Prelims

Different Diagnoses, Similar Experiences: Narratives of Mental Health, Addiction Recovery and Dual Diagnosis

ISBN: 978-1-80455-849-2, eISBN: 978-1-80455-848-5

Publication date: 27 August 2024

Citation

(2024), "Prelims", Norton, M.J. and Cullen, O.J. (Ed.) Different Diagnoses, Similar Experiences: Narratives of Mental Health, Addiction Recovery and Dual Diagnosis, Emerald Publishing Limited, Leeds, pp. i-xix. https://doi.org/10.1108/978-1-80455-848-520241028

Publisher

:

Emerald Publishing Limited

Copyright © 2024 Michael John Norton and Oliver John Cullen


Half Title Page

Different Diagnoses, Similar Experiences

Title Page

Different Diagnoses, Similar Experiences: Narratives of Mental Health, Addiction Recovery and Dual Diagnosis

EDITED BY

MICHAEL JOHN NORTON

HSE Office of Mental Health Engagement and Recovery, Ireland

AND

OLIVER JOHN CULLEN

HSE Mental Health Services, Ireland

United Kingdom – North America – Japan – India – Malaysia – China

Copyright Page

Emerald Publishing Limited

Emerald Publishing, Floor 5, Northspring, 21-23 Wellington Street, Leeds LS1 4DL.

First edition 2024

Editorial matter and selection © 2024 Michael John Norton and Oliver John Cullen.

Individual chapters © 2024 The authors.

Chapters 9, 12, and 21 © 2024 Anonymous.

Published under exclusive licence by Emerald Publishing Limited.

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No part of this book may be reproduced, stored in a retrieval system, transmitted in any form or by any means electronic, mechanical, photocopying, recording or otherwise without either the prior written permission of the publisher or a licence permitting restricted copying issued in the UK by The Copyright Licensing Agency and in the USA by The Copyright Clearance Center. Any opinions expressed in the chapters are those of the authors. Whilst Emerald makes every effort to ensure the quality and accuracy of its content, Emerald makes no representation implied or otherwise, as to the chapters’ suitability and application and disclaims any warranties, express or implied, to their use.

British Library Cataloguing in Publication Data

A catalogue record for this book is available from the British Library

ISBN: 978-1-80455-849-2 (Print)

ISBN: 978-1-80455-848-5 (Online)

ISBN: 978-1-80455-850-8 (Epub)

Contents

List of Figures ix
About the Editors xi
About the Contributors xiii
Acknowledgements xvii
Part 1: Context
Chapter 1: Contextual and Personal Introduction to the Text
Michael John Norton and Oliver John Cullen 3
Chapter 2: Mental Health, Addiction and Dual Diagnosis: National and International Policy Context
Oliver John Cullen and Michael John Norton 19
Chapter 3: Recovery in Mental Health, Addiction and Dual Diagnosis
Michael John Norton and Oliver John Cullen 35
Chapter 4: The Conundrum of Dual Diagnosis
Oliver John Cullen 43
Chapter 5: Co-production and the Lived Experience Perspective
Michael John Norton 47
Chapter 6: The Challenges of Mental Health, Addiction and Dual Diagnosis in an Irish Context
Oliver John Cullen and Michael John Norton 57
Part 2: Mental Health
Chapter 7: Diagnosed Disconnect – Prescribed Harm
Michaela Mc Daid 65
Chapter 8: A Well-Trodden Path
L. McGowan 77
Chapter 9: Love
The Eternal Student 85
Chapter 10: Transforming Torment
Andrew C. Grundy 89
Chapter 11: Nothing In, Nothing Out
Jenny Langley 95
Chapter 12: Life in the Circular Lane
Anonymous 103
Part 3: Addiction
Chapter 13: My Name Is Paul…
Paul 109
Chapter 14: Arlene's Pathway to Recovery
Arlene 117
Chapter 15: Jack's Hope
Jack Kilkenny 123
Chapter 16: My Story
John 125
Chapter 17: We're So Much Stronger than We Think
Mark Coyle 129
Chapter 18: Journey to Recovery
Shay 133
Part 4: Dual Diagnosis
Chapter 19: Duelling With Dual Diagnosis
Claire Foy 141
Chapter 20: My New Beginning, Owning My One Precious Life
Kate Byrne 149
Chapter 21: To Hell and Back
Anonymous 155
Chapter 22: A Place to Be
Laura Hardiman 159
Chapter 23: A Version of Me
Amy Ryan 165
Chapter 24: Maybe One Day…
James (Jimmy) Lewis 171
Part 5: The Fusion of Experiences
Chapter 25: Fusing Experiences, Reflexive Thematic Analysis
Michael John Norton and Oliver John Cullen 177
Chapter 26: Recommendations as it Relates to Policy, Practice and Service Users
Oliver John Cullen and Michael John Norton 207
Part 6: Concluding Remarks
Chapter 27: Conclusions and Sign Posting
Oliver John Cullen and Michael John Norton 213

