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Article
Publication date: 25 June 2024

Arvid Nikolai Kildahl, Kristin Storvik, Elisabeth Christina Wächter, Tom Jensen, Arvid Ro and Inger Breistein Haugen

Distinguishing between autism characteristics and trauma-related symptoms may be clinically challenging, particularly in individuals who have experienced early traumatisation…

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Abstract

Purpose

Distinguishing between autism characteristics and trauma-related symptoms may be clinically challenging, particularly in individuals who have experienced early traumatisation. Previous studies have described a risk that trauma-related symptoms are misinterpreted and/or misattributed to autism. This study aims to describe and explore assessment strategies to distinguish autism and early traumatisation in the case of a young woman with mild intellectual disability.

Design/methodology/approach

A clinical case study outlining assessment strategies, diagnostic decision-making and initial intervention.

Findings

A multi-informant interdisciplinary assessment using multiple assessment tools, together with a comprehensive review of records from previous assessments and contacts with various services, was helpful in distinguishing between autism and trauma. This included specific assessment tools for autism and trauma. Autism characteristics and trauma-related symptoms appeared to interact, not merely co-occur.

Originality/value

The current case demonstrates that diagnostic overshadowing may occur for autism in the context of early trauma. The case further highlights the importance of not ascribing trauma-related symptoms to autism, as service provision and treatment need to take account of both. Overlooking autism in individuals who have experienced early traumatisation may result in a risk that intervention and care are not appropriately adapted, which may involve a risk of exacerbating trauma symptoms.

Details

Advances in Autism, vol. 10 no. 3
Type: Research Article
ISSN: 2056-3868

Keywords

Article
Publication date: 7 May 2019

Arvid Nikolai Kildahl, Maria Hagen Engebretsen and Sissel Berge Helverschou

Autism spectrum disorder (ASD) is an exclusion criterion for one of the two attachment disorders in the DSM 5. However, previous findings indicate that ASD and attachment disorder…

Abstract

Purpose

Autism spectrum disorder (ASD) is an exclusion criterion for one of the two attachment disorders in the DSM 5. However, previous findings indicate that ASD and attachment disorder are unrelated conditions and may co-occur. The purpose of this paper is to explore the diagnostic assessment of an adolescent male with ASD, intellectual disability (ID), severe challenging behaviour and a suspected attachment disorder.

Design/methodology/approach

Case study methodology was chosen because of its suitability in the exploration of complex clinical phenomena where prior knowledge is sparse.

Findings

It was possible to identify symptoms of attachment disorder in a case involving ASD, ID, anxiety and severe challenging behaviour. The Disturbances of Attachment Interview was particularly useful in this assessment, as was assessment of ASD symptoms and developmental history. Differentiating the two attachment disorders proved challenging.

Research limitations/implications

There is a need for further research in ASD and attachment disorders not limited by current diagnostic categories.

Practical implications

Co-occurring symptoms of attachment disorder may be identified in individuals with ASD and ID, and exploration of these symptoms in assessments of children and adolescents with ASD/ID and challenging behaviour may be beneficial.

Originality/value

The study adds to previous findings on attachment disorder in ASD, demonstrating that identification of attachment disorder is possible even in the presence of a highly complex clinical picture involving severe challenging behaviour. It may also assist other clinicians in identifying and making more accurate assessment of attachment disorder in ASD and ID.

Details

Advances in Mental Health and Intellectual Disabilities, vol. 13 no. 2
Type: Research Article
ISSN: 2044-1282

Keywords

Article
Publication date: 3 January 2017

Arvid Nikolai Kildahl, Trine Lise Bakken, Olaf Kristian Holm and Sissel Berge Helverschou

Assessment of psychiatric disorders in people with autism spectrum disorder (ASD) and intellectual disabilities (ID) is challenging. The purpose of this paper is to explore the…

Abstract

Purpose

Assessment of psychiatric disorders in people with autism spectrum disorder (ASD) and intellectual disabilities (ID) is challenging. The purpose of this paper is to explore the diagnostic decision making and strategies employed in the assessment of a young man with ASD and ID who eventually got the additional diagnosis of schizophrenia.

Design/methodology/approach

To describe and explore a process not easily converted into quantitative measures, it was chosen to perform a case study of a single case.

