering the Secret Agent Society Group Social Skills Program via Telehealth during COVID-19: A Pilot Exploration | Mootz CA, Lemelman A, Giordano J, Winter J, Beaumont R. | J Autism Dev Disord. 2022 May 20. doi: 10.1007/s10803-022-05591-2. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parent |
| 35064235 b | Implications of Parental Stress on Worsening of Behavioral Problems in Children with Autism during COVID-19 Pandemic: ‘The Spillover Hypothesis’ | Eshraghi AA, Cavalcante L, Furar E, Alessandri M, Eshraghi RS, Armstrong FD, Mittal R. | Mol Psychiatry. 2022 Apr;27(4):1869–1870. doi: 10.1038/s41380-021-01433-2. Epub 2022 Jan 21. | Included in the post-survey analysis |
| 35064874 b | Identifying Patient Characteristics to Understand Which Children May Receive Diagnostic Clarity in a Virtual Autism Spectrum Disorder Evaluation | Phelps RA, Sample E, Greene RK, Duvall SW. | J Autism Dev Disord. 2022 Jan 22:1–13. doi: 10.1007/s10803-022-05434-0. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parent |
| 35303712 b | A Feasibility Trial for Virtual Administration of the Test of Gross Motor Development-3 for Children with Autism Spectrum Disorders during the COVID-19 Pandemic | Prieto LA, Meera B, Katz H, Columna L. | Adapt Phys Activ Q. 2022 Mar 18:1–10. doi: 10.1123/apaq.2021-0183. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parent |
| 35459604 b | Food Insecurity in Households of Children with ASD in COVID-19 Pandemic: A Comparative Analysis with the Household Pulse Survey data using Stabilized Inverse Probability Treatment Weights | Karpur A, Vasudevan V, Frazier TW, Shih AJ. | Disabil Health J. 2022 Mar 26:101323. doi: 10.1016/j.dhjo.2022.101323. Online ahead of print. | Excluded – Study did not focus on the experiences of autistics and COVID-19 or their parent |
| 35385462 b | Commentary on ‘Using Telehealth to Conduct Family-Centered, Movement Intervention Research in Children with Autism Spectrum Disorder during the COVID-19 Pandemic’ | Hall JB, Chole D, Wieberg L. | Pediatr Phys Ther. 2022 Apr 1;34(2):252. doi: 10.1097/PEP.0000000000000890. | Excluded – Opinion piece, commentary or letter to the editor |
| 35602995 b | How Filipino Parents Home Educate Their Children with Autism during COVID-19 Period | Cahapay MB. | Int J Dev Disabil. 2020 Jun 22;68(3):395–398. doi: 10.1080/20473869.2020.1780554. eCollection 2022. | Included in the post-survey analysis |
Key:
*
= Citations removed after step four of the Preferred Reporting Items for Systematic Reviews and Meta-Analysis (PRISMA) analysis process.
a
= Citations retrieved from PubMed search conducted on 4 July 2021 and 27 May 2022, using the ‘(autis*[Title/Abstract]) AND (covid*[Title/Abstract])’ search formula.
b
= Citations retrieved from PubMed search conducted on 27 May 2022, using the ‘(autis*[Title/Abstract]) AND (covid*[Title/Abstract])’ search formula.
Appendix 2 – The Online Survey
Question 1: Are you 18 years of age or over?
Potential responses:
Yes
No - Thanks for wanting to participate. However, this online survey is for adults. (This response ends the online survey).
Question 2: What is your gender identity?
Potential responses:
Cis male
Cis female
Trans male
Trans female
Gender non-binary
Other (please specify)
Question 3: How old are you?
18–25 years
26–35 years
36–45 years
46–55 years
56–65 years
65 + years
Question 4: What country do you live in?
Question 5: Do you have a formal autism diagnosis?
Potential responses:
Yes
No
No, but I self-identify as autistic
Question 6: Have you experienced any restrictions that were related to the COVID-19 pandemic? For example, only being able to exercise with one other person, not travelling more than 5 kilometres (3.10 miles) from your home, or working from home arrangements?
