Index
Reconsidering Patient Centred Care
ISBN: 978-1-80071-744-2, eISBN: 978-1-80071-743-5
Publication date: 23 August 2022
Citation
Pilnick, A. (2022), "Index", Reconsidering Patient Centred Care, Emerald Publishing Limited, Leeds, pp. 149-152. https://doi.org/10.1108/978-1-80071-743-520221008
Publisher
:Emerald Publishing Limited
Copyright © 2022 Alison Pilnick. Published under exclusive licence by Emerald Publishing Limited
INDEX
Abandonment, 4, 23, 65–67, 85, 99–107, 115, 121
Activity contamination, 47
Activity-passivity model, 9
Advice giver category, 73–75, 84, 87
Advice giving, 33, 72–73, 75, 84
Affective neutrality, 86
Affirmative care, 107, 108, 114
Affordable Care Act, 13
Agency, human, 29
Agency, patient or client, 20–21, 29, 35, 79–81, 88–89, 116, 130
Agenda setting, patient or client led, 51–55, 84
Amniocentesis, 64, 69, 103
Antimicrobial resistance, 43–46, 61
Asymmetry, in doctor patient encounter, 8, 20, 24, 72, 89, 90–91, 98, 121, 123, 125
Auspicious interpretation, 69–70, 75, 104
Authority
deontic, 85, 92–94, 97, 99, 101, 102, 105–106, 121, 125
epistemic, 85, 93, 94, 97, 99, 101, 104, 121, 125
Autonomy, 10, 99–107
and individual choice, 7, 21–22, 24–25, 37, 42, 46, 51, 85, 113–115
limits of, 115–117
and professionalism, 22–23
rise of, 20–21
Autonomy, patient, 7, 10, 20–23, 65, 67, 115–116, 118
Autonomy, relational, 22, 42, 59, 115–116
Balint, Enid, 8
Balint, Michael, 7–8, 121–122
Balint’s approach, 8
Beneficence, 21, 76, 82, 84, 115
Bio-psychosocial perspective, 8, 12
Bioethical approach, 21
Bioethics, 17, 21, 76
Broad questions, use of, 10, 48–51
Capacity, for self-determination, 21, 24, 35, 38, 108, 116
Checklist-based approaches, 4, 18, 20, 27, 35, 51, 58, 67, 76, 111, 117–118, 124–125
Choice, as an ideological device, 118
Choice, consumer, 24, 113–115, 118
Choice, individual, 7, 21–22, 24–25, 37, 42, 46, 51, 85, 113–115
Choice, patient, 15, 22, 35, 45, 58, 61, 83, 92, 105, 113–115
Choice concept, 101
Choice in context, 117–119
Choice-centred conceptualisation of medicine, 85
Chronic illness, 9, 72, 86, 97–99
Chronic illness context, expertise in, 97–99
Client-led agenda setting, 51–55
Clinical judgement, 100–101
Clinical practice guidelines, 115–116
Co-design, of services and care pathways, 122
Code and count tradition, 11
Communication
impairments, 76
problem of communication in healthcare, 41–42
skills training, 33, 49, 76, 112
Complicity of social science, 119–122
Concordance, 10
Conflict
limitations of training as solution to interactional conflict in healthcare, 83–84
problem of managing conflicting moral norms in interaction, 76–83
Constituting expertise in interaction, 94–97
Consumer choice, limitations as applied to healthcare, 113–115
Consumer, 14, 24, 112
Consumerism, 5, 14, 24, 108, 112, 113, 114, 122
Consumerist models of medicine, 114
Context, expertise in, 117–119
Control, of healthcare interactions, 12, 16, 21, 35–37, 44–46, 54, 61, 63, 67, 68, 83, 88–92
Conversation analysis (CA), 27, 101
as method for studying healthcare interactions, 28–33
research in primary care, 91
specific contribution of, 123–125
COVID-19 vaccination, 85
Cultural relativity, 120
Decision making, bilateral, 106
Decision making, distributed, 119
Decision making, shared, 3, 7, 15–20, 35, 46, 59, 67, 92, 101, 104, 106, 111, 118, 123
Decision making, unilateral, 106
Deontic authority, 85, 92–94, 97, 99, 101, 102, 105–106, 121, 125
Diagnosis/treatment-oriented interaction, 14
Doctor-as-person, 12
Doctor–patient interaction, 28, 31, 50, 88–92, 117
Doctor–patient relationship, 3, 8, 9, 12, 19, 31, 36, 57, 90, 118–120
Dominance, interactional, 89, 90–91
Doorknob phenomenon, 48
Double bind, for professionals, 89–90, 107
Double bind, for patients, 89–90, 106
Effectiveness of PCC, 14–16
Epistemic authority, 85, 93–94, 97, 99, 101, 104, 121, 125
Epistemic primacy, 24
Epistemic stance, 93, 104
Epistemic status, 93, 104
Epistemics, 92, 101
Epistemics of experience, 4, 85, 104, 106, 122
Epistemics of expertise, 104, 122
Essential tension, 70, 71
Ethnomethodology, 29, 31, 34, 86
Eugenics, 51, 63
Expert patient, 115, 119
Expertise, 85
autonomy, abandonment and, 99–106
constituting expertise in interaction, 94–97
in context, 117–119
in context of chronic illness, 97–99
Expertise by experience, 119
Face, loss of, 72
Face threat, 55, 73, 81, 108
Garfinkel, Harold, 29, 31, 34, 61
Genetic counselling, 3, 33, 51, 66
Genetic medicine, 51, 99
Goffman, Erving, 31, 108, 116
Guidance-co-operation model, 9
Habermas, Jurgen, 10
Hall, Stuart, 88
Health Education England, 1
Health Foundation, 12, 13, 21, 23, 87
Healthcare
conversation analysis as method for studying healthcare interactions, 28–33
good organisational reasons for bad healthcare practice, 34–35
limitations of consumer choice as applied to, 113–115
problem of communication in, 27–28
talk, compared with ordinary talk, 46–48
Holism, 8
Imperatives, moral, 76, 82
Imperatives, organizational, 2, 4, 27, 34–35, 41, 42, 46
Interactional conflict in healthcare, 4, 83–84
Interactional difficulty of non-directiveness, 62–68
Interactional dominance, 89, 91
Interactional dysfunctions, 47, 58–59, 71
