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Article
Publication date: 7 May 2019

Trine Elisabeth Iversen, Kristin Horndalsveen, Espen Matre, Tine Finstad Henriksen, Sarah Fusche, Arvid Nikolai Kildahl and Trine Lise Bakken

There are few publications on personality disorder in adults with intellectual disability (ID), and on borderline personality disorder (BPD) specifically. Publications concerning…

Abstract

Purpose

There are few publications on personality disorder in adults with intellectual disability (ID), and on borderline personality disorder (BPD) specifically. Publications concerning treatment are sparse, despite the high symptom burden in these patients. This paper aims to discuss these issues.

Design/methodology/approach

Six patients with BPD and ID were recruited from the same inpatient unit. Behaviour problems and mental health symptoms were scored on admission and discharge. Information about treatment, length of stay, etc. was taken from case files.

Findings

Both mental health symptoms measured by the SCL-90-R, and behaviour problems measured by the Aberrant Behaviour Checklist were significantly reduced on discharge. In the active treatment period, the two main aspects of treatment were validation and practicing new solutions when emotional and behavioural problems occur, i.e. skills training.

Research limitations/implications

The limitations related to this study are that the study is conducted in one milieu only. Another limitation is that the patients were admitted over a five-year period, where, some changes were made in the treatment approach.

Practical implications

Inpatient treatment of this patient group seems to be effective if individually adjusted to the patient’s psychopathology, ID and communication style. Close co-operation between the individual therapist and milieu therapists is essential.

Originality/value

There is a need for intervention studies on BPD in ID. This study may be a valuable contribution.

Details

Advances in Mental Health and Intellectual Disabilities, vol. 13 no. 2
Type: Research Article
ISSN: 2044-1282

Keywords

Article
Publication date: 19 September 2018

Trine Lise Bakken, Olav Ose Evensen, Tale Gjertine Bjørgen, Inger Tove Nilsen, Nina Bang, Unni Pedersen, Kim Berge, Karl Elling Ellingsen, Terje Baasland and Sissel Berge Helverschou

The purpose of this paper is to present and discuss mental health services for people with intellectual disability (ID) in Norway.

Abstract

Purpose

The purpose of this paper is to present and discuss mental health services for people with intellectual disability (ID) in Norway.

Design/methodology/approach

A literature review and a survey were conducted to map services for people with ID and mental health problems in Norway.

Findings

The results were sparse and confirmed what is already known among clinicians working with these patients. The Norwegian services are fragmented and there are geographical differences.

Research limitations/implications

There are no special services for children with ID developing mental illness. For offenders with ID, a national unit assesses and follows up, also when the person is sentenced to compulsory care and services are provided in their home municipality.

Practical implications

More data about both the patients and the services are needed in order to improve mental health services for people with ID in Norway.

Originality/value

This paper describes mental health services for people with ID in Norway.

Details

Advances in Mental Health and Intellectual Disabilities, vol. 12 no. 3/4
Type: Research Article
ISSN: 2044-1282

Keywords

Article
Publication date: 8 January 2019

Ann Magritt Solheim Inderberg, Kristin Horndalsveen, Arne-Henrik Elvehaug, Yugbadal Mehmi, Ingvild Jørstad and Trine Lise Bakken

People with autism spectrum disorders (ASD) have been associated with criminal acts and affiliation with groups and organisations with violent ideology and practice. The purpose…

Abstract

Purpose

People with autism spectrum disorders (ASD) have been associated with criminal acts and affiliation with groups and organisations with violent ideology and practice. The purpose of this paper is to present patients in mental health services with both ASD and psychosis, who are affiliated with such groups.

Design/methodology/approach

Three vignettes are used as examples. Some of the information is combined for the three participants for presentation. They were scored for mental health symptoms and behaviour problems on admission and discharge from inpatient care.

Findings

The combination of ASD and psychosis aggravates the problems of both conditions, which may elicit a collapse of both cognitive functioning and especially impulse control, and of the ability to judge whether situations are dangerous or offensive or not.

Originality/value

The present paper may contribute to a better understanding of the combination of ASD, psychosis and affiliation with groups and organisations as described, especially regarding the importance of identifying psychosis.

