Scoping review of free evidence summary sources available online, relevant to occupational therapists working with children/youth, and families

Philip Muir (Department of Occupational Therapy, Brunel University London, London, UK and Occupational Therapist, Portland Public School District 1j, Portland, OR, USA)
Carolyn Dunford (Department of Occupational Therapy, Brunel University London, London, UK)

Irish Journal of Occupational Therapy

ISSN: 2398-8819

Article publication date: 3 May 2024

Issue publication date: 23 May 2024

442

Abstract

Purpose

Evidence-based practice is a professional standard for occupational therapists, but limited time, resources and knowledge challenge its implementation. This study aims to identify what free evidence summary sources (FESS) can be found through a simple online search, related to child/youth interventions surrounding cerebral palsy (CP), autism spectrum disorder (ASD), developmental coordination disorder (DCD), mental health or attention-deficit/hyperactivity disorder (MH/ADHD). Evidence summaries share research in concise, time-efficient manners.

Design/methodology/approach

An internet-based scoping review was conducted between February 2022 and July 2022, using Google, and known evidence summary producers. Evidence summaries meeting the inclusion criteria were located and catalogued. Type of agency, target audiences, purpose and distribution of evidence summaries related to diagnosis were identified for each FESS.

Findings

Ten FESS were found, which produced 113 intervention-focused evidence summaries within the past 10 years. These FESS were aimed at a variety of target audiences: service providers, service users, parents/families, researchers and commissioners, and were produced primarily by non-profit/charity organisations (6 of 10) who were trying to fill a gap in evidence. Forty-eight evidence summaries were related to ASD, 34 to CP, 29 to MH/ADHD and two to DCD.

Originality/value

A catalogue of FESS that exist online was produced, to support evidence-based practice for paediatric occupational therapists with limited resources, and may support improved health promotion and informed decision-making for service users. No consistent framework for FESS evidence summaries exists at this time.

Keywords

Citation

Muir, P. and Dunford, C. (2024), "Scoping review of free evidence summary sources available online, relevant to occupational therapists working with children/youth, and families", Irish Journal of Occupational Therapy, Vol. 52 No. 1, pp. 52-65. https://doi.org/10.1108/IJOT-11-2023-0024

Publisher

:

Emerald Publishing Limited

Copyright © 2024, Philip Muir and Carolyn Dunford.

License

Published in Irish Journal of Occupational Therapy. Published by Emerald Publishing Limited. This article is published under the Creative Commons Attribution (CC BY 4.0) licence. Anyone may reproduce, distribute, translate and create derivative works of this article (for both commercial and non-commercial purposes), subject to full attribution to the original publication and authors. The full terms of this licence may be seen at http://creativecommons.org/licences/by/4.0/legalcode


Introduction

Although evidence-based resources for paediatric interventions have grown significantly in recent years (Novak and Honan, 2019), supporting occupational therapists (OTs) to meet the professional standard of evidence-based practice (EBP) royal college of occupational therapists(RCOT, 2021), there remains a significant gap between research and implementation (Hanney et al., 2015). Surveys illustrate that though there is a desire to engage in EBP, many OTs do not have the time, resources or knowledge they need to seek out new research or to evaluate systematic reviews critically, and some continue to use interventions that research has shown to be ineffective and questionable (Milton et al., 2019). It has been estimated that the time it takes for new evidence to be implemented widely into practice can go well beyond 17 years (Hanney et al., 2015), meaning that children/youth could go an entire childhood receiving ineffective care.

One way that OTs with limited time and resources can access quick-to-read, up-to-date research is through evidence summaries (ESs). ESs synthesise the research on a single topic into a concise overview, allowing the reader to judge the validity and applicability of the findings to their setting (Khangura et al., 2012). ESs have historically been used to support health care and policy decision-makers when prompt publication and distribution of research is necessary, such as surrounding the release of vital new medications and health system responses to natural disasters (Petkovic et al., 2016), and have proven to increase the implementation of EBP by health-care professionals (Galvao et al., 2018).

The objective of this study is to locate the online ES databases that an OT could find through a quick and simple search for evidence on children/youth-related interventions and to create a catalogue of free evidence summary sources (FESS) that OTs can use as a resource to browse ESs, and to support the professional standard of engaging in EBP. It will institute a scoping review.

The research aimed to answer the questions; What FESS are accessible online, to support the use of evidence-based interventions by OTs working with children/youth aged 6–17, related to cerebral palsy (CP), autism spectrum disorder (ASD), developmental coordination disorder (DCD), attention-deficit hyperactivity disorder (ADHD) or mental health (MH) conditions?

The diagnoses and age range for the review were refined to maintain brevity in the search process while capturing sources of evidence around diagnoses for which paediatric OTs regularly encounter within children, and for which evidence already exists (Novak and Honan, 2019). The age range was selected due to the large degree of developmental variation that occurs in early childhood ages of 0–5, which requires specific guidelines and considerations to support appropriately (Frolek and Kingsley, 2020) (see Supplemental Table 1 for full inclusion/exclusion criteria).

Methodology

The five-stage methodological framework developed by Arksey and O’Malley (2005) for scoping reviews was used to structure this study, and consists of the following:

  1. Identifying the research question

  2. Identifying relevant studies

  3. Study selection

  4. Charting the data

  5. Collating, summarising and reporting the results

The JBI Manual for Evidence Synthesis for scoping reviews (Peters et al., 2020), and JBI preferred reporting Items for systematic reviews and meta-analyses (PRISMA) for scoping reviews (Tricco et al., 2018) were also used to ensure that current standards for the scoping reviews were met.

Step 1: Identifying the research question

The research question was identified to meet the objective of supporting EBP by producing a small catalogue of accessible, FESS that could be used as a signpost for evidence-based resources. Since this was a single-researcher review, limiting the scope of the study to the specific age and diagnoses parameters helped to overcome the challenge of “balancing breadth and comprehensiveness with feasibility and resources”, which was noted by Levac et al. (2010, p. 4) as a challenge of the scoping review methodology.

Step 2: Identifying relevant studies

The initial literature search was developed, in collaboration with a research librarian, to include databases Medline, CINAHL Plus, Child and Adolescent Studies and Academic Search Complete, followed by OTSeeker. Once a relevant ES would be located using the inclusion/exclusion criteria listed in the following section, the publishing source would be recorded as a potential FESS for final review in the study. Search terms used the Population, Intervention, Comparison, Outcome framework and were “‘evidence summary’ OR ‘evidence statement’ OR ‘rapid review’ AND interventions OR therapy OR treatment OR strategies AND children OR adolescents OR youth OR child OR teenager”. The date range filter was 2012–2022. This search of the academic databases in February 2022 revealed 0 ESs found (see Supplemental Figure 1).

It was then determined that a search strategy would be formulated for the internet search engine Google, as scoping reviews generally incorporate grey literature sources to provide a more complete picture of all available findings (sources of evidence that do not follow the traditional route of peer-reviewed, academic journals) which are often found from online searching (Peters et al., 2020; Higgins et al., 2023). Not only would this method of search allow a broader reach, but it would also simulate what FESS are accessible to OTs and families with limited resources. Each Google search contained a simple set of key terms to capture the widest results for each search. These search terms were “occupational therapy” + “evidence summary” + “intervention” + “children” + (name of diagnosis). This search was completed five times, once for each included diagnosis (ASD, CP, DCD, MH and ADHD), while an assortment of common variations were used to describe each diagnosis, such as “cerebral palsy, CP”. To prevent a prolonged internet search, and due to the time constraints and person-power of this study, only the first five result pages of each search were examined, making a total of 50 web results to be examined for each search. To reduce gaps in the research and supplement the findings, further searches were completed using known ES producers such as National Institute for Health and Care Excellence, Cochrane Library and Ottawa Hospital Research Institute (NICE, 2017; Opiyo et al., 2013; Khangura et al., 2012), and the online medical database, Trip (Figure 1). All searches took place between February 2022 and July 2022.

Step 3: Study selection

FESS selection was a two-step process. Firstly, ESs relevant to the study were located, and secondly, the FESS that produced them was extracted. ESs were filtered for relevance to the study by using a set of inclusion criteria; they were open source, did not require a membership to access, evidence included effects of intervention on children/youth between the ages of 6 and 17, interventions were specific to CP, ASD, DCD or an MH condition, including ADHD, and they were published between 2012 and 2022. ESs that included comorbidities were allowed as long as the primary condition met inclusion criteria and was a focus of the studies reviewed. Exclusion criteria included pharmacological and surgical interventions (see Supplemental Table 1).

Due to the lack of clarity on what constitutes an ES, the parameters for inclusion based on being an ES (as compared to any other type of review) were kept broad and were primarily adapted from a 2012 proposal published by Khangura et al., 2012 For this study, a document was considered an ES if the primary aim was to synthesise evidence addressing a research question from a single topic (rather than just to provide a brief overview of a topic), the findings came from completing a literature review, the format had a main body of fewer than 15 pages in length, it included a narrative report of the findings, and intended to be a stand-alone document (i.e. not an introduction/abstract). Because ESs do not tend to have an abstract (Galvao et al., 2018; Khangura et al., 2012), reviews having an abstract were excluded, to distinguish ESs from other forms of rapid review, and short systematic reviews (see Supplemental Table 1 for further inclusion/exclusion criteria breakdown and rationale).