Interactional norms, 4, 30, 50, 61, 70, 71, 73, 75, 83, 84, 124
Interactional submission, 91
International Alliance of Patient Organisations, 12
Jargon, use of, 97–98
Jefferson, Gail, 29, 73
Legitimacy, 21, 57, 99, 124
Logic of care, 21, 105, 123
Logic of choice, 21, 46, 66–67, 87, 105, 123
Meaning-making in healthcare interaction, 64, 66
Medicine, 97, 125–126
sociology in, 5, 120
sociology of, 5, 119
Mental Health Act, 87
Mishler, Elliott, 10, 11, 74–75, 103–104, 123
Modern Western psychiatry, 86
Moral dimensions of healthcare, 56, 72
Moral norms in interaction, 30, 61, 75–83
Moral principles, in policy making, 76, 84, 125
Mutual participation model, 9
National Institute for Health and Care Excellence (NICE), 16, 76, 116
Neo-liberalism, 21, 66, 88
Non-compliance, 10, 114
Non-directiveness, interactional difficulty of, 62–68
One-size-fits-all approach, 9, 27, 58, 84
problem with, 46–48, 117–119
Open-ended questions. See Broad questions
Ordinary talk as compared with healthcare talk, 46–48
Orphan consultations, 118
Parsons, Talcott, 8, 20, 29, 31, 57, 86–87, 98, 111, 115
Passivity, patient, 9, 58
Paternalism, 11, 58, 62, 92, 97, 99, 117, 125
Patient troubles telling, 73–75
Patient affirmation, 85, 107–109
Patient autonomy, 7, 10, 20–23, 65, 67, 115–116
Patient centred care (PCC)
and the complicity of social science, 119–122
conversation analysis as method for studying, 28–33
difficulties of distinguishing between good and bad practice, 58–59
evidence for effectiveness of, 14–16
and good organisational reasons for bad healthcare practice, 34–35
and limitations of consumer choice as applied to healthcare, 113–115
and limits of autonomy, 115–117
person centred care vs., 23–26
pervasiveness of, 26
shared decision-making and, 16–20
Patient centred medicine (PCM), 2, 10–12, 16, 23, 78, 101, 111, 123
Patient Centred Outcomes Research Institute, 13
Patient dependency, 9
Patient engagement, 67, 118
Patient-as-person, 12
Patient-centredness, 11, 14, 125
Patient-led agenda setting, 51–55
Patient-oriented medicine, 8, 117, 119, 122
Person centred care, 1, 2, 7, 13, 23–26
Person-centred interaction, 62
Personal health, 43–46
Personhood, 24–26, 76
Professional autonomy, 115
Professionalism, 86–87, 106
autonomy and, 22–23
Progressivity, 89, 91
Psychoanalysis, 86
Psychotherapy, 24, 33, 62–63, 93, 109, 117
Public health, 42–47
Quality of shared decisions, 17–18
Question design, the impact of, 38, 47, 50
Refusal, of requests, 76–78, 82
Relational autonomy, 22, 42, 59, 116
Risk, communication of, 33, 64
Risk, to health, 97, 129, 136
Rogers, Carl, 24, 62
Role convergence, 22
Roter Interaction Analysis System (RIAS), 11
Sacks, Harvey, 29, 73, 75
Schegloff, Emmanuel, 29
Shared decision making (SDM), 3, 7, 15–20, 35, 46, 59, 67, 92, 101, 104, 106, 111, 118, 123
Sick role model, 8, 22, 46, 57, 98, 115
Smoking cessation, 55, 57, 61, 74
Social science, complicity of, 119–122
Sociology in medicine, 5, 120
Sociology of medicine, 5, 119
Sociology of professions, 87
Structural functionalism, 29
Struggle for control, 4, 16, 21, 85, 88–92, 108
Theory of communicative action, Habermas’, 10
Theory/practice gap, 111
Therapeutic alliance, 12
Therapeutic citizenship, 46
Treatment recommendations, 32, 43, 45, 47, 88, 92, 105
Troubles telling, 73–75
Trust, 51, 76, 87, 117, 121
UK Department of Health, 1, 33, 40, 71, 98, 114, 121
UK National Institute of Clinical Excellence, 97, 116
Uncertainty, 35, 68–71, 75, 95
US Patient Centered Outcomes Research Institute, 2
Values-based policy, 121, 125
Voice of medicine, the, 103
Voice of the lifeworld, the, 10, 76, 103
Waitzkin, Howard, 28, 32, 44, 123
World Health Organisation (WHO), 23, 43
Capacity, for self-determination, 21, 24, 35, 38, 108, 116
Checklist-based approaches, 4, 18, 20, 27, 35, 51, 58, 67, 76, 111, 117–118, 124–125
Choice, as an ideological device, 118
Choice, consumer, 24, 113–115, 118
Choice, individual, 7, 21–22, 24–25, 37, 42, 46, 51, 85, 113–115
Choice, patient, 15, 22, 35, 45, 58, 61, 83, 92, 105, 113–115
Choice concept, 101
Choice in context, 117–119
Choice-centred conceptualisation of medicine, 85
Chronic illness, 9, 72, 86, 97–99
Chronic illness context, expertise in, 97–99
Client-led agenda setting, 51–55
Clinical judgement, 100–101
Clinical practice guidelines, 115–116
Co-design, of services and care pathways, 122
Code and count tradition, 11
Communication
impairments, 76
problem of communication in healthcare, 41–42
skills training, 33, 49, 76, 112
Complicity of social science, 119–122
Concordance, 10
Conflict
limitations of training as solution to interactional conflict in healthcare, 83–84
problem of managing conflicting moral norms in interaction, 76–83
Constituting expertise in interaction, 94–97
Consumer choice, limitations as applied to healthcare, 113–115
Consumer, 14, 24, 112
Consumerism, 5, 14, 24, 108, 112, 113, 114, 122
Consumerist models of medicine, 114
Context, expertise in, 117–119
Control, of healthcare interactions, 12, 16, 21, 35–37, 44–46, 54, 61, 63, 67, 68, 83, 88–92
Conversation analysis (CA), 27, 101
as method for studying healthcare interactions, 28–33
research in primary care, 91