Findings

The combined knowledge of ASD, ID and psychiatric disorder was important in the current assessment. General assessment tools were of some value, but their results had to be interpreted with care. The same was true of a more ASD/ID-specific tool. Using multiple informers may strengthen data from such tools in this population, but does not make it interchangeable with self-report. The case presented demonstrates the possibility of negative symptoms and functional decline overshadowing positive psychotic symptoms in people with ASD/ID, as well as the expression of ASD changing with a functional decline.

Originality/value

The present study adds to the few previous reports on identification of psychosis in this population, and in addition, may assist clinicians in making more accurate psychiatric assessments of people with ASD/ID.

Details

Advances in Mental Health and Intellectual Disabilities, vol. 11 no. 1
Type: Research Article
ISSN: 2044-1282

Keywords

Article
Publication date: 25 June 2019

Arvid Nikolai Kildahl, Maria Hagen Engebretsen, Kristin Horndalsveen, Jane Margrete Askeland Hellerud, Jorunn Ytrehorn Wiik, Gro Aasen and Sissel Berge Helverschou

Psychiatric assessment in adults with autism spectrum disorder (ASD) and intellectual disability (ID) is complex and challenging. With co-occurring congenital blindness, this…

Abstract

Purpose

Psychiatric assessment in adults with autism spectrum disorder (ASD) and intellectual disability (ID) is complex and challenging. With co-occurring congenital blindness, this complexity is increased. Systematic knowledge about psychiatric assessment in this combination of challenges is virtually non-existing, and there is little guidance available for clinicians faced with this task. The paper aims to discuss these issues.

Design/methodology/approach

Experiences from comprehensive psychiatric assessments in two adults with congenital blindness, ASD, and ID are explored and discussed.

Findings

Adaptation of assessment procedures usually employed for individuals with ASD and ID involved no major alteration, but co-operation between mental health and visual impairment professionals was important, as was the involvement of the families of the individuals in question. In both cases, the patient met criteria for an anxiety disorder, underlining the vulnerability and the challenges involved in living with this combination of challenges.

Research limitations/implications

There is an urgent need for research into mental health issues for this group, including case studies describing successful treatment or intervention for these issues.

Practical implications

Psychiatric assessment in individuals with this combination of challenges may be feasible, but requires involvement of professionals specializing in mental health in developmental disabilities, and professionals in visual impairment. Assessments need to be individually adapted.

Originality/value

This is the first study systematically describing psychiatric assessment in this group involving the use of checklists and assessment tools. Strategies and tools that were useful are described and discussed to aid other clinicians faced with similar challenges.

Details

Advances in Mental Health and Intellectual Disabilities, vol. 13 no. 5
Type: Research Article
ISSN: 2044-1282

Keywords

Article
Publication date: 7 May 2019

Trine Elisabeth Iversen, Kristin Horndalsveen, Espen Matre, Tine Finstad Henriksen, Sarah Fusche, Arvid Nikolai Kildahl and Trine Lise Bakken

There are few publications on personality disorder in adults with intellectual disability (ID), and on borderline personality disorder (BPD) specifically. Publications concerning…

Abstract

Purpose

There are few publications on personality disorder in adults with intellectual disability (ID), and on borderline personality disorder (BPD) specifically. Publications concerning treatment are sparse, despite the high symptom burden in these patients. This paper aims to discuss these issues.

Design/methodology/approach

Six patients with BPD and ID were recruited from the same inpatient unit. Behaviour problems and mental health symptoms were scored on admission and discharge. Information about treatment, length of stay, etc. was taken from case files.

Findings

Both mental health symptoms measured by the SCL-90-R, and behaviour problems measured by the Aberrant Behaviour Checklist were significantly reduced on discharge. In the active treatment period, the two main aspects of treatment were validation and practicing new solutions when emotional and behavioural problems occur, i.e. skills training.

Research limitations/implications

The limitations related to this study are that the study is conducted in one milieu only. Another limitation is that the patients were admitted over a five-year period, where, some changes were made in the treatment approach.

Practical implications

Inpatient treatment of this patient group seems to be effective if individually adjusted to the patient’s psychopathology, ID and communication style. Close co-operation between the individual therapist and milieu therapists is essential.

