Search results

A substantial number of models have been developed over the years, with the purpose of describing the information seeking and searching of people in various user groups and contexts. Several models have been frequently applied in user studies, but are rarely included in research on participants with impairments. Models are purposeful when developing theories. Consequently, it might be valuable to apply models when studying this user group, as well. The purpose of this study was to explore whether existing models are applicable in describing the online information seeking and searching of users with impairments, with an overall aim to increase the use of models in studies involving impairments.

Six models were selected according to the following criteria: the model should address information seeking or searching, include the interaction between users and systems whilst incorporating assistive technology. Two user groups were selected from each of the categories: cognitive, sensory and motor impairments, namely dyslexia, autism, blindness, deafness, paralysation and Parkinson's. The models were then analysed based on known barriers reported for these cohorts.

All the selected models had potential to be applied in user studies involving impairments. While three of the models had the highest potential to be used in the current form, the other three models were applicable either through minor revisions or by combining models.

This study contributes with a new perspective on the use of models in information seeking and searching research on users with impairments.

User diversity has been discussed in many fields of study for decades. Nevertheless, some cohorts are rarely included in mainstream research. According to the concept of universal design of research (UDR), people with disabilities should be more often included in participant pools. There is, however, a need for certain methodological considerations to achieve UDR.

The suggested guidelines are based upon existing guidelines and research in addition to key takeaways from studies conducted by the authors over the past 15 years. Six studies are used to show how the guidelines can be applied in research involving three example cohorts, namely people with dyslexia, aphasia and intellectual disability.

Extensive guidelines are needed to increase user inclusion in mainstream studies and support researchers in conducting purposeful and ethical research. The suggested guidelines should be examined for other cohorts to ensure that all types of user needs are accommodated.

This study contributes with methodological approaches to enhance inclusion of all types of participants in mainstream research.

The main contribution is The seven principles of UDR, a further development of the original principles for UDR.

On a world basis, 15% of the population has a disability. Having a disability can result in a higher frequency of health-related information needs than other users might experience. The Web represents a widely used source for health information. People with disabilities, however, often encounter barriers during online searching, such as inaccessible information, poorly designed search user interfaces and lack of compatibility with assistive technology. Consequently, many users are potentially excluded from a range of information sources. Measures are therefore needed to remove these barriers to avoid health disparities that can result from unequal access to information. Public libraries have a social responsibility to include all user groups, and should aspire to make fully accessible services. A good tool in this context is the implementation of the universal design mind-set, where the purpose is to develop services that are available to all people. This chapter discusses how universal design can be a premise for equal access to health information and potentially reduce health disparities in the context of users with disabilities. Both library services and education of librarians will be addressed.

This chapter introduces the focus of this volume – the many ways in which libraries and librarians are helping to increase people’s health literacy and reduce health disparities in their communities. The rampant and rapidly increasing health injustices that occur every day throughout the world are, in large part, caused and exacerbated by health information injustice – something which libraries and librarians are playing an instrumental role in addressing by ensuring the physical and intellectual accessibility of information for all. This chapter opens with an introduction to the central concepts of health justice and health information injustice, focusing on the many information-related factors that shape the degree to which individuals have the information they need to be able to have a sufficient and truly equitable chance to live a long and healthy life. Next, the authors present a timely case study to emphasize the importance of health information justice, looking at the dire importance of health literacy as we navigate the COVID-19 pandemic. The authors then provide a brief glimpse into their 13 contributed chapters, grouped into five categories: (1) Public Libraries/Healthy Communities; (2) Health Information Assessment; (3) Overcoming Barriers to Health Information Access; (4) Serving Disadvantaged Populations; and (5) Health Information as a Communal Asset. In conclusion, the authors discuss their aims for this volume, particularly that readers will become more aware of librarians’ efforts to address health disparities in their communities and excited about participating in and expanding these efforts, moving us closer to health justice.