specific contribution of, 123–125
COVID-19 vaccination, 85
Cultural relativity, 120
Decision making, bilateral, 106
Decision making, distributed, 119
Decision making, shared, 3, 7, 15–20, 35, 46, 59, 67, 92, 101, 104, 106, 111, 118, 123
Decision making, unilateral, 106
Deontic authority, 85, 92–94, 97, 99, 101, 102, 105–106, 121, 125
Diagnosis/treatment-oriented interaction, 14
Doctor-as-person, 12
Doctor–patient interaction, 28, 31, 50, 88–92, 117
Doctor–patient relationship, 3, 8, 9, 12, 19, 31, 36, 57, 90, 118–120
Dominance, interactional, 89, 90–91
Doorknob phenomenon, 48
Double bind, for professionals, 89–90, 107
Double bind, for patients, 89–90, 106
Effectiveness of PCC, 14–16
Epistemic authority, 85, 93–94, 97, 99, 101, 104, 121, 125
Epistemic primacy, 24
Epistemic stance, 93, 104
Epistemic status, 93, 104
Epistemics, 92, 101
Epistemics of experience, 4, 85, 104, 106, 122
Epistemics of expertise, 104, 122
Essential tension, 70, 71
Ethnomethodology, 29, 31, 34, 86
Eugenics, 51, 63
Expert patient, 115, 119
Expertise, 85
autonomy, abandonment and, 99–106
constituting expertise in interaction, 94–97
in context, 117–119
in context of chronic illness, 97–99
Expertise by experience, 119
Face, loss of, 72
Face threat, 55, 73, 81, 108
Garfinkel, Harold, 29, 31, 34, 61
Genetic counselling, 3, 33, 51, 66
Genetic medicine, 51, 99
Goffman, Erving, 31, 108, 116
Guidance-co-operation model, 9
Habermas, Jurgen, 10
Hall, Stuart, 88
Health Education England, 1
Health Foundation, 12, 13, 21, 23, 87
Healthcare
conversation analysis as method for studying healthcare interactions, 28–33
good organisational reasons for bad healthcare practice, 34–35
limitations of consumer choice as applied to, 113–115
problem of communication in, 27–28
talk, compared with ordinary talk, 46–48
Holism, 8
Imperatives, moral, 76, 82
Imperatives, organizational, 2, 4, 27, 34–35, 41, 42, 46
Interactional conflict in healthcare, 4, 83–84
Interactional difficulty of non-directiveness, 62–68
Interactional dominance, 89, 91
Interactional dysfunctions, 47, 58–59, 71
Interactional norms, 4, 30, 50, 61, 70, 71, 73, 75, 83, 84, 124
Interactional submission, 91
International Alliance of Patient Organisations, 12
Jargon, use of, 97–98
Jefferson, Gail, 29, 73
Legitimacy, 21, 57, 99, 124
Logic of care, 21, 105, 123
Logic of choice, 21, 46, 66–67, 87, 105, 123
Meaning-making in healthcare interaction, 64, 66
Medicine, 97, 125–126
sociology in, 5, 120
sociology of, 5, 119
Mental Health Act, 87
Mishler, Elliott, 10, 11, 74–75, 103–104, 123
Modern Western psychiatry, 86
Moral dimensions of healthcare, 56, 72
Moral norms in interaction, 30, 61, 75–83
Moral principles, in policy making, 76, 84, 125
Mutual participation model, 9
National Institute for Health and Care Excellence (NICE), 16, 76, 116
Neo-liberalism, 21, 66, 88
Non-compliance, 10, 114
Non-directiveness, interactional difficulty of, 62–68
One-size-fits-all approach, 9, 27, 58, 84
problem with, 46–48, 117–119
Open-ended questions. See Broad questions
Ordinary talk as compared with healthcare talk, 46–48
Orphan consultations, 118
Parsons, Talcott, 8, 20, 29, 31, 57, 86–87, 98, 111, 115
Passivity, patient, 9, 58
Paternalism, 11, 58, 62, 92, 97, 99, 117, 125
Patient troubles telling, 73–75
Patient affirmation, 85, 107–109
Patient autonomy, 7, 10, 20–23, 65, 67, 115–116
Patient centred care (PCC)
and the complicity of social science, 119–122
conversation analysis as method for studying, 28–33
difficulties of distinguishing between good and bad practice, 58–59
evidence for effectiveness of, 14–16
and good organisational reasons for bad healthcare practice, 34–35
and limitations of consumer choice as applied to healthcare, 113–115
and limits of autonomy, 115–117
person centred care vs., 23–26
pervasiveness of, 26
shared decision-making and, 16–20
Patient centred medicine (PCM), 2, 10–12, 16, 23, 78, 101, 111, 123
Patient Centred Outcomes Research Institute, 13
Patient dependency, 9
Patient engagement, 67, 118
Patient-as-person, 12
Patient-centredness, 11, 14, 125
Patient-led agenda setting, 51–55
Patient-oriented medicine, 8, 117, 119, 122
Person centred care, 1, 2, 7, 13, 23–26
Person-centred interaction, 62
Personal health, 43–46
Personhood, 24–26, 76
Professional autonomy, 115
Professionalism, 86–87, 106
autonomy and, 22–23
Progressivity, 89, 91
Psychoanalysis, 86
Psychotherapy, 24, 33, 62–63, 93, 109, 117
Public health, 42–47
Quality of shared decisions, 17–18
Question design, the impact of, 38, 47, 50
Refusal, of requests, 76–78, 82
Relational autonomy, 22, 42, 59, 116
Risk, communication of, 33, 64
Risk, to health, 97, 129, 136
Rogers, Carl, 24, 62
Role convergence, 22
Roter Interaction Analysis System (RIAS), 11
Sacks, Harvey, 29, 73, 75
Schegloff, Emmanuel, 29
Shared decision making (SDM), 3, 7, 15–20, 35, 46, 59, 67, 92, 101, 104, 106, 111, 118, 123
Sick role model, 8, 22, 46, 57, 98, 115
Smoking cessation, 55, 57, 61, 74
Social science, complicity of, 119–122
Sociology in medicine, 5, 120
Sociology of medicine, 5, 119
Sociology of professions, 87
Structural functionalism, 29
Struggle for control, 4, 16, 21, 85, 88–92, 108
