Prelims
Living Life to the Fullest: Disability, Youth and Voice
ISBN: 978-1-83909-445-3, eISBN: 978-1-83909-444-6
Publication date: 9 May 2022
Citation
Liddiard, K., Whitney-Mitchell, S., Evans, K., Watts, L., Spurr, R., Vogelmann, E., Runswick-Cole, K. and Goodley, D. (2022), "Prelims", Living Life to the Fullest: Disability, Youth and Voice, Emerald Publishing Limited, Leeds, pp. i-xii. https://doi.org/10.1108/978-1-83909-444-620221011
Publisher
:Emerald Publishing Limited
Copyright © 2022 Kirsty Liddiard, Sally Whitney-Mitchell, Katy Evans, Lucy Watts, Ruth Spurr, Emma Vogelmann, Katherine Runswick-Cole and Dan Goodley
Half Title Page
LIVING LIFE TO THE FULLEST
Title Page
LIVING LIFE TO THE FULLEST
Disability, Youth and Voice
BY
KIRSTY LIDDIARD
University of Sheffield, UK
SALLY WHITNEY-MITCHELL
University of Sheffield, UK
KATY EVANS
University of Sheffield, UK
LUCY WATTS MBE
University of Sheffield, UK
RUTH SPURR
University of Sheffield, UK
EMMA VOGELMANN
University of Sheffield, UK
KATHERINE RUNSWICK-COLE
University of Sheffield, UK
AND
DAN GOODLEY
University of Sheffield, UK
United Kingdom – North America – Japan – India – Malaysia – China
Copyright Page
Emerald Publishing Limited
Howard House, Wagon Lane, Bingley BD16 1WA, UK
First edition 2022
Copyright © 2022 Kirsty Liddiard, Sally Whitney-Mitchell, Katy Evans, Lucy Watts, Ruth Spurr, Emma Vogelmann, Katherine Runswick-Cole, and Dan Goodley. Published under exclusive licence by Emerald Publishing Limited.
Reprints and permissions service
Contact: permissions@emeraldinsight.com
No part of this book may be reproduced, stored in a retrieval system, transmitted in any form or by any means electronic, mechanical, photocopying, recording or otherwise without either the prior written permission of the publisher or a licence permitting restricted copying issued in the UK by The Copyright Licensing Agency and in the USA by The Copyright Clearance Center. No responsibility is accepted for the accuracy of information contained in the text, illustrations or advertisements. The opinions expressed in these chapters are not necessarily those of the Author or the publisher.
British Library Cataloguing in Publication Data
A catalogue record for this book is available from the British Library
ISBN: 978-1-83909-445-3 (Print)
ISBN: 978-1-83909-444-6 (Online)
ISBN: 978-1-83909-446-0 (Epub)
Contents
List of Illustrations | vii | |
About the Authors | ix | |
Acknowledgements | xi | |
1. | Living Life to the Fullest: Our Project | 1 |
Sally Whitney-Mitchell and Katy Evans | ||
2. | Theorising Disability: Towards a DisHuman Perspective | 11 |
Dan Goodley, Katherine Runswick-Cole and Kirsty Liddiard | ||
3. | Co-production, Participatory and Emancipatory Disability Research | 25 |
Kirsty Liddiard and Lucy Watts MBE | ||
4. | Posthuman Connections: Rethinking Animal–Human Relationships | 43 |
Katy Evans, Sally Whitney-Mitchell and Ruth Spurr | ||
5. | Disability and Faith | 61 |
Sally Whitney-Mitchell and Katherine Runswick-Cole | ||
6. | Rethinking Sexuality, Our Intimate Selves and Our Relationships with Others | 79 |
Katy Evans, Sally Whitney-Mitchell and Kirsty Liddiard | ||
7. | Labour in the Lives of Disabled Young People | 99 |
Katy Evans, Sally Whitney-Mitchell and Katherine Runswick-Cole | ||
8. | Making Meaningful Impact in and with Schools | 115 |
Greenacre Co-Researchers: Jemma, Marconi, Logan, Alex, Stevie and Emily; Harry Gordon and Kirsty Liddiard | ||
9. | Desiring Life and Living with Death | 125 |
Katy Evans, Sally Whitney-Mitchell and Kirsty Liddiard | ||
References | 147 | |
Index | 165 |
List of Illustrations
Illustration 1: | Image Description: Designed by Harry Gordon, SEND Teacher, Greenacre School, This Diagram Shows Our Methods of How We Explored the Notion of Developing Questions for an Interview Schedule. | 118 |
Illustration 2: | Image Description: Harry Designed an Ethics Assault Course, Set Out in the School Hall, Through Which Greenacre Co-researchers Could Play with and Learn About Ethical Considerations in Research. All of the Activities Were Made Accessible for All Children, Regardless of Disability, Impairment and/or Label. | 119 |
About the Authors
Kirsty Liddiard is currently a Senior Research Fellow in the School of Education at the University of Sheffield and a theme Co-leader in iHuman. She is the author of The Intimate Lives of Disabled People (2018, Routledge) and the Co-editor of The Palgrave Handbook of Disabled Children’s Childhood Studies (2018, Palgrave) with Tillie Curran and Katherine Runswick-Cole. She is also Co-editor of Being Human in Covid-19 (in press, Bristol University Press) with Warren Pearce, Paul Martin and Stevie de Saille.
