Index
Petra Nordqvist
(University of Manchester, UK)
Leah Gilman
(University of Manchester, UK)
This content is currently only available as a PDF
Citation
Nordqvist, P. and Gilman, L. (2022), "Index", Donors (Emerald Studies in Reproduction, Culture and Society), Emerald Publishing Limited, Leeds, pp. 269-274. https://doi.org/10.1108/978-1-80043-564-320221011
Publisher
:Emerald Publishing Limited
Copyright © 2022 Petra Nordqvist and Leah Gilman. Published under exclusive licence by Emerald Publishing Limited
INDEX
23andme
, 11
Abolition of donor anonymity
, 86, 118–119
Adoption
, 54, 92
Adult autonomy
, 25, 178, 190, 196, 199, 204
Adulthood
, 41, 177, 207, 220, 222, 225
Affinities. See also Mason, Jennifer
, 13, 38, 97, 141, 148, 163, 165, 168, 172–173, 211, 215–216, 219–220, 223, 229
orientation
, 216
sense of connection
, 37–39
Age of openness
, 37, 39, 102, 141, 143, 162–163, 166, 172–173, 212, 225, 229
Agency
, 5, 16, 24, 27, 31, 33, 35, 50–51, 57–58, 82, 86, 119–120, 123–124, 126, 135, 143, 153, 222–223, 228
Almeling, Rene
, 5, 32, 97, 100–101
‘Alternative’ families
, 104
Altruism
discourse
, 76, 162
donation
, 142
donors
, 76
Altruistic donors
, 12, 47, 56
AncestryDNA
, 11
Anonymous donation
, 10, 63, 72–73, 83, 146, 148, 166, 221
Anonymous sociality
, 216
Aunts
, 26, 33, 36, 199, 230
Autonomy
, 25, 120–121, 178–179, 183, 190, 193, 196–197, 199, 204
Blood donation analogies
, 78–80
Bodily donors (organ donation)
, 141
Brothers
, 33–34, 136, 188, 191, 193, 200, 213
Child Maintenance Service (CMS). See also Child Support Agency (CSA)
, 153
Child Support Agency (CSA). See also Child Maintenance Service (CMS)
, 153
Childhood
, 41, 50, 62, 106, 120, 122, 124, 127
Children Act 1989
, 19, 123
Children’s ‘best interest’
, 16, 83–84, 119, 121, 125–126
Children’s rights
, 106, 123–124, 126–127, 138, 228, 230
Civil partnership
, 8, 19
Clinic donation
, 151, 171, 194
Concealment
, 155, 161, 166, 172
Confluent love
, 183
Counsellors
, 11, 52, 70, 78, 80, 84, 118–119, 126, 178–179, 185, 187, 189, 191, 197, 200, 208–209, 233, 245
Couple relationships
, 59, 70, 88, 103, 106, 117–118, 179–180, 183–184, 198, 209, 212–213, 221, 224
Cousins
, 26, 33–34, 36, 192, 201–202, 213
Crafting relationships
, 150–151, 172
Cross border reproductive care
, 8
Curious Connections: The Impact of Donating Egg and Sperm on Donors’ Everyday Lives and Relationships–also the ‘Curious Connections project’
, 11, 233
Dating
, 58, 182
De-traditionalisation
, 25, 33
Direct-to-consumer genetic testing (DTCGT)
, 11, 21, 171, 229–230
Disclosure. See also Openness
contemporary understandings of
, 180
to parents, wider family
, 131, 185, 198
to partners
, 9, 11, 14, 36, 39, 43, 47, 53, 60, 156, 158, 176, 178, 190
Donation
, 1–2, 45, 70, 147–148, 176–177, 182–183, 211–212, 214
and exploitation
, 5
as identity
, 2, 6, 9–10, 13, 19–20, 61, 63, 70, 75, 77, 81, 85, 89, 95, 99, 105, 108, 110, 115, 120, 126, 131–132, 143, 153, 161–162, 167–168, 172–173, 180, 185, 192, 194, 203, 218, 220, 231–232
and impact on family
, 4, 6, 8, 10, 14, 18, 25, 36, 39, 47, 53, 62–63, 65, 83, 118, 136, 175, 194, 206–207, 212, 214, 218
location
, 55, 64, 180, 236
multi-faceted donation pathways
, 47, 56, 64