Theory of communicative action, Habermas’, 10
Theory/practice gap, 111
Therapeutic alliance, 12
Therapeutic citizenship, 46
Treatment recommendations, 32, 43, 45, 47, 88, 92, 105
Troubles telling, 73–75
Trust, 51, 76, 87, 117, 121
UK Department of Health, 1, 33, 40, 71, 98, 114, 121
UK National Institute of Clinical Excellence, 97, 116
Uncertainty, 35, 68–71, 75, 95
US Patient Centered Outcomes Research Institute, 2
Values-based policy, 121, 125
Voice of medicine, the, 103
Voice of the lifeworld, the, 10, 76, 103
Waitzkin, Howard, 28, 32, 44, 123
World Health Organisation (WHO), 23, 43
Effectiveness of PCC, 14–16
Epistemic authority, 85, 93–94, 97, 99, 101, 104, 121, 125
Epistemic primacy, 24
Epistemic stance, 93, 104
Epistemic status, 93, 104
Epistemics, 92, 101
Epistemics of experience, 4, 85, 104, 106, 122
Epistemics of expertise, 104, 122
Essential tension, 70, 71
Ethnomethodology, 29, 31, 34, 86
Eugenics, 51, 63
Expert patient, 115, 119
Expertise, 85
autonomy, abandonment and, 99–106
constituting expertise in interaction, 94–97
in context, 117–119
in context of chronic illness, 97–99
Expertise by experience, 119
Face, loss of, 72
Face threat, 55, 73, 81, 108
Garfinkel, Harold, 29, 31, 34, 61
Genetic counselling, 3, 33, 51, 66
Genetic medicine, 51, 99
Goffman, Erving, 31, 108, 116
Guidance-co-operation model, 9
Habermas, Jurgen, 10
Hall, Stuart, 88
Health Education England, 1
Health Foundation, 12, 13, 21, 23, 87
Healthcare
conversation analysis as method for studying healthcare interactions, 28–33
good organisational reasons for bad healthcare practice, 34–35
limitations of consumer choice as applied to, 113–115
problem of communication in, 27–28
talk, compared with ordinary talk, 46–48
Holism, 8
Imperatives, moral, 76, 82
Imperatives, organizational, 2, 4, 27, 34–35, 41, 42, 46
Interactional conflict in healthcare, 4, 83–84
Interactional difficulty of non-directiveness, 62–68
Interactional dominance, 89, 91
Interactional dysfunctions, 47, 58–59, 71
Interactional norms, 4, 30, 50, 61, 70, 71, 73, 75, 83, 84, 124
Interactional submission, 91
International Alliance of Patient Organisations, 12
Jargon, use of, 97–98
Jefferson, Gail, 29, 73
Legitimacy, 21, 57, 99, 124
Logic of care, 21, 105, 123
Logic of choice, 21, 46, 66–67, 87, 105, 123
Meaning-making in healthcare interaction, 64, 66
Medicine, 97, 125–126
sociology in, 5, 120
sociology of, 5, 119
Mental Health Act, 87
Mishler, Elliott, 10, 11, 74–75, 103–104, 123
Modern Western psychiatry, 86
Moral dimensions of healthcare, 56, 72
Moral norms in interaction, 30, 61, 75–83
Moral principles, in policy making, 76, 84, 125
Mutual participation model, 9
National Institute for Health and Care Excellence (NICE), 16, 76, 116
Neo-liberalism, 21, 66, 88
Non-compliance, 10, 114
Non-directiveness, interactional difficulty of, 62–68
One-size-fits-all approach, 9, 27, 58, 84
problem with, 46–48, 117–119
Open-ended questions. See Broad questions
Ordinary talk as compared with healthcare talk, 46–48
Orphan consultations, 118
Parsons, Talcott, 8, 20, 29, 31, 57, 86–87, 98, 111, 115
Passivity, patient, 9, 58
Paternalism, 11, 58, 62, 92, 97, 99, 117, 125
Patient troubles telling, 73–75
Patient affirmation, 85, 107–109
Patient autonomy, 7, 10, 20–23, 65, 67, 115–116
Patient centred care (PCC)
and the complicity of social science, 119–122
conversation analysis as method for studying, 28–33
difficulties of distinguishing between good and bad practice, 58–59
evidence for effectiveness of, 14–16
and good organisational reasons for bad healthcare practice, 34–35
and limitations of consumer choice as applied to healthcare, 113–115
and limits of autonomy, 115–117
person centred care vs., 23–26
pervasiveness of, 26
shared decision-making and, 16–20
Patient centred medicine (PCM), 2, 10–12, 16, 23, 78, 101, 111, 123
Patient Centred Outcomes Research Institute, 13
Patient dependency, 9
Patient engagement, 67, 118
Patient-as-person, 12
Patient-centredness, 11, 14, 125
Patient-led agenda setting, 51–55
Patient-oriented medicine, 8, 117, 119, 122
Person centred care, 1, 2, 7, 13, 23–26
Person-centred interaction, 62
Personal health, 43–46
Personhood, 24–26, 76
Professional autonomy, 115
Professionalism, 86–87, 106
autonomy and, 22–23
Progressivity, 89, 91
Psychoanalysis, 86
Psychotherapy, 24, 33, 62–63, 93, 109, 117
Public health, 42–47
Quality of shared decisions, 17–18
Question design, the impact of, 38, 47, 50
Refusal, of requests, 76–78, 82
Relational autonomy, 22, 42, 59, 116
Risk, communication of, 33, 64
Risk, to health, 97, 129, 136
Rogers, Carl, 24, 62
Role convergence, 22
Roter Interaction Analysis System (RIAS), 11
Sacks, Harvey, 29, 73, 75
Schegloff, Emmanuel, 29
Shared decision making (SDM), 3, 7, 15–20, 35, 46, 59, 67, 92, 101, 104, 106, 111, 118, 123
Sick role model, 8, 22, 46, 57, 98, 115
Smoking cessation, 55, 57, 61, 74
Social science, complicity of, 119–122
Sociology in medicine, 5, 120
Sociology of medicine, 5, 119
Sociology of professions, 87
Structural functionalism, 29
Struggle for control, 4, 16, 21, 85, 88–92, 108
Theory of communicative action, Habermas’, 10
