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1 – 10 of 21Susan M. Benbow and Paul Kingston
The purpose of this paper is to look at concerns about risk/abuse expressed spontaneously by people with dementia (PwD) and their carers in narratives describing their journeys…
Abstract
Purpose
The purpose of this paper is to look at concerns about risk/abuse expressed spontaneously by people with dementia (PwD) and their carers in narratives describing their journeys with dementia.
Design/methodology/approach
A total of 35 narratives were elicited from PwD, carers of PwD and couples where one partner was living with dementia as part of a study on the impact of producing narratives on PwD and their carers. Participants were found to allude to risk/abuse, or specifically mention thoughts on risk and abuse in their narratives. A secondary analysis of the theme of risk/abuse is reported here.
Findings
Concerns about risk/exploitation were often expressed in the narratives, and covered a range of areas including driving, safety in the home, safety outdoors, falls, finances, risk to PwD from others, risk to others from PwD, potential or actual police incidents and neglect.
Research limitations/implications
The narratives were elicited as part of another project and participants were not asked directly about risk; themes reported here were brought up spontaneously by participants.
Practical implications
In relation to dementia a wide range of risk/abuse issues is of concern to PwD and their carers, including driving and financial vulnerabilities. PwD and carers are prepared to talk about risk/abuse when given an opportunity. It is important to investigate and understand experiences and concerns about risk/abuse if they are to be addressed in health and social care practice.
Originality/value
The narratives offer unique insights into the concerns of PwD and family carers.
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Susan M. Benbow, Sharmi Bhattacharyya and Paul Kingston
The purpose of this paper is to review the terminology used to describe family violence involving older adults in order to stimulate a discussion that may assist in the use of a…
Abstract
Purpose
The purpose of this paper is to review the terminology used to describe family violence involving older adults in order to stimulate a discussion that may assist in the use of a more appropriate and clearer terminology.
Design/methodology/approach
Different definitions of terms used to describe violence are considered and the contexts in which they are used. Two cases are described to illustrate the use of overlapping terms, the assumptions that lie behind them and the different actions that they lead to.
Findings
The authors argue that legal, relational, health (physical and mental) and social perspectives are all useful and integration contributes to a fuller understanding of violence.
Originality/value
The importance of terminology used to describe family violence involving older adults has been neglected in the past, yet it influences understanding about violent incidents and shapes responses to them.
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Yong Lock Ong, Susan Benbow, Sarah Black and Jane Garner
The Faculty of Old Age Psychiatry, Royal College of Psychiatrists, has been involving users and carers in its work since 2002. The model that has been developed involves regular…
Abstract
The Faculty of Old Age Psychiatry, Royal College of Psychiatrists, has been involving users and carers in its work since 2002. The model that has been developed involves regular meetings of a consumer group, which was set up in partnership with the Alzheimer's Society and Age Concern, and which meets with the officers of the faculty. This development is in line with a number of recent policy initiatives and has had considerable influence on the work of the faculty.
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The National Institute of Mental Health England (NIMHE) appointed a Fellow in Ageing and Mental Health to take on a national leadership role for a three‐year period from 2003 to…
Abstract
The National Institute of Mental Health England (NIMHE) appointed a Fellow in Ageing and Mental Health to take on a national leadership role for a three‐year period from 2003 to 2006. Starting from a position where the NIMHE website could only address older adult issues under social exclusion, a group of committed individuals in a range of organisations came together and a regional and national work programme in older people's mental health was developed. This paper offers reflections on the issues raised during the Fellowship in respect of older people's mental health services and this Fellowship model of leadership.
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We describe three homeless older people who presented to an old age psychiatry service. Homeless older adults are likely to have untreated mental and physical health problems and…
Abstract
We describe three homeless older people who presented to an old age psychiatry service. Homeless older adults are likely to have untreated mental and physical health problems and to be invisible to services. To detect and treat them, services need to be flexible.
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Susan Benbow, Louise Taylor and Kathleen Morgan
The authors describe how a user and carers were involved in teaching as part of the MSc in Applied Studies in Ageing and Mental Health at Staffordshire University, the impact that…
Abstract
The authors describe how a user and carers were involved in teaching as part of the MSc in Applied Studies in Ageing and Mental Health at Staffordshire University, the impact that this had on students on the course and evolving plans to develop the work further.
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Sadie Bawn, Susan Benbow, David Jolley, Paul Kingston and Louise Taylor
The Rowan report was published in 2003, following an investigation into allegations of abuse on a ward providing longterm care for older people with mental health problems. The…
Abstract
The Rowan report was published in 2003, following an investigation into allegations of abuse on a ward providing longterm care for older people with mental health problems. The factors identified as important were similar to those identified in other inquiries that took place before and after the Rowan inquiry. Why do organisations fail to learn the lessons of the past?This paper examines what happened following publication of the Rowan report and the ensuing publicity. Some positive outcomes are identified but, putting these in context, it seems unlikely that they will prevent further incidents. How do organisations prevent incidents/suspicions of abuse? The author suggests a multi‐level approach and argues that residential and nursing care is at least equally at risk. The fundamental problem lies in society's failure to prioritise and adequately resource the care of older people with dementia and other mental health problems.
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Susan Benbow, Paul Kingston, Sabyasachi Bhaumik, Sarah Black, Satheesh Gangadharan and Suzanne Hardy
The Royal College of Psychiatrists set up an interface group to look at the interface between old age psychiatry and learning disability and, as part of its work, the group…
Abstract
The Royal College of Psychiatrists set up an interface group to look at the interface between old age psychiatry and learning disability and, as part of its work, the group commissioned a survey of learning disability and old age psychiatrists to investigate their experience of working across the boundary between the two specialities. This paper is based on the report produced. It summarises the findings of the survey and sets out eight recommendations to further the work. There was no clarity on how services should be provided to older people with a learning disability who develop a mental health problem in later life but the need for collaboration between the two specialities is compelling.
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Ben Hobson, Diane Webb, Lynda Sprague, Moni Grizzell, Cliff Hawkins and Susan M. Benbow
This paper describes a service improvement project with two aims: to identify and screen all adults with Down's syndrome aged over 30 years in a defined locality using a…
Abstract
Purpose
This paper describes a service improvement project with two aims: to identify and screen all adults with Down's syndrome aged over 30 years in a defined locality using a standardised instrument to establish functional baselines; and to set up a database to facilitate early diagnosis of dementia in this population.
Design/methodology/approach
An assistant psychologist used a standardised instrument to screen participants who were identified through contact with health, social, and third sector, and housing services.
Findings
Eligible people were identified and screened using an informant‐based measure. Three groups were identified: group 1 showed no significant change; group 2 showed significant change but no signs of dementia; and group 3 showed significant change plus signs of dementia. People with suspected dementia were referred on for further investigation/assessment and supportive services.
Practical implications
Terminology is important in engaging families in a screening project, as is the opportunity to provide information. A proactive screening project can be established by employing working partnerships between intellectual disability and older adult services to aid diagnosis.
Originality/value
Adults with Down's syndrome aged over 30 years in a defined locality can be identified through contact with health, social, and third sector, and housing services. Those identified can be screened using a standardised instrument and a database of screening results established in order to establish baselines against which future re‐screening can be conducted. Partnership working between older adult mental health services and intellectual disability services can improve the diagnostic service to adults with Down's syndrome.
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