outcome
, 42, 51, 64, 147, 237, 239
pathways
, 45, 67, 231–232, 238
pluripotency of
, 156, 161, 174, 177, 219
policy
, 15, 43, 86, 95, 126, 228, 232
as practice
, 12, 42, 46–47, 64, 67, 211
as process
, 58, 61, 170
as sexual encounter
, 55, 59, 154–155, 157
stories
, 39
Donor Conception Network (DCN)
, 19, 231, 234
Donor coordinators
, 11, 126–127, 234, 242–243
Donor Sibling Link (DSL)
, 20, 27, 230–231
Donor-conceived people
, 4, 9–10, 13, 16–17, 19–21, 23–24, 26, 29, 31, 70–71, 80, 86, 94, 96, 119, 122, 125, 127, 138–139, 215, 222, 228, 230–231
empowering
, 117, 127, 138, 224, 230
prioritisation of. See also Prioritisation of donor-conceived people
, 22
Donor conception
, 3, 6, 8, 15, 18–19, 30, 78, 94, 96, 101, 103, 106, 112, 118, 122, 124, 128, 136, 138, 184, 211, 220–221, 224, 227–228, 230, 232
Donor-recipient connection
, 141–174
identity-release donors relating to recipients
, 161–172
known donors relating to recipients
, 148–161
sense of affinity
, 143–148
Donors
, 1, 3, 70, 88, 103, 105–106, 114, 117–118, 176, 183, 213, 221, 224
age at first donation
, 176
anonymity
, 9, 11–12, 15–16, 69–70, 79, 83, 86, 118–119, 221, 225, 227–228
bounding relationships
, 151–155
characteristics
, 45, 67, 116, 233, 245
clinic categories
, 47–56
donating and partner relationships
, 178–184
donor-conceived children and young people
, 2, 5, 12, 16, 18–19, 21, 26, 30, 36, 38, 43, 54, 110, 122, 126–127, 133, 135, 141, 175, 185, 187–188, 194, 196, 198, 200–201, 214, 217, 221, 224, 228, 230–231
own children
, 9, 26–27, 30, 34, 73, 134, 187, 190, 206, 214, 230
as parents
, 6, 176, 193–194, 197, 240
relationships with parents
, 193–198
relationships with parents, siblings, nieces and nephews
, 190–202
relationships with partner. See also Partners of donors
, 11, 178, 184, 208
relationships with siblings
, 187, 198, 202
relatives
, 11, 80, 95, 175, 210, 227, 240, 243, 247
traceability
, 9, 16, 103, 220
Donors relating to recipients
, 148–161
donors bounding relationships
, 151–155
embeddedness and time
, 156–161
parameters of relationships
, 149–151
Double donation
, 54, 236
Edwards, Jeanette
, 34, 37, 86
Egg and sperm sharing programme. See also Egg-share donors; Sperm share
, 49, 60, 63, 100, 163, 188
Egg donation
, 3, 7–8, 12, 18, 38, 45, 50, 52, 60, 63, 81, 100–101, 110, 145, 157, 181, 212, 215–216, 236
Egg donors
, 3, 5, 8, 11, 47, 58, 97, 103, 110, 145, 153, 163, 165, 169, 179, 185, 191, 234, 236–237
agency
, 50–51
Egg-share donors. See also Egg/sperm-share donors
, 47–48, 148, 212, 218, 229
Egg/sperm-share donors
, 47, 55
Embeddedness
, 31, 36, 39, 156, 161
Embryo donation
, 2–3, 7–8, 57, 64
Empowerment
, 24, 100, 117, 121, 131, 134
Epigenetics
, 99
Economic and Social Research Council (ESRC)
, 6, 11, 233
Ethos of openness. See also Disclosure; Openness
, 221–222
Facebook groups
, 234
Family resemblances. See also Resemblances
, 198, 217–218
Family responsibility
, 25
Fatherhood
, 147, 160
Fertility. See also Infertility
, 7–8, 11, 40, 49, 51, 53, 57, 61, 64, 69–70, 72, 79, 100, 126, 178, 183, 187, 189, 196, 221, 233, 245
Fertility counsellors
, 11, 52, 70, 79–80, 84, 126, 178, 187, 196, 221, 233, 245
Finch, Janet
, 37, 41, 133, 150, 160