Theory/practice gap, 111
Therapeutic alliance, 12
Therapeutic citizenship, 46
Treatment recommendations, 32, 43, 45, 47, 88, 92, 105
Troubles telling, 73–75
Trust, 51, 76, 87, 117, 121
UK Department of Health, 1, 33, 40, 71, 98, 114, 121
UK National Institute of Clinical Excellence, 97, 116
Uncertainty, 35, 68–71, 75, 95
US Patient Centered Outcomes Research Institute, 2
Values-based policy, 121, 125
Voice of medicine, the, 103
Voice of the lifeworld, the, 10, 76, 103
Waitzkin, Howard, 28, 32, 44, 123
World Health Organisation (WHO), 23, 43
Garfinkel, Harold, 29, 31, 34, 61
Genetic counselling, 3, 33, 51, 66
Genetic medicine, 51, 99
Goffman, Erving, 31, 108, 116
Guidance-co-operation model, 9
Habermas, Jurgen, 10
Hall, Stuart, 88
Health Education England, 1
Health Foundation, 12, 13, 21, 23, 87
Healthcare
conversation analysis as method for studying healthcare interactions, 28–33
good organisational reasons for bad healthcare practice, 34–35
limitations of consumer choice as applied to, 113–115
problem of communication in, 27–28
talk, compared with ordinary talk, 46–48
Holism, 8
Imperatives, moral, 76, 82
Imperatives, organizational, 2, 4, 27, 34–35, 41, 42, 46
Interactional conflict in healthcare, 4, 83–84
Interactional difficulty of non-directiveness, 62–68
Interactional dominance, 89, 91
Interactional dysfunctions, 47, 58–59, 71
Interactional norms, 4, 30, 50, 61, 70, 71, 73, 75, 83, 84, 124
Interactional submission, 91
International Alliance of Patient Organisations, 12
Jargon, use of, 97–98
Jefferson, Gail, 29, 73
Legitimacy, 21, 57, 99, 124
Logic of care, 21, 105, 123
Logic of choice, 21, 46, 66–67, 87, 105, 123
Meaning-making in healthcare interaction, 64, 66
Medicine, 97, 125–126
sociology in, 5, 120
sociology of, 5, 119
Mental Health Act, 87
Mishler, Elliott, 10, 11, 74–75, 103–104, 123
Modern Western psychiatry, 86
Moral dimensions of healthcare, 56, 72
Moral norms in interaction, 30, 61, 75–83
Moral principles, in policy making, 76, 84, 125
Mutual participation model, 9
National Institute for Health and Care Excellence (NICE), 16, 76, 116
Neo-liberalism, 21, 66, 88
Non-compliance, 10, 114
Non-directiveness, interactional difficulty of, 62–68
One-size-fits-all approach, 9, 27, 58, 84
problem with, 46–48, 117–119
Open-ended questions. See Broad questions
Ordinary talk as compared with healthcare talk, 46–48
Orphan consultations, 118
Parsons, Talcott, 8, 20, 29, 31, 57, 86–87, 98, 111, 115
Passivity, patient, 9, 58
Paternalism, 11, 58, 62, 92, 97, 99, 117, 125
Patient troubles telling, 73–75
Patient affirmation, 85, 107–109
Patient autonomy, 7, 10, 20–23, 65, 67, 115–116
Patient centred care (PCC)
and the complicity of social science, 119–122
conversation analysis as method for studying, 28–33
difficulties of distinguishing between good and bad practice, 58–59
evidence for effectiveness of, 14–16
and good organisational reasons for bad healthcare practice, 34–35
and limitations of consumer choice as applied to healthcare, 113–115
and limits of autonomy, 115–117
person centred care vs., 23–26
pervasiveness of, 26
shared decision-making and, 16–20
Patient centred medicine (PCM), 2, 10–12, 16, 23, 78, 101, 111, 123
Patient Centred Outcomes Research Institute, 13
Patient dependency, 9
Patient engagement, 67, 118
Patient-as-person, 12
Patient-centredness, 11, 14, 125
Patient-led agenda setting, 51–55
Patient-oriented medicine, 8, 117, 119, 122
Person centred care, 1, 2, 7, 13, 23–26
Person-centred interaction, 62
Personal health, 43–46
Personhood, 24–26, 76
Professional autonomy, 115
Professionalism, 86–87, 106
autonomy and, 22–23
Progressivity, 89, 91
Psychoanalysis, 86
Psychotherapy, 24, 33, 62–63, 93, 109, 117
Public health, 42–47
Quality of shared decisions, 17–18
Question design, the impact of, 38, 47, 50
Refusal, of requests, 76–78, 82
Relational autonomy, 22, 42, 59, 116
Risk, communication of, 33, 64
Risk, to health, 97, 129, 136
Rogers, Carl, 24, 62
Role convergence, 22
Roter Interaction Analysis System (RIAS), 11
Sacks, Harvey, 29, 73, 75
Schegloff, Emmanuel, 29
Shared decision making (SDM), 3, 7, 15–20, 35, 46, 59, 67, 92, 101, 104, 106, 111, 118, 123
Sick role model, 8, 22, 46, 57, 98, 115
Smoking cessation, 55, 57, 61, 74
Social science, complicity of, 119–122
Sociology in medicine, 5, 120
Sociology of medicine, 5, 119
Sociology of professions, 87
Structural functionalism, 29
Struggle for control, 4, 16, 21, 85, 88–92, 108
Theory of communicative action, Habermas’, 10
Theory/practice gap, 111
Therapeutic alliance, 12
Therapeutic citizenship, 46
Treatment recommendations, 32, 43, 45, 47, 88, 92, 105
Troubles telling, 73–75
Trust, 51, 76, 87, 117, 121
UK Department of Health, 1, 33, 40, 71, 98, 114, 121
UK National Institute of Clinical Excellence, 97, 116
Uncertainty, 35, 68–71, 75, 95
US Patient Centered Outcomes Research Institute, 2
Values-based policy, 121, 125
Voice of medicine, the, 103
Voice of the lifeworld, the, 10, 76, 103
Waitzkin, Howard, 28, 32, 44, 123
World Health Organisation (WHO), 23, 43
Imperatives, moral, 76, 82
Imperatives, organizational, 2, 4, 27, 34–35, 41, 42, 46
