Stephen Joseph, Saul Becker, Hannah Elwick and Richard Silburn
– The purpose of this paper is to develop a new psychometric tool for the assessment of quality of life in adult informal carers.
Abstract
Purpose
The purpose of this paper is to develop a new psychometric tool for the assessment of quality of life in adult informal carers.
Design/methodology/approach
Two empirical studies are reported. Study 1 describes the psychometric development. An initial pool of 100 items was constructed and completed by 385 carers across the UK contacted through carers ' centres. Principal components analysis was then conducted. In study 2, a further 101 carers took part; all completed the scale prior to the intervention and again post-intervention, allowing the authors to test utility as a tool to assess change.
Findings
Using principal components analysis with study 1 data the number of items was reduced to 40 that assessed eight domains; support for caring, caring choice, caring stress, financial implications, personal growth, sense of value, ability to care and carer satisfaction. In study 2 it was found that respondents scored higher post-intervention compared to pre-intervention.
Research limitations/implications
There are many carers who are not recognised by services.
Practical implications
The AC-QoL promises to be a useful addition to the armoury of psychometric tools available for use with adult carers by both practitioners and researchers in health and social care, as well as of use to carers themselves and to policy makers in determining what interventions might be funded and further developed.
Originality/value
The paper shows that the AC-QoL is original because of its development from both carers and professional perspectives, breadth of coverage, multi-component structure and focus on both negative and positive outcomes.
Details
Keywords
Jill Manthorpe and Stephen Martineau
The purpose of this paper is to examine safeguarding adults reviews (SARs) that refer to mental health legislation in order to contribute to the review of English mental health…
Abstract
Purpose
The purpose of this paper is to examine safeguarding adults reviews (SARs) that refer to mental health legislation in order to contribute to the review of English mental health law (2018).
Design/methodology/approach
Searches of a variety of sources were conducted to compile a list of relevant SARs. These are summarised and their contexts assessed for what they reveal about the use and coherence of mental health legislation.
Findings
The interaction of the statutes under consideration, in particular the Mental Health Act (MHA) 1983, the Mental Capacity Act (MCA) 2005, together with the Care Act 2014, presents challenges to practitioners and the efficacy of their application is variable.
Research limitations/implications
In light of the absence of a duty to report SARs to a national register, it is possible that relevant SARs were missed in the search phase of this research, meaning that the results do not present a complete picture.
Practical implications
Examining cases where use of legislative provisions in mental health has been found wanting or legislation may not be easily implemented may inform initiatives to increase understanding of the law in this area.
Originality/value
This paper’s originality and value lie in its focus on mental health legislation as discussed in SARs at a time when both the MHA 1983 and the MCA 2005 are the focus of attention for reform.