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The purpose of this paper is to report the findings of the Confidential Inquiry into premature deaths of people with intellectual disabilities (CIPOLD) in relation to the Mental Capacity Act (England and Wales) (MCA) 2005.

CIPOLD reviewed the deaths of all known people with intellectual disabilities (ID) aged four years and over who had lived in the study area and died between 2010 and 2012.

The deaths of 234 people with ID aged 16 years and over were reviewed. There were two key issues regarding how the MCA was related to premature deaths of people with ID. The first was of the lack of adherence to aspects of the Act, particularly regarding assessments of capacity and best interests decision-making processes. The second was a lack of understanding of specific aspects of the Act itself, particularly the definition of “serious medical treatment” and in relation to Do Not Attempt Cardiopulmonary Resuscitation guidelines.

CIPOLD did not set out to specifically evaluate adherence to the MCA. It may be that there were other aspects relating to the MCA that were of note, but were not directly related to the deaths of individuals.

Addressing the findings of the Confidential Inquiry in relation to the understanding of, and adherence to, the MCA requires action at national, local and individual levels. Safeguarding is everyone's responsibility, and in challenging decision-making processes that are not aligned with the MCA, the authors are just as effectively protecting people with ID as are when the authors report wilful neglect or abuse.

CIPOLD undertook a retrospective, detailed investigation into the sequence of events leading to the deaths of people with ID. To the authors’ knowledge, this is the first time that such research has associated a lack of adherence to the MCA to premature deaths within a safeguarding framework.

This paper aims to investigate the respective influences of price and country of origin (COO), as extrinsic cues, on consumer evaluations of product quality when all intrinsic cues are experienced through sensory (taste) perception.

Taste‐testing experiments were conducted (n = 263) using Brie cheese as the test product and a 3(COO) × 3(price) × 3 (fat content) conjoint analysis fractional factorial design.

Price was clearly found to be the most important attribute contributing to perception of Brie quality, followed by fat content. COO also exerted a substantial influence on respondents’ evaluation. In the case of this sensory experiment, reliance on the extrinsic cues tested was found to remain extremely robust even when all intrinsic cues (through sensory experience) were available for respondent evaluation when objective product quality was manipulated to three differing levels.

The research presents a number of limitations. Convenience sampling was employed, limiting one's ability to generalize results. Further, the use of conjoint analysis for taste‐testing experiment methodology is limited, particularly with a sample of this size with objective quality manipulations that are quantified and precise. A laboratory environment is also a limitation.

The research demonstrated that, even when evaluating a relatively low involvement product, consumer belief in the price value schema dominates quality assessment. These findings mean that marketers cannot assume that intrinsic product attributes, even when experienced, will be interpreted or used accurately when evaluated by consumers. Hence results provide an illustration to managers of the importance of ensuring that consumers take the intended meaning from communicated intrinsic cues in particular.

The research significantly advances understanding of consumers’ use of extrinsic cues (price and COO specifically), and their respective influence in their determination of both expected and experienced quality.

The purpose of this paper is to provide a commentary on Andrew Jahoda’s article “Depression and people with a learning disability: a way forward”.

The paper considers depression and other issues of psychological well-being from the perspective of the eligibility criteria for social care in England as enshrined in the 2014 Care Act.

There is a danger of issues of psychological well-being being seen as health rather than social care needs. A more integrated perspective is required.

The paper illustrates the importance of the role of social care provision in promoting the well-being of people with learning disabilities.

Disabled people are a neglected issue in criminology. This article discusses the extent of the population affected, social reactions to impairment and the disadvantages faced by disabled people, including higher risk of victimisation. Links that have been made between disability and offending behaviour are also critically assessed. Finally, some practical solutions to include disabled people in community safety strategies are outlined.

Services for people with intellectual disabilities in the UK have evolved over the years from hospital-based care to more community provision. There are multiple reasons for these changes, however, often it was due to changes in social policy or following a scandal in provision. The paper aims to discuss these issues.

Providing services to meet the health and social care needs of people with intellectual disabilities is well-established in the four countries of the UK with support from legislation. There are often specialist mental health and social care teams. Dedicated professionals work with people with intellectual disabilities who experience mental health problems with a focus on support in the community. A range of services for children and adults and for offenders exist across the UK that often vary in composition and structure.

The challenges in providing mental health services for children and adults with intellectual disabilities in the future include recruitment and training of the workforce with the remit of enhancing community support and reduced in-patient care.

This paper helps the reader to understand how ID mental health services are organised in the UK.

This paper gives a summary of the ID mental health services in the UK. Even though there are various papers looking at different aspects of mental health services for people with ID in the UK, this paper brings all that information together to help reader get a better understanding of the mental health services for people with ID.