Interactional conflict in healthcare, 4, 83–84
Interactional difficulty of non-directiveness, 62–68
Interactional dominance, 89, 91
Interactional dysfunctions, 47, 58–59, 71
Interactional norms, 4, 30, 50, 61, 70, 71, 73, 75, 83, 84, 124
Interactional submission, 91
International Alliance of Patient Organisations, 12
Jargon, use of, 97–98
Jefferson, Gail, 29, 73
Legitimacy, 21, 57, 99, 124
Logic of care, 21, 105, 123
Logic of choice, 21, 46, 66–67, 87, 105, 123
Meaning-making in healthcare interaction, 64, 66
Medicine, 97, 125–126
sociology in, 5, 120
sociology of, 5, 119
Mental Health Act, 87
Mishler, Elliott, 10, 11, 74–75, 103–104, 123
Modern Western psychiatry, 86
Moral dimensions of healthcare, 56, 72
Moral norms in interaction, 30, 61, 75–83
Moral principles, in policy making, 76, 84, 125
Mutual participation model, 9
National Institute for Health and Care Excellence (NICE), 16, 76, 116
Neo-liberalism, 21, 66, 88
Non-compliance, 10, 114
Non-directiveness, interactional difficulty of, 62–68
One-size-fits-all approach, 9, 27, 58, 84
problem with, 46–48, 117–119
Open-ended questions. See Broad questions
Ordinary talk as compared with healthcare talk, 46–48
Orphan consultations, 118
Parsons, Talcott, 8, 20, 29, 31, 57, 86–87, 98, 111, 115
Passivity, patient, 9, 58
Paternalism, 11, 58, 62, 92, 97, 99, 117, 125
Patient troubles telling, 73–75
Patient affirmation, 85, 107–109
Patient autonomy, 7, 10, 20–23, 65, 67, 115–116
Patient centred care (PCC)
and the complicity of social science, 119–122
conversation analysis as method for studying, 28–33
difficulties of distinguishing between good and bad practice, 58–59
evidence for effectiveness of, 14–16
and good organisational reasons for bad healthcare practice, 34–35
and limitations of consumer choice as applied to healthcare, 113–115
and limits of autonomy, 115–117
person centred care vs., 23–26
pervasiveness of, 26
shared decision-making and, 16–20
Patient centred medicine (PCM), 2, 10–12, 16, 23, 78, 101, 111, 123
Patient Centred Outcomes Research Institute, 13
Patient dependency, 9
Patient engagement, 67, 118
Patient-as-person, 12
Patient-centredness, 11, 14, 125
Patient-led agenda setting, 51–55
Patient-oriented medicine, 8, 117, 119, 122
Person centred care, 1, 2, 7, 13, 23–26
Person-centred interaction, 62
Personal health, 43–46
Personhood, 24–26, 76
Professional autonomy, 115
Professionalism, 86–87, 106
autonomy and, 22–23
Progressivity, 89, 91
Psychoanalysis, 86
Psychotherapy, 24, 33, 62–63, 93, 109, 117
Public health, 42–47
Quality of shared decisions, 17–18
Question design, the impact of, 38, 47, 50
Refusal, of requests, 76–78, 82
Relational autonomy, 22, 42, 59, 116
Risk, communication of, 33, 64
Risk, to health, 97, 129, 136
Rogers, Carl, 24, 62
Role convergence, 22
Roter Interaction Analysis System (RIAS), 11
Sacks, Harvey, 29, 73, 75
Schegloff, Emmanuel, 29
Shared decision making (SDM), 3, 7, 15–20, 35, 46, 59, 67, 92, 101, 104, 106, 111, 118, 123
Sick role model, 8, 22, 46, 57, 98, 115
Smoking cessation, 55, 57, 61, 74
Social science, complicity of, 119–122
Sociology in medicine, 5, 120
Sociology of medicine, 5, 119
Sociology of professions, 87
Structural functionalism, 29
Struggle for control, 4, 16, 21, 85, 88–92, 108
Theory of communicative action, Habermas’, 10
Theory/practice gap, 111
Therapeutic alliance, 12
Therapeutic citizenship, 46
Treatment recommendations, 32, 43, 45, 47, 88, 92, 105
Troubles telling, 73–75
Trust, 51, 76, 87, 117, 121
UK Department of Health, 1, 33, 40, 71, 98, 114, 121
UK National Institute of Clinical Excellence, 97, 116
Uncertainty, 35, 68–71, 75, 95
US Patient Centered Outcomes Research Institute, 2
Values-based policy, 121, 125
Voice of medicine, the, 103
Voice of the lifeworld, the, 10, 76, 103
Waitzkin, Howard, 28, 32, 44, 123
World Health Organisation (WHO), 23, 43
Legitimacy, 21, 57, 99, 124
Logic of care, 21, 105, 123
Logic of choice, 21, 46, 66–67, 87, 105, 123
Meaning-making in healthcare interaction, 64, 66
Medicine, 97, 125–126
sociology in, 5, 120
sociology of, 5, 119
Mental Health Act, 87
Mishler, Elliott, 10, 11, 74–75, 103–104, 123
Modern Western psychiatry, 86
Moral dimensions of healthcare, 56, 72
Moral norms in interaction, 30, 61, 75–83
Moral principles, in policy making, 76, 84, 125
Mutual participation model, 9
National Institute for Health and Care Excellence (NICE), 16, 76, 116
Neo-liberalism, 21, 66, 88
Non-compliance, 10, 114
Non-directiveness, interactional difficulty of, 62–68
One-size-fits-all approach, 9, 27, 58, 84
problem with, 46–48, 117–119
Open-ended questions. See Broad questions
Ordinary talk as compared with healthcare talk, 46–48
Orphan consultations, 118
Parsons, Talcott, 8, 20, 29, 31, 57, 86–87, 98, 111, 115
Passivity, patient, 9, 58
Paternalism, 11, 58, 62, 92, 97, 99, 117, 125
Patient troubles telling, 73–75
Patient affirmation, 85, 107–109
Patient autonomy, 7, 10, 20–23, 65, 67, 115–116
Patient centred care (PCC)
and the complicity of social science, 119–122
conversation analysis as method for studying, 28–33
difficulties of distinguishing between good and bad practice, 58–59
evidence for effectiveness of, 14–16