Step 4: Charting the data

A single data extraction sheet was created using Microsoft Excel for Microsoft 365. Primary descriptive data from each source included the name of the FESS, country of origin, the type of source, the purpose of their ESs and the intended audience. Secondary numerical data that was extracted included the total number of ESs found on each FESS (regardless of focus), the total number of ESs from each FESS relevant to paediatric OTs meeting the inclusion criteria and the distribution of ESs by the corresponding diagnosis of focus (CP, ASD, DCD or MH/ADHD). All data was acquired by searching the FESS web pages, and using the embedded search options within each FESS. A PRISMA and further details on the search strategies used within each FESS web page can be found in Supplemental Figure 2 and Supplemental Table 2.

Step 5: Collating, summarising and reporting the results

Extracted data was reviewed to ensure consistent descriptive language was maintained, to support readability and critical comparison between each FESS. The data was then charted into tables that present the information clearly and simply, to support the interpretation of results (Khalil et al., 2021). For immediate usability of the findings, a clickable hyperlink to each FESS is provided in every chart, and a web link to each ES they produced is available in Appendix 1.

Results

Selection of sources of evidence

A total of 1,528 potential articles were located for review (Figure 1). After screening by title and abstract, 1,463 articles were excluded, and five more were removed as duplicates, leaving 60 ESs. All 60 ESs came from 13 different, online FESS, however, two of these had not published any ESs since 2011, and one was not specific to any of the included diagnoses, so were therefore excluded. A total of 10 FESS providing online, accessible ESs were included in the final review.

Overview of the free evidence summary sources located

Six (60%) of the FESS located are based within the UK (Table 1). Two (20%) are based in Australia and two (20%) in Canada. Of these sources, five (50%) are entities focused on medical research (one governmental, one public hospital, one academic and two non-profit), three (30%) are charity or non-profit organisations whose mission is to provide support around a specific condition, one (9%) is a peer-reviewed occupational therapy journal and one (9%) is a non-profit organisation providing general online parenting support. Overall, 6 of the 10 (60%) FESS located are produced by charity or non-profit organisations, making it the primary category of developer found.

Target audiences

The majority of FESS write their ESs to be used by a variety of audiences with varying levels of health-care background (Table 1). Eight (80%) listed service providers (clinicians) as an intended audience, while only three (30%) of those exclusively listed service providers as the target audience. Families or caregivers are listed as a primary intended audience for five (50%) of the FESS included, and two (20%) of those exclusively list families or caregivers as the intended audience of their ES. Policymakers, commissioners and funders were listed as an intended audience by three (30%) FESS, but never exclusively.

Total intervention-focused evidence summaries located within the ten free evidence summary sources websites

Searching the 10 FESS using their web page-embedded search options for intervention-focused ESs meeting the inclusion criteria of this study, 1,196 potential published ES were retrieved (Supplemental Figure 2). Of these 1,196 articles, 969 were excluded by title and abstract, and 20 more were removed as duplicates. A total of 207 articles were screened by full text to see if they met the inclusion criteria of the project, which excluded another 94. In total, the 10 FESS yielded a combined 113 intervention-focused ESs relevant to OTs working with children/youth matching the specific diagnoses, and their parents.

Distribution of evidence summaries by related condition

Of the 113 total intervention-focused ESs produced by the 10 FESS that were relevant to this study, 48 (42.5%) were related to ASD, 34 (30.1%) were related to CP, 29 (25.7%) were related to MH/ADHD, and two (1.8%) were related to DCD (Table 2). Overall, 76 (67.3%) were published within the past five years, between 2017 and 2022, whereas 37 (32.7%) were published between 2012 and 2016. While all these ESs were published within the past 10 years, the evidence cited in many of them is drawn from studies more than 10 years old, which has resulted in an increased likelihood of providing outdated information.

Free evidence summary sources aims and formats

While the main intentions behind producing ESs remained mostly consistent between each FESS, the formats they used to deliver them varied. The most common theme derived from the aims of the ESs was “helping to inform health care decision-making” (Table 1). Similarly, a key component of this involved “producing easy-to-understand and accessible evidence” that would match the level of the intended audience (Barrie et al., 2012; Higgins et al., 2023; Chapman and Ryan-Vig, 2019; RCN, 2024).

Two of the FESS met these aims by offering ESs on a variety of topics that readers can only browse on their website: raisingchildren.net.au (parenting support for ASD) present ESs on their websites as online reading material where readers can click on a link to read the evidence on the intervention of interest (RCN, 2024). PenCRU develops its ESs in response to questions from parents and caregivers and formats them as stand-alone documents that can be read online or downloaded from a list of indexed therapies and conditions (UoE, 2024).

Five FESS produce ESs that share the research around specific topics of interest and are formatted to be stand-alone, downloadable documents: Autistica has developed a single ES intended to raise awareness for service providers and national health service commissioners about the positive evidence of parent-led video feedback therapy to improve communication skills for children on the autism spectrum (Autistica, 2018). Child Development and Rehabilitation’s ESs, titled “evidence for practice”, are written in a “clinician-friendly format” to improve the uptake of evidence by service providers about a range of conditions (Barrie et al., 2012). Public Health Ontario’s ESs, titled “evidence briefs”, are written on a range of topics to improve informed decision-making, specifically for service providers, policymakers and commissioners (OAHPP, 2022). Orygen’s ESs are written for service providers, to highlight the evidence and best practices for providing care to young people with MH and substance abuse problems (Randell and Scanlan, 2018). RCOT has developed a single ES which is available without RCOT membership, written specifically for OTs, which provides an overview and practical insight into the evidence for occupational therapy home programmes for children with CP and intellectual disabilities (Dunford et al., 2020).

The Children’s Trust for Children with Brain Injury has developed a compilation of ESs that are available as a downloadable booklet for service providers and caregivers. The ESs cover a range of topics relevant to children with acquired brain injuries, as well as one specific to upper limb management, but many include evidence for children with CP (The Children’s Trust, 2019; Burrough et al., 2024).

Cochrane has developed its own two formats of ES; Plain Language Summaries, a front-end synthesis and an easy-to-read, stand-alone report of each full Cochrane systematic review, found within Cochrane Library (Higgins et al., 2023; Wiley, 2022), and Blogshots, a series of blog posts that convey the key findings of important Cochrane review into accessible summaries and illustrations, found within Evidently Cochrane (Chapman and Ryan-Vig, 2019). Both formats intend to make high-quality evidence accessible and easy to understand for anyone looking for health-care information (service users, clinicians, parents and policymakers), while encouraging those who have time and greater health literacy to read the full review (Pitcher et al., 2022; Chapman and Ryan-Vig, 2019).

Discussion

Implications for occupational therapy

This study aimed to locate what FESS are available to OTs through a quick and simple internet search while creating a catalogue of resources for enhancing EBP. It found that a wide variety of FESS are available to OTs through a series of simple search terms in the online search engine Google. These FESS aim to make evidence accessible and understandable to a wide audience, and target readability for not just clinicians and researchers but also service users and their families. This makes FESS a possible tool to support both EBP and family-centred care, by becoming a resource that OTs can share with families/caregivers to improve informed decision-making. According to the American Occupational Therapy Association (2011), OTs should support service users and their families by providing valuable health-related information that is accessible and understandable to each person’s ability. To this extent, FESS should be seen as a tool not just for the benefit of health professionals but as a component of universal health promotion as urged by the World Health Organization (WHO) (1986), allowing current and future service users to have better health outcomes through an increased ability to make informed decisions and have control over their health.

ESs and FESS were not found within academic databases, but rather online, primarily produced by local researchers and charities or non-profit organisations who work directly with service users. This suggests that there is a need for accessible, up-to-date ESs that has not been met by the traditional routes of peer-reviewed academic research. Autistica, a UK charity and ES producer specialising in support for autistic people and their families, advocates for more funding towards research, and wrote in their 2021 support plan, “Clinicians, autistic people and families have next to no useful resources to distinguish interventions with reliable evidence from those with poor quality or no evidence” (Autistica, 2021, p. 26). The past five years have seen a 34.6% growth in the amount of free intervention-focused ESs published by FESS compared to the five years prior (Table 2); many notably from organisations new to developing them, potentially because they have recognised this need (Autistica, 2018; RCN, 2024; Dunford et al., 2020).

Still, there is an issue of representation in what evidence is available. Seventy-three per cent of the ESs located within the FESS are related to CP or ASD, but only 25.7% of the ESs produced were dedicated to either ADHD or MH conditions, and only 1.8% were related to DCD (Table 2). At the same time, it is estimated that the prevalence of DCD in school-aged children is 2%–6% in the UK (Cleaton et al., 2020), whereas a growing 17.4% of youth have a probable MH condition (Newlove-Delgado et al., 2021). This disparity in the findings is overall consistent with the current state of evidence found in other studies (Novak and Honan, 2019); however, when this is tied to the fact that 32.7% of the ES found in the FESS were produced between 2012 and 2016, and many of these were based on evidence more than 10 years old, it is evident that much of the already limited evidence could be outdated. OT researchers should advocate for further research in these areas and encourage the development of ESs dedicated to supporting children and families affected by these conditions with the most current evidence. Nevertheless, as the upward trend of ES publication continues and more research around the benefits of ESs is completed, an increase in the use of EBP should be expected, as the need for accessible, up-to-date and easy-to-understand evidence is met (Milton et al., 2019).

