Addressing Underserved Populations in Autism Spectrum Research

The tendency to study autistic children has resulted in the lack of research about autistic seniors. This chapter begins by showing the results of two studies that have measured the volume of research about autistics based on age brackets. Two factors that have hampered research about autistic seniors are then presented. This chapter then concludes by highlighting seven topics where more research can be conducted about autistic seniors. These topics are research about their physical health, cognitive abilities, mental health, employment, transport, healthcare and specific issues relating to autistics residing in a nursing home/aged care facility.

The original contribution that this chapter makes to autism spectrum research is to examine the imbalance in research between autistic children and autistic seniors and to provide several suggestions where more research can be conducted about autistic seniors.

Literature about autistic females remains scant despite the amount of research about the autism spectrum substantially increasing over the previous decade. This chapter begins with an examination of the discrepancies between research about autistic males and females. It then examines three reasons why autistic females have rarely been researched, followed by some of the main topics that have been researched about autistic females. This chapter concludes with several suggestions for the creation of research about autistic females.

The original contribution that this chapter makes to the field of autism spectrum research is to explain the lack of research about autistic females. This objective is accomplished by presenting a synthesis of the literature about some of the barriers that prevent females from being diagnosed as autistic.

This chapter focusses on the lack of research about fathers raising autistic children. It begins by presenting the results in the Braunstein, Peniston, Perelman, and Cassano (2013) study, which showed that there is not much research about fathers raising autistic children compared to mothers raising autistic children. Some of the key issues in research about these fathers, such as paternal experiences of raising an autistic child, are then presented. Several areas where more research can be conducted in the future are then outlined. These suggestions are based on the limitations in the examined studies and consequently what types of research could be conducted to address these limitations. Addressing such gaps can only occur if there are strategies that can be used to recruit fathers into autism research. To this end, some of the main recommendations in Davison et al.'s study about how to recruit fathers into studies are presented.

The original contribution that this chapter makes to the field of autism spectrum research is to explain areas where there is a lack of research about fathers raising autistic children as well as potential strategies that can be used to stimulate their interest in participating in such research.

In the field of autism spectrum research, there has been a tendency to examine autistics without intellectual disabilities. This focus has come at the expense of examining their peers with intellectual disabilities, who are generally regarded as needing more assistance due to more complex support needs. This chapter begins by defining intellectual disability, followed by an examination of the literature about the prevalence of intellectual disability in the autistic population. The results from the American Government's Centres for Disease Control and Prevention (CDC) Autism and Developmental Monitoring (ADDM) Network about the proportion of autistics with intellectual disabilities are then outlined. Following this, the results from studies about the proportion of autistics with intellectual disabilities are presented. The goal of this section is to show that despite there being evidence that about a quarter of the autistic population have an intellectual disability, this cohort is underrepresented within research about the autism spectrum. Two reasons for this discrepancy are then outlined. This chapter concludes with three suggestions for where more research can be conducted into autistics who have an intellectual disability.

The original contribution that this chapter makes to the field of autism research is to highlight the lack of literature about members of the autistic community who have an intellectual disability as well as presenting several reasons for this lack of research and directions for research in the future.

Currently, most research about the autism spectrum has examined Caucasian autistics. Consequently, African American autistics have not received much attention from scholars. This chapter begins with an overview of statistics from the Centres for Disease Control and Prevention (CDC) about the population of Black and Latino autistics in the United States from 2000 to 2016. Plausible reasons for why there is a lack of research about African American autistics are then presented along with a section about the underrepresentation of ethnic minorities in autism spectrum research. Four strategies that can improve the production of research about African American autistics are then presented. The purpose of presenting these strategies is to help stimulate the production of research about African American autistics.

The original contribution that this chapter makes to the field of autism spectrum research is to inform the reader about the lack of research about African American autistics in comparison to other ethnicities.

In this book it was proposed that autistic females and African American autistics are usually not participants in autistic research because they rarely receive an autism diagnosis. If diagnostic services were made more congenial for autistics from these groups, then the prospect of them being diagnosed as autistic and being available to be research participants would increase. To help achieve this outcome, this chapter begins by presenting some typical barriers that autistics encounter when trying to access autism diagnostic services. This is followed by an explanation of some consequences of this exclusion for autistics, their families and the research community. In an attempt to mitigate these consequences, and to increase the pool of potential autistic candidates for research, this chapter concludes with a series of suggestions to improve the public's accessibility to autism diagnostic services as well as suggestions for improving the autism diagnostic process for both children and adults.

The contribution that this chapter makes to the field of autism spectrum research is to provide clinicians with some important concepts that will help autistics feel valued and accepted during the diagnostic process. A potential flow-on effect of this knowledge is that more autistics who have experienced feeling valued and accepted by clinicians will be more inclined to be involved in research.

This chapter outlines several approaches that researchers can use to help them conduct research that respects and includes autistic participants. It begins by highlighting some of the factors that should be considered before, during and after a study is conducted. It then explains some of the benefits and drawbacks of harvesting data from social media. It then concludes with a set of recommendations about inclusive research practices that can help autistic participants be equals in the research process.

The original contribution that this chapter gives to the field of autism spectrum research is to provide researchers with a clear and comprehensive outline of how to conduct research that is inclusive and respectful of autistic participants.

It has been discovered that some results published in studies may not be correct because different researchers using the same dataset and analytical methods were unable to create the same results. This dilemma is called the reproducibility crisis. Currently, there has not been a comprehensive examination of the possible existence of this crisis in the field of autism spectrum research. This chapter does not answer the question, ‘Is there a reproducibility crisis occurring in the field of autism spectrum research?’ Rather, it contains an outline of this crisis, explains some of the most influential factors that have contributed to its development and how scholars who study the autism spectrum can change their research practices so that this crisis does not develop.

The original contribution that this chapter makes to autism spectrum research is to explain how some solutions to the reproducibility crisis can be implemented into the field of autism spectrum research.