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Article
Publication date: 3 June 2014

Hugo de Waal

The purpose of this paper is to describe the loss of autonomy and control as the core problem in dementia and highlights the individuality of the lived experience of dementia. It…

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Abstract

Purpose

The purpose of this paper is to describe the loss of autonomy and control as the core problem in dementia and highlights the individuality of the lived experience of dementia. It analyses the failure of dementia services to keep the individual central to their design and identifies that failure as the unavoidable result of methodological error.

Design/methodology/approach

The paper guides the reader through the conceptual error in dementia service design and highlights the disconnect between clinical symptomatology and the lived experience of the person with dementia. The analysis continues with the fact that dementia diminishes those brain functions central to the lived individuality, a characteristic which should inform service design.

Findings

The paper proposes an approach, building on these insights, to build a personalised care plan and resource centre, thus filling the gap system-level design of dementia services are bound to leave open.

Practical implications

The paper presents a pragmatic approach using a digital, portable and editable care planning tool and personalised resource centre, which can be populated by the person with dementia and/or carer(s) with facilitation from, e.g. trained volunteers or others.

Social implications

The care planning tool will have a range of functions, including facilities to aid staying in touch with relatives or peers (or anyone else, dependent on personal preferences), enable building peer-to-peer support networks and thus minimise social isolation and loneliness.

Originality/value

There is limited understanding of the reasons why dementia services struggle to be user-friendly, accessible, transparent and responsive. The paper provides new insight into why this is comprehensively the case and its description of a digital healthcare platform, owned and formulated by the person with dementia, directly builds upon this insight and identifies how such a device can form part of a solution.

Details

Working with Older People, vol. 18 no. 2
Type: Research Article
ISSN: 1366-3666

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Article
Publication date: 2 September 2014

Deborah Klee

94

Abstract

Details

Working with Older People, vol. 18 no. 3
Type: Research Article
ISSN: 1366-3666

Available. Content available
Article
Publication date: 3 June 2014

Deborah Klée

103

Abstract

Details

Working with Older People, vol. 18 no. 2
Type: Research Article
ISSN: 1366-3666

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Book part
Publication date: 28 February 2020

Timothy J. Dickey

Abstract

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Library Dementia Services
Type: Book
ISBN: 978-1-83867-691-9

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Book part
Publication date: 8 March 2016

Abstract

Details

Organizing Disaster
Type: Book
ISBN: 978-1-78560-685-4

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Book part
Publication date: 28 February 2020

Timothy J. Dickey

Abstract

Details

Library Dementia Services
Type: Book
ISBN: 978-1-83867-691-9

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Article
Publication date: 1 April 1988

Paul Nieuwenhuysen

The following bibliography focuses mainly on programs which can run on IBM microcomputers and compatibles under the operating system PC DOS/MS DOS, and which can be used in online…

176

Abstract

The following bibliography focuses mainly on programs which can run on IBM microcomputers and compatibles under the operating system PC DOS/MS DOS, and which can be used in online information and documentation work. They fall into the following categories:

Details

The Electronic Library, vol. 6 no. 4
Type: Research Article
ISSN: 0264-0473

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Book part
Publication date: 17 October 2017

Abstract

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Reflections on Sociology of Sport
Type: Book
ISBN: 978-1-78714-643-3

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Book part
Publication date: 15 November 2024

Christian S. Ritter

Abstract

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Locating the Influencer: Place and Platform in Global Tourism
Type: Book
ISBN: 978-1-80262-598-1

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Book part
Publication date: 28 February 2020

Timothy J. Dickey

Free Access. Free Access

Abstract

Details

Library Dementia Services
Type: Book
ISBN: 978-1-83867-691-9

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