Index
Facing Death: Familial Responses to Illness and Death
ISBN: 978-1-80382-264-8, eISBN: 978-1-80382-263-1
ISSN: 1530-3535
Publication date: 16 June 2022
This content is currently only available as a PDF
Citation
(2022), "Index", Scott, C.L., Williams, H.M. and Wilder, S. (Ed.) Facing Death: Familial Responses to Illness and Death (Contemporary Perspectives in Family Research, Vol. 19), Emerald Publishing Limited, Leeds, pp. 191-196. https://doi.org/10.1108/S1530-353520220000019009
Publisher
:Emerald Publishing Limited
Copyright © 2022 Christina L. Scott, Heidi M. Williams and Siri Wilder
INDEX
Abortion
, 92
analysis
, 96
fetal anomaly in pregnancy
, 114
fetal health issue
, 93, 96–103
identifying personal and familial values
, 103–108
mourning practices & disclosure
, 108–114
post-abortion processing
, 116
sample characteristics
, 96
third-trimester
, 94
Amyotrophic lateral sclerosis (ALS)
, 20
children of parent with
, 28
discourses on illness and death
, 26–27
experiences and difficulties during pandemic
, 27–28
family management of
, 21–22
feedback on psychological intervention
, 24–25
learning and change after intervention
, 25–26
peers in same situation
, 28
psychological intervention
, 29
qualitative study
, 22–24
thematic area
, 31
transformative learning
, 29, 30
Archival research
, 68
Atlas. ti [qualitative analysis software]
, 21
Attention deficit hyperactivity disorder (ADHD)
, 139, 140
Awareness of dying
, 66
“Baobab project”
, 22
BEACON protocol
, 66–67
Bereaved families
, 122
Bereavement
, 122
bereaved individuals
, 123
emotional support in
, 129, 136–137
health care professionals
, 130
methods
, 125
parentally bereaved families
, 125
participant responses
, 126
participants
, 125
particularly unhelpful following loss
, 132–135
peer support
, 130
practical support
, 129, 131–132, 137
qualitative survey results
, 127–128
social networks
, 124
social support in
, 123, 124
support groups
, 140
thematic analysis
, 126
thematic analysis
, 128, 135–143
Best Practices for End-of-life Care and Comfort Care Order Sets for our Nation’s Veterans (BEACON)
, 66
C-reactive protein (CRP)
, 4
Caregiver morbidity
, 5
Child development
, 53–54
Child loss
, 160–161
Children
development knowledge
, 53–54
exposure to death
, 39, 48–49
and grief
, 138
knowledge on
, 138–139
loss
, 160–161
parents’ awareness and knowledge of child development
, 49–50
particularly vulnerable groups of
, 139–140
Chorionic villus sampling (CVS)
, 97
Communication and awareness of dying
, 66
Couples
bereaved
, 161, 163
EOL plans
, 85
COVID-19 Pandemic
, 86–87
family management of ALS during
, 21–22
family-centered care during
, 86
Cross-lagged panel analysis
, 154, 158–159
Cultural values
, 50–52
Data analysis
, 43–44
Data collection
, 43
“Death Literacy”
, 44
Death with young children
children’s exposure
, 39, 48–49
cultural and personal values
, 50–52, 54
current study
, 41
data analysis
, 43–44
data collection
, 43
death
, 38
experiences of deaths in family
, 53
implications for practitioners, researchers, and parents
, 56–57
knowledge of child development
, 53–54
limitations and caveats
, 55–56
parents’ approaches
, 45
parents’ awareness and knowledge of child
, 49–50
parents’ death literacy
, 47–48
participants
, 42–43
positionality statement
, 44–45
“protecting” children
, 52–53
resources for
, 60
socialization strategies
, 39–40
sociocultural context
, 40–41
tipping point model
, 46–47
tipping points in young children
, 54–55
Death/dying
, 65
access to dying person
, 66
communication and awareness of
, 66
in family
, 26–27
medicalization of
, 82
Diagnostic and Statistical Manual of Mental Disorders, fifth edition (DSM 5)
, 152
Diagnostic and Statistical Manual of Mental Disorders, fifth edition, text revision (DSM 5-TR)
, 152
Dignified death
, 72
Discussing death
, 38–39
socialization strategies in
, 39–40
sociocultural context in
, 40–41
Durkheim and suicide
, 171–173
Dyadic latent growth curve model
, 153–154, 156–157
Emotional support
, 136–137
in bereavement
, 129
End-of-life (EOL)
, 64
care
, 66
Ethic of heroism (EOH)
, 71
Familial value, identifying
, 103–108
Family
family-centered care
, 21
and grief
, 65–66
management of ALS during
, 21–22
Feedback on psychological intervention
, 24–25
Fetal abnormality
, 93
Fetal anomaly
, 93, 95
in pregnancy
, 114
Fetal health issue, learning of
, 96–103
Fetal magnetic resonance imaging (fMRI)
, 98
General practitioner (GP)
, 127
General practitioner role
, 142–143
“Good Death”
, 65
Grief
, 150
bereaved parents
, 152
child loss
, 160–161
clinical implications
, 164
cross-lagged effects
, 163
cross-lagged panel analysis
, 154, 158–159
descriptive statistics and correlations
, 154–155
growth curve analysis
, 153–154, 155–158
homogeneity in
, 161–162
of parents
, 151
participants and procedure
, 153
post-hoc analyses
, 160
post-hoc analysis 154
statistical analysis strategy
, 153
strengths and limitations
, 163–164
Grief trajectory
, 151, 161
Growth curve analysis
, 153–154, 155–158
Happiness
, 5, 8
chronic disease and
, 6
complexity
, 14
general feelings of
, 13
levels
, 5–6, 9
on Likert scale
, 7
measure
, 7
relationship between inflammation and
, 10
with relationships
, 7
