Sarah Beardon, Charlotte Woodhead, Silvie Cooper, Rosalind Raine and Hazel Genn
This paper aims to introduce the concept of “health-justice partnership” (HJP), the provision of legal assistance for social welfare issues in health-care settings. It discusses…
Abstract
Purpose
This paper aims to introduce the concept of “health-justice partnership” (HJP), the provision of legal assistance for social welfare issues in health-care settings. It discusses the role of these partnerships in supporting health and care for people with mental health issues.
Design/methodology/approach
The authors describe an example of an HJP; discuss the rationale and evidence for this approach in relation to mental health; and reflect on implementation challenges and future directions in the UK. The authors draw on both health and legal literature to frame the discussion.
Findings
Social welfare legal needs have negative impacts on mental well-being and are more likely to occur among people with mental health conditions. Integrating legal assistance with healthcare services can improve access to support for those with unmet need. High-quality research has demonstrated positive impacts for mental health and well-being as a result of HJP interventions. Both further research and wider strategies are required to support implementation of HJPs in practice.
Originality/value
Legal assistance is rarely positioned as a health intervention, yet it is an effective tool to address social welfare issues that are harmful to mental health and to which people experiencing mental health are at greater risk. This paper highlights the importance of the HJP movement as an approach for supporting people with mental health issues.
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The purpose of this paper is to critically examine reasons for disproportionately high levels of exclusion from the workplace of adults with Asperger syndrome.
Abstract
Purpose
The purpose of this paper is to critically examine reasons for disproportionately high levels of exclusion from the workplace of adults with Asperger syndrome.
Design/methodology/approach
The methodology adopted involves empirical analysis of secondary, qualitative datasets. The twin datasets applied are examined using labour process analysis.
Findings
The main findings highlight the role of new and subtle forms of management control, a deficient yet necessary conflict dynamic in the employment relationship, and a reluctance of employers to involve third parties, in the exclusion process.
Research limitations/implications
The study is limited because of the use of secondary datasets. Further research should be based on primary data collection and analysis, particularly in terms of seeking the views of other important parties to the exclusion process.
Practical implications
The problem of exclusion is unlikely to be improved without considering strategies to address the challenging customary social relations between employer and employee.
Social implications
Improving employment inclusion is likely to reduce mental health problems for adults with Asperger syndrome and reduce the burden on those who play a broader supporting role.
Originality/value
The topic of Asperger syndrome and employment has yet to permeate the academic literature on human resource management, employment relations and organisation studies.
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Sarah Parsons, Laura Millen, Sara Garib‐Penna and Sue Cobb
This paper outlines the participatory design processes adopted within the COSPATIAL project which is developing interactive, collaborative technologies for children and young…
Abstract
This paper outlines the participatory design processes adopted within the COSPATIAL project which is developing interactive, collaborative technologies for children and young people on the autism spectrum to support collaboration and social conversation skills. The project has involved a ‘core design team’ of teachers in a series of design workshops from the start. Groups of typically developing children and those on the autism spectrum have also been regularly involved in design and feedback activities to inform the development of our technology prototypes. Initial impressions from pilot testing suggest that children have enjoyed using the prototypes and teachers have found them useful; we suggest that our participatory design methods have strongly contributed to this positive response.
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Sarah Parsons, Nicola Yuill, Mark Brosnan and Judith Good
Interdisciplinary perspectives and collaboration in technology research are regarded as vital for producing effective and usable solutions that meet real needs. The purpose of…
Abstract
Purpose
Interdisciplinary perspectives and collaboration in technology research are regarded as vital for producing effective and usable solutions that meet real needs. The purpose of this paper is to draw upon the fifth seminar in an Economic and Social Research Council funded series in the UK on “Innovative Technologies for Autism”. This seminar focused on the contributions that different disciplines can make to the field of autism and technology, and offers some interesting avenues for future research.
Design/methodology/approach
A synthesis of key messages from the speakers’ talks is presented, interspersed with comments and observations from delegates which were written on post-it notes during the day and shared amongst the group.
Findings
Interdisciplinarity can be conceptualised in many different ways and is not simply about academic contributions. Collaborative research involving genuine stakeholder participation can provide fertile grounds for respecting and exploring individual differences and needs. Investigating the uses of existing technologies as well as developing innovative ideas and prototypes through inclusive design are important avenues for future research.
Originality/value
This paper offers a rare glimpse into a range of perspectives within a broad field of research and draws out some important connections between these different viewpoints. There are valuable avenues for collaboration and further exploration that would extend research in productive ways.
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Mark Brosnan, Sarah Parsons, Judith Good and Nicola Yuill
The purpose of this paper is to reflect upon on the opportunities and challenges of engaging with a wide variety of stakeholders during the design, development and evaluation of…
Abstract
Purpose
The purpose of this paper is to reflect upon on the opportunities and challenges of engaging with a wide variety of stakeholders during the design, development and evaluation of innovative technologies for people with autism. Autism is defined in part by difficulties in social communication and interaction, and is therefore particularly pertinent when considering the opportunities and challenges of participatory design (PD).
Design/methodology/approach
A series of presentations from key researchers and practitioners are reviewed, highlighting contemporary issues about how technologies have been designed to improve educational support using a range of methods and processes for stakeholder involvement.
Findings
Involvement per se does not constitute engagement as a design partner. The interdisciplinary nature of PD, combined with the viewpoints of communities beyond academia, need to be integrated in a manner that allows for different perspectives and voices, and for the “trace” of the contribution to be evidenced. The level of evidence required for demonstrating effective support needs to be considered in terms of both the outcomes of projects and the processes for involving stakeholders in PD.
Originality/value
This paper offers an up-to-date insight from lead researchers into key debates about the benefits and challenges of PD with autistic people and the broader autism community. Its value lies in raising questions about, and discussing evidence that challenges, some of the assumptions that underpin both PD processes and the needs of the autistic community.
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Georgia Watson, Cassie Moore, Fiona Aspinal, Andrew Hutchings, Rosalind Raine and Jessica Sheringham
Many countries have a renewed focus on health inequalities since COVID-19. In England, integrated care systems (ICSs), formed in 2022 to promote integration, are required to…
Abstract
Purpose
Many countries have a renewed focus on health inequalities since COVID-19. In England, integrated care systems (ICSs), formed in 2022 to promote integration, are required to reduce health inequalities. Integration is supported by population health management (PHM) which links data across health and care organisations to inform service delivery. It is not well-understood how PHM can help ICSs reduce health inequalities. This paper describes development of a programme theory to advance this understanding.
Design/methodology/approach
This study was conducted as a mixed-methods process evaluation in a local ICS using PHM. The study used Framework to analyse interviews with health and care professionals about a PHM tool, the COVID-19 vaccination uptake Dashboard. Quantitative data on staff Dashboard usage were analysed descriptively. To develop a wider programme theory, local findings were discussed with national PHM stakeholders.
Findings
ICS staff used PHM in heterogeneous ways to influence programme delivery and reduce inequalities in vaccine uptake. PHM data was most influential where it highlighted action was needed for “targetable” populations. PHM is more likely to influence decisions on reducing inequalities where data are trusted and valued, data platforms are underpinned by positive inter-organisational relationships and where the health inequality is a shared priority.
Originality/value
The COVID-19 pandemic accelerated a shift toward use of digital health platforms and integrated working across ICSs. This paper used an evaluation of integrated data to reduce inequalities in COVID-19 vaccine delivery to propose a novel programme theory for how integrated data can support ICS staff to tackle health inequalities.