To read this content please select one of the options below:

Specialist community teams for adults with learning disabilities: referrals to a countywide service in England

Isabel C.H. Clare (NIHR CLAHRC East of England at Cambridgeshire & Peterborough NHS Foundation Trust, Cambridge, UK) (Department of Psychiatry, University of Cambridge, Cambridge, UK) (Cambridgeshire & Peterborough NHS Foundation Trust, Cambridge, UK)
Kelly A. Wade (NIHR CLAHRC East of England at Cambridgeshire & Peterborough NHS Foundation Trust, Cambridge, UK) (Department of Psychiatry, University of Cambridge, Cambridge, UK)
Nadine Ranke (Cambridgeshire & Peterborough NHS Foundation Trust, Cambridge, UK) (Department of Psychiatry, University of Cambridge, Cambridge, UK)
Sarah Whitson (Department of Psychiatry, University of Cambridge, Cambridge, UK)
Alison Lillywhite (Cambridgeshire & Peterborough NHS Foundation Trust, Cambridge, UK) (Department of Psychiatry, University of Cambridge, Cambridge, UK)
Elizabeth Jones (Cambridgeshire & Peterborough NHS Foundation Trust, Cambridge, UK) (Department of Psychiatry, University of Cambridge, Cambridge, UK)
SallyAnne Broughton (Cambridgeshire & Peterborough NHS Foundation Trust, Cambridge, UK) (Department of Psychiatry, University of Cambridge, Cambridge, UK)
Adam Wagner (NIHR CLAHRC East of England at Cambridgeshire & Peterborough NHS Foundation Trust, Cambridge, UK) (University of East Anglia, Norwich, UK)
Anthony J. Holland (Department of Psychiatry, University of Cambridge, Cambridge, UK) (NIHR CLAHRC East of England at Cambridgeshire & Peterborough NHS Foundation Trust, Cambridge, UK)

Tizard Learning Disability Review

ISSN: 1359-5474

Article publication date: 17 May 2019

Issue publication date: 17 May 2019

420

Abstract

Purpose

While “generic” community teams for adults with learning disabilities (CTs) are well-established in the UK, very little recent evidence is available about any aspect of their work. As part of a larger project about the role, structure and functioning of CTs, the purpose of this paper is to provide data about referrals.

Design/methodology/approach

Over three months, the authors obtained data about 270 consecutive new referrals to five CTs in a countywide integrated health (NHS) and care management (local authority) service.

Findings

The 270 referrals related to 255 individuals, mainly already service users, with almost a third (30 per cent, n=204) described as people with severe or profound disabilities. Consistent with the reported living arrangements (residential accommodation or with one or more family members (87 per cent, n=270)), referrals were most often made by social care staff, General Practitioners or carers. The referrals related to a wide range of issues including mental health and/or behavioural needs, physical health and skills, and independence. The major group, however, were requests about a person’s entitlement to specialist learning disability services and/or reviews of an existing social care package.

Research limitations/implications

The focus on new referrals and the exclusion of intra-team referrals mean that the data are not representative of a CT’s caseload and cannot be used as a basis for resourcing. Nevertheless, the findings emphasise the heterogeneity of the population, and the long-term and varied nature of their needs, meaning that CTs require access to a range of expertise and, often, an inter-agency approach. The implications for service design are considered.

Originality/value

This is the first empirical study of referrals to specialist integrated (health and care management) community learning disabilities teams in England.

Keywords

Acknowledgements

Funding was provided by the National Institute for Health Research’s (NIHR) Collaborations for Applied Health Research and Care (CLAHRC) for Cambridgeshire & Peterborough. During the preparation of this paper, APW and ICHC were funded by the NIHR’s CLAHRC East of England Programme. The views expressed are those of the authors and not necessarily those of the NHS, the NIHR or the Department of Health and Social Care. The authors would like to thank the CTs and their managers for their support in facilitating the study.

Citation

Clare, I.C.H., Wade, K.A., Ranke, N., Whitson, S., Lillywhite, A., Jones, E., Broughton, S., Wagner, A. and Holland, A.J. (2019), "Specialist community teams for adults with learning disabilities: referrals to a countywide service in England", Tizard Learning Disability Review, Vol. 24 No. 2, pp. 41-49. https://doi.org/10.1108/TLDR-05-2018-0015

Publisher

:

Emerald Publishing Limited

Copyright © 2019, Emerald Publishing Limited

Related articles