List of Figures

Chapter 1

Fig 1.1. Mental Health, Addiction and Dual Diagnosis Throughout the Ages – A Detailed Timeline. 5

Chapter 2

Fig. 2.1. Irish Policy Timeline. 21
Fig. 2.2. Referral Pathway for Dual Diagnosis. 23
Fig. 2.3. Organising Framework for Sharing the Vision. 24
Fig. 2.4. Systems Map of Addiction Supports. 27
Fig. 2.5. Australian Policy Timeline. 28
Fig. 2.6. Milestones in the Development of the National Mental Health Strategy, 1991–2008. 30
Fig. 2.7. Multiagency, Collaborate Approach to Mental Health Care. 31

Chapter 3

Fig. 3.1. Timeline of Recovery in Mental Health, Addiction and Dual Diagnosis. 36

Chapter 5

Fig. 5.1. Sherry Arnstein’s Ladder of Citizen Participation. 48
Fig. 5.2. MHER’s Engagement Continuum. 49

Chapter 25

Fig. 25.1 The Theme of Trauma. 179
Fig. 25.2 The Theme of Nose Dive. 181
Fig. 25.3 Epiphany of Stasis. 182
Fig. 25.4 The Theme of Diagnosis. 184
Fig. 25.5 Mourning the Self I Used to Be. 186
Fig. 25.6 ‘Promised Land of Recovery’. 188
Fig. 25.7 The Theme of Trauma [Addiction]. 192
Fig. 25.8 ‘Mind Fucked’. 193
Fig. 25.9 Seeking Help. 196
Fig. 25.10 ‘A Nice Clean Sober Life!’. 197
Fig. 25.11 The Theme of Trauma [Dual Diagnosis]. 199
Fig. 25.12 ‘The Devil on my Shoulders’. 200
Fig. 25.13 ‘Transformation of Self’. 203
Fig. 25.14 ‘Something to Do, Somewhere to Be, Someone to Talk To’. 204

About the Editors

Michael John Norton is a Recovery and Engagement Programme Lead with the HSE Mental Health Engagement and Recovery Office, based in the Republic of Ireland. He is also a Part-time Lecturer at University College Cork and a Dissertation Supervisor at RCSI Graduate School of Healthcare Management. In his role, Michael John has responsibility for the implementation of recovery-orientated practice across the entire Irish mental health services. One such aspect of this is Michael’s involvement in the development of Peer Support Workers in the said service. He is also module co-ordinator for a module exploring mental health policy and practice with University College Cork as part of the QQI level six award in Mental Health in the Community. Additionally, Michael is also a lifelong learner and is currently engaged in a number of programmes of study at postgraduate level. When Michael is not working and studying, he spends his time being an advocate for mental health and evidence-based practice through his involvement in the peer-review process for several high-impact journals and in being a member of several working groups nationally and internationally looking at areas such as co-production, family recovery and trauma. Michael is also an early career researcher whose research interests include peer support work, co-production, patient and public involvement, recovery education, mental health and personal/social recovery.

Oliver John Cullen has lived experience of dual diagnosis – a combination of both mental health and addiction challenges. He is a passionate advocate for recovery in his community where he has worked and volunteered extensively. His roles include Recovery Education Facilitator, Peer Support Worker, Peer Advocacy through engagement with forums and a Public and Patient Involvement Consultant on several research projects, covering areas that include peer support, co-production and service change. Oliver has spoken extensively and openly about his lived experience both on radio and a variety of mental health conferences. Oliver’s mission is to encourage change within services and wider society by encouraging others to speak about their own challenges and experiences in order to reduce stigma. He has qualifications relating to peer support and addictions from Dublin City University and the Institute of Technology Carlow, now South East Technological University. For Oliver, the purpose of this edited book is to allow others to speak about their own recovery journey in order to demonstrate that recovery is possible for those who choose such a path. He hopes you enjoy, learn and experience hope as you read this book.

