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– The purpose of this paper is to present the viewpoint of someone with Fragile X syndrome.
Abstract
Purpose
The purpose of this paper is to present the viewpoint of someone with Fragile X syndrome.
Design/methodology/approach
The paper presents the author's views and experiences of living with Fragile X syndrome.
Findings
The paper provides the author's perspective on diagnosis, the impact on family life, dealing with stigma and the effect that the condition had on school, college, work and interactions with other people.
Originality/value
The paper provides a unique insight into the day-to-day experiences of living with Fragile X syndrome.
Details
Keywords
– This paper presents the viewpoint of a parent of two children with Fragile X syndrome.
Abstract
Purpose
This paper presents the viewpoint of a parent of two children with Fragile X syndrome.
Design/methodology/approach
The paper presents the author's views of her and her family's experience of Fragile X syndrome.
Findings
The paper provides the author's perspective on the impact that the condition has had on family life.
Originality/value
The paper provides a unique insight into the day-to-day experiences of a parent of two children with Fragile X syndrome.
Details