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1 – 10 of 212A review of the literature regarding the use of the Mental Capacity Act (MCA) of 2005 with young people with intellectual disability indicated an absence of publications on this…
Abstract
Purpose
A review of the literature regarding the use of the Mental Capacity Act (MCA) of 2005 with young people with intellectual disability indicated an absence of publications on this topic, yet clinical practice suggests that services are grappling with complex issues in this area. This article aims to focus on the principles of the MCA and to explore its application to young people with intellectual disabilities.
Design/methodology/approach
The key principles of the MCA are reviewed and its application to young people with intellectual disability are explored through case studies.
Findings
The MCA is applicable to 16‐18 year olds with intellectual disability and services require training and support in its implementation. Issues of adaptation of communication to convey complex matters and appropriate preparation for assessment are especially pertinent.
Originality/value
The article explores the application and relevance of the MCA to young people with intellectual disability in clinical practice.
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Muthukumar Kannabiran and Sarah Bernard
This case study highlights issues surrounding the transition of a 19‐year‐old man with moderate learning disabilities and a psychotic illness from child and adolescent mental…
Abstract
This case study highlights issues surrounding the transition of a 19‐year‐old man with moderate learning disabilities and a psychotic illness from child and adolescent mental health services to adult services. He had undergone hemispherectomy following Rasmussen's encephalitis at a young age. Important issues in transition of care are discussed.
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Sarah Bernard, Suzannah Gratton and Natasa Momcilovic
This case report highlights the importance of the role of the family in supporting a young person with a developmental disability. The young person discussed has a complex…
Abstract
This case report highlights the importance of the role of the family in supporting a young person with a developmental disability. The young person discussed has a complex neurodevelopmental disorder with co‐morbid physical health problems. Her family have coped with a number of events in CR's life, ensuring that she has always had their support and understanding. At the time of transition there is a risk of failure to understand the complexities of the role of the family in CR's life. The implications will be discussed.
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There is increasing awareness of the needs of parents who have a learning disability with the emphasis being on the requirement to provide ‘good enough’ parenting to their…
Abstract
There is increasing awareness of the needs of parents who have a learning disability with the emphasis being on the requirement to provide ‘good enough’ parenting to their children. This paper explores these issues and considers how these parenting needs might be addressed.
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Children with learning disabilities are recognised as being at increased risk of developing mental health problems or challenging behaviour. The need for mental health services…
Abstract
Children with learning disabilities are recognised as being at increased risk of developing mental health problems or challenging behaviour. The need for mental health services for this group of children, while acknowledged, has been inadequately addressed by child mental health services and adult services for people with learning disabilities and mental health problems. Services designated for this group of children have to be able to offer a comprehensive assessment of the problems that the children present with, on‐going short‐ and long‐term management and dissemination of information to other professionals. This paper outlines a model of service provision for these children.
Rebecca Chilvers, Suzannah Gratton and Sarah H. Bernard
The purpose of this paper is to assess whether a tier four mental health of child and adolescent intellectual disability service was meeting the complex needs of children and…
Abstract
Purpose
The purpose of this paper is to assess whether a tier four mental health of child and adolescent intellectual disability service was meeting the complex needs of children and families by evaluating performance on key characteristics of a “model service” identified by the Royal College of Psychiatrists in 2004.
Design/methodology/approach
Questionnaires assessed all areas of a “model service” for parents and children, and were sent to the 68 consecutive referrals received within an 18 month period. A postal survey response rate of 42.6 per cent (parents) and 11.7 per cent (children) was achieved, and the final sample was found to be representative of the consecutive case series as a whole.
Findings
The service showed excellent performance on all indicators, suggesting it is operating a “model service” as experienced by service‐users themselves.
Practical implications
Issues raised included the need for families to have greater information prior to assessments; clearer explanation of the limitations of the service when families are first seen; and review at the completion of intervention to highlight continuing treatment needs.
Originality/value
The paper may assist in the development of CAMHS for children and young people with learning disabilities.
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Kerri Davies and Gemma Honeyman
Families of those with intellectual disabilities and challenging behaviour often do not receive the practical support, training and information they need. As a result living with…
Abstract
Purpose
Families of those with intellectual disabilities and challenging behaviour often do not receive the practical support, training and information they need. As a result living with a child with behaviour described as challenging can be a profoundly hard and isolating experience. This paper aims to discuss the impact of challenging behaviour on families who have a child with intellectual disabilities.
Design/methodology/approach
The experiences of three families are used to highlight the impact of challenging behaviour and this is supported by existing literature.
Findings
Difficulties families experience include physical and mental health problems, sleep disturbance, social isolation, financial hardship and unemployment. Strategies families use to overcome difficulties are explored including seeking information and practical support and building family resilience. Positive aspects of living with a child whose behaviour is described as challenging is a topic that is often neglected in the academic literature, but caring can result in becoming a stronger family unit, increased personal growth and forming new friendships.
Practical implications
The paper concludes with practical implications for professionals supporting families who live with a child whose behaviour is described as challenging. Families need information, training and practical support to fulfil their caring role effectively while maintaining the wellbeing of the family unit.
Originality/value
The paper stresses that all have a role to play in supporting families, all can make a positive difference, and that people must be more proactive in identifying and meeting the needs of families.
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In this article, the aim is to focus on the legislation in place within England and Wales pertaining to the care and treatment of children and young people, but intends to give a…
Abstract
Purpose
In this article, the aim is to focus on the legislation in place within England and Wales pertaining to the care and treatment of children and young people, but intends to give a brief outline of the equivalent law in Scotland. It seeks to describe how the age of a young person will determine which piece of legislation should be used to ensure an admission into an inpatient Child and Adolescent Mental Health Unit will be lawful. It also seeks to consider the role of those with parental responsibility in the decision‐making progress and discuss which components of a proposed treatment plan they would or would not be able to consent to on behalf of those children and young people in their care.
Design/methodology/approach
The author searched the literature, relevant legislation and codes of practice for guidance on the care and treatment of children and adolescents with an intellectual disability.
Findings
Legislation governing the admission and treatment of children and adolescents with an intellectual disability is complex. All clinicians working with those under the age of 18 should have knowledge of the relevant legislation to ensure that the rights of children and young people are upheld.
Originality/value
This article summarises the relevant guidance that is already available on the care and treatment of children and young people, but focuses on the needs of those with an intellectual disability.
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Troy Tranah and Jennifer Nicholas
The aim of this paper is to review the current literature on working with young people with intellectual disabilities who commit arson.
Abstract
Purpose
The aim of this paper is to review the current literature on working with young people with intellectual disabilities who commit arson.
Design/methodology/approach
A review of assessment methods and interventions involving young people with intellectual disabilities who start fires was completed. It explores the trends across the population of firesetters as a whole and also compares how treatment implications may differ for young people with and without an intellectual disability.
Findings
The paper outlines the core risk factors to be investigated within an assessment of a young firesetter with intellectual disabilities. In terms of treatment, the best current approach appears to be a combination of education and cognitive behavioural approaches including social skills training. Other treatment modalities, e.g. joint interventions provided by fire services and mental health services, are also discussed.
Originality/value
Given the lack of available literature on young firesetters with intellectual disabilities it is hoped that this paper will be useful in guiding clinicians working in this area and also prompt future research regarding treatment with this client group.
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