Limitations

Lack of definition and consistency

Although ESs are considered a category of rapid review (Khangura et al., 2012), little research has been done to define the parameters of what sets them apart from other review types, and no consistent framework exists. An eight-step approach to forming ES has been produced by Khangura et al. (2012), but there was no way to know that this was consistently followed for the ES located. If this approach was not followed, does that mean it is not an ES? This lack of clarity led to difficulty distinguishing inclusion/exclusion criteria, as many of the documents summarising evidence came in various formats, and many of the FESS have begun to develop their own unique ES templates (Barrie et al., 2012; Chapman and Ryan-Vig, 2019; Pitcher et al., 2022) (see Supplemental Table 3). The development of a standardised methodological framework and definition for ESs will be useful for reducing risks of bias, and supporting the reliability of, future ESs. Current FESS templates, along with the approach established by Khangura et al. (2012), and the inclusion/exclusion criteria developed in this study, may be useful as a starting point. Finally, while fundamental conclusions between rapid and full reviews have been found to be essentially the same (Watt et al., 2008), no research has specifically compared ESs with the gold standard of systematic reviews.

Limited size of research team

Due to the complexity and magnitude of a scoping review process, most scoping reviews use a multi-researcher team to overcome various challenges related to the breadth of data screened and extracted (Levac et al., 2010). Because this study was a dissertation project, it was not possible to implement a team approach. To offset some of these challenges, and to minimise the risk of bias, a research diary was used to reflect on the processes implemented, and the study supervisor was consulted throughout the study to gather feedback and maintain transparency.

Limitations from the online search

Because this review took place online over Google, it was subject to the parameters of the search engine infrastructure, and the geographic foci based on where the search took place, which was the UK. This means there is a potential that the FESS located in this study are geographically more relevant to the UK and that other FESS in other parts of the world may not have been found. However, to test that hypothesis and the intercontinental validity of the results, a post-review Google search for FESS related to CP was conducted using the same a priori search terms used in the study, but with Google location settings switched to the USA. The search results remained closely the same, and no new ES sources were located.

Finally, limiting the number of search result pages on Google to five signifies that there could be further FESS online; therefore, the list from this review should not be seen as an exhaustive list, but rather a starting point to encourage further research. With a larger team and greater resources, future research could potentially develop a larger, more thorough international database of FESS. Furthermore, unlike a published journal article, the nature of FESS being produced by independent organisations on an open webspace allows them to provide the most up-to-date information by updating their ESs as new evidence arises (RCN, 2024; UoE, 2024), but it also means that the state of FESS is in constant fluctuation, and the findings of this study should be recognised as a snapshot of what is available at the time of research.

Conclusion

From an internet-based scoping review, 10 FESS were discovered that produced ESs of interventions relevant to children/youth with CP, ASD, DCD or MH/ADHD within the past 10 years. These FESS have been compiled into a resource list that can support OTs to easily access evidence on a variety of topics and to share them with caregivers to support collaborative, family-centred care, and to help them overcome the EBP barriers of lack of time, resources and knowledge (Milton et al., 2019). Global access to FESS can become a universal approach to health promotion while simultaneously enhancing the ability of OTs to meet professional standards of delivering EBP.

ESs are useful for developing a breadth of knowledge, but in best practice, they should be a starting point for OTs engaging in research. Ultimately, OTs must use professional reasoning and critically assess research as it corresponds to their client’s specific needs and wishes, and implement evidence-based outcome measures throughout their intervention (RCOT, 2021). OTs should therefore be encouraged to investigate research further, using the FESS discovered to expand their scope of understanding.

Future research

This study has found that there is a need for more freely accessible high-quality ESs that have been seen by FESS producers, to guide intervention planning on a diverse range of topics. Current FESS producers are primarily non-profit and charity organisations, that are responding to the requests of service users and clinicians working directly in the field, but there is no single framework which they use to develop their ESs and only one came from a peer-reviewed OT journal (Dunford et al., 2020). More research should be done to create a clearer definition of ES, to examine if there is an optimal format for presenting evidence to meet the needs of translating research knowledge into practice, and should examine if there is a way to provide more peer-reviewed ESs to OTs, and the general public. Researchers in the world of academia should consider the development of new, regularly maintained and updated FESS, to ensure new evidence is made accessible to everyone in a timely manner, and consider areas of intervention effectiveness research that are currently less represented, including DCD, MH and ADHD. At the same time, future research should examine if OTs are currently aware of these 10 FESS, how they are being used and if they are currently being used to support EBP.

Key findings

  • Ten FESS were discovered that OTs can find through a simple Google search, providing accessible ESs for clinicians and/or parents and families to better evaluate relevant OT interventions for children/youth.

  • FESS predominantly originate from the sector of non-profit and charity organisations, focusing primarily on producing ES of interventions related to CP/ASD, while focus on DCD/MH/ADHD is limited, however, consistency in structure and methodology lacks.

What the study has added

An FESS resource guide have been developed that can be used as a tool by OTs and caregivers to explore overviews of the evidence on a variety of paediatric interventions, to encourage and improve the delivery of EBP and speed of knowledge translation. This study highlights a need for future development of FESS, to promote health and support family-centred care.

Figures

PRISMA diagram for search strategy to locate free evidence summary sources (FESS)

Figure 1

PRISMA diagram for search strategy to locate free evidence summary sources (FESS)

Overview of FESS available online and relevant to OTs working with children/youth, and their families

Name of source (Clickable link) Country Type of source and focus What they call their evidence summaries Purpose of evidence summaries Form of delivery Intended audience of evidence summaries (stated)
Autistica (Autistica, no-date) United Kingdom Diagnosis specific support (charity) – ASD Evidence summary Raising awareness” of “a new type of intervention” for “NHS services to consider in their planning Stand-alone documents Service providers, commissioners
Child Development and Rehabilitation (CWHCBC, 2017) Canada Medical research (public hospital) – various Evidence for practice To “objectively synthesize current scientific information on a particular topic in a clinician-friendly format Stand-alone documents Service providers
The Children’s Trust for Children with Brain Injury (The Children’s Trust, 2022) United Kingdom Diagnosis specific support (charity) – CP/ABI Evidence summary To “summarise the current academic knowledge on specific clinical topics… to help clinicians and families make decisions based on available evidence” Compiled documents Service providers, families/caregivers
Cochrane Library (Wiley, 2022) United Kingdom Medical research (non-profit) – various Plain Language summary To provide “brief, accurate, easy-to-read information to help [anyone who needs to] make a healthcare decision”. To “convey clearly the questions and key findings of the [full Cochrane] review, using language that can be understood by a wide range of non-expert readers” Graded entry/front-end synthesis Service providers, families/caregivers, service users, policymakers
Evidently Cochrane (Cochrane UK, 2022) United Kingdom Medical research (non-profit) – various Blogshot To make Cochrane evidence available and accessible to anyone making health-care choices, and to encourage conversation Blog posts Service providers, families/caregivers, service users
Orygen (Orygen, 2022) Australia Diagnosis specific support (non-profit) – MH Evidence summary To highlight the evidence and best practices for providing care to young people with mental health and substance abuse problems Stand-alone documents Service providers
PenCRU (UoE, 2024) United Kingdom Medical research (academic) – various What’s the evidence? “To summarise what is known on specific questions relating to childhood disability”, in response to queries from families… “to provide information to families and help parents to make decisions based on the evidence available” Stand-alone documents Families/caregivers
Public Health Ontario (OAHPP, 2016) Canada Medical research (governmental) – various Evidence brief “To investigate a research question in a timely manner to help inform decision-making Stand-alone documents Service providers, policymakers, commissioners
Raisingchildren.net.au (RCN, 2024) Australia Parenting support organization (non-profit) – ASD/general Therapy at a glance To “offer reliable information about a wide range of therapies for autistic children”, including description and theories behind it, level of evidence, costs and time involved and an easy-to-read, overall recommendation Online reading material Families/caregivers
Royal College of Occupational Therapists (RCOT, 2022) United Kingdom OT Journal – various Evidence summary To “provide a pragmatic overview and practical insight of the evidence for a particular intervention” Stand-alone documents Service providers

See Appendix 1 for a complete list of evidence summaries meeting inclusion criteria located in each FESS, formatted as references with hyperlinks

Source: Authors’ own work

Distribution of the relevant intervention-focused evidence summaries within each FESS