About the Contributors

Anonymous 1 (Chapter 12) – A human following a deeply reflective life, breaking patterns, who is a jack of all trades but master of none, deeply interested in humans and helping and learning to rest.

Anonymous 2 (Chapter 21) – Anonymous 2 is a 28-year-old male from the south of Ireland. After secondary school, he studied French, mathematics, and psychology in NUI Maynooth [now Maynooth University] for a year. He dropped out of NUI Maynooth after the year and started working as a security guard for five years and then as a Heavy Goods Vehicle [HGV] driver for a further two and a half years. Now, he is in recovery and is currently upskilling with the hope of soon entering back into full employment.

Arlene is a 38-year-old from Co. Kilkenny. She has pretty much lived there all her life and loved it. She was surrounded by her family in a village that, as a teenager, she couldn’t wait to escape from! But priorities shift as you grow older and she couldn’t be happier than where she is now, surrounded by all this support from a loving family – in all aspects of her life, not just in recovery. She is still trying to find the new Arlene after the past 15 years or so. She keeps to herself but is very social with people she knows and trusts. She was good fun and friendly, although sometimes her face might tell you differently as she was a very deep thinker, and always had been. She liked to know the answers to everything and never liked to wonder for too long before finding out. Psychology and behaviour fascinated her, and she had studied it, although this wasn’t the area she worked in. Like most mothers, she lived and breathed for her kids, mentioning that they kept her going. She expressed being very proud of them and proud of herself for who they were so far. She stated her love for animals, mentioning she had six pets at the moment and counting. She liked to think she was kind-hearted and liked to help people if at all possible.

Kate Byrne is an example of, and advocate of recovery in the community. She is involved in 12-step programmes and supports others in recovery. She recently completed a Diploma in Training and Development in Sustainable Workplaces, including Equality and Addiction Studies. She is currently studying for a Master’s in Business Administration. She is a mother to three wonderful children who are flourishing in a loving home. Kate believes that the experiences and struggles we survive in life, add golden threads to the tapestry of our lives. Thus, allowing us to enrich the lives of those around us.

Mark Coyle is a 45-year-old and from Ballymun in North Dublin. He was a Professional Dry Cleaner and enjoyed working in this area for the last 25 years. He has a beautiful daughter who is nine years of age and her name is Eva. Eva is his hope and recovery journey as she shone the light on him especially when the days got hard with her amazing smile and the fun elements she brings to his life and that is how he knows now that hope and recovery are possible. He has been in recovery for the last six years from alcohol and suffered from anxiety due to alcohol intake and other stresses for the last 20 years. He has hope now, and telling his story helps his recovery and hopes it inspires others.

Claire Foy in 2014, at the age of 34, entered the workforce. Having been influenced by the frustration of her own experience and a drive to support others who were struggling with mental health and addiction, Claire has been working in the charity and NGO sector with marginalised groups since that point. She has experience as a frontline worker in low-threshold settings with marginalised populations and later in governance, policy and advocacy roles in several national charities. She is hoping to return to education to complete her post-graduate studies and she has long-term goals that include continuing a career path that enables her to influence social justice and health care reforms for marginalised populations, in particular for those experiencing, homelessness, addiction and those within the prison system.

Andrew C. Grundy is currently working as a Lived Experience Researcher in the School of Health Sciences, University of Manchester, UK. He is also the Lived Experience Research Lead at the Mental Health Policy Research Unit, University College London. Andrew’s PhD explored service user perspectives on and experiences of risk and its assessment and management in an acute psychiatric setting. His main research interests are in understanding concepts of ‘mental health’ and mental health service provision from service user/survivor perspectives. He’s also interested in critical approaches to public involvement and co-production in research.

Laura Hardiman is 30 years old and lives in Wexford. She has spent the last 6 years building a recovery lifestyle that keeps her feeling connected to herself, others and her place in the world. She likes a balanced life of being outdoors and sitting on the couch, watching horror films and reading poetry in equal measure. Her current focus is on community and working towards social recovery. She tries to always keep her mind open and changeable, but one thing she knows for sure is the healing power of relationships.

John had been in recovery from addiction and mental health challenges for two decades. His journey hadn’t always been easy but deemed it undoubtedly worthwhile and meaningful. Currently, he is working in mental health services, where he utilised his lived experience to inform his practice alongside his professional competencies. He expressed hope that his narrative, along with the many other stories of hope in the book, would be helpful.