Frozen embryo transfer (FET)
, 3, 55
Fuzzy donation pathways
, 47–48
Gender
, 5, 47, 66, 97, 102, 147, 153–154, 159, 165, 168–169, 178–179, 191, 212, 242
gendered pathways of donation
, 71
sexuality and
, 65
sexual order and
, 65
Genealogical bewilderment
, 19, 71
Genealogical knowledge
, 95–96
Genealogy
, 86, 96
Genes
, 35, 60, 86–87, 95–96, 99–100, 124, 215
Genetic
, 5, 27, 37–38, 84, 87, 99, 178, 188, 195, 215
connectedness
, 34, 37, 114, 209, 211
connections
, 27, 38, 207, 215
origin
, 19, 85, 114
processes
, 99
relatedness
, 37, 215
Gifting
, 5, 72, 76–77, 142, 146, 148, 217, 219
Gillick competence
, 123
‘Good will’ message
, 20, 22, 27, 108
‘Good’ intimate couple relationship
, 182
Grandparenthood
, 40, 193, 205
Grandparents
, 6, 26, 33–34, 89, 94, 118, 131, 175, 196, 198, 218
Guidance for donors
, 230–231
Half siblings
, 186–187, 207
History of egg donation
, 18
Home insemination. See also Self-arranged donor conception
, 7, 49, 52, 211
Human Fertilisation and Embryology Act (HFE Act)
, 21, 60
Human Fertilisation Embryology Authority (HFEA)
, 3–4, 7, 11, 16, 20, 23, 27–28, 45, 65, 170, 231–232, 247
application form for recipients
, 22, 248
licensed clinics
, 16, 23
Identity-release donation
, 6, 9–10, 13, 19–20, 51, 61, 63, 69–70, 75, 77, 81, 85, 89, 93–94, 99, 105, 108, 110, 112, 116, 120, 126, 131–132, 141, 143, 145, 153, 161, 165, 167, 173, 179, 185, 188–189, 191–192, 196, 203, 205–206, 218, 220, 231, 240, 243
in UK policy
, 10, 18, 23, 28, 141, 220
Identity-release donors
, 18, 56, 63, 72, 75, 83, 92, 94, 107–108, 113, 127, 143, 146, 161–162, 167, 174, 185, 214, 218, 230, 236
relating to recipients
, 142, 148–149, 161–162
Identity-release policies. See also Law on donor conception
, 11, 24, 42, 102, 125, 221, 228–229
(Im)morality of speaking for others
, 134–138
Implications counselling
, 70, 78, 80
In Vitro Fertilisation (IVF)
, 3, 7–8, 47, 49–50, 52, 54, 59–60, 63, 157, 170–171, 188, 237
In-family donation
, 122–123
Individual agency/autonomy/choice
, 16–17, 117, 126
Individualism
, 17, 25, 31, 33
to ‘critique of’
, 33–35
Zeitgeist
, 32
Infertility. See also Fertility
, 4, 12, 50, 52, 56–57, 70, 147, 169, 223, 234, 247
Information provider
, 115–117
Information sharing. See also Disclosure; Openness
, 16, 21, 24, 28, 45, 189, 220, 227
Intergenerational relating
, 118, 120–121, 126, 138
Intracytoplasmic Sperm Injection (ICSI)
, 3, 40
Intrauterine Insemination (IUI)
, 3
Kinship
, 4–5, 27, 29–30, 34–35, 37, 39, 71, 73, 84, 86, 94, 107, 133–134, 148, 150, 165–166, 173, 187, 195, 200–201, 204, 208–209, 215, 219, 224
Known donation
, 9, 11, 13, 58, 62–63, 72, 89–91, 95–96, 99, 109, 115, 117, 127–128, 130, 142, 146, 148–149, 152, 154, 157, 160–161, 163–164, 169, 172–173, 197, 229, 231–232, 237
Known donors
, 12, 18, 42, 47, 56, 63–64, 74, 90–91, 97, 138, 144–145, 148, 156, 158, 168, 170, 172–173, 214, 218, 221, 234
Konrad, Monica
, 4–5, 82, 147–148, 165–166, 169, 216
Law on donor conception. See also Identity-release policies
, 11–12, 16, 18, 20, 23
Laws on donation across different countries
, 9, 15, 236
Lesbian couples
, 42, 58–59, 74
Local moral worlds
, 8
Making people
, 1–2, 4, 10, 12, 14, 16–17, 24–25, 28, 30, 41, 69, 104, 155, 174, 176, 178, 190, 202, 208, 212–213, 221