Name of source (Clickable link) Total ES available for free Focus on CP Focus on ASD Focus on DCD Focus on MH/ADHD ES meeting inclusion criteria Range of years published Published 2012–2016 Published 2017–2022
Autistica (Autistica, 2024) 1 0 1 0 0 1 2018 0 (0%) 1 (100%)
Child Development and Rehabilitation (CWHCBC, 2017) 13 3 1 1 0 5 2012–2018 4 (80%) 1 (20%)
The Children’s Trust for Children with Brain Injury (The Children’s Trust, 2019; Burrough et al., 2024) 38 11 0 0 0 11 2015–2018 3 (27.3%) 8 (72.7%)
Cochrane Library (Wiley, 2022) 100+ 7 5 1 19 32 2012–2022 13 (40.6%) 19 (59.4%)
Evidently Cochrane (Cochrane UK, 2022) 100+ 1 0 0 2 3 2016–2021 1 (33.3%) 2 (66.7%)
Orygen (Orygen, 2022) 10 0 0 0 6 6 2015–2020 1 (17%) 5 (83%)
PenCRU (UoE, 2024) 63 11 6 0 0 17 2013–2018 13 (76.5%) 4 (24.5%)
Public Health Ontario (OAHPP, 2022) 100+ 0 0 0 2 2 2014–2016 2 (100%) 0 (0%)
Raisingchildren.net.au (RCN, 2024) 59 0 35 0 0 35 2022 0 (0%) 35 (100%)
Royal College of Occupational Therapists (RCOT, 2022) 1 1 0 0 0 1 2021 0 (0%) 1 (100%)
Total
*% is of total that met inclusion criteria
485+ 34 (30.1%) 48 (42.5%) 2 (1.8%) 29 (25.7%) 113 2012–2022 37 (32.7%) 76 (67.3%)

Source: Authors’ own work

Appendix 1

Complete list of intervention-focused evidence summaries meeting inclusion criteria, from each FESS, formatted as references with hyperlinks

*(see each FESS for further ES that did not meet inclusion criteria)

Autistica (ASD)

Autistica (2018) Parent-led video feedback therapy: communication interventions for young autistic children, available at: www.autistica.org.uk/downloads/files/Autistica-evidence-summary-Parent-led-video-feedback-therapy-4.pdf (accessed 26 July 2022)

Child Development and Rehabilitation (CP, ASD, DCD)

Livingstone, R. (2012) Evidence for practice: Manual wheeled mobility for children, Sunny Hill Health Center for Children. available at: http://www.childdevelopment.ca/Libraries/Evidence_for_Practice/E4P_Manual_wheeled_mobility_-_02_27_2013.sflb.ashx (accessed 27 July 2022)

Livingstone, R. (2015) Evidence for practice: Effectiveness of gait trainers (support walkers) for children with cerebral palsy, Sunny Hill Health Center for Children, available at: http://www.childdevelopment.ca/Libraries/Evidence_for_Practice/E4P_Gait_trainer_Effectiveness.sflb.ashx (accessed 27 July 2022)

Mayson, T. (2012) Evidence for practice: Effectiveness of treadmill training in children with motor impairments, Sunny Hill Health Center for Children, available at: http://www.childdevelopment.ca/Libraries/Evidence_for_Practice/Treadmill_Training_E4P_-_15_06_2012.sflb.ashx (accessed 27 July 2022)

Mayson, T. (2015) Evidence for practice: Motor considerations in children & youth with autism spectrum disorder, Sunny Hill Health Center for Children, available at: www.childdevelopment.ca/Libraries/Evidence_for_Practice/Motor_Considerations_in_Children_Youth_with_Autism_Spectrum_Disorder_E4P_-_2014_12_18.sflb.ashx (accessed 27 July 2022)

Montgomery, I., Glegg, S., Boniface, G., and Zwiker, J. (2018) Evidence for practice: Management of developmental coordination disorder, Sunny Hill Health Center for Children, available at: http://www.childdevelopment.ca/Libraries/Evidence_for_Practice/DCD.sflb.ashx (accessed 26 July 2022)

The Children’s Trust for Brain Injury (TBI, CP)

Burrough, M., Moys, R., West, G., Garrod, R., Lloyd, J., and Kelly, G. (no-date) Whole upper limb guidelines, The Children’s Trust, available at: www.thechildrenstrust.org.uk/sites/default/files/2019-11/Wholeupperlimbguidelines_2926_0.pdf (accessed 13 August 2022)

The Children’s Trust (2019) Evidence Summaries, Volume 2, The Children’ Trust, available at: www.thechildrenstrust.org.uk/sites/default/files/2019-11/2019combinedEvidenceSummariesplusappendices_2844.pdf (accessed 27 July 2022)

Cochrane Library (CP, ASD, DCD, MH, ADHD)

*Plain Language Summary, evidence summary, is found at the beginning of each Cochrane Review

Barlow, J., Bergman, H., Kornør, H., Wei, Y., and Bennett, C. (2016) Group‐based parent training programmes for improving emotional and behavioural adjustment in young children, Cochrane Database of Systematic Reviews (8), available at: https://doi.org/10.1002/14651858.CD003680.pub3 (accessed 27 July 2022)

Bergman, H., Kornør, H., Nikolakopoulou, A., Hanssen‐Bauer, K., Soares‐Weiser, K., Tollefsen, T., and Bjørndal, A. (2018) Client feedback in psychological therapy for children and adolescents with mental health problems, Cochrane Database of Systematic Reviews (8), available at: https://doi.org/10.1002/14651858.CD011729.pub2 (accessed 27 July 2022)

Blake, S., Logan, S., Humphreys, G., Matthews, J., Rogers, M., Thompson‐Coon, J., Wyatt, K., and Morris, C. (2015) Sleep positioning systems for children with cerebral palsy, Cochrane Database of Systematic Reviews (11), available at: https://doi.org/10.1002/14651858.CD009257.pub2 (accessed 27 July 2022)

Brignell, A., Chenausky, K., Song, H., Zhu, J., Suo, C., and Morgan, A. (2018) Communication interventions for autism spectrum disorder in minimally verbal children, Cochrane Database of Systematic Reviews (11), available at: https://doi.org/10.1002/14651858.CD012324.pub2 (accessed 27 July 2022)

Chiu, H., Ada, L., and Bania, T. (2020) Mechanically assisted walking training for walking, participation, and quality of life in children with cerebral palsy, Cochrane Database of Systematic Reviews (11), available at: https://doi.org/10.1002/14651858.CD013114.pub2 (accessed 27 July 2022)

Coren, E., Hossain, R., Pardo, J., and Bakker, B. (2016) Interventions for promoting reintegration and reducing harmful behaviour and lifestyles in street‐connected children and young people, Cochrane Database of Systematic Reviews (1), available at: https://doi.org/10.1002/14651858.CD009823.pub3 (accessed 27 July 2022)

Cox, G., Callahan, P., Churchill, R., Hunot, V., Merry, S., Parker, A., and Hetrick, S. (2014) Psychological therapies versus antidepressant medication, alone and in combination for depression in children and adolescents, Cochrane Database of Systematic Reviews (11), available at: https://doi.org/10.1002/14651858.CD008324.pub3 (accessed 27 July 2022)

Cox, G., Fisher, C., De Silva, S., Phelan, M., Akinwale, O., Simmons, M., and Hetrick, S. (2012) Interventions for preventing relapse and recurrence of a depressive disorder in children and adolescents, Cochrane Database of Systematic Reviews (11), available at: https://doi.org/10.1002/14651858.CD007504.pub2 (accessed 27 July 2022)

Datta, S., Daruvala, R., and Kumar, A. (2020) Psychological interventions for psychosis in adolescents, Cochrane Database of Systematic Reviews (7), available at: https://doi.org/10.1002/14651858.CD009533.pub2 (accessed 27 July 2022)

Fanshawe, T., Halliwell, W., Lindson, N., Aveyard, P., Livingstone‐Banks, J., and Hartmann‐Boyce, J. (2017) Tobacco cessation interventions for young people, Cochrane Database of Systematic Reviews (11), available at: https://doi.org/10.1002/14651858.CD003289.pub6 (accessed 27 July 2022)

Furlong, M., McGilloway, S., Bywater, T., Hutchings, J., Smith, S., and Donnelly, M. (2012) Behavioural and cognitive‐behavioural group‐based parenting programmes for early‐onset conduct problems in children aged 3 to 12 years, Cochrane Database of Systematic Reviews, available at: https://doi.org/10.1002/14651858.CD008225.pub2 (accessed 13 August 2022)

Gantasala, S., Sullivan, P., and Thomas, A. (2013) Gastrostomy feeding versus oral feeding alone for children with cerebral palsy, Cochrane Database of Systematic Reviews (7), available at: https://doi.org/10.1002/14651858.CD003943.pub3 (accessed 27 July 2022)

Geretsegger, M., Fusar-Poli, L., Elefant, C., Mössler, KA., Vitale, G., Gold, C. (2022) Music therapy for autistic people, Cochrane Database of Systematic Reviews (5), available at: https://doi.org/10.1002/14651858.CD004381.pub4 (accessed 27 July 2022)

Gillies, D., Taylor, F., Gray, C., O'Brien, L., and D'Abrew, N. (2012) Psychological therapies for the treatment of post‐traumatic stress disorder in children and adolescents, Cochrane Database of Systematic Reviews (12), available at: https://doi.org/10.1002/14651858.CD006726.pub2 (accessed 27 July 2022)

