Karan Jutlla and Neil Moreland
While personalisation and service choice remains a central plank of the Labour Government's policies in health and social care, there is a growing evidence base confirming that…
Abstract
While personalisation and service choice remains a central plank of the Labour Government's policies in health and social care, there is a growing evidence base confirming that ethnic minority groups, are disadvantaged as service users in the UK. Building on some baseline data collected in 2000 and 2003/04, our recent research (Jutlla & Moreland, 2007) has reaffirmed the difficulties that Asian carers have in accessing services when caring for a relative with dementia.While such access data is important, we wish to move beyond the demographic aspects to consider the existential realities (the ontology) of the lives and cultures of those in minority ethnic groups. This paper consequently discusses the diversity and complexity of migration patterns among the Sikh community living in Wolverhampton. The paper conceptualises some of the ways in which different migration experiences and the realities of daily life influence the perceptions, experiences and patterns of care among migrant Sikh carers in Wolverhampton caring for an older person with dementia. The paper thus explores the thesis that the Sikh community is not a homogeneous group; and that the diversity and differences within the Sikh community can have important implications for care. Taking a biographical narrative approach to fieldwork, the relevant factors to be considered include: the carer's country of origin; their migration route and reasons for migration; their age at migration and the cultural experiences of the carers and their communities both in the UK and India.
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David Jolley, Neil Moreland, Kate Read, Harjinder Kaur, Karan Jutlla and Michael Clark
Dementia is found in all races. Within the UK, elders in black and minority ethnic (BME) communities are often unable or unwilling to access services that might help them when…
Abstract
Dementia is found in all races. Within the UK, elders in black and minority ethnic (BME) communities are often unable or unwilling to access services that might help them when they develop dementia. A series of research‐based studies in Wolverhampton have demonstrated that working with community leaders and family carers can identify strengths as well as areas for development in service arrangements. Some areas for development are those shared by all individuals and families with dementia, while others are specific to the cultural group. Areas for action include: the lack of understanding of the normal and pathological features of ageing; fear and stigma associated with mental disorders within BME communities; lack of knowledge of dementia; and insensitivity and inflexibility within some components of services. Knowledge gained from a collaborative review of the situation can be used to plan and deliver iterative improvements. The most effective single initiative is the appointment of a link nurse competent in language, culture and clinical skills. Despite progress over a 10 year period, difficulties remain and there is more to be learned.The research reported here has been conducted over a period of nine years within the city of Wolverhampton. The research has been co‐ordinated from for dementia plus (previously Dementia Plus), which has functioned as the Dementia Development Centre for the West Midlands since 2000.