Details

Journal of Intellectual Disabilities and Offending Behaviour, vol. 10 no. 1
Type: Research Article
ISSN: 2050-8824

Keywords

Article
Publication date: 23 May 2019

Jane Margrete Askeland Hellerud and Trine Lise Bakken

The purpose of this paper is to investigate the families’ and professional caregivers’ experience of mental health services for patients in the migrant population with…

Abstract

Purpose

The purpose of this paper is to investigate the families’ and professional caregivers’ experience of mental health services for patients in the migrant population with intellectual disability (ID).

Design/methodology/approach

To highlight this rarely studied topic, the authors chose a qualitative approach, using a semi-structured interview guide. The authors performed a search for relevant articles. Three families of former patients of a specialized psychiatric inpatient unit and 12 professional caregivers were interviewed. The interviews were taped, transcribed and analyzed using a thematic analysis.

Findings

In total, 17 themes from the families’ answers and 14 themes from the caregivers’ answers were grouped into four main themes each. Two main themes were identical for both groups: perspectives on mental illness and “the Norwegian system.” Additionally, the families were concerned about the impact on the patient and family and coping strategies. The caregivers highlighted patient–caregiver interaction and family–caregiver interaction.

Research limitations/implications

Further research should include the patients’ opinions based on the findings of this study. Also, studies including larger samples from both specialist services and community services are needed to develop evidence-based services for these patients.

Practical implications

Proposed adaptations to enable assessment and treatment of mental illness in migrants with ID should be adapted to cultural preferences. The following adaptations are proposed: inclusion of the entire family, awareness of cultural dimensions, information about the health care system, education in mental illness, the use of interpreters and adequate time spent with the families.

Originality/value

Mental health services for this group are an understudied topic. Clinical experience indicates that professionals struggle when providing services for such patients.

Details

Advances in Mental Health and Intellectual Disabilities, vol. 13 no. 2
Type: Research Article
ISSN: 2044-1282

Keywords

Article
Publication date: 8 September 2022

Linda Kristin Hørsrud and Trine Lise Bakken

The purpose of this paper is to investigate how users with particularly complex needs including intellectual disability (ID) reacted to the changes and restrictions during the…

Abstract

Purpose

The purpose of this paper is to investigate how users with particularly complex needs including intellectual disability (ID) reacted to the changes and restrictions during the COVID-19 pandemic in 2020.

Design/methodology/approach

As few studies of changes during the pandemic include users with ID and multiple, complex needs, the authors adopted a qualitative approach, using a semistructured interview guide. Ten participants were leading ID nurses in residential facilities in community settings. The interviews were taped, transcribed and analyzed using a thematic analysis.

Findings

The thematic analysis generated six main themes, including both user and staff perspectives: daily routines, activities, facilitation of tasks and well-being, from the users perspectives, and use of working hours and positive staff experiences, from the staff perspectives.

Research limitations/implications

Ten residential facilities constituted a convenience sample of services for users with multiple, complex needs. Thus, the authors do not know whether the findings are representative. Further research should include user opinions based on the findings of this study.

Practical implications

The users represented in this study appeared to experience less stress during the pandemic, contrary to the expectations of professional caregivers. The findings indicated more well-being among users. It was noted that receiving services at home, largely flexible schedules, staying in bed a little longer in the morning and avoiding stressful situations, such as travelling in minibuses, was appreciated by the users.

Social implications

Daily schedules with activities throughout the day should be considered for users as represented in this study. Stressful events should also be considered.

Originality/value

The knowledge about pandemic experiences of users with ID and additional complex conditions and hence comprehensive needs is still sparse. This study may add to this knowledge.

Details

Advances in Mental Health and Intellectual Disabilities, vol. 16 no. 4
Type: Research Article
ISSN: 2044-1282

Keywords

Article
Publication date: 3 January 2017

Arvid Nikolai Kildahl, Trine Lise Bakken, Olaf Kristian Holm and Sissel Berge Helverschou

Assessment of psychiatric disorders in people with autism spectrum disorder (ASD) and intellectual disabilities (ID) is challenging. The purpose of this paper is to explore the…

Abstract

Purpose

Assessment of psychiatric disorders in people with autism spectrum disorder (ASD) and intellectual disabilities (ID) is challenging. The purpose of this paper is to explore the diagnostic decision making and strategies employed in the assessment of a young man with ASD and ID who eventually got the additional diagnosis of schizophrenia.