and good organisational reasons for bad healthcare practice, 34–35
and limitations of consumer choice as applied to healthcare, 113–115
and limits of autonomy, 115–117
person centred care vs., 23–26
pervasiveness of, 26
shared decision-making and, 16–20
Patient centred medicine (PCM), 2, 10–12, 16, 23, 78, 101, 111, 123
Patient Centred Outcomes Research Institute, 13
Patient dependency, 9
Patient engagement, 67, 118
Patient-as-person, 12
Patient-centredness, 11, 14, 125
Patient-led agenda setting, 51–55
Patient-oriented medicine, 8, 117, 119, 122
Person centred care, 1, 2, 7, 13, 23–26
Person-centred interaction, 62
Personal health, 43–46
Personhood, 24–26, 76
Professional autonomy, 115
Professionalism, 86–87, 106
autonomy and, 22–23
Progressivity, 89, 91
Psychoanalysis, 86
Psychotherapy, 24, 33, 62–63, 93, 109, 117
Public health, 42–47
Quality of shared decisions, 17–18
Question design, the impact of, 38, 47, 50
Refusal, of requests, 76–78, 82
Relational autonomy, 22, 42, 59, 116
Risk, communication of, 33, 64
Risk, to health, 97, 129, 136
Rogers, Carl, 24, 62
Role convergence, 22
Roter Interaction Analysis System (RIAS), 11
Sacks, Harvey, 29, 73, 75
Schegloff, Emmanuel, 29
Shared decision making (SDM), 3, 7, 15–20, 35, 46, 59, 67, 92, 101, 104, 106, 111, 118, 123
Sick role model, 8, 22, 46, 57, 98, 115
Smoking cessation, 55, 57, 61, 74
Social science, complicity of, 119–122
Sociology in medicine, 5, 120
Sociology of medicine, 5, 119
Sociology of professions, 87
Structural functionalism, 29
Struggle for control, 4, 16, 21, 85, 88–92, 108
Theory of communicative action, Habermas’, 10
Theory/practice gap, 111
Therapeutic alliance, 12
Therapeutic citizenship, 46
Treatment recommendations, 32, 43, 45, 47, 88, 92, 105
Troubles telling, 73–75
Trust, 51, 76, 87, 117, 121
UK Department of Health, 1, 33, 40, 71, 98, 114, 121
UK National Institute of Clinical Excellence, 97, 116
Uncertainty, 35, 68–71, 75, 95
US Patient Centered Outcomes Research Institute, 2
Values-based policy, 121, 125
Voice of medicine, the, 103
Voice of the lifeworld, the, 10, 76, 103
Waitzkin, Howard, 28, 32, 44, 123
World Health Organisation (WHO), 23, 43
National Institute for Health and Care Excellence (NICE), 16, 76, 116
Neo-liberalism, 21, 66, 88
Non-compliance, 10, 114
Non-directiveness, interactional difficulty of, 62–68
One-size-fits-all approach, 9, 27, 58, 84
problem with, 46–48, 117–119
Open-ended questions. See Broad questions
Ordinary talk as compared with healthcare talk, 46–48
Orphan consultations, 118
Parsons, Talcott, 8, 20, 29, 31, 57, 86–87, 98, 111, 115
Passivity, patient, 9, 58
Paternalism, 11, 58, 62, 92, 97, 99, 117, 125
Patient troubles telling, 73–75
Patient affirmation, 85, 107–109
Patient autonomy, 7, 10, 20–23, 65, 67, 115–116
Patient centred care (PCC)
and the complicity of social science, 119–122
conversation analysis as method for studying, 28–33
difficulties of distinguishing between good and bad practice, 58–59
evidence for effectiveness of, 14–16
and good organisational reasons for bad healthcare practice, 34–35
and limitations of consumer choice as applied to healthcare, 113–115
and limits of autonomy, 115–117
person centred care vs., 23–26
pervasiveness of, 26
shared decision-making and, 16–20
Patient centred medicine (PCM), 2, 10–12, 16, 23, 78, 101, 111, 123
Patient Centred Outcomes Research Institute, 13
Patient dependency, 9
Patient engagement, 67, 118
Patient-as-person, 12
Patient-centredness, 11, 14, 125
Patient-led agenda setting, 51–55
Patient-oriented medicine, 8, 117, 119, 122
Person centred care, 1, 2, 7, 13, 23–26
Person-centred interaction, 62
Personal health, 43–46
Personhood, 24–26, 76
Professional autonomy, 115
Professionalism, 86–87, 106
autonomy and, 22–23
Progressivity, 89, 91
Psychoanalysis, 86
Psychotherapy, 24, 33, 62–63, 93, 109, 117
Public health, 42–47
Quality of shared decisions, 17–18
Question design, the impact of, 38, 47, 50
Refusal, of requests, 76–78, 82
Relational autonomy, 22, 42, 59, 116
Risk, communication of, 33, 64
Risk, to health, 97, 129, 136
Rogers, Carl, 24, 62
Role convergence, 22
Roter Interaction Analysis System (RIAS), 11
Sacks, Harvey, 29, 73, 75
Schegloff, Emmanuel, 29
Shared decision making (SDM), 3, 7, 15–20, 35, 46, 59, 67, 92, 101, 104, 106, 111, 118, 123
Sick role model, 8, 22, 46, 57, 98, 115
Smoking cessation, 55, 57, 61, 74
Social science, complicity of, 119–122
Sociology in medicine, 5, 120
Sociology of medicine, 5, 119
Sociology of professions, 87
Structural functionalism, 29
Struggle for control, 4, 16, 21, 85, 88–92, 108
Theory of communicative action, Habermas’, 10
Theory/practice gap, 111
Therapeutic alliance, 12
Therapeutic citizenship, 46
Treatment recommendations, 32, 43, 45, 47, 88, 92, 105
Troubles telling, 73–75
Trust, 51, 76, 87, 117, 121
UK Department of Health, 1, 33, 40, 71, 98, 114, 121
UK National Institute of Clinical Excellence, 97, 116
Uncertainty, 35, 68–71, 75, 95
US Patient Centered Outcomes Research Institute, 2
Values-based policy, 121, 125
Voice of medicine, the, 103
Voice of the lifeworld, the, 10, 76, 103
Waitzkin, Howard, 28, 32, 44, 123
