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1 – 2 of 2Malik Brakni, Hélène Gorge and Nil Ozcaglar-Toulouse
This study aims to understand the progressive marketization of health data collection and use, through a study of its historical development in France, from the 1930s to the…
Abstract
Purpose
This study aims to understand the progressive marketization of health data collection and use, through a study of its historical development in France, from the 1930s to the present day.
Design/methodology/approach
The authors collected a set of legal, institutional, political and media data. These came from the INA (National Audiovisual Institute), the French national newspaper websites and the websites legifrance.gouv.fr and vie-publique.fr. The authors then conducted a thematic content analysis.
Findings
The study results highlight the changes in the health-care system related to the increased use of data in France over three major periods. The first period – 1930s to 1980s – is marked by the creation of the French social security system to collect large sets of data to better manager people’s health care. The second period – 1980s to 2000s – is characterized by the adoption and assimilation of tools to manage patient data through several national and European regulations. The last period – 2000s to the present – saw the introduction of measures in favor of the digitalization of health care, and consequently of data, in parallel with the advancement of digital technologies in general. The institutional dynamics in healthcare have evolved with the nature of the actors and their practices, in connection with new perceptions about health data.
Originality/value
This research sheds light on the historical transformation of health data collection and use in France, revealing the involvement of diverse stakeholders, the discourses driving data development and the need for regulation. It exposes the dual nature of health data collection and use, initially sanctioned by the state and public entities but later exploited for private interests.
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Keywords
This paper explores perspectives on social justice, equity and agency when schools address health, wellbeing and sustainability challenges.
Abstract
Purpose
This paper explores perspectives on social justice, equity and agency when schools address health, wellbeing and sustainability challenges.
Design/methodology/approach
The paper draws on a literature review of educational research. The analysis is narrative, highlighting how binary conceptions of equity, social justice and agency are explicitly or implicitly evident in the studies included in the review, distinguishing between as well as noting the interplay between the different conceptions.
Findings
Perspectives on social justice and equity are emphasizing the need to address (1) a more equal sharing of resources in education, (2) dominance in education, and (3) community/ies and education as a common good. Perspectives on agency are framed as situated (1) between people (2) between people and structures or social contexts, and (3) between people and nature or the more-than-human. The paper furthermore highlights tendencies and experiences regarding the possibility of addressing these perspectives in different forms of educational practices.
Research limitations/implications
A potential limitation in this review is that 17 out of the 23 included studies are by authors with an Anglo-Saxon background, while a further 3 have a European background. As such, the review mainly represents “Western” perspectives on social justice, equity and agency.
Originality/value
The findings in the paper indicate that despite the fact that social justice, equity and agency are concepts that have been discussed in educational research for a very long time, they cannot be seen as taken-for-granted concepts, and that the research contains a diverse range of perspectives on these concepts — also within research authored by researchers with an Anglo-Saxon or European background.
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