ambivalent status of ‘origins’
, 84–88
being available
, 81–84
blood donation analogies
, 78–80
Mason, Jennifer. See also Affinities
, 25, 29, 33, 35, 37, 41, 87–88, 92, 96, 133, 142, 150, 160, 165–166, 172, 190, 197, 211, 216–217, 219
‘Matching’ websites
, 11
Mixing gametes
, 30, 33, 180, 183, 198
Morality
, 5, 37, 39–40, 105, 139
moral appeal of ‘letting others lead’
, 117–127
egg donors
, 110
information provider
, 115–117
neutral attitudes towards future contact
, 107–108
neutral way of relating
, 127–131
playing things by ear
, 112–114
moral reasoning
, 122, 228
moral relational imperative
, 12–13, 175, 209
relationality and problem with individual ‘empowerment’
, 131–134
sperm donors
, 109
Morgan, David
, 33, 36, 47, 65–66, 158
Motherhood. See also Solo motherhood
, 54, 57, 101, 147, 180
Natural insemination (NI)
, 55, 59, 154, 156–157
Negotiated relationships
, 40, 150, 165, 174
Negotiation
, 40, 67, 88, 103, 133, 149–150, 160, 169–170, 213, 223
Neoliberal societies
, 25, 106, 118, 120, 122
Neutral attitudes towards future contact
, 107–108
Non-clinic donation
, 7, 74, 77, 92, 98, 109, 114, 127, 132, 145, 153, 157–158, 182, 203, 238
Openness. See also Disclosure; Information sharing
, 6, 9, 14, 16–17, 19, 185, 211–212, 227
without age restriction
, 229–230
between donors and recipients
, 229
increasing openness to known donation pathways
, 231–232
recognising webs of potential connections
, 230–231
Origins
, 17, 19, 26, 31, 33, 84, 88, 94, 102–103, 114, 124, 215, 220, 223
genetic
, 19, 85, 114
Parent-child relationships
, 19, 185, 190
Parental authority
, 202
Parenthood
, 56, 88, 91–92, 221
claims to
, 40–41, 58, 67, 71, 73, 76, 78, 101, 104, 123, 148, 180, 199, 207, 217, 219
Parents
, 23, 37–38, 72, 75, 78, 193, 198
donors as
, 185–190
gift of parenthood
, 76–78
Partners of donors
, 36, 47, 53, 58, 60, 67, 77, 100, 145, 157–158, 174, 176, 178, 184, 202–203, 207–208, 234
donating and partner relationships
, 178–184
Payment for donation
, 47, 248
Pen portrait
, 20, 79–80, 170
Pluripotency of donation
, 156, 161, 174, 220
Pregnancy
, 29, 50–51, 160, 170, 176, 188, 195, 216, 218
Preimplantation Genetic Diagnosis (PGD)
, 3
Prioritisation of donor-conceived people. See also Donor-conceived people
, 4, 9–10, 13, 16–17, 20–21, 24, 31, 51, 61, 70, 80, 84, 87, 89, 94, 96, 99, 115–116, 119, 122, 138, 215, 222, 224, 227–228, 230
Procreation
, 28, 30, 33, 184
Quality of connection. See also Affinities; Sense of connection
, 216
Reception of Oocytes from the Partner (ROPA). See also Reciprocal IVF
, 60
‘Recipe model’ of procreation
, 28
Recipients
, 1, 5, 9, 12–13, 16–17, 20–21, 24, 26, 43, 74, 84, 90, 99, 111, 136, 152–153, 159, 165–166, 209, 213–214, 221, 223, 227–228
openness between donors and. See also Known donation
, 229
Reciprocal IVF. See also Reception of Oocytes from the Partner (ROPA)
, 60, 188
Regimes of openness
, 225, 227–228
Relatedness
, 35, 37, 39–40, 133–134, 215
Relating
, 2, 13–14, 31–33, 35, 37–38, 40, 42, 127, 131, 148–149, 161–162, 197, 204, 207, 213–214, 216, 222
Relational authority
, 13, 106, 120, 127–128, 134–135, 139, 222, 224, 228
Relational practice
, 14, 67, 133, 211, 223