Gilligan, C., Wolfenden, L., Foxcroft, D., Williams, A., Kingsland, M., Hodder, R., Stockings, E., McFadyen, T., Tindall, J., Sherker, S., Rae, J., and Wiggers, J. (2019) Family‐based prevention programmes for alcohol use in young people, Cochrane Database of Systematic Reviews (3), available at: https://doi.org/10.1002/14651858.CD012287.pub2 (accessed 27 July 2022)

Hetrick, S., Cox, G., Witt, K., Bir, J., and Merry, S. (2016) Cognitive behavioural therapy (CBT), third‐wave CBT and interpersonal therapy (IPT) based interventions for preventing depression in children and adolescents, Cochrane Database of Systematic Reviews (8), available at: https://doi.org/10.1002/14651858.CD003380.pub4 (accessed 27 July 2022)

Hoare, B., Wallen, M., Thorley, M., Jackman, M., Carey, L., and Imms, C. (2019) Constraint‐induced movement therapy in children with unilateral cerebral palsy, Cochrane Database of Systematic Reviews (4), available at: https://doi.org/10.1002/14651858.CD004149.pub3 (accessed 27 July 2022)

James, A., Reardon, T., Soler, A., James, G., and Creswell, C. (2020) Cognitive behavioural therapy for anxiety disorders in children and adolescents, Cochrane Database of Systematic Reviews (11), available at: https://doi.org/10.1002/14651858.CD013162.pub2 (accessed 27 July 2022)

Macdonald, G., Higgins, J., Ramchandani, P., Valentine, J., Bronger, L., Klein, P., O'Daniel, R., Pickering, M., Rademaker, B., Richardson, G., and Taylor, M. (2012) Cognitive‐behavioural interventions for children who have been sexually abused, Cochrane Database of Systematic Reviews (5), available at: https://doi.org/10.1002/14651858.CD001930.pub3 (accessed 27 July 2022)

Miyahara, M., Hillier, S., Pridham, L., and Nakagawa, S. (2017) Task‐oriented interventions for children with developmental Co.‐ordination disorder, Cochrane Database of Systematic Reviews (7), available at: https://doi.org/10.1002/14651858.CD010914.pub2 (accessed 27 July 2022)

Morgan, A., Dodrill, P., and Ward, E. (2012) Interventions for oropharyngeal dysphagia in children with neurological impairment, Cochrane Database of Systematic Reviews (10), available at: https://doi.org/10.1002/14651858.CD009456.pub2 (accessed 27 July 2022)

Oono, I., Honey, E., and McConachie, H. (2013) Parent‐mediated early intervention for young children with autism spectrum disorders (ASD), Cochrane Database of Systematic Reviews (4), available at: https://doi.org/10.1002/14651858.CD009774.pub2 (accessed 27 July 2022)

Reichow, B., Hume, K., Barton, E., and Boyd, B. (2018) Early intensive behavioral intervention (EIBI) for young children with autism spectrum disorders (ASD), Cochrane Database of Systematic Reviews (5), available at: https://doi.org/10.1002/14651858.CD009260.pub3 (accessed 27 July 2022)

Reichow, B., Steiner, A., and Volkmar, F. (2012) Social skills groups for people aged 6 to 21 with autism spectrum disorders (ASD), Cochrane Database of Systematic Reviews (7), available at: https://doi.org/10.1002/14651858.CD008511.pub2 (accessed 27 July 2022)

Ryan, J., Cassidy, E., Noorduyn, S., and O’Connell, N. (2017) Exercise interventions for cerebral palsy, Cochrane Database of Systematic Reviews (6), available at: https://doi.org/10.1002/14651858.CD011660.pub2 (accessed 27 July 2022)

Sneddon, H., Grimshaw, D., Livingstone, N., and Macdonald, G. (2020) Cognitive‐behavioural therapy (CBT) interventions for young people aged 10 to 18 with harmful sexual behaviour, Cochrane Database of Systematic Reviews (6), available at: https://doi.org/10.1002/14651858.CD009829.pub2 (accessed 27 July 2022)

Soltan, F., Cristofalo, D., Marshall, D., Purgato, M., Taddese, H., Vanderbloemen, L., Barbui, C., and Uphoff, E. (2022) Community‐based interventions for improving mental health in refugee children and adolescents in high‐income countries, Cochrane Database of Systematic Reviews (5), available at: https://doi.org/10.1002/14651858.CD013657.pub2 (accessed 27 July 2022)

Storebø, O., Andersen, M., Skoog, M., Hansen, S., Simonsen, E., Pedersen, N., Tendal, B., Callesen, H., Faltinsen, E., and Gluud, C. (2019) Social skills training for attention deficit hyperactivity disorder (ADHD) in children aged 5 to 18 years, Cochrane Database of Systematic Reviews (6), available at: https://doi.org/10.1002/14651858.CD008223.pub3 (accessed 27 July 2022)

Thabrew, H., Stasiak, K., Hetrick, S., Donkin, L., Huss, J., Highlander, A., Wong, S., and Merry, S. (2018) Psychological therapies for anxiety and depression in children and adolescents with long‐term physical conditions, Cochrane Database of Systematic Reviews (12), available at: https://doi.org/10.1002/14651858.CD012488.pub2 (accessed 27 July 2022)

Thabrew H., Stasiak K., Hetrick S., Wong S., Huss J., and Merry S. (2018) E‐Health interventions for anxiety and depression in children and adolescents with long‐term physical conditions, Cochrane Database of Systematic Reviews (8), available at: www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD012489.pub2/full (accessed 27 July 2022)

Walshe, M., Smith, M., and Pennington, L. (2012) Interventions for drooling in children with cerebral palsy, Cochrane Database of Systematic Reviews 2012 (2), available at: https://doi.org/10.1002/14651858.CD008624.pub2 (accessed 27 July 2022)

Witt, K., Hetrick, S., Rajaram, G., Hazell, P., Salisbury, T., Townsend, E., and Hawton, K. (2021) Interventions for self‐harm in children and adolescents, Cochrane Database of Systematic Reviews (3), available at: https://doi.org/10.1002/14651858.CD013667.pub2 (accessed 27 July 2022)

Evidently Cochrane (CP, MH)

Fancourt, D. (2016) Magic as medicine for children with hemiplegia, Evidently Cochrane Blog, 14 October, available at: www.evidentlycochrane.net/magic-medicine-children-hemiplegia/ (accessed 27 July 2022)

Thabrew, H. (2020) Talking therapies for anxiety and depression in children with long-term physical conditions, Evidently Cochrane Blog, 26 February, available at: www.evidentlycochrane.net/talking-therapies/ (accessed 27 July 2022)

Witt, K. (2021) Interventions for self-harm: the latest Cochrane evidence on what might help adults, children and young people, Evidently Cochrane Blog, 16 July, available at: www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD013667.pub2/epdf/full (accessed 27 July 2022)

Orygen (MH)

Anderson, R., and Zbukvic, I. (2020) Evidence summary: What is the evidence for peer support in youth mental health, Orygen, The National Centre of Excellence in Youth Mental Health, available at: www.orygen.org.au/Training/Resources/Peer-work/Evidence-summary/What-is-the-evidence-for-peer-support-in-youth-men/Orygen_Peer_Support_Evidence-Summary_2020-pdf.aspx?ext= (accessed 27 July 2022)

McCarthy, A. (2018) Evidence Summary: Brief psychological interventions for young people with common mental health conditions - which brief intervention elements have been tested and work? Orygen, The National Centre of Excellence in Youth Mental Health, available at: www.orygen.org.au/Training/Resources/General-resources/Evidence-summary/Brief-psychological-interventions-for-young-people/Orygen-brief-psychological-interventions-evidence. (accessed 27 July 2022)

Randell, A., and Scanlan, F. (2018) Evidence Summary: How effective are brief motivational interventions at reducing young people’s problematic substance use? 2nd Version, Orygen, The National Centre of Excellence in Youth Mental Health, available at: www.orygen.org.au/Training/Resources/Alcohol-and-substance-use/Evidence-summary/Motivational-Interviewing/The-Effectiveness-of-Motivational-Interviewing-for?ext= (accessed 27 July 2022)

Scanlan, F., Richardson, C., Bendall, S., Randell, A., Cooke, S., and Gradisar, M. (2019) Evidence to practice: Assessing and responding to sleep problems in young people seeking help for mental health difficulties - a guide for clinicians, Orygen, The National Centre of Excellence in Youth Mental Health. Available at: www.orygen.org.au/Training/Resources/Physical-and-sexual-health/Evidence-summary/Assessing-and-responding-to-sleep-problems-in-youn/orygen-evidence-to-practice-sleep-problems-mental?ext= (accessed 27 July 2022)

Simons, M. (2015) Evidence Summary: Shared decision-making for mental health -what is the evidence? Orygen, The National Centre of Excellence in Youth Mental Health, available at www.orygen.org.au/Training/Resources/General-resources/Evidence-summary/Shared-Decision-Making/Orygen_Shared_Decision_Making?ext= (accessed 27 July 2022)

