Index
Susan J. Sample
(University of Utah, USA)
Voices of Teenage Transplant Survivors
ISBN: 978-1-80043-519-3, eISBN: 978-1-80043-518-6
Publication date: 3 March 2021
This content is currently only available as a PDF
Citation
Sample, S.J. (2021), "Index", Voices of Teenage Transplant Survivors, Emerald Publishing Limited, Leeds, pp. 125-127. https://doi.org/10.1108/978-1-80043-518-620211028
Publisher
:Emerald Publishing Limited
Copyright © 2021 Susan J. Sample. Published under exclusive licence by Emerald Publishing Limited
INDEX
A Table in the Wilderness (Young-Lee)
, 59
Adolescents and Young Adults (AYA)
, 1–2
Alice Walker
, 68
Anti-narrative
, 53
Arthur W. Frank
, 4–5, 7–8, 53, 64
Arts and Public Health
, 41
Biopsies
, 43–45
Bodies
, 3, 4, 5, 7, 10, 14, 23, 69, 81–84, 116
Bolton, Gillie
, 6
Brewer, Ken
, 89
Buried Self
, 31–32
Camp Kostopulos
, x, 4, 29, 108, 115
Capture the Flag (game)
, 17
Challenge America Project
, 2–4
Chaos narrative
, 53
Childhood nicknames
, 13–15
Clifton, Lucille
, 89
Co-morbidity
, 64–65
Color Purple, The (Alice Walker)
, 68
Confidence
, 52, 75, 118
Courage
, 37, 75, 88, 109, 113, 119
Creative writing
, 4–5, 56
Creativity
, 4, 7, 17
Death
, 2, 39–40, 47, 90, 99–101, 108
Depression
, 7, 68
Dialysis
, 10, 35, 47–49, 64, 65, 70, 83–84, 94, 97, 115, 118–119
Dieticians
, 93
Diets
, 35, 71
Disability studies
, 1, 91
Donald J. Hall
, 53
Dreams
, 26, 93–97, 99–101
Driving
, 25–27
Emotion
, 2, 7, 11, 30, 32, 40, 48, 52–53, 64, 68, 84, 90, 96, 101, 110
Erving Goffman
, 89–90
Expressive writing
, 52–53
Fear
, 36, 90, 94, 96, 99, 101, 108
Generosity
, 107–108
Gratitude
, 3, 96–97
Gregory Orr
, 5, 29, 32, 68, 89
Healing
, 1, 3, 26, 53, 62, 75, 107–108, 119
Healing Art: A Doctor’s Black Bag of Poetry, The (Campo)
, 1, 7, 44, 49, 62, 100
Hirsh, Edward
, 52
Hospital administrators
, 93
I’m in Charge of Celebrations (Baylor)
, 55
Identity
, 1–2, 8, 11, 75, 118
Illness
, 1–2, 10, 14–16, 44, 49, 53, 61, 64, 93, 117–118, 119
Independence
, 26, 64
Intermountain Donor Services (IDS)
, 109–110
Jack Collom
, 4
James Pennebaker
, 7, 52–53
Joan Gardner
, 18
Language
, 4, 54, 57, 84, 109, 119
Lerita M. Coleman Brown
, 90–91
Li Young-Lee
, 59
Library Square
, 111
Life expectancy
, 100, 113–114
Local anesthesia
, 44–45
Locker rooms
, 81–82, 89
Lockers
, 81
Louise DeSalvo
, 7, 19, 56–57, 68, 75, 100–101
Marilyn Chandler McEntyre
, 1
Measuring pain
, 47
Medical experiences
, 69–70
Medical students
, x, 3–4, 41, 44, 93
Medical trainees
, 2–3
“Medically complex” pediatric patients
, 11
Metaphors
, 5–6, 23–24, 49
Miracle-like
, 118
definition
, 3, 18
chapbook
, 18, 103, 110
Mortality
, 4, 8, 27, 64–65, 90, 118
Mothers
, 59–60
Music
, 24, 78
Names
, 13
Narrative
, 1
chaos narrative
, 53
illness narrative
, 1, 3, 6–7, 113
restitution narrative
, 63–64
Narrative ethics
, 7–8
Narrative Medicine: Honoring the Stories of Illness (Charon)
, 7–8, 45, 93
National Endowment for the Arts
, 3, 10, 51
National Kidney Foundation of Utah and Idaho
, 2–4, 9–10, 108
Normal
, 3–4, 14, 35, 64–66, 73, 95–96
Nouwen, Henri J. M.
