Learning Health Systems Ethics Review
Data Ethics and Digital Privacy in Learning Health Systems for Palliative Medicine
ISBN: 978-1-80262-310-9, eISBN: 978-1-80262-309-3
Publication date: 15 November 2023
Abstract
Having provided a feasible framework for the use of big data and a learning health system (LHS) in addressing disparities in access to palliative care, this chapter seeks to substantiate the ethical underpinning of that framework, drawing from well-regarded existing sources. The author will also address issues which will likely arise from a successful transition to LHSs such as the nature of informed consent, the impact it will have on medical decision-making in general, and the transformative effect big data and implementation of LHSs will have on existing data sources.
Keywords
Citation
Miori, D.J. (2023), "Learning Health Systems Ethics Review", Miori, V.M., Miori, D.J., Burton, F. and Cardamone, C.G. (Ed.) Data Ethics and Digital Privacy in Learning Health Systems for Palliative Medicine (Studies in Media and Communications, Vol. 23), Emerald Publishing Limited, Leeds, pp. 151-156. https://doi.org/10.1108/S2050-206020230000023011
Publisher
:Emerald Publishing Limited
Copyright © 2024 Daniel J. Miori