Further Reading and Resources

CBPAR, The Centre for Social Justice and Community Action guidance on Community-Based Participatory Action Research (CBPAR) work. https://www.durham.ac.uk/research/institutes-and-centres/social-justice-community-action/research-areas/ethics-consultation/

The European Research Area, The European Research Area in Ageing 2 (ERA-AGE 2) provides a range of resources to support user engagement including a specific report. http://era-age.group.shef.ac.uk/assets/files/05.01.2009kc%20%20User%20Involvement%20Good%20Practice%20Guide.pdf

International Association for Public Participation, International Association for Public Participation (IAP2) Spectrum of Public Participation. https://www.iap2.org/page/pillars

INVOLVE, INVOLVE provides detailed guidance, case studies and resources to strengthen participation in research. http://www.invo.org.uk/

PCORI, The Patient-Centered Outcomes Research Institute (PCORI) seeks to empower patients about their health and healthcare choices. https://www.pcori.org/

PRO-RES, The PRO-RES Framework for Ethical Evidence – PRO-RES is a European Commission-funded project aiming to PROmote ethics and integrity in non-medical RESearch by building a supported guidance framework for all non-medical sciences and humanities disciplines adopting social science methodologies. https://prores-project.eu/

Strategy, Strategy for Personal and Public Involvement in Health and Social Care research. https://research.hscni.net/sites/default/files/strategy_for_PPI_Report_RD_2014.pdf

UK standards for public involvement, UK standards for public involvement. https://www.invo.org.uk/wp-content/uploads/2019/11/UK-standards-for-public-involvement-v6.pdf

Iphofen, 2009 Iphofen, R. (2009). Ethical decision making in social research: A practical guide. Palgrave Macmillan.

Iphofen, 2020 Iphofen, R. (Ed.). (2020). Handbook of research ethics and scientific integrity. Springer.