, 75
Nurses
, 44, 93
Old Cardiology Dream, The (Ron Charach)
, 94–95
Organ transplant
, x, 2–4, 10, 64, 90, 111, 113–114
Pamela Grant
, 2–3, 35
Patient Voices: Illness from Inside Out (McEntyre)
, 1
Personal lyric
, 5, 7–8, 31–32
Physicians
, 1, 3, 4–5, 11, 35, 45, 64, 65, 68, 93
Poetry
, 1, 3, 4, 7, 9, 17, 18, 49, 54, 100, 107–108, 119
alliteration
, 55
concrete poem
, 74
definition
, 4
list poem
, 63–64
lyric poem
, 29, 52, 54
personal lyric
, 5, 7–8, 31–32, 68
revision
, 6, 84
sound
, 5–6, 18
transformative lyric
, 5
word choice
, 57
Poetry as Survival (Orr)
, 5, 29, 32, 68, 89
Poetry Everywhere (Collom and Noethe)
, 4
Posttransplant life
, x, 2–3, 10, 25, 40
Prednisone
, 10–11
Primary Children’s Hospital
, 39, 44, 61
Prison metaphor
, 48
Psychosocial needs
, 1–2
Rafael Campo
, 1, 7, 44, 49, 62, 100
Responsibility
, 27, 68, 96
social responsibility
, 8
Restitution narrative
, 63–64
Rita Charon
, 7, 45, 93
Robert Hass
, 5–6
Rosanna Warren
, 6
Rosemary Garland-Thomson
, 91
Runaway with Words (Gardner)
, 18
Salt Lake City
, 2–3, 61, 77, 103, 111–112, 114–115
Hilton Hotel
, 110
Scars
, 22, 66, 75, 85–90, 103, 108
Self-image
, 74
Sexuality
, 23–24
Social work
, 2, 6, 10–11, 19, 35, 39, 47, 93, 115, 117, 119
Song lyrics
, 78
Sports
, 83–84
Stigma
, 89–91
Stigmatization
, 90–91
Suffering
, 7, 45, 54, 75, 91, 93, 95, 116
Surgery
, 3, 9–11, 13–16, 40, 44, 45, 64–65, 90, 96, 110–111, 113, 114, 115
Survival
, 10, 29–30, 113, 116
Survivor guilt
, 19
Teaching moments
, 5–6
Teens
, 23–24, 26, 37
with chronic illnesses
, 2, 10, 44
That Intern Dream (Jack Coulehan)
, 94–95
Therapeutic value of poetry
, 6, 107–108
Time
, 53, 60, 65, 111, 114
Today Show, The
, 10
Transformative lyric
, 5
Transplants
, 3, 10–11, 14, 19, 26, 30, 35, 48, 61, 64, 85, 89, 100, 111, 113
Uintah Basin Standard
, 108
University of Utah Health
, 35
University of Utah Hospital
, 2–3
University of Utah student union
, 103
Utah Arts Council
, 2–4, 10, 51
Visual activism
, 91
Waiting room
, 63–64
Wounded Storyteller: Body, Illness, and Ethics, The (Frank)
, 4–5, 7–8, 53, 64
Writing as a Way of Healing: How Telling Our Stories Transforms Our Lives (DeSalvo)
, 7, 19, 56–57, 68, 75, 100
Youth Transplant Kamp (YTK)
, 2–4, 6, 10, 29–30, 35, 49, 57, 85, 89, 103, 108, 112
application to
, 35
- Prelims
- Introduction
- 1 Hello, My Name Is …
- 2 Illness and the Ways It Names Us
- 3 Miracle-Like
- 4 Teens Just Want to Have Fun
- 5 The Drive for Independence
- 6 On the Edge
- 7 Marcus
- 8 Echoes
- 9 Biopsies: Not Benign Procedures
- 10 The Truth about Metaphors
- 11 Yeah Right, Poetry
- 12 Celebration
- 13 For Those Who Help Us Survive
- 14 Waiting Room
- 15 Utterly Alone
- 16 Lost and Found
- 17 Mirror, Mirror on the Wall
- 18 Reflection
- 19 Boys and Their Bodies
- 20 Our Scars, Our Selves
- 21 Mark This Beautiful
- 22 The Transplant Dream
- 23 Nightmares
- 24 Amber W.
- 25 Dana's Legacy
- 26 Groundbreaking
- Epilogue
- Afterword
- References
- Index