Zbuvic, I., Cooke, S., and Anderson, R. (2020) Evidence summary: A review of secondary school-based mental health prevention programs, Orygen, The National Centre of Excellence in Youth Mental Health, available at: www.orygen.org.au/Training/Resources/Depression/Evidence-summary/A-review-of-secondary-school-based-mental-health-p/orygen-schools-evidence-summary-pdf.aspx?ext= (accessed 27 July 2022)

PenCRU (CP, ASD)

Peninsula Cerebra Research Unit (2013) What’s the evidence: Constraint induced movement therapy for children with hemiplegia, available at: www.pencru.org/media/universityofexeter/medicalschool/subsites/pencru/pdfs/WTE_CIMT_April_2013_2.pdf (accessed 27 July 2022)

Peninsula Cerebra Research Unit (2013) What’s the evidence: Lycra orthoses for cerebral palsy. Available at: www.pencru.org/media/universityofexeter/medicalschool/subsites/pencru/pdfs/WTE_Lycra_orthoses_April_2013.pdf (accessed 27 July 2022)

Peninsula Cerebra Research Unit (2014) What’s the evidence: Active computer games for children with motor impairments. Available at: www.pencru.org/media/universityofexeter/medicalschool/subsites/pencru/pdfs/WTE_Computer_Games_April_2013.pdf (accessed 27 July 2022)

Peninsula Cerebra Research Unit (2014) What’s the evidence: Conductive education for children with cerebral palsy and other neurodisability. Available at: www.pencru.org/media/universityofexeter/medicalschool/subsites/pencru/pdfs/Conductive_Education.pdf (accessed 27 July 2022)

Peninsula Cerebra Research Unit (2014) What’s the evidence: Equine-assisted therapy for children with disabilities? Available at: www.pencru.org/media/universityofexeter/medicalschool/subsites/pencru/pdfs/WtE_Therapy_with_Horses_May_2014.pdf (accessed 27 July 2022)

Peninsula Cerebra Research Unit (2014) What’s the evidence: Is auditory integration training effective for children with behavioural disorders? Available at: www.pencru.org/media/universityofexeter/medicalschool/subsites/pencru/pdfs/AIT_Tomatis.pdf (accessed 27 July 2022)

Peninsula Cerebra Research Unit (2014) What’s the evidence: Makaton Sign & Symbol for children with neutralizability. Available at: www.pencru.org/media/universityofexeter/medicalschool/subsites/pencru/pdfs/Alternative_Communication_systems.pdf (accessed 27 July 2022)

Peninsula Cerebra Research Unit (2014) What’s the evidence: Yoked prism lenses, eye care and children with disabilities. Available at: https://www.pencru.org/media/universityofexeter/medicalschool/subsites/pencru/pdfs/WtE_Yoked_Prism_April_2014.pdf. (accessed 27 July 2022)

Peninsula Cerebra Research Unit (2015) What’s the evidence: Advanced biomechanical rehabilitation for children with cerebral palsy and/or learning disability. Available at: www.pencru.org/media/universityofexeter/medicalschool/subsites/pencru/pdfs/ABR_Final_Summary.pdf (accessed on 27 July 2022)

Peninsula Cerebra Research Unit (2015) What’s the evidence: Applied behaviour analysis for autistic spectrum disorder. Available at: www.pencru.org/media/universityofexeter/medicalschool/subsites/pencru/pdfs/ABA_WtE_June_2015.pdf (accessed 27 July 2022)

Peninsula Cerebra Research Unit (2015) What’s the evidence: Feldenkrais and Anat Baniel for children with cerebral palsy. Available at: www.pencru.org/media/universityofexeter/medicalschool/subsites/pencru/pdfs/WTE_ABF_July_2013.pdf (accessed 27 July 2022)

Peninsula Cerebra Research Unit (2015) What’s the evidence: Massage for cerebral palsy. Available at: www.pencru.org/media/universityofexeter/medicalschool/subsites/pencru/pdfs/WTE_Massage_for_CP_Feb_2013.pdf (accessed 27 July 2022)

Peninsula Cerebra Research Unit (2015) Research summary: Sleep positioning systems for children with cerebral palsy: what evidence is there that they are they effective? Available at: www.pencru.org/media/universityofexeter/medicalschool/subsites/pencru/pdfs/Cochrane_Review_SPS.pdf (accessed 13 August 2022)

Peninsula Cerebra Research Unit (2017) What’s the evidence: Functional electrical stimulation (FES) to improve gait in children with cerebral palsy, available at: www.pencru.org/media/universityofexeter/medicalschool/subsites/pencru/FES_WtE_Summary_Sept_2017_update.pdf (accessed 27 July 2022)

Peninsula Cerebra Research Unit (2017) What’s the evidence: Improving social skills of young adults with autism, available at: www.pencru.org/media/universityofexeter/medicalschool/subsites/pencru/pdfs/Autism_and_social_skills.pdf (accessed 27 July 2022)

Peninsula Cerebra Research Unit (2018) What’s the evidence: Is Colourful Semantics an effective therapy for improving language development in children with autism spectrum disorder? Available at: www.pencru.org/media/universityofexeter/medicalschool/subsites/pencru/pdfs/WTE_Colourful_Semantics.pdf (accessed 27 July 2022)

Peninsula Cerebra Research Unit (2018) What’s the evidence: Therapies based on sensory integration in autism spectrum disorder. (Updated from, 2011), available at: www.pencru.org/media/universityofexeter/medicalschool/subsites/pencru/pdfs/Sensory_integration_UPDATE.pdf (accessed 27 July 2022)

Public Health Ontario (MH)

Public Health Ontario (2016) Evidence brief: Peer-to-peer social media and impact on health behaviour change in teens and young adults. Available at: www.publichealthontario.ca/-/media/Documents/E/2016/eb-peer-social-media.pdf?sc_lang=en. (accessed 27 July 2022)

Public Health Ontario (2014) Evidence brief: The positive impacts of physical activity on the whole child, available at: www.publichealthontario.ca/-/media/Documents/E/2014/eb-physical-activity.pdf?sc_lang=en (accessed 27 July 2022)

raisingchildren.net.au (ASD)

raisingchildren.net.au (2022) ‘Animal-assisted therapy’, Parent Guide: Therapies. Available at: https://raisingchildren.net.au/autism/therapies-guide/animal-assisted-therapy (accessed 27 July 2022)

raisingchildren.net.au (2022) ‘Applied behaviour analysis (ABA)’, Parent Guide: Therapies. Available at: https://raisingchildren.net.au/autism/therapies-guide/aba (accessed 27 July 2022)

raisingchildren.net.au (2022) ‘Ayurveda’, Parent Guide: Therapies. Available at: https://raisingchildren.net.au/autism/therapies-guide/ayurveda (accessed 27 July 2022)

raisingchildren.net.au (2022) ‘Chiropractic treatment’, Parent Guide: Therapies. Available at: https://raisingchildren.net.au/autism/therapies-guide/chiropractic-treatment (accessed 27 July 2022)

raisingchildren.net.au (2022) ‘Developmental social-pragmatic (DSP) model’, Parent Guide: Therapies. Available at: https://raisingchildren.net.au/autism/therapies-guide/dsp-model (accessed 27 July 2022)

raisingchildren.net.au (2022) ‘DIR/floortime model’, Parent Guide: Therapies. Available at: https://raisingchildren.net.au/autism/therapies-guide/dir-floortime-model (accessed 27 July 2022)

raisingchildren.net.au (2022) ‘Discrete trial training (DTT)’, Parent Guide: Therapies. Available at: https://raisingchildren.net.au/autism/therapies-guide/discrete-trial-training (accessed 27 July 2022)

raisingchildren.net.au (2022) ‘Early intensive behavioural intervention (EIBI)’, Parent Guide: Therapies. Available at: https://raisingchildren.net.au/autism/therapies-guide/early-intensive-behavioural-intervention (accessed 27 July 2022)

raisingchildren.net.au (2022) ‘Early start Denver model’, Parent Guide: Therapies. Available at: https://raisingchildren.net.au/autism/therapies-guide/early-start-denver-model. (accessed 27 July 2022)

raisingchildren.net.au (no date) ‘Facilitated communication’, Parent Guide: Therapies. Last updated or reviewed: 20 May 2022, available at: https://raisingchildren.net.au/autism/therapies-guide/facilitated-communication (accessed 27 July 2022)

raisingchildren.net.au (no date) ‘Functional communication training (FCT)’, Parent Guide: Therapies. Last updated or reviewed: 19 May 2022, available at: https://raisingchildren.net.au/autism/therapies-guide/fct (accessed 27 July 2022)

raisingchildren.net.au (no date) ‘Holding therapy’, Parent Guide: Therapies. Last updated or reviewed: 19 May 2022, available at: https://raisingchildren.net.au/autism/therapies-guide/holding-therapy (accessed 27 July 2022)

raisingchildren.net.au (no date) ‘Incidental training’, Parent Guide: Therapies. Last updated or reviewed: 20 May 2022, available at: https://raisingchildren.net.au/autism/therapies-guide/incidental-teaching (accessed 27 July 2022)