Originality/value

There is a need for intervention studies on BPD in ID. This study may be a valuable contribution.

Details

Advances in Mental Health and Intellectual Disabilities, vol. 13 no. 2
Type: Research Article
ISSN: 2044-1282

Keywords

Article
Publication date: 3 March 2014

Trine Lise Bakken, Arvid Nikolai Kildahl, Vibeke Gjersøe, Espen Matre, Tone Kristiansen, Arvid Ro, Anne Louise Tveter and Siv Helene Høidal

The purpose of this paper is to describe and discuss assessment of post-traumatic stress disorder (PTSD) in adults with intellectual disabilities. Existing research in this area…

Abstract

Purpose

The purpose of this paper is to describe and discuss assessment of post-traumatic stress disorder (PTSD) in adults with intellectual disabilities. Existing research in this area encompasses case studies, and includes, for the most part, persons with mild intellectual disabilities.

Design/methodology/approach

The aim of this study is to investigate symptom presentation and subsequent identification of PTSD in persons with more severe intellectual disabilities; i.e. persons with moderate or severe intellectual disabilities. Five patients in a specialised psychiatric inpatient unit for patients with intellectual disabilities were included. Information about the patients was collected through case files and interviews with key informants: family, milieu therapists, and caregivers in community settings, and observations through inpatient admission. The authors of this paper followed a training programme for trauma therapists in addition to the inpatient treatment of the five patients. The five patients all met criteria for PTSD according to the Diagnostic Manual – Intellectual Disability.

Findings

Previously, it was not suspected that the five patients suffered from PTSD, although they had experienced terrifying incidents. All patients displayed severe changes in behaviour, which may have overshadowed symptoms of PTSD. PTSD in persons with more severe intellectual disabilities may be interpreted as challenging behaviour, or other psychiatric disorders such as psychosis.

Research limitations/implications

The limitation of the study is the small number of participants.

Practical implications

Practical implication is linked to clinical practice related to identification of PTSD in persons with intellectual disabilities.

Originality/value

The paper may encourage more research into how PTSD can be identified in persons with moderate and severe intellectual disabilities. The case reports may help clinicians to look for traumatic experiences in persons with intellectual disabilities who have experienced terrifying incidents.

Details

Advances in Mental Health and Intellectual Disabilities, vol. 8 no. 2
Type: Research Article
ISSN: 2044-1282

Keywords

Article
Publication date: 2 July 2014

Trine Lise Bakken, Vibeke Gjersoe, Espen Matre, Tone Kristiansen, Arvid Ro, Anne Louise Tveter, Siv Helene Hoeidal and Arvid Nikolai Kildahl

The purpose of this paper is to describe and discuss interventions of stabilisation of emotions and behaviour in adults with post-traumatic stress disorder (PTSD). This topic is…

Abstract

Purpose

The purpose of this paper is to describe and discuss interventions of stabilisation of emotions and behaviour in adults with post-traumatic stress disorder (PTSD). This topic is understudied in persons with intellectual disability.

Design/methodology/approach

The aim of this study was to investigate interventions of stabilisation in persons with more severe intellectual disability; i.e. persons with moderate or severe intellectual disabilities. Five patients in a specialised psychiatric inpatient unit for patients with intellectual disabilities were included. Information about treatment of the patients was collected through case files, observations, and interviews. The authors of this paper followed a training programme for trauma therapists in addition to the inpatient treatment of the five patients.

Findings

Six main areas of stabilisation of emotions and behaviour were identified: validation, anxiety relief, treatment of depressed mood, increased mastering of daily activities, protection against anxiety triggers, and facilitated staff communication. Protection from anxiety triggers seems to be a core element of milieu therapy interventions. Interventions for neurotypical PTSD patients, such as exposure therapy may be contraindicated for patients with more severe intellectual disabilities.

Originality/value

Research on interventions of stabilisation towards adults with more severe intellectual disabilities is still in its infancy. The case reports may help milieu therapists to facilitate interventions towards patients with moderate or severe intellectual disabilities.

Details

Advances in Mental Health and Intellectual Disabilities, vol. 8 no. 4
Type: Research Article
ISSN: 2044-1282

Keywords

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