Don Heath, Ali Ardestani and Hamid Nemati
Human genomic research (HGR) demands very large pools of data to generate meaningful inference. Yet, the sharing of one’s genetic data for research is a voluntary act. The…
Abstract
Purpose
Human genomic research (HGR) demands very large pools of data to generate meaningful inference. Yet, the sharing of one’s genetic data for research is a voluntary act. The collection of data sufficient to fuel rapid advancement is contingent on individuals’ willingness to share. Privacy risks associated with sharing this unique and intensely personal data are significant. Genetic data are an unambiguous identifier. Public linkage of donor to their genetic data could reveal predisposition to diseases, behaviors, paternity, heredity, intelligence, etc. The purpose of this paper is to understand individuals’ willingness to volunteer their private information in this high-risk/high-reward context.
Design/methodology/approach
The authors collect survey data from 273 respondents and use structural equation modeling techniques to analyze responses.
Findings
The authors find statistical support for our theorization. They find that while heightened awareness of the benefits and risks of sharing correlates with increased privacy concerns, the net impact is an increase in intention to share.
Social implications
The findings suggest that prescriptive awareness might be an effective tool with which policy-makers can gain the sufficient voluntary participation from individuals necessary to drive large-scale medical research.
Originality/value
This study contributes a theoretically and empirically informed model which demonstrates the impact of awareness and privacy concern on individuals’ willingness to share their genetic data for large-scale HGR. It helps inform a rising class of data sufficiency problems related to large-scale medical research.
Details
Keywords
The European Commission is fulfilling its commitment to making access to European information easier by enabling UK citizens to access EU information through their local library.
Discusses ICANN (Internet Corporation for Assigned Names and Numbers), which is a new private corporation for managing Internet domain names and IP addresses, which was created in…
Abstract
Discusses ICANN (Internet Corporation for Assigned Names and Numbers), which is a new private corporation for managing Internet domain names and IP addresses, which was created in the USA and produces a historical and conceptual assessment of the policy involved.
Details
Keywords
Whether there's been too much or too little hype about the much‐reported Y2K computer glitch remains to be seen. Some people are already preparing their shelters, stocking their…
Abstract
Whether there's been too much or too little hype about the much‐reported Y2K computer glitch remains to be seen. Some people are already preparing their shelters, stocking their larders, and arming their weapons; others are worried that their investments and bank accounts will disappear into the bowels of their bank's computers, never to be seen again; and still others regard the entire issue as nothing more than media hype.
Edwin Fleming, Allan Bunch and Wilfred Ashworth
THE European campaign to catch up with the United States and Japan in the provision of information technology took a major step forward at the end of February when the Council of…
Abstract
THE European campaign to catch up with the United States and Japan in the provision of information technology took a major step forward at the end of February when the Council of Ministers of the European Communities adopted the ESPRIT programme. ESPRIT equates to the ‘European Strategic Programme of Information Technology’ and the main areas of research cover micro electronics, software technology, advanced information processing, office systems, and computer integrated manufacturing. The programme will span the years 1984–88 and will cost 1,500,000,000 European Units of Account (£900,000,000), half of which will be contributed by the European Communities Commission, and half by industry. Although the European Community represents over thirty per cent of the world IT market, European industry provides only ten per cent of this market. For further details of the programme, contact Mr W Colin, IT Task Force, 200 Rue de la Loi, B 1049 Brussels, Belgium, tel 235 4477 or 235 2348, telecopier 230 1203, tx 25946.
Further research on sexual harassment at work is necessary to persuade management to implement policies and grievance procedures covering this area in the workplace…
Abstract
Further research on sexual harassment at work is necessary to persuade management to implement policies and grievance procedures covering this area in the workplace. Superior/subordinate harassment is the most serious problem for women in “feminine” occupations, the real problem being posed by middle‐class men with higher occupational status. Co‐worker harassment is more of a problem for middle‐class women in management and professions, these women being in direct competition with middle‐class men who cannot use occupational power over them. Harassment of women in factories (or other non‐traditional women's work) is a problem when women
Details
Keywords
Expanding the Internet domain. Few would have thought that controversy surrounds proposals to enhance the Internet Domain Name System, but apparently it does and the Internet…
Abstract
Expanding the Internet domain. Few would have thought that controversy surrounds proposals to enhance the Internet Domain Name System, but apparently it does and the Internet Society has formed an international ad hoc committee (IAHC) to deal with it.
Rongjin Huang, Christopher T. Bonnesen, Amanda Lake Heath and Jennifer M. Suh
This paper examines how mathematics teacher educators (MTEs) learn to enact equitable mathematics instruction using technology through lesson study (LS).
Abstract
Purpose
This paper examines how mathematics teacher educators (MTEs) learn to enact equitable mathematics instruction using technology through lesson study (LS).
Design/methodology/approach
A LS team with three MTEs conducted three iterations of LS on teaching the Pythagorean Theorem in an in-person, technology-mediated environment. Many forms of data were collected: Desmos activities, videos of research lessons (RLs), videos of MTE RL debriefings, artifacts of student learning in the Desmos Dashboard, and MTEs' written self-reflection. The authors investigate the teacher educators' learning through LS by analyzing the MTE debriefings of the RLs using Bannister’s (2015) framework for teacher learning in communities of practice.
Findings
The MTEs learned to enact equitable mathematics instruction using technology through addressing emerging issues related to intellectual authority and use of student thinking. Throughout the LS, the MTEs sought ways of promoting students' mathematical authority and using student thinking through features of the Desmos platform.
Research limitations/implications
This study focuses on MTEs' learning without examining participating preservice teachers' learning. It demonstrates the benefits of LS for MTEs' professional learning.
Practical implications
This study showcases how a research-based Desmos activity is used and refined to promote MTE learning how to implement equitable mathematics instruction.
Originality/value
The study contributes to better understanding of how LS could be used to develop MTEs' professional learning. Moreover, the dual process of participation and reification was concretized through diagnostic and prognostic frames in the LS context, which enriches the concept of community of practice.
Details
Keywords
With 16 years of top management experience matched by an equally impressive physical stature, the man who succeeds Sir Raymond Brookes at GKN — Barrie Heath — aims to put…
Abstract
With 16 years of top management experience matched by an equally impressive physical stature, the man who succeeds Sir Raymond Brookes at GKN — Barrie Heath — aims to put Britain's biggest engineering company on an international footing. From now on, GKN's main purpose will be one of “hard sell” on world markets, the new chairman tells Ken Gooding.
Aarhus Kommunes Biblioteker (Teknisk Bibliotek), Ingerslevs Plads 7, Aarhus, Denmark. Representative: V. NEDERGAARD PEDERSEN (Librarian).