raisingchildren.net.au (no date) ‘Integrated listening systems program’, Parent Guide: Therapies. Last updated or reviewed: 20 May 2022, available at: https://raisingchildren.net.au/autism/therapies-guide/integrated-listening-systems (accessed 27 July 2022)

raisingchildren.net.au (no date) ‘Intensive interaction’, Parent Guide: Therapies. Last updated or reviewed: 20 May 2022, available at: https://raisingchildren.net.au/autism/therapies-guide/intensive-interaction (accessed 27 July 2022)

raisingchildren.net.au (no date) ‘Key word sign’, Parent Guide: Therapies. Last updated or reviewed: 20 May 2022, available at: https://raisingchildren.net.au/autism/therapies-guide/key-word-sign (accessed 27 July 2022)

raisingchildren.net.au (no date) ‘Lego therapy’, Parent Guide: Therapies. Last updated or reviewed: 20 May 2022, available at: https://raisingchildren.net.au/autism/therapies-guide/lego-therapy (accessed 27 July 2022)

raisingchildren.net.au (no date) ‘Lovaas program’, Parent Guide: Therapies. Last updated or reviewed: 20 May 2022, available at https://raisingchildren.net.au/autism/therapies-guide/lovaas-program (accessed 27 July 2022)

raisingchildren.net.au (no date) ‘More than words’, Parent Guide: Therapies. Last updated or reviewed: 20 May 2022, available at: https://raisingchildren.net.au/autism/therapies-guide/more-than-words- (accessed 27 July 2022)

raisingchildren.net.au (no date) ‘Music therapy’, Parent Guide: Therapies. Last updated or reviewed: 20 May 2022, available at: https://raisingchildren.net.au/autism/therapies-guide/music-therapy (accessed 27 July 2022)

raisingchildren.net.au (no date) ‘Neurofeedback’, Parent Guide: Therapies. Last updated or reviewed: 20 May 2022, available at: https://raisingchildren.net.au/autism/therapies-guide/neurofeedback (accessed 27 July 2022)

raisingchildren.net.au (no date) ‘Picture exchange communication systems (PECS)’, Parent Guide: Therapies. Last updated or reviewed: 16 June 2022, available at: https://raisingchildren.net.au/autism/therapies-guide/pecs (accessed 27 July 2022)

raisingchildren.net.au (no date) ‘Pivotal response treatment (PRT)’, Parent Guide: Therapies. Last updated or reviewed: 23 May 2022, available at: https://raisingchildren.net.au/autism/therapies-guide/prt (accessed 27 July 2022)

raisingchildren.net.au (no date) ‘Positive behaviour support (PBS)’, Parent Guide: Therapies. Last updated or reviewed: 20 May 2022, available at: https://raisingchildren.net.au/autism/therapies-guide/pbs (accessed 27 July 2022)

raisingchildren.net.au (no date) ‘Relationship development intervention (RDI)’, Parent Guide: Therapies. Last updated or reviewed: 23 May 2022, available at: https://raisingchildren.net.au/autism/therapies-guide/rdi- (accessed 27 July 2022)

raisingchildren.net.au (no date) ‘Responsive teaching’, Parent Guide: Therapies. Last updated or reviewed: 23 May 2022, available at https://raisingchildren.net.au/autism/therapies-guide/responsive-teaching (accessed 27 July 2022)

raisingchildren.net.au (no date) ‘SCERTS model’, Parent Guide: Therapies. Last updated or reviewed: 24 May 2022, available at https://raisingchildren.net.au/autism/therapies-guide/scerts-model (accessed 27 July 2022)

raisingchildren.net.au (no date) ‘Sensory integration training’, Parent Guide: Therapies. Last updated or reviewed: 24 May 2022, available at: https://raisingchildren.net.au/autism/therapies-guide/sensory-integration (accessed 27 July 2022)

raisingchildren.net.au (no date) ‘Social stories’, Parent Guide: Therapies. Last updated or reviewed: 24 May 2022, available at: https://raisingchildren.net.au/autism/therapies-guide/social-stories (accessed 27 July 2022)

raisingchildren.net.au (no date) ‘Speech-generating devices’, Parent Guide: Therapies. Last updated or reviewed: 24 May 2022, available at: https://raisingchildren.net.au/autism/therapies-guide/speech-generating-devices (accessed 27 July 2022)

raisingchildren.net.au (no date) ‘Tomatis method’, Parent Guide: Therapies. Last updated or reviewed: 24 May 2022, available at: https://raisingchildren.net.au/autism/therapies-guide/tomatis (accessed 27 July 2022)

raisingchildren.net.au (no date) ‘Treatment and education of autistic and related communications handicapped children (TEAACH)’, Parent Guide: Therapies. Last updated or reviewed: 24 May 2022, available at: https://raisingchildren.net.au/autism/therapies-guide/teacch (accessed 27 July 2022)

raisingchildren.net.au (no date) ‘Video modeling’, Parent Guide: Therapies. Last updated or reviewed: 24 May 2022, available at: https://raisingchildren.net.au/autism/therapies-guide/video-modelling (accessed 27 July 2022)

raisingchildren.net.au (no date) ‘Visual supports and visual schedules’, Parent Guide: Therapies. Last updated or reviewed: 25 May 2022, available at: https://raisingchildren.net.au/autism/therapies-guide/visual-supports (accessed 27 July 2022)

raisingchildren.net.au (no date) ‘Weighted vests and clothing’, Parent Guide: Therapies. Last updated or reviewed: 25 May 2022, available at: https://raisingchildren.net.au/autism/therapies-guide/weighted-vests (accessed 27 July 2022)

Royal College of Occupational Therapists (CP, Intellectual Disability)

Dunford, C., Milton, Y., Powrie, B., Ferreira, A. (2020) Evidence summary for collaborative, parent/carer-led, occupational therapy home programmes for children and young people, Royal College of Occupational Therapists: Specialist Section, Children, Young People and Families, available at: www.rcot.co.uk/sites/default/files/Home%20Programmes%20for%20Children%20-%20Evidence%20Summary%20Apr%202020.pdf (accessed 27 July 2022)

Supplementary materials

The supplementary materials for this article can be found online.

References

American Occupational Therapy Association (2011), “AOTA’s societal statement on health literacy”, American Journal of Occupational Therapy, Vol. 65 No. Supplement 6, pp. S78-S79, doi: 10.5014/ajot.2011.65S78.

Arksey, H. and O’Malley, L. (2005), “Scoping studies: towards a methodological framework”, International Journal of Social Research Methodology, Vol. 8 No. 1, pp. 19-32, doi: 10.1080/1364557032000119616.

Autistica (2018), “Parent-led video feedback therapy: communication interventions for young autistic children”, available at: www.autistica.org.uk/downloads/files/Autistica-evidence-summary-Parent-led-video-feedback-therapy-4.pdf (accessed 27 July 2022).

Autistica (2021), “Autistica support plan: how to build a proven support system for autistic people by 2030”, available at: www.autistica.org.uk/downloads/files/Autistica-Support-Plan.pdf (accessed 04 July 2022).

Autistica (2024), “Autistica”, available at: www.autistica.org.uk (accessed 13 August 2022).

Barrie, A., Glegg, S. and Mayson, T. (2012), “Evidence for practice: intervention effectiveness template”, available at: www.childdevelopment.ca/Libraries/Evidence_Center_Step4/E4P_Intervention_Effectiveness_Template.sflb.ashx (accessed 26 July 2022).

Burrough, M., Moys, R., West, G., Garrod, R., Lloyd, J. and Kelly, G. (2024), “Whole upper limb guidelines”, The Children’s Trust for Children with Brain Injury, available at: www.thechildrenstrust.org.uk/sites/default/files/2019-11/Wholeupperlimbguidelines_2926_0.pdf (accessed 13 August 2022).

Chapman, S. and Ryan-Vig, S. (2019), “A guide to blogging for Evidently Cochrane”, Cochrane UK, available at: https://uk.cochrane.org/sites/uk.cochrane.org/files/uploads/a_guide_to_blogging_for_evidently_cochrane._november_2019.pdf (accessed 19 August 2022).

Cleaton, M., Lorgelly, P. and Kirby, A. (2020), “Developmental coordination disorder in UK children aged 6–18 years: estimating the cost”, British Journal of Occupational Therapy, Vol. 83 No. 1, pp. 29-40, doi: 10.1177/0308022619866642.

CWHCBC (2017), “Child development and rehabilitation”, available at: www.childdevelopment.ca/Home.aspx (accessed 13 August 2022).

Dunford, C., Milton, Y., Powrie, B. and Ferreira, A. (2020), “Evidence summary for collaborative, parent/carer-led, occupational therapy home programmes for children and young people”, Royal College of Occupational Therapists: Specialist Section, Children, Young People and Families, available at: www.rcot.co.uk/sites/default/files/Home%20Programmes%20for%20Children%20-%20Evidence%20Summary%20Apr%202020.pdf (accessed 27 July 2022).

Frolek, C.G. and Kingsley, K. (2020), “Occupational therapy practice guidelines for early childhood: birth–5 years”, American Journal of Occupational Therapy, Vol. 74 No. 3, doi: 10.5014/ajot.2020.743001.