Design/methodology/approach

To describe and explore a process not easily converted into quantitative measures, it was chosen to perform a case study of a single case.

Findings

The combined knowledge of ASD, ID and psychiatric disorder was important in the current assessment. General assessment tools were of some value, but their results had to be interpreted with care. The same was true of a more ASD/ID-specific tool. Using multiple informers may strengthen data from such tools in this population, but does not make it interchangeable with self-report. The case presented demonstrates the possibility of negative symptoms and functional decline overshadowing positive psychotic symptoms in people with ASD/ID, as well as the expression of ASD changing with a functional decline.

Originality/value

The present study adds to the few previous reports on identification of psychosis in this population, and in addition, may assist clinicians in making more accurate psychiatric assessments of people with ASD/ID.

Details

Advances in Mental Health and Intellectual Disabilities, vol. 11 no. 1
Type: Research Article
ISSN: 2044-1282

Keywords

Article
Publication date: 7 September 2012

Trine Lise Bakken, Jan Ivar Røssberg and Svein Friis

Patients who have intellectual disability and mental illness will occasionally need inpatient treatment. However, research is sparse on psychosocial factors influencing…

315

Abstract

Purpose

Patients who have intellectual disability and mental illness will occasionally need inpatient treatment. However, research is sparse on psychosocial factors influencing psychiatric units for patients with intellectual disabilities. The aim of this study is to examine whether adults with intellectual disabilities can reliably rate the Ward Atmosphere Scale – Real Ward (WAS‐R).

Design/methodology/approach

A total of 17 patients with mild and moderate intellectual disability and 21 staff members were asked to complete the WAS‐R. The authors used six subscales (involvement, support, practical orientation, order and organisation, angry and aggressive behaviour, and staff control) that have proved to be of major importance for patient satisfaction and treatment outcome to measure the patients' and the staff members' perceptions of the treatment milieu. To examine the internal consistency Cronbach's alpha was calculated for the patient and staff scores, respectively.

Findings

A total of 16 patients completed the form. Patients with mild intellectual disabilities were able to answer the WAS with some help, whereas patients with moderate intellectual disabilities had major difficulties with understanding more than half of the WAS items. These difficulties were also reflected in the internal consistency scores. Cronbach's alpha was satisfactory (≥0.50) for five subscales for patients with mild intellectual disabilities, but only satisfactory for two of the six subscales for patients with moderate intellectual disabilities.

Research limitations/implications

A replication study should use a shorter version of the WAS‐R, and family or caregivers should answer the WAS‐R additionally to the patients.

Originality/value

This study may encourage more research on treatment milieu for patients with intellectual disability and mental illness.

Details

Advances in Mental Health and Intellectual Disabilities, vol. 6 no. 5
Type: Research Article
ISSN: 2044-1282

Keywords

Article
Publication date: 2 July 2014

Trine Lise Bakken, Vibeke Gjersoe, Espen Matre, Tone Kristiansen, Arvid Ro, Anne Louise Tveter, Siv Helene Hoeidal and Arvid Nikolai Kildahl

The purpose of this paper is to describe and discuss interventions of stabilisation of emotions and behaviour in adults with post-traumatic stress disorder (PTSD). This topic is…

Abstract

Purpose

The purpose of this paper is to describe and discuss interventions of stabilisation of emotions and behaviour in adults with post-traumatic stress disorder (PTSD). This topic is understudied in persons with intellectual disability.

Design/methodology/approach

The aim of this study was to investigate interventions of stabilisation in persons with more severe intellectual disability; i.e. persons with moderate or severe intellectual disabilities. Five patients in a specialised psychiatric inpatient unit for patients with intellectual disabilities were included. Information about treatment of the patients was collected through case files, observations, and interviews. The authors of this paper followed a training programme for trauma therapists in addition to the inpatient treatment of the five patients.

Findings

Six main areas of stabilisation of emotions and behaviour were identified: validation, anxiety relief, treatment of depressed mood, increased mastering of daily activities, protection against anxiety triggers, and facilitated staff communication. Protection from anxiety triggers seems to be a core element of milieu therapy interventions. Interventions for neurotypical PTSD patients, such as exposure therapy may be contraindicated for patients with more severe intellectual disabilities.