Jack Kilkenny is a recovering addict and alcoholic. He reflected on how his life used to revolve around drinking and drugs, focusing primarily on living for the weekends. However, he stated that it wasn’t like that anymore. He is a family man who prioritised hard work and lived and breathed recovery. He emphasised the importance of recovery in his life, stating that without it, he would have nothing.

Jenny Langley is a passionate and positive-minded peer support worker, mother of three, and former Marketing professional who spent several months in hospital in 2021, confronting the damage caused by years of grief, trauma and depression. Determined to turn things around she embarked on a journey of personal growth, healing, self-compassion and resilience. Through regular psychology sessions, Compassion-Focused Therapy (CFT), Cognitive-Behavioural Therapy (CBT), Wellness Recovery Action Planning (WRAP) and peer support, she transformed her mental health. Jenny recently obtained her Certificate in Peer Support Working in Mental Health from DCU, solidifying her commitment to helping others self-determine their mental health journeys. Believing in the transformative power of sharing stories, she hopes to empower others to embrace resilience and find hope in their own narratives.

James (Jimmy) Lewis is the Founder of Pleaze. A mobile app that is dedicated to tackling issues with mental health and addiction with innovative approaches. After struggling with mental health and addiction issues for the majority of his life, his mission is to help as many as possible.

Michaela Mc Daid is an Ecotherapy Facilitator, Writer and Speaker from the Northwest of Ireland. Ecotherapy is where her personal and professional life met and everything fell into place. As an avid diarist since childhood, Michaela doesn’t know how to be in this world without writing about being in this world and is currently writing her memoir. As for the ‘speaking’ part, chatting comes very naturally to this middle-aged Irish woman.

L. McGowan is currently employed as a family support practitioner in Ireland. She is a graduate of Atlantic Technological University, Mayo where she completed a degree in Social Care. She also completed a Certificate in Peer Support Practice. Her area of interest is trauma and she is currently studying for a Professional Doctorate in Health, Education, and Society where she intends to explore the topic of gender-based violence. She is a dedicated volunteer with much experience in various charities and organisations. Her credentials, work experience and volunteering show her unwavering dedication to the health and social care areas.

Paul is a 58-year-old father of four and is in recovery from substance abuse. He is at present finishing an Access year at University College Dublin as a mature student and will start a Degree course in Sociology and Social Policy in the autumn. His previous career was in the hospitality sector as Head Chef in many Dublin establishments. He has now returned to studies and has a particular interest in early education and prevention through community endeavours and education for young people regarding addiction issues. He has written of his own battle with addiction here and its subsequent effect on his mental health in a frank and open manner.

Amy Ryan is living in Cork City. She enjoys shopping, drinking coffee and people-watching in ‘town’. She is often found chatting on the phone with her friends and sister, travelling to new places and coming up with new ideas.

Shay works as an Engineer and, previous to this, a creative carpenter with a keen eye for detail. Having grown up as a lonely child until his teenage years in Kilkenny, he was involved in numerous sports as an active child. He is passionate about music and running which keeps his body and mind active and healthy and is generally an active person. He is a caring person who is always there to offer support and help others. His goal in life is to be an inspirational father figure, support his family and keep pounding the pavement until his body gives in and then complains about it.

The Eternal Student (Chapter 9) is a person no better or no worse than anyone else.

Acknowledgements

Michael John Norton

This book is the result of Ollie’s and my passion for recovery. I am, at the time of writing, nine years in recovery from mental health challenges. I have achieved many things in these nine years. Including this book. However, none of this would have been possible without the support of certain people in my life. Firstly, to my Mum – Mary Ann and my Dad – John, you both have supported me throughout my life in many different ways. You continue to be a source of knowledge, a source of love and support to this day despite the challenges life brings. For all your support over the years and for the years to come, I want to thank you dearly. To my brothers Paddy and Eddie, I know I said this before but my ability to reach the stars academically would not be possible without you both taking the slack off me and working hard on the farm. For taking on that extra burden, thank you. To Louise, my sister-in-law. The final few months of making this book must have been some of the hardest times in our family’s life. For supporting Mam and Paddy in particular, thank you. To Sophie and Cody – my godchildren, this book is dedicated to you. I hope you never have to face anything like what the contributors faced in this book, but if you do, I hope this book can provide some comfort. For being the light of my life, the reason I breathe, and the motivator to achieve all I can achieve in life I thank you and I love you both dearly.

