Neha Gupta, Manya Khanna, Rashi Garg, Vedantika Sethi, Shivangi Khattar, Purva Tekkar, Shwetha Maria, Muskan Gupta, Akash Saxena, Parul Gupta and Sara Ann Schuchert
This study aims to examine the psycho-emotional and social experiences of caregivers of children with autism spectrum disorder. Various facets of the caregiving experience are…
Abstract
Purpose
This study aims to examine the psycho-emotional and social experiences of caregivers of children with autism spectrum disorder. Various facets of the caregiving experience are explored, including the feelings and thoughts of the parents/caregivers, such as the resilience experienced in their journey, how they coped with the challenges and also their positive experiences.
Design/methodology/approach
In this study, these aspects of the caregiving experience are broadly probed using semi-structured interviews subjected to narrative analysis. Lastly, there is a focus on the role of therapist-led intervention, specifically, the Eye to I© intervention model and its contributions to the parent/caregiver experience.
Findings
Findings from this study indicate that parents benefit from interventions that bridge gaps in skills and interpersonal communication which parents/caregivers feel they encounter in their day-to-day activities. Additionally, support groups for parents and caregivers could further address these issues.
Originality/value
This exploration reveals insights about the roles of societal structures and the caregiving journey.