Sally Whitney-Mitchell is an Academic Researcher with a specialist interest in the lives of disabled young people, their access to work and the impact of assistance dogs in their lives. Using methods of co-production and virtual technologies, she works and writes (both academically and for wider audiences) from the comfort of her home as a co-researcher in various projects with the University of Sheffield, Scope, Youth Employment UK, Canine Partners and the Open University. She has consequently led the Canine Care Project in collaboration with Canine Partners, who partnered her with her own assistance dog Ethan. Both Ethan, and her strong faith, have helped her navigate her chronic, complex illnesses and spur her passion to make the most of every situation.
Katy Evans works as an Associate for Changing Our Lives, a rights-based organisation which champions the rights of disabled people and people with mental health difficulties to live ordinary lives. She was also an Advisor to the government during the 2014 Special Educational Needs and Disability reforms. Alongside this, she worked with the Council for Disabled Children to improve co-production with disabled young people nationally. She writes about her lived experiences of disability and being a trauma survivor and her difficulty accessing appropriate, non-pathologising mental health services. She has been a Co-researcher on the Living Life to the Fullest Project for four years and is keen to continue research in this field.
Lucy Watts MBE is a proud young disabled woman with a passion for the great outdoors, for writing and photography, who dedicates her time to making a difference for others and lives life to the fullest with support from her assistance dog Molly.
Ruth Spurr is a blogger and part-time model for Zebedee. She blogs about illness, youth, young people’s lives and her assistance dog, Willow. Our Living Life to the Fullest Co-production Toolkit, Why Can’t We Dream? was titled by her. She also regularly gives talks to primary school children on disability, her story and her mission to live life to the full.
Emma Vogelmann is a leading activist in the disabled community. She currently works as Lead Policy Adviser at Scope, on the children and young people team where she focusses on the issues faced by disabled children, young people and their families. Her main areas of focus are youth employment and inclusivity of disabled children.
Katherine Runswick-Cole is Professor of Education and Director of Research in The School of Education at the University of Sheffield, UK. She is known for her work critical disability studies and disabled children’s childhood studies and is Co-editor of The Palgrave Handbook of Disabled Children’s Childhood Studies (2018, Palgrave).
Dan Goodley is Professor of Disability Studies and Education and Co-director of iHuman, University of Sheffield. His recent publications include Disability and Other Human Questions (2020, Emerald) and Disability Studies: An Interdisciplinary Introduction (2016, Sage, Second Edition).
Harry Gordon is a UPS Teacher at Greenacre Special School in Barnsley. He has developed the research partnership between Greenacre School and the University of Sheffield’s iHuman Research Institute. Through his passion for developing the ways in which schools and academies co-produce research in the classroom, he has championed a change in practice to enable Special Educational Needs and Disability students to have greater influence over the decisions that affect their lives. He and his students collaborated with Dr Kirsty Liddiard to co-produce the ‘Why Can’t We Dream?’ toolkit (see Chapter 8). He is proud to lead Wellspring academy trust-wide training on co-producing research in the classroom: training practitioners in the methods, language and skills to enable young people with disabilities to have their voices heard on the issues that matter most to them.
Acknowledgements
Firstly, we would like to thank all of the children and young people and their families and allies who made The Living Life to the Fullest Project possible. The stories, contributions and energy you have shared with us are documented and honoured through this book.
This work was generously supported by the Economic and Social Research Council (ESRC) under grant ES/P001041/1, Life, Death, Disability and the Human: Living Life to the Fullest.
We also thank iHuman and the School of Education at the University of Sheffield for the continued support.
We thank our Community Research Partners, Impact Partners and other valued contributors for their support and insight throughout the project:
Purple Patch Arts
Pathfinders Neuromuscular Alliance
Good Things Foundation
Together for Short Lives
MDUK Trailblazers
Action Duchenne
Canine Partners
Louise Atkinson
Harry Gordon
Greenacre School, Barnsley and the Wellspring Academy Trust
Greenacre Co-researchers: Jemma, Marconi, Logan, Alex, Stevie and Emily
Rainbows Children’s Hospice
Attenborough Arts Centre
Sipho Ndopu
We thank Carrie Aimes, an original member of The Co-Researcher Collective, who supported our early arts focus.
We would like to thank our assistance dogs, who have supported us in our work: Ethan, Folly, Willow and Molly.
We also thank Holly Yuille for her patient and kind contributions and expert proof-reading of the final drafts of many chapters in this book.
- Prelims
- 1. Living Life to the Fullest: Our Project
- 2. Theorising Disability: Towards a DisHuman Perspective
- 3. Co-production, Participatory and Emancipatory Disability Research
- 4. Posthuman Connections: Rethinking Animal–Human Relationships
- 5. Disability and Faith
- 6. Rethinking Sexuality, Our Intimate Selves and Our Relationships with Others
- 7. Labour in the Lives of Disabled Young People
- 8. Making Meaningful Impact in and with Schools
- 9. Desiring Life and Living with Death
- References
- Index