Relationality
, 17, 131, 134, 149, 166, 212, 214, 220
Reproductive
autonomy
, 179
connectedness
, 177–178, 180, 190, 193, 202, 207
donation
, 2–4, 10, 26, 32, 42, 144, 146, 214, 216, 219
gift
, 147–148
medicine
, 3, 7
practices
, 8, 177, 207
Resemblances. See also Family resemblances
, 13, 71, 94, 99, 198, 214, 218
negotiating
, 88–90
risky
, 90–94
Rose, Nikolas
, 25, 200–201
Scott, Susie
, 130, 134
Secrecy
, 9, 16, 80, 96, 125, 161, 166, 206, 211–212, 223, 225, 227–228
Self-arranged donor conception. See also Home insemination
, 7, 49, 52, 211
Sense of affinity. See also Affinities
, 143–148
Sense of connection. See also Affinities; Sense of affinity
, 37, 39, 102, 141, 143, 163, 166, 172–173, 214, 220, 224, 229
Sense of responsibility
, 81–82, 214
Sexual intimacy
, 154, 183–184
Siblings
, 2, 11, 14, 20, 22, 26, 29, 31–32, 35, 55, 80, 134, 137, 176, 178, 181, 186–187, 189–190, 193, 199, 204, 207, 209, 214, 228, 230–231
donors relationships with
, 198–202
Simmel, George
, 155, 166
Sisters
, 6, 33–34, 43, 52, 92, 136, 175, 177, 187–188, 191, 195, 199, 204, 206–207, 213, 215
Smart , Carol
, 6, 19, 25, 36, 38, 90, 100, 122–123, 166, 220, 223
Sociology of
morality
, 5, 12, 37, 39–40, 105, 139
personal life
, 6
the family
, 29–30
Solo motherhood. See also Motherhood
, 180
Sperm donation
, 2, 8, 10–11, 18, 42, 45, 48, 53, 56, 58, 61, 64, 67, 70, 79–80, 84, 97–98, 100, 102, 105, 109, 114, 131, 134, 136, 145, 150, 153–154, 157, 161, 163, 169, 182, 184–185, 188–189, 191, 204, 231, 234, 236, 240
history of
, 18
Sperm share. See also Egg and sperm sharing programme
, 46–47, 55, 64, 169
Surrogacy
, 58, 63, 99, 152, 188
Telling children, principle of. See also Disclosure; Openness
, 188–189, 191
Temporal discordance
, 218–219
Temporality
, 40–42
Time
, 3–4, 7, 9–10, 13, 15, 19–20, 23, 28, 32, 40, 42, 49, 53, 57–58, 61–62, 64, 71, 86, 89, 91, 109, 112, 156, 161
Traceability of donors
, 9, 15–16, 18, 32, 103, 220
Transilience
, 216, 220
Transparency
, 10, 16, 24, 94, 96, 220
Truth-telling
, 15–16
UK identity-release policy. See also Identity-release policies; UK law on donation
, 18–19, 118, 221, 227
agency, choice and self-actualisation
, 24–26
current law and policy
, 20–23
‘identity’, origins and formation of self
, 27–31
sociological analysis and critique of current policy
, 24–33
UK law on donation. See also UK identity-release policy
, 122–123
UN Convention on the Rights of the Child (UNCRC)
, 123–124
Uncles
, 26, 33, 36, 230
Warnock report
, 84
- Prelims
- Introduction
- 1 Donation in UK Law and Policy: Sociological Critique and Perspectives
- 2 Pathways to Donation
- 3 Making Parents and Making People: The Ambivalent Role of ‘Good’ Donors
- 4 The Morality of Neutrality: The Promise and Problems of ‘Letting Others Lead’
- 5 A Sense of Affinity: The Donor-Recipient Connection
- 6 Whose Story Is It? Donors, Their Families and the Relational Impact of Donating
- Conclusion: Being an Egg or Sperm Donor in an Age of Openness
- Insights for Law and Policy: Implications of Doing ‘Openness’ Differently
- Appendix 1 Interview Study With Donors, Donors' Relatives and Fertility Counsellors
- Appendix 2 Mapping the Law and Policy Context
- Bibliography
- Index