This paper aims to present data about access to and use of health and social care services by adults with learning disabilities during the COVID-19 pandemic in England, Northern Ireland, Scotland and Wales.

Data were collected in three waves between December 2020 and September 2021 and concerned the use of health and social care services during the COVID-19 pandemic. Data were collected at one or more time-points directly from 694 adults with learning disabilities and through separate proxy reports by family carers and paid support staff of another 447 adults with learning disabilities.

Many people with learning disabilities who reported regularly accessing services/supports pre-pandemic were not receiving them during the timeframe of this study. There were indications of increasing access to some services and supports between Wave 2 and 3, but this was not universal.

People in Cohort 2, who were likely to have severe/profound learning disabilities, were less frequently reported to access online community activities than people in Cohort 1, which is likely to exacerbate existing social isolation for this cohort and their family carers. Service providers should seek to ensure equitable access to services and activities for all people with learning disabilities in the event of future lockdowns or pandemics.

This is the largest longitudinal study about the impact of the COVID-19 pandemic on health and social care services for adults with learning disabilities in the UK. We primarily collected data directly from adults with learning disabilities and worked with partner organisations of people with learning disabilities and family members throughout the study.

This chapter examines how the everyday interactions that are fostered with the circulation of debt impact the socioeconomic order in which they operate. Employing the theoretical framework of “circuits of commerce,” scholars have examined how social relations and economic activities intertwine, are negotiated and transformed through the circulation of debt. The focus of such studies has been on the motives of actors, such as the desire for relationship-making, and structural conditions, like the inaccessibility of formal institution, that necessitate the emergence of debt-centered circuits of commerce (Hampton, 2003; Heslop, 2016; James, 2014). However, such circuits also have broader impacts and affect socially pervasive moral evaluations and work cultures (Ho, 2009; Zelizer, 2011). Building on these findings, I examine commission-based alliances among showroom owners and tour guides in Agra’s tourism market to understand how “bad debt” between them shapes Agra’s local tourism economy.

This chapter is based on ethnographic research conducted in 2012–2013 with Agra’s tourism entrepreneurs, like showroom owners, tour guides, and convincers.

Entrepreneurs’ everyday practices around the circulation of debt impact how tourism in Agra is perceived and conducted. Although debt is initiated to mitigate uncertainty of getting clientele, its circulation exacerbates that very uncertainty.

This chapter contributes to the theory of economic practice, highlighting how economic actors, through their everyday practices, shape the macro-structure of the economic system in which they operate.

People with intellectual disability die prematurely and from avoidable causes. Innovative solutions and proactive strategies have been limited in addressing this disparity. This paper aims to detail the process of developing a risk stratification tool to identify those individuals who are higher risk of premature mortality.

This study used population health management principles to conceptualise a risk stratification tool for avoidable deaths in people with intellectual disability. A review of the literature examined the existing evidence of causes of death in people with intellectual disability. A qualitative methodology using focused groups of specialist clinicians was used to understand the factors that contributed towards avoidable deaths in people with intellectual disability. Delphi groups were used for consensus on the variables for inclusion in the risk stratification tool (Decision Support Tool for Physical Health).

A pilot of the Decision Support Tool for Physical Health within specialist intellectual disability service demonstrated effective utility and acceptability in clinical practice. The tool has also demonstrated good face and construct validity. A further study is currently being completed to examine concurrent and predictive validity of the tool.

To the best of the authors’ knowledge, this is the only study that has used a systematic approach to designing a risk stratification tool for identifying premature mortality in people with intellectual disability. The Decision Support Tool for Physical Health in clinical practice aims to guide clinical responses and prioritise those identified as at higher risk of avoidable deaths.

This paper reports research findings on the experiences of parents/carers of children with special education needs and disabilities who present violent and challenging behaviour. More specifically, the purpose of this paper is to explore how parents/carers report how their support needs are met by social care services.

The research is an empirical study which considers the challenging side of parenting children with additional needs. Data were gathered through a national online social media focus group and thematically analysed to identify emerging themes from an overlooked community. The study applied a participatory approach, with researchers and participants collaborating in designing and producing the research.

Participants reported a multitude of adversities and they experience difficulties in accessing support from professionals. The parents and carers expressed a continued desire to care for their children, often during much adversity and in receipt of little recognition or support from external agencies. An emerging theme was that they are often not assessed in their own right by agencies who focus on safeguarding.

In this online participatory study, participants were self-selecting and the research relied on self-report during online discussions.

This study is original in applying an innovative research methodology using online focus groups with an under researched community. This online focus group generated real time data and offered participants the opportunity to share information in their own environments. The themes emerging from this research have implications for policy and practice for an under reported adult community who experience increasing vulnerabilities.