Health care professionals
, 130
Illness in family
, 26–27
Inadequate support
, 138
Individual therapeutic intervention
, 123
Inflammation
, 4
chronic
, 7–8
sensitivity analyses
, 9
International Classification of Diseases 11th Revision (ICD-11)
, 152
Intimate relationships
, 4
inflammation and QoL
, 9–12
negative effect on QoL
, 12
non-significant improvements
, 14
postulated relationship
, 13
Later abortion
, 94
Learning of fetal health issue
, 96–103
Logistic regression
, 8
MAXQDA software
, 174
Meaning making process
, 65
Medical uncertainty
, 92
Medicalization of dying
, 82
Minors
ALS impact on
, 20, 28
pandemic to
, 22
supporting families in difficulties with
, 22
Miscarriage
, 92
Mourning practices & disclosure
, 108–114
Mourning process
, 65
Narrative of honorable life
, 71
Narrative theme
, 69–74
National Institute of Mental Health
, 170
National Social Life, Health, and Aging Project (NSHAP)
, 6
sample population from
, 8
Neonatal intensive care unit (NICU)
, 105
NVivo software
, 126
Palliative care
, 84
Parental grief
, 161–162
Parental loss in childhood
, 122
Parenting
capacities
, 123
cultural norms of
, 40
gating parenting practices
, 54
NPR
, 60
Parents
approaches
, 45
awareness and knowledge of child development
, 49–50
death literacy
, 47–48
tipping point model of
, 46
Participants
, 6–7
Peer support
, 130
Personal values
, 50–52
identifying
, 103–108
Positionality statement
, 44–45
Post-hoc analysis
, 154, 160
Post-traumatic stress disorder (PTSD)
, 122
Practical support
, 137
in bereavement
, 129
types
, 132
Psychological intervention, feedback on
, 24–25
Public Health System, disappointment with
, 134–135
Public sector
, 141
Qualitative analysis
, 21
Qualitative arm of BEACON Study
, 67
Qualitative study
, 22–24
Quality of life (QoL)
, 4
inflammation and
, 9–12
negative effect on
, 12
sensitivity analyses
, 9
“Self-stigmatization”
, 171
Social interaction
, 21
Social relationships
, 6, 9
characteristics regressed on C-reactive protein
, 10
conceptualization affected by suicide
, 179–181
limitations on
, 21
restrictions on
, 27
Social support in Bereavement
, 123, 124
Socialization strategies in discussing death
, 39–40
Sociocultural context in discussing death
, 40–41
Spatial theme
, 74–79
Spousal loss
, 137
Suicide
, 170
bereavement
, 170
conceptualization
, 174–179
conceptualizing relationships with loved ones
, 181–182
data and methods
, 173–174
Durkheim and
, 171–173
future work and implications
, 183–186
limitations
, 183
social relationships conceptualization
, 179–181
suicide-bereaved individuals
, 182
Temporal theme
, 79–82
Thematic analysis
, 23–24
Theory of suicide
, 172–173
“Threatened Good Death”
, 65
Tipping point model
, 46–47
in young children
, 54–55
Transformative learning
, 29
Transparency, experienced lack of
, 141
Traumatic Grief Inventory Self Report Plus (TGI-SR+)
, 164
United States (US)
, 92
Untimely spousal loss
, 137
Veterans
, 64
Veterans Affairs Medical Centers (VAMCs)
, 64
access to dying person
, 66
analysis of qualitative articles
, 68–69
analytic process
, 69
BEACON protocol
, 66–67
context of COVID-19
, 86–87
death, dying and good death
, 65
families and grief
, 65–66
implications
, 84–85
limitations
, 85–86
medicalization of dying
, 82
military and total institution
, 64–65
narrative theme
, 69–74
next-of-kins
, 83
qualitative arm of BEACON Study
, 67
spatial theme
, 74–79
temporal theme
, 79–82
Work–life Balance
, 131–132
World Health Organization
, 21, 152
Young children
children’s exposure
, 39, 48–49
cultural and personal values
, 50–52, 54
current study
, 41
data analysis
, 43–44
data collection
, 43
death with
, 38, 60
experiences of deaths in family
, 53
implications for practitioners, researchers, and parents
, 56–57
knowledge of child development
, 53–54
limitations and caveats
, 55–56
parents’ approaches
, 45
parents’ awareness and knowledge of child
, 49–50
parents’ death literacy
, 47–48
participants
, 42–43
positionality statement
, 44–45
“protecting” children
, 52–53
socialization strategies
, 39–40
sociocultural context
, 40–41
tipping point model
, 46–47
tipping points in
, 54–55
- Prelims
- Section 1: Coping with Serious Illness and Threat of Death
- Chapter 1: Intimate Relationships as Factors in Associations Between Inflammation and Happiness in Older Adults: A Covariate Analysis of Limited Longitudinal Data
- Chapter 2: Facing Amyotrophic Lateral Sclerosis Under Lockdown: The Experiences of Minors
- Chapter 3: Navigating Discussions of Death with Young Children: Variable Strategies of Protection
- Section 2: Decisions Surrounding Serious Illness and End of Life
- Chapter 4: Familial Responses to Death in Veterans Affairs Medical Centers: Losing Control and Holding On
- Chapter 5: Choosing Abortion for a Serious Fetal Health Issue: From Medical Information to Values
- Section 3: Facing Death and Bereavement
- Chapter 6: Social Support in Bereavement: The Experiences of Support Following Spousal Loss in Families with Dependent Children
- Chapter 7: Grieving Together: Dyadic Trajectories and Reciprocal Relations in Parental Grief After Child Loss
- Chapter 8: Suicide Bereavement and Social Relationships: A New Application of Durkheim
- Index