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Wales and Autism: the impact of philanthropy matched by ambition

Hugh Morgan (Aberystwyth, Wales.)

Tizard Learning Disability Review

ISSN: 1359-5474

Article publication date: 15 December 2023

Issue publication date: 30 July 2024

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Abstract

Purpose

The purpose of this paper is to place on record the impact made on government policy and research by Autism Cymru, a small charity that existed in Wales between 2001 and 2014. The success of Autism Cymru resulted directly from philanthropic funding, applied with strategic vision and genuine ambition.

Design/methodology/approach

A retrospective, chronological viewpoint highlighting the creative process, drawing upon records held by the charity.

Findings

Autism Cymru initiated the concept and played a crucial role in steering the development of government policy for autism in Wales between 2001 and 2011. The charity also drove forward the initiative, which led to the establishment of the Wales Autism Research Centre at Cardiff University in 2010. This paper demonstrates that with astute philanthropic support, small learning disability/autism charities can elicit structural and sustainable change at the national level, leading to wide-ranging benefits for the communities they represent.

Originality/value

The strategic approach taken over 20 years ago in Wales by Autism Cymru, which led to the Welsh Government’s ASD Strategic Action Plan for Wales (Welsh Government, 2011), set in place a national policy model, which was then followed by The Scottish Strategy for Autism and the Northern Ireland Autism Strategy (Department of Health, 2013>; Scottish Government, 2011). The insightful and tenacious method used by Autism Cymru remains relevant today, demonstrating that any small charity supported by shrewd philanthropic funding can punch well above its weight by taking a planned, ambitious and strategic approach to policy, research and practice.

Keywords

Acknowledgements

Dedication: To the inspirational Professor Bill Fraser CBE (1940–2022) and Ivor Lightman CB (1928–2013), both of whom served as longtime trustees and chairpersons of Autism Cymru. Also, to every person who superbly contributed as a staff member, volunteer or trustee, but especially to Dame Stephanie Shirley CH, without whom there would almost certainly be no Wales ASD Strategic Action Plan and no WARC.

Citation

Morgan, H. (2024), "Wales and Autism: the impact of philanthropy matched by ambition", Tizard Learning Disability Review, Vol. 29 No. 2, pp. 87-94. https://doi.org/10.1108/TLDR-08-2023-0016

Publisher

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Emerald Publishing Limited

Copyright © 2023, Emerald Publishing Limited

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