Originality/value

Research on interventions of stabilisation towards adults with more severe intellectual disabilities is still in its infancy. The case reports may help milieu therapists to facilitate interventions towards patients with moderate or severe intellectual disabilities.

Details

Advances in Mental Health and Intellectual Disabilities, vol. 8 no. 4
Type: Research Article
ISSN: 2044-1282

Keywords

Article
Publication date: 3 May 2016

Anne Louise Tveter, Trine Lise Bakken, Jan Ivar Røssberg, Egon Bech-Pedersen and Jørgen G. Bramness

The UKU side effect rating scale for adults with intellectual disabilities (UKU-SERS-ID) was developed to detect side effects among patients with intellectual disabilities (ID)…

Abstract

Purpose

The UKU side effect rating scale for adults with intellectual disabilities (UKU-SERS-ID) was developed to detect side effects among patients with intellectual disabilities (ID). The purpose of this paper is to examine the reliability and face validity of the UKU-SERS-ID.

Design/methodology/approach

UKU-SERS-ID comprises 35 items. In total, 22 patients with ID were included from two specialized services for adults with ID and comorbid mental illness. All patients were rated on three different occasions by three clinicians; two nurses and one medical doctor. Reliability was estimated with Cohen’s κ. A focus group discussed the face validity of the items comprising the UKU-SERS-ID.

Findings

Respectively ten (nurse-nurse scores) and eight (nurse-doctor scores) items were considered difficult to score due to low prevalence of the symptoms. For the other items the reliability was acceptable. Through discussion in a focus group, with the reliability scores in mind, only one of the items of the UKU-SERS-ID was discarded.

Practical implications

The authors have developed a feasible side effect instrument for clinical practice. It is easy to score and relevant regarding important side effects.

Originality/value

The UKU-SERS-ID seems to be a feasible tool. Further investigations are mandatory in order to gain knowledge about distribution and phenomenology of side effects from psychotropic medication for individuals with ID.

Details

Advances in Mental Health and Intellectual Disabilities, vol. 10 no. 3
Type: Research Article
ISSN: 2044-1282

Keywords

Article
Publication date: 3 March 2014

Trine Lise Bakken, Arvid Nikolai Kildahl, Vibeke Gjersøe, Espen Matre, Tone Kristiansen, Arvid Ro, Anne Louise Tveter and Siv Helene Høidal

The purpose of this paper is to describe and discuss assessment of post-traumatic stress disorder (PTSD) in adults with intellectual disabilities. Existing research in this area…

Abstract

Purpose

The purpose of this paper is to describe and discuss assessment of post-traumatic stress disorder (PTSD) in adults with intellectual disabilities. Existing research in this area encompasses case studies, and includes, for the most part, persons with mild intellectual disabilities.

Design/methodology/approach

The aim of this study is to investigate symptom presentation and subsequent identification of PTSD in persons with more severe intellectual disabilities; i.e. persons with moderate or severe intellectual disabilities. Five patients in a specialised psychiatric inpatient unit for patients with intellectual disabilities were included. Information about the patients was collected through case files and interviews with key informants: family, milieu therapists, and caregivers in community settings, and observations through inpatient admission. The authors of this paper followed a training programme for trauma therapists in addition to the inpatient treatment of the five patients. The five patients all met criteria for PTSD according to the Diagnostic Manual – Intellectual Disability.

Findings

Previously, it was not suspected that the five patients suffered from PTSD, although they had experienced terrifying incidents. All patients displayed severe changes in behaviour, which may have overshadowed symptoms of PTSD. PTSD in persons with more severe intellectual disabilities may be interpreted as challenging behaviour, or other psychiatric disorders such as psychosis.

Research limitations/implications

The limitation of the study is the small number of participants.

Practical implications

Practical implication is linked to clinical practice related to identification of PTSD in persons with intellectual disabilities.

Originality/value

The paper may encourage more research into how PTSD can be identified in persons with moderate and severe intellectual disabilities. The case reports may help clinicians to look for traumatic experiences in persons with intellectual disabilities who have experienced terrifying incidents.

Details

Advances in Mental Health and Intellectual Disabilities, vol. 8 no. 2
Type: Research Article
ISSN: 2044-1282

Keywords

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