David Murphy and Karen McMorrow
Individuals with an autism spectrum condition (ASC) represent a small proportion of patients detained in high-secure psychiatric care (HSPC) with specific difficulties and needs…
Abstract
Purpose
Individuals with an autism spectrum condition (ASC) represent a small proportion of patients detained in high-secure psychiatric care (HSPC) with specific difficulties and needs. To date there has been little exploration of how these needs are viewed by staff or if staff have unmet needs with regard to working with ASCs. The paper aims to discuss these issues.
Design/methodology/approach
A questionnaire examining specific views (on vulnerability, benefits from therapy and making adjustments to practise), knowledge and training needs linked to ASC was distributed to staff who directly worked with patients.
Findings
In total, 206 questionnaires were returned (approximately 60 per cent distributed). Most staff reported making adjustments in their practise and believed patients with an ASC were more vulnerable than other patient groups. Half of staff expressed the view, that whilst patients with an ASC benefited from therapies, they were unaware if an individual’s difficulties were considered in their care. Half of staff believed individuals with an ASC should be managed in a different way. Most staff reported not having adequate skills to work with ASC, a wish for more training and that such training should be mandatory. Other than psychiatrists most staff were unaware of the Autism Act (2009). The need for a specialist ASC ward within HSPC was also highlighted by several staff.
Practical implications
The survey highlights differences in staff experiences of patients with an ASC and view that autism training should be mandatory.
Originality/value
Whilst progress has been made with implementing the government’s Autism Strategy (2010) within HSPC, more awareness training is required in promoting staff confidence to work with this group of patients.
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Melissa Hauber-Özer and Meagan Call-Cummings
The purpose of this paper is to present a typology of the treatment of ethical issues in recent studies using visual participatory methods with immigrants and refugees and provide…
Abstract
Purpose
The purpose of this paper is to present a typology of the treatment of ethical issues in recent studies using visual participatory methods with immigrants and refugees and provide insights for researchers into how these issues can be more adequately addressed.
Design/methodology/approach
The paper presents the results of a scoping study as a typology of ethical considerations, from standard IRB approval to complete ethical guidelines/frameworks for research with refugee/migrant populations.
Findings
The review reveals that there is a broad spectrum of ethical considerations in the use of visual participatory methods with migrants, with the majority only giving cursory or minimal attention to the particular vulnerabilities of these populations.
Originality/value
This paper encourages university-based researchers conducting participatory inquiry with migrant populations to engage in deeper critical reflection on the ethical implications of these methods in keeping with PAR's ethico-onto-epistemological roots, to make intentional methodological choices that are congruent with those roots and to be explicit in their description of how they did this as they disseminate their work.
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Paul R. Springer, Janella S. Kang, Emily Gratopp and Lisa Franzen-Castle
Food insecurity is a major public health concern, especially for refugee families. Despite the growing population of refugee families in the USA and the harmful effects on youth’s…
Abstract
Purpose
Food insecurity is a major public health concern, especially for refugee families. Despite the growing population of refugee families in the USA and the harmful effects on youth’s health and well-being, there are limited qualitative studies exploring food insecurity among US refugee adolescents. The use of community-based participatory research and photovoice can highlight the strength of gathering and sharing underrepresented and disadvantaged group experiences. The purpose of this study was to understand adolescent refugee's food insecurity perspectives and experiences, with a nutrition and food access focus. Three main themes and nine subthemes emerged around the role that food security plays in a healthy, thriving community. The main themes included food must be more accessible in school; importance of food access in one’s community; and food access and creating a vibrant community. Implications regarding how to apply these results with community and school-based food programs are discussed.
Design/methodology/approach
This study followed a phenomenological research approach to understand the experiences of refugee youth and what constitutes healthy food access in a community. Data analysis was conducted using Braun and Clarke’s (2006) thematic analysis to ensure that data saturation was met (Guest et al., 2006).
Findings
The thematic analysis of the photovoice methodological approach revealed three main themes and nine subthemes around the role that food security plays in a healthy and thriving community. These themes are as follows: food must be more accessible in school; importance of food access in one’s community; and food access and creating a vibrant community.
Research limitations/implications
Funding resources limited the duration of meeting in which we could meet and discuss the photo’s students were taking. Second, consistent with phenomenological studies, the sample size was small. However, common sample size for studies using a phenomenological approach ranged from 5 to 25 (Creswell et al., 2007), which is in alignment with this study. Next, while participants did receive training in the SHOWeD method, the photography training was limited to only one hour. Despite the limited training, participants felt they had sufficient knowledge and skills to take the necessary pictures.
Practical implications
This study provides important policy implications for school-based food programs, such as food pantries and free or reduced school meals, and how it plays an important role in refugee youth’s well-being and education. Based on feedback from the study participants, many school-based food programs were considered not available or easily accessible, and that youth and their families were often unaware of programs available to them. This study revealed the important role schools can play in ensuring food security among refugee youth and their families as well as for refugee youth to reach their full potential equitably.
Originality/value
This study used a creative research approach that integrates photovoice as a means to elevate the voices of a marginalized populations. This approach has been identified as one of the most culturally appropriate method when working with refugee children and youth (Pieloch et al., 2016). Second, the study included having multiple meetings, that recruited from previously established partnerships. This form of community building and activism elevates participants voices (Catalani and Minkler, 2009). Finally, this study used a cycle of photography and discussion and held a final public photo exhibition for both the participant’s community and its influential leaders (Catalani and Minkler, 2009; Evans-Agnew and Rosemberg, 2016). The results of this study have important policy implications for schools and communities.