Potential responses:
Yes
No
Question 7: What restrictions did you personally experience that were related to the COVID-19 pandemic?
Potential responses:
Lockdown – could not leave home for 3 or more days
Lockdown with ability to leave home for limited reasons
Lockdown with limited freedom of movement (e.g. 1–5km travel only)
Place of work changed to working from home all or part-time
Social distancing
Mask wearing in public places
Other (please specify)
Question 8: What techniques and strategies did you use to cope with these restrictions? (You can choose more than one option)
Potential responses:
I kept in contact with my friends
I sought counselling or therapy
I sought medical support
I engaged in my hobbies to maintain focus and calm
I exercised when I could
I took a holiday
I used non-prescription medication
I used prescription medication
Other (Please specify)
Question 9: Have you had one or more COVID-19 tests?
Potential responses:
Yes
No
Question 10: Have you had or do you have a diagnosis of COVID-19?
Potential responses:
Yes
No
Question 11: If diagnosed with COVID-19, did you access medical care?
Potential responses:
I was hospitalised with COVID-19
I cannot access medical care from where I live
I do not know how to access medical care at the moment
Yes – I was happy with my medical care
Yes – but I was unhappy with my medical care
No – I just self-isolated
Other (Please specify)
Question 12: What are your opinions on the COVID-19 vaccine?
Potential responses:
I am happy to be vaccinated
I do not want to be vaccinated
Comments
Question 13: Have you already had a COVID-19 vaccine?
Potential responses:
Yes one dose
Yes both doses
Not yet, but I have made an appointment
Not yet, but I want to
No
Other (Please specify)
Question 14: What are your reasons for wanting to be vaccinated against COVID-19? (You can select more than one option)
Potential responses:
I want to help end the pandemic
I want to protect myself against COVID-19
I want to protect my family and/or friends against COVID-19
I want to be exempt from pandemic-related restrictions
I think the benefits outweigh the risks
It is a requirement of my job
Other (Please comment)
Question 15: What are your reasons for not wanting to be vaccinated?
Question 16: Are you currently raising a child or children on the autism spectrum?
Potential responses:
Yes
No
Question 17: Has your child on the autism spectrum tested for or been diagnosed with COVID-19?
Potential responses:
Yes – they have been tested but did not have COVID-19
Yes – they have been tested and were positive for COVID-19
No – I wanted to get them tested but was unable to do so due to their distress
No – I have not tried to get them tested
Other (Please specify)
Question 18: Where did you seek help or look for information for your child on the autism spectrum after they were diagnosed with COVID-19 disease? (You can choose more than one option)
Potential responses:
Medical doctors
Family
Friends
Information about COVID-19 from the Internet
Social supports (e.g. welfare agencies)
More than one of the above
Other (Please specify)
Question 19: What strategies are you teaching your child on the autism spectrum to protect themselves during the pandemic? (You can choose more than one option)
Potential responses:
I am teaching my child to stay 1.5 metres (4.92 feet) from others
I am teaching my child to wear a face mask
I am teaching my child to wash their hands
I am teaching my child to recognise the symptoms of COVID-19
All/most of the above
Other (Please specify)
Question 20: Are you intending to get your child on the autism spectrum vaccinated against COVID-19 when they are eligible?
Potential responses:
Yes
No
Question 21: Why do you intend to get your child/children on the autism spectrum vaccinated?
Potential responses:
I want to help end the pandemic
I want to protect child/children against COVID-19
I want to protect my family and/or friends against COVID-19
I want them to be exempt from pandemic-related restrictions
Other (Please specify)
Question 22: Why are you not intending to get your child on the autism spectrum vaccinated?
Potential responses:
I think the vaccine was developed too quickly
I am concerned that the vaccine has side-effects
My child has health issues that make the vaccine unsafe
Other (Please specify)
Question 23: Is there anything else that you would like to say about the COVID-19 pandemic and being autistic and/or raising a child or children on the autism spectrum?
Free-text response.