The purpose of this paper is to debate the complexities of intervening with adults with learning disabilities and support staff in the natural environment and challenges of…
Abstract
Purpose
The purpose of this paper is to debate the complexities of intervening with adults with learning disabilities and support staff in the natural environment and challenges of evaluating change.
Design/methodology/approach
A critical review of the relevance and amenability of communication partnerships for interventions that promote communication growth in context was carried out. Particular consideration was given to the mechanism for change and implications for research design.
Findings
The communication partnership is a reasonable focus for interventions aiming to promote the communication of adults with learning disabilities. Combining instructional training with in situ coaching appears to provide the most effective approach. Bringing about change within the dynamic context of communication is challenging and may benefit from an open, investigative design.
Originality/value
This paper synthesises the available evidence on intervening in the communication environment and debates the potential of realist evaluation as a context-focused research design.
Details
Keywords
Karen Bunning, Joseph Karisa Gona, Charles Richard Newton and Sally Hartley
Raising a child with learning and developmental disabilities in a low-income setting is challenged by inadequate resources, limited support and poverty. The impacts on caregivers…
Abstract
Purpose
Raising a child with learning and developmental disabilities in a low-income setting is challenged by inadequate resources, limited support and poverty. The impacts on caregivers include fatigue, distress and isolation. The purpose of this paper is to report on a programme (2008-2021) that was set up in Kilifi County, Kenya to investigate and address these difficulties.
Methodology
The programme used mixed methods through a series of interconnected studies, starting with a situation analysis, followed by a home-based intervention where the caregiver served as agent for change using augmentative and alternative communication (AAC) methods. This was followed by two community-based inclusive development initiatives: disability awareness training to community groups and empowering self-help groups for caregivers of children growing up with disabilities.
Findings
The situation analysis revealed scarce support services for caregivers and children with learning and developmental disabilities, with report of limited resources, inadequate coverage and poor professional practice. A home-based, AAC intervention was associated with improved caregiver well-being, significant positive changes to caregiver perceptions of the child’s communication and some expansion to the child’ social activities. However, questions around sustainability persisted. Disability awareness training led by persons with lived experience of disability showed positive changes to the views, values and attitudes of established community groups. Caregiver participation in self-help groups was associated with their greater personal agency, perceptions of increased social support and reduced severity of child’s disability.
Originality
The programme narrative demonstrates a rationalised and evidence-based process for community-based inclusive development that is low cost, culturally acceptable, with potential for sustainability.
Details
Keywords
There are many definitions of profound and multiple learning disabilities. Most definitions include having a high degree of learning disability in conjunction with at least one…
Abstract
There are many definitions of profound and multiple learning disabilities. Most definitions include having a high degree of learning disability in conjunction with at least one other severe impairment, such as visual, auditory or physical impairments (Male, 1996; Ware, 1996; Lacey, 1998). Bunning (1997) adds that people with such disabilities are very reliant on others for support, including support in taking part in communicative events. Establishing reliable and consistent methods of communication may be exceptionally difficult (Florian et al, 2000). However, it is important to consider the individuality and extreme diversity of this population (Detheridge, 1997; Hogg, 1998), which includes variability in communication strengths and needs (Granlund & Olsson, 1999; McLean et al, 1996). Communication is often given little attention when services are planning ways of supporting individuals to participate, develop independence and make choices (McGill et al, 2000). While the individual's communication strengths and needs should remain central within any discussion, the significant others and the environment will also have an important influence. This article explores some of the communication issues experienced by people with profound and multiple learning disabilities and highlights the importance of the communication partnership within interventions.
Peter Williams, Karen Bunning and Helen Kennedy
This paper aims to present a critical discussion of theoretical concepts that drive the main contributions of the academic partners, by highlighting the contrasting perspectives…
Abstract
Purpose
This paper aims to present a critical discussion of theoretical concepts that drive the main contributions of the academic partners, by highlighting the contrasting perspectives and identifying areas of commonality.