Galvao, M., Carmona, F., Grand, R., Pluye, P. and Ricarte, I. (2018), “Disseminating health evidence summaries to increase evidence use in health care”, Revista de Saúde Pública, Vol. 52, p. 57, doi: 10.11606/s1518-8787.2018052000418.

Hanney, S.R., Castle-Clarke, S., Grant, J., Guthrie, S., Henshall, C., Mestre-Ferrandiz, J., Pistollato, M., Pollitt, A., Sussex, J. and Wooding, S. (2015), “How long does biomedical research take? Studying the time taken between biomedical and health research and its translation into products, policy, and practice”, Health Research Policy and Systems, Vol. 13 No. 1, doi: 10.1186/1478-4505-13-1.

Higgins, J.P., Thomas, J., Chandler, J., Cumpston, M., Li, T., Page, M.J. and Welch, V.A. (2023), “Cochrane handbook for systematic reviews of interventions, version 6.4”, available at: https://training.cochrane.org/handbook/current (accessed 17 February 2024).

Khalil, H., Peters, M., Tricco, A., Pollock, D., Alexander, L., McInerney, P., Godfrey, C. and Munn, Z. (2021), “Conducting high quality scoping reviews-challenges and solutions”, Journal of Clinical Epidemiology, Vol. 130, pp. 156-160, doi: 10.1016/j.jclinepi.2020.10.009.

Khangura, S., Konnyu, K., Cushman, R., Grimshaw, J. and Moher, D. (2012), “Evidence summaries: the evolution of a rapid review approach”, Systematic Reviews, Vol. 1 No. 10, doi: 10.1186/2046-4053-1-10.

Levac, D., Colquhoun, H. and O'Brien, K. (2010), “Scoping studies: advancing the methodology”, Implementation Science, Vol. 5 No. 1, doi: 10.1186/1748-5908-5-69.

Milton, Y., Dunford, C. and Newby, K. (2019), “Occupational therapy home programmes for children with cerebral palsy: a national survey of United Kingdom paediatric occupational therapy practice”, British Journal of Occupational Therapy, Vol. 82 No. 7, pp. 443-451, doi: 10.1177%2F0308022619830263.

Newlove-Delgado, T., Williams, T., Robertson, K., McManus, S., Sadler, K., Vizard, T., Cartwright, C., Mathews, F., Norman, S., Marcheselli, F. and Ford, T. (2021), “Mental health of children and young people in England”, NHS Digital, available at: https://files.digital.nhs.uk/97/B09EF8/mhcyp_2021_rep.pdf (accessed 22 August 2022).

NICE (2017), “Evidence summaries: process guide”, available at: www.nice.org.uk/process/pmg31 (accessed 25 May 2022).

Novak, I. and Honan, I. (2019), “Effectiveness of paediatric occupational therapy for children with disabilities: a systematic review”, Australian Occupational Therapy Journal, Vol. 66 No. 3, pp. 258-273, doi: 10.1111/1440-1630.12573.

OAHPP (2022), “Public Health Ontario”, available at: www.publichealthontario.ca/ (accessed 13 August 2022).

Opiyo, N., Shepperd, S., Musila, N., Allen, E., Nyamai, R., Fretheim, A. and English, M. (2013), “Comparison of alternative evidence summary and presentation formats in clinical guideline development: a mixed-method study”, PloS One, Vol. 8 No. 1, doi: 10.1371/journal.pone.0055067.g001.

Orygen (2022), “Orygen”, available at: www.orygen.org.au/ (accessed 13 August 2022).

Page, M., McKenzie, J., Bossuyt, P., Boutron, I., Hoffmann, T., Mulrow, C., et al. (2021), “The PRISMA 2020 statement: an updated guideline for reporting systematic reviews”, BMJ, Vol. 372 No. 71, doi: 10.1136/bmj.n71.

Peters, M., Godfrey, C., McInerney, P., Munn, Z., Tricco, A. and Khalil, H. (2020), “Scoping reviews”, Chapter 11 in Aromataris, E., Lockwood, C., Porritt, K., Pilla, B. and Jordan, Z. (Eds), JBI Manual for Evidence Synthesis, JBI: 2024, available at: https://synthesismanual.jbi.global, doi: 10.46658/JBIMES-24-09.

Petkovic, J., Welch, V., Jacob, M., Yoganathan, M., Ayala, A., Cunningham, H. and Tugwell, P. (2016), “The effectiveness of evidence summaries on health policymakers and health system managers use of evidence from systematic reviews: a systematic review”, Implementation Science, Vol. 11 No. 1, doi: 10.1186/s13012-016-0530-3.

Pitcher, N., Mitchell, D. and Hughes, C. (2022), “Template and guidance for writing a Cochrane plain language summary”, Cochrane. Version 1, available at: https://training.cochrane.org/guidance-writing-cochrane-plain-language-summary.pdf (accessed 28 July 2022).

Randell, A. and Scanlan, F. (2018), “Evidence summary: how effective are brief motivational interventions at reducing young people’s problematic substance use?”, 2nd Version. Orygen, The National Centre of Excellence in Youth Mental Health, available at: https://orygen.org.au/Training/Resources/Alcohol-and-substance-use/Evidence-summary/Motivational-Interviewing/The-Effectiveness-of-Motivational-Interviewing-for?ext=.#:∼:text=In%20summary%2C%20while%20MI%20has,clinical%20utility%20of%20this%20finding (accessed 13 August 2022).

RCN (2024), “Therapies guide”, available at: https://raisingchildren.net.au/autism/therapies-guide (accessed 13 August 2022).

RCOT (2021), “Professional standards for occupational therapy, conduct and ethics, College of Occupational Therapists”, available at: www.rcot.co.uk/publications/professional-standards-occupational-therapy-practice-conduct-and-ethics (accessed 25 August 2022).

RCOT (2022), “Royal College of Occupational Therapists”, available at: www.rcot.co.uk/ (accessed 13 August 2022).

The Children’s Trust (2019), “Evidence summaries”, Volume 2, available at: www.thechildrenstrust.org.uk/sites/default/files/2019-11/2019combinedEvidenceSummariesplusappendices_2844.pdf (accessed 27 July 2022).

Tricco, A., Lillie, E., Zarin, W., O'Brien, K., Colquhoun, H., Levac, D., Moher, D., Peters, M., Horsley, T., Weeks, L., Hempel, S., Aki, E., Chang, C., McGowan, J., Steward, L., Hartling, L., Aldcroft, A., Wilson, M., Garritty, C., Lewin, S., Godfrey, C., Macdonald, M., Langlois, E., Soares-Weiser, K., Moriarty, J., Clifford, T., Tuncalp, O. and Straus, S. (2018), “PRISMA extension for scoping reviews (PRISMAScR): checklist and explanation”, Annals of Internal Medicine, Vol. 169 No. 7, pp. 467-473, doi: 10.7326/M18-0850.

UoE (2024), “Peninsula Childhood Disability Research Unit”, available at: www.pencru.org/ (accessed 13 August 2022).

Watt, A., Cameron, A., Sturm, L., Lathlean, T., Babidge, W., Blamey, S., Facey, K., Hailey, D., Norderhaug, I. and Maddern, G. (2008), “Rapid versus full systematic reviews: validity in clinical practice?”, ANZ Journal of Surgery, Vol. 78 No. 11, pp. 1037-1040, doi: 10.1111/j.1445-2197.2008.04730.x.

Wiley (2022), “Cochrane Library”, available at: www.cochranelibrary.com/ (accessed 13 August 2022).

World Health Organization (WHO) (1986), “The Ottawa Charter for health promotion”, Geneva, Switzerland, available at: www.who.int/healthpromotion/conferences/previous/ottawa/en/index.html (accessed 30 November 2022).

Further reading

RCN (2022), “raisingchildren.net.au”, available at: https://raisingchildren.net.au/ (accessed 13 August 2022).

Cochrane UK (2022), “Evidently Cochrane”, available at: www.evidentlycochrane.net/ (accessed 19 August 2022).

Acknowledgements

Ethics approval: Deemed not required for this study on 2 February 2022. Reference #: 35777-NER-Jan/2022-37660-1.

Funding: This research was completed in partial fulfilment of MSc (pre-registration) Occupational Therapy and received no specific grant from any funding agency in the public, commercial or not-for-profit sectors.

My wife Carly, who moved overseas with me to support my dreams and supported me throughout this process. For Charlie Marriage, the greatest leader of our cohort, who held us all together through a difficult year of graduate school during a pandemic.

Declaration of conflicting interest: No conflict of interest.

Statement of contributorship: Original research idea by the research supervisor C.D., to perform a scoping review of ESs relevant to child/youth OTs. P.M. refined the project to focus on open-source ESs that could also be accessible to parents and families of children receiving occupational therapy. All search strategies, literature reviews, data charting and analysis were completed by P.M.

Patient/public involvement: During the development, progress and reporting of the submitted research, patient and public involvement in the research was not included at any stage of the research.

Corresponding author

Philip Muir can be contacted at: philip.g.muir@gmail.com

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