To my friends, Linda and Dwayne, once again, I have completed another book and yet again this has resulted in less time being spent with you doing the stuff we love. For understanding why I need to do this, and for making that sacrifice and being there, I thank you. To my co-editor Ollie, thank you for being my friend, for being my sounding board every time something goes wrong and for your enthusiasm across this journey, I thank you and I feel blessed to call you my friend.

Finally, but by no means least, thank you to the contributors of this edited text. Without your generosity in sharing your experiences with us, this book would have never been possible. Your stories are awe-inspiring and hopeful and I hope the reader gets as much inspiration from your narratives as Ollie and I did over the course of the making of this text. Finally, to the audience of this book, I hope this book is not only a source of information but also a source of hope to you and your family and proof that with hard work and dedication, recovery is possible.

Oliver John Cullen

The idea of writing this book came from a conversation between two peers. That is myself and my co-editor Michael. It was born from an idea that recovery is not only evident in our day-to-day interactions, but it is absolutely attainable, even when it seems insurmountable. Myself and Michael have achieved many things against the odds, and we felt like it was time to show others through publication that recovery is difficult, it’s harrowing, it can make or break you, it’s often born out of trauma, existential crisis and can really bring us to the brink of our semblance of self. However, once the recovery path begins to take on a life of its own, we achieve many, many things, peace, love, harmony, balance, intuition, identity, purpose, honesty, integrity, a life of your own choosing and so much more.

Recovery is an exploratory journey of self-discovery, that has many branching paths, some paths don’t have the answer, but that’s ok! We learn on this journey that nothing is linear and nothing is wasted. To not try is to miss the opportunity to discover what ‘may’ or ‘may not’ work for you. I personally have lifted every rock, looked through every crack and stepped forward when I felt it was right, paused, reflected and looked for guidance and support when I wasn’t as sure.

The ironic thing is that during the writing of this book, I wasn’t so sure. I struggled and I lost hope. I was admitted to the psychiatric services for 10 weeks, but I needed that additional support. I needed that clinical help. I pushed many people away, and I lost hope, but others did not. They kept in contact; they told me that ‘it was ok not to be ok’ even when my ego told me that I don’t need anyone to help me. When I finally relinquished the responsibility of recovering on my own, I started to see that I too had lost my identity, I had lost my passion for life through disconnection and emotional turmoil. Then through that re-connection, I became re-enchanted and invigorated with life. Consequently, I have grown and I am humbled by my experiences and the people who continue in silence to grow with me.

To all of those people, I want to say thanks, thank you for telling me, I am enough, I am valued, I am loved. And most of all I couldn’t have done this without you.

To Demelza and Olivia, you are the light and hope that I carry inside of me, without you my life would be devoid of all meaning. To my wonderful mother Triona, you showed me how to be kind, to care, allowed me to express my feelings without judgement, and loved me as I believe no other mother could love a son. I love you with all my heart. To my father Ollie Snr, you showed me how to live with dignity and self-respect, and silently supported me all my life. I want you to know I am eternally grateful, and I love you and I hope I make you proud. To my sister Corinna, thank you for looking out for me in my formative years, never questioning my fear of the dark, embracing me and telling me, everything was going to be ok. My love for you is never-ending…

To my co-editor Michael, you hold the same values as I do, you have the same passion and in-depth personal experiences as me, you supported me so much with this book, giving me the time and space, I needed to heal for those months in hospital, and the work we did on the book when you came to visit kept me focused on my recovery, thank you.

To my friends, Karly, Murf and Woodsy, I love you all dearly and thank you for being like brothers to me. To my friend Agatha, who gave me the opportunity to be heard, to be seen and her vigilance for my wellbeing has kept me safe many, many times.

To my team in St Pats, you gave me encouragement, support, empathy and clinic expertise and are an integral part of my recovery. Thank you.

To my additional friends whom I don’t have the word count to thank personally! I want you to know that you gave me respect and that’s all I needed, and I value you as I value my closest allies.

To the friends/family who have left this mortal coil. I think about you every day, and you are forever in my heart.

And would also like to thank the contributors to the book, your courage and strength have resonated with me on such a deep level, that can’t be explained in any textbook. I truly am humbled that you have put your voice forward to support the premise of this book and to inspire others that are on or contemplating their own journey of recovery.