Design/methodology/approach
The paper follows a contextualised approach to debating the issues of access and participation for people with ID in learning environments. Each discipline considers the user of ICT within a social context but draws on the theoretical domains and published literature associated with its own area.
Findings
Resonances are to be found across the academic disciplines in terms of an ecological or holistic view of the person with ID as a user of a learning environment. This is what binds the multi‐disciplinary perspective together.
Originality/value
This paper is a rare attempt to integrate three distinct academic disciplines to provide a coherent picture of the theoretical perspectives underpinning research by the authors into the development and use of an ICT system for people with learning difficulties.
Details
Keywords
Pippa Bailey and Karen Bunning
Story‐telling is recognised as important to child language development. However, children who use electronic communication aids have limited opportunities to develop their…
Abstract
Purpose
Story‐telling is recognised as important to child language development. However, children who use electronic communication aids have limited opportunities to develop their story‐telling compared to their natural speaking (NS) peers. The “Telling Stories”' project aims to explore narrative construction in teaching staff‐aided communicator dyads.
Design/methodology/approach
A pilot study was conducted to examine the feasibility of research methods. Video data were captured during a fictional story‐telling task. Two measures were investigated: communicative modality; and linguistic move type. Momentary time sampling (MTS) was applied to the video to determine range and proportions of communicative modalities in use. A coding framework was applied to determine the distribution of linguistic move‐types across the interlocutors.
Findings
The findings revealed multimodal contributions from both interlocutors. The linguistic move‐type coding indicates the NS assumed a more dominant, initiating role. MTS was shown to be an appropriate methodology for this research.
Originality/value
The pilot provides provisional data regarding narrative constructions of an aided speaker and tests the efficacy of the MTS methodology prior to the full study. Refinements to the protocol to be used in the main study are reported. The main study aims to provide detailed analysis of the narrative constructions of aided speakers, currently an area with little existing research.
Details
Keywords
Eddie Chaplin, Jane McCarthy, Samuel Tromans and Verity Chester
– The purpose of this paper is to provide a commentary on Mander's paper on people with learning disabilities’ first-hand experience of accessible information.
Abstract
Purpose
The purpose of this paper is to provide a commentary on Mander's paper on people with learning disabilities’ first-hand experience of accessible information.
Design/methodology/approach
The commentary reflects on some of the findings presented by Mander and builds on these, with particular emphasis on what it means to understand information.
Findings
Everything from initial product design to building capacity and constructing knowledge requires expertise and attention to detail.
Originality/value
There are no easy fix solutions to achieving understanding of information for people who have learning disabilities.
Details
Keywords
Xiaodi Sun, Barbara Almanza, Carl Behnke, Richard Ghiselli and Karen Byrd
This study aims to examine consumers’ preferences among four calorie-reducing approaches – resizing, reformulation, substitution and elimination – and to understand what motivates…
Abstract
Purpose
This study aims to examine consumers’ preferences among four calorie-reducing approaches – resizing, reformulation, substitution and elimination – and to understand what motivates consumers to order low-calorie food using the theory of planned behavior (TPB) as a model.
Design/methodology/approach
A conceptual model was developed based on the TPB with an additional construct of food choice motives. A total of 467 responses were collected. Descriptive statistics, multiple regression and ANOVA were used in the data analysis.
Findings
Consumers have a clear preference for substitution and elimination. The pattern that ingredients with higher calories were modified at a higher priority indicated that consumers might improve food decisions based on calorie information.
Practical implications
Restaurants should allow substitution or elimination of certain ingredients from menu items. Including more low-calorie sides will cost restaurants less than changing the main dish. A menu item on an entrée form is more amenable to modification for decreased calorie content as consumers have high taste expectations for popular traditional foods (e.g. burgers and pizza).
Originality/value
This is the first study to investigate consumers’ preferences among the four popular calorie-reducing approaches. A novel “Build Your Own Meal” approach was used in the questionnaire to allow the participants to choose from more than 150 ingredients, which compensated for personal preferences, thus mitigating possible limitations associated with studies of this kind, and was a good indicator of the participants’ actual ordering behavior.