World Health Organisation (WHO), 23, 43
Parsons, Talcott, 8, 20, 29, 31, 57, 86–87, 98, 111, 115
Passivity, patient, 9, 58
Paternalism, 11, 58, 62, 92, 97, 99, 117, 125
Patient troubles telling, 73–75
Patient affirmation, 85, 107–109
Patient autonomy, 7, 10, 20–23, 65, 67, 115–116
Patient centred care (PCC)
and the complicity of social science, 119–122
conversation analysis as method for studying, 28–33
difficulties of distinguishing between good and bad practice, 58–59
evidence for effectiveness of, 14–16
and good organisational reasons for bad healthcare practice, 34–35
and limitations of consumer choice as applied to healthcare, 113–115
and limits of autonomy, 115–117
person centred care vs., 23–26
pervasiveness of, 26
shared decision-making and, 16–20
Patient centred medicine (PCM), 2, 10–12, 16, 23, 78, 101, 111, 123
Patient Centred Outcomes Research Institute, 13
Patient dependency, 9
Patient engagement, 67, 118
Patient-as-person, 12
Patient-centredness, 11, 14, 125
Patient-led agenda setting, 51–55
Patient-oriented medicine, 8, 117, 119, 122
Person centred care, 1, 2, 7, 13, 23–26
Person-centred interaction, 62
Personal health, 43–46
Personhood, 24–26, 76
Professional autonomy, 115
Professionalism, 86–87, 106
autonomy and, 22–23
Progressivity, 89, 91
Psychoanalysis, 86
Psychotherapy, 24, 33, 62–63, 93, 109, 117
Public health, 42–47
Quality of shared decisions, 17–18
Question design, the impact of, 38, 47, 50
Refusal, of requests, 76–78, 82
Relational autonomy, 22, 42, 59, 116
Risk, communication of, 33, 64
Risk, to health, 97, 129, 136
Rogers, Carl, 24, 62
Role convergence, 22
Roter Interaction Analysis System (RIAS), 11
Sacks, Harvey, 29, 73, 75
Schegloff, Emmanuel, 29
Shared decision making (SDM), 3, 7, 15–20, 35, 46, 59, 67, 92, 101, 104, 106, 111, 118, 123
Sick role model, 8, 22, 46, 57, 98, 115
Smoking cessation, 55, 57, 61, 74
Social science, complicity of, 119–122
Sociology in medicine, 5, 120
Sociology of medicine, 5, 119
Sociology of professions, 87
Structural functionalism, 29
Struggle for control, 4, 16, 21, 85, 88–92, 108
Theory of communicative action, Habermas’, 10
Theory/practice gap, 111
Therapeutic alliance, 12
Therapeutic citizenship, 46
Treatment recommendations, 32, 43, 45, 47, 88, 92, 105
Troubles telling, 73–75
Trust, 51, 76, 87, 117, 121
UK Department of Health, 1, 33, 40, 71, 98, 114, 121
UK National Institute of Clinical Excellence, 97, 116
Uncertainty, 35, 68–71, 75, 95
US Patient Centered Outcomes Research Institute, 2
Values-based policy, 121, 125
Voice of medicine, the, 103
Voice of the lifeworld, the, 10, 76, 103
Waitzkin, Howard, 28, 32, 44, 123
World Health Organisation (WHO), 23, 43
Refusal, of requests, 76–78, 82
Relational autonomy, 22, 42, 59, 116
Risk, communication of, 33, 64
Risk, to health, 97, 129, 136
Rogers, Carl, 24, 62
Role convergence, 22
Roter Interaction Analysis System (RIAS), 11
Sacks, Harvey, 29, 73, 75
Schegloff, Emmanuel, 29
Shared decision making (SDM), 3, 7, 15–20, 35, 46, 59, 67, 92, 101, 104, 106, 111, 118, 123
Sick role model, 8, 22, 46, 57, 98, 115
Smoking cessation, 55, 57, 61, 74
Social science, complicity of, 119–122
Sociology in medicine, 5, 120
Sociology of medicine, 5, 119
Sociology of professions, 87
Structural functionalism, 29
Struggle for control, 4, 16, 21, 85, 88–92, 108
Theory of communicative action, Habermas’, 10
Theory/practice gap, 111
Therapeutic alliance, 12
Therapeutic citizenship, 46
Treatment recommendations, 32, 43, 45, 47, 88, 92, 105
Troubles telling, 73–75
Trust, 51, 76, 87, 117, 121
UK Department of Health, 1, 33, 40, 71, 98, 114, 121
UK National Institute of Clinical Excellence, 97, 116
Uncertainty, 35, 68–71, 75, 95
US Patient Centered Outcomes Research Institute, 2
Values-based policy, 121, 125
Voice of medicine, the, 103
Voice of the lifeworld, the, 10, 76, 103
Waitzkin, Howard, 28, 32, 44, 123
World Health Organisation (WHO), 23, 43
Theory of communicative action, Habermas’, 10
Theory/practice gap, 111
Therapeutic alliance, 12
Therapeutic citizenship, 46
Treatment recommendations, 32, 43, 45, 47, 88, 92, 105
Troubles telling, 73–75
Trust, 51, 76, 87, 117, 121
UK Department of Health, 1, 33, 40, 71, 98, 114, 121
UK National Institute of Clinical Excellence, 97, 116
Uncertainty, 35, 68–71, 75, 95
US Patient Centered Outcomes Research Institute, 2
Values-based policy, 121, 125
Voice of medicine, the, 103
Voice of the lifeworld, the, 10, 76, 103
Waitzkin, Howard, 28, 32, 44, 123
World Health Organisation (WHO), 23, 43
Values-based policy, 121, 125
Voice of medicine, the, 103
Voice of the lifeworld, the, 10, 76, 103
Waitzkin, Howard, 28, 32, 44, 123
World Health Organisation (WHO), 23, 43
- Prelims
- Introduction
- Chapter 1 What Is Patient Centred Care?
- Chapter 2 Analysing Patient Centred Care in Practice
- Chapter 3 On Good Interactional Reasons for ‘Bad’ Healthcare Practice
- Chapter 4 Rehabilitating Medical Expertise for the Twenty-first Century
- Chapter 5 Looking to the Future: Moving Beyond Patient Centred Care?
- Appendix: Conversation Analysis Transcription Symbols (as described